#marijune

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Mari is on the mend after her surgery this morning and doing well. She's very, sleepy and pretty cranky, but we're so proud of how well she did. Looking forward to the future and brighter days ahead thanks to her amazing neurosurgeon, nursing staff and team of doctors! Way to go, Junebug! 🥊

Mari will undergo surgery tomorrow morning to have her VP shunt inserted. Her time in the NICU and grappling with the reality of her hydrocephalus is the most difficult thing we've ever experienced in our lives together and has stretched us to the limits emotionally. We know this surgery is one more step in getting her closer to coming home. We're pulling for our girl.

Our sweet baby girl will undergo another brain surgery very soon. She is to have a vp shunt installed, which will help regulate the fluid buildup in her ventricles due to her hydrocephalus. This condition is currently without a cure, and can only be treated by surgical intervention. We were hoping she would be eligible for a newer, less intensive alternative surgery, but after receiving a second opinion from Boston Childrens, the shunt was decided to be her only option. Our hearts are heavy with sadness and fear at this prospect.
.
I'm hopeful, that this treatment, although scary and definitely not without risk, will make her life that much more comfortable and better all around. We hope she'll grow to be just as bright and capable as any other kid, just with the addition of a little extra hardware in her brain. Happily, aside from her hydrocephalus, she is doing so great and it has been truly incredible to watch her grow and become such a little fighter with sass and personality all her own. We ask you to please keep her in your thoughts and prayers during this difficult time.

Today brought so much joy to @cancorner and I. Not only did we find out that Mari's condition has stabilized for the time being (a huge relief), but we got to see her sweet face unobstructed by wires and tubes for a short time! Look at how big she's getting too!

Couldn't be more happy today

Our little Mari is two months old today and looking gorgeous as ever thanks to styling from mommy! I really can't believe how quickly she's growing and chunking up, we love her so much 🍓

MOST RECENT

In addition to being a truly kind and generous person, @danielyates is a man of many talents; author, artist and mage being only a few of these. His wonderful daily experimental photo series, 'Occult Project 365', has been an absolute joy to follow as it has unfolded across the wheel of the year. 🌀
I was so very moved when Daniel asked if he could create a special piece to celebrate our daughter, Mari. I wasn't expecting it to become part of this phenomenal series and I'm honored! With just a few words exchanged between us concerning one of the origins of Mari's name and the auspicious symbols and occurrences that surrounded the eve of her birth, he created this beautifully evocative image, virtually out of the aether: Day 226 "Mari, Goddess of the Rain". All thanks and praise is due to you, brother!

Couldn't be more happy today

Mari is on the mend after her surgery this morning and doing well. She's very, sleepy and pretty cranky, but we're so proud of how well she did. Looking forward to the future and brighter days ahead thanks to her amazing neurosurgeon, nursing staff and team of doctors! Way to go, Junebug! 🥊

Mari will undergo surgery tomorrow morning to have her VP shunt inserted. Her time in the NICU and grappling with the reality of her hydrocephalus is the most difficult thing we've ever experienced in our lives together and has stretched us to the limits emotionally. We know this surgery is one more step in getting her closer to coming home. We're pulling for our girl.

Joyriding in her new baby swing 👀

Our sweet baby girl will undergo another brain surgery very soon. She is to have a vp shunt installed, which will help regulate the fluid buildup in her ventricles due to her hydrocephalus. This condition is currently without a cure, and can only be treated by surgical intervention. We were hoping she would be eligible for a newer, less intensive alternative surgery, but after receiving a second opinion from Boston Childrens, the shunt was decided to be her only option. Our hearts are heavy with sadness and fear at this prospect.
.
I'm hopeful, that this treatment, although scary and definitely not without risk, will make her life that much more comfortable and better all around. We hope she'll grow to be just as bright and capable as any other kid, just with the addition of a little extra hardware in her brain. Happily, aside from her hydrocephalus, she is doing so great and it has been truly incredible to watch her grow and become such a little fighter with sass and personality all her own. We ask you to please keep her in your thoughts and prayers during this difficult time.

Our little Mari is two months old today and looking gorgeous as ever thanks to styling from mommy! I really can't believe how quickly she's growing and chunking up, we love her so much 🍓

Hi, dad!

Today brought so much joy to @cancorner and I. Not only did we find out that Mari's condition has stabilized for the time being (a huge relief), but we got to see her sweet face unobstructed by wires and tubes for a short time! Look at how big she's getting too!

A beautiful shard of rare Russian Tourmaline given to us by good friends @ljwhit3 and @lab_cat_kavy as a healing gift for our little Mari June. You guys are the greatest!

💐
#결기 #결혼기념일 #선물#꽃다발 #엎드려절받기 🙇 #결혼5주년 이제 #결혼6년차 만난지 8년차 선물은 몇년만에.. 작년에 만들어준다던 반지갑은 소식이 없다는 전설이.. 어쨌든 내품엔 #가방#꽃 이 있다 #내가승리자 #가죽장인 #남편 #가죽쟁이 이제 돈만 벌어오면 완벽해 #속초가죽공방 #가죽공방 #가죽공예 #leathercraft #leathergoods #MariJune #속초 #handmade #핸드메이드 #수공예 #手工藝 #handycraft #맞춤제작 #가죽소품 #수제작품 #소가죽

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