#marianojonell

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Auntie @taniatoro87 came to visit with Rose and Issy. Thank you for my haircut ๐Ÿ’‡โ€โ™‚๏ธ! Love you #marianojonell .......
Grateful he did so well with his stats and maintained great levels off his BiPAP. #alwaysafighter

I "mustache" you a question?

Will you buy a shirt to help me raise funds for Rett Syndrome Org?
Click link and get one now.
Last day to order is TODAY!!! https://www.customink.com/fundraising/happybdaymecp2?share=6701499358856689&utm_source=facebook&utm_medium=social&utm_content=happybdaymecp2&utm_campaign=desktop-post-launch-v2&ref=facebook_social_desktop-post-launch-v2&side=front&type=1&zoom=false
#marianojonell #curerett #curemecp2 #seattlechildrenshospital @rettsyndromeorg

Sleeping like a boss #marianojonell

Co-Parenting at its finest.

People can formulate opinions and believe they know what is best for our son.
It's hard when life situations become complex.

Our main goal is to give Mariano the best quality of life, show him how much he is loved and to make decisions for him that help him be comfortable in life.

#marianojonell
#teamNano

@ahhhnuh73 @nellyrosa7314

#bromance they love each other so much!!! #marianojonell #jjandnanoboy

Precious hands
Cute little feet
Soft skin like a baby
A true warrior to meet

#marianojonell #thegreatestwasLOVE

The Force is strong with this one... #marianojonell #bb8 @seattlechildrens @starwars

MOST RECENT

Although there isn't much about boys, seeing this warms my heart! #awarenessiskey #curerett #curemecp2 #marianojonell @rettsyndromeorg @seattlechildrens

Auntie @taniatoro87 came to visit with Rose and Issy. Thank you for my haircut ๐Ÿ’‡โ€โ™‚๏ธ! Love you #marianojonell .......
Grateful he did so well with his stats and maintained great levels off his BiPAP. #alwaysafighter

Sleeping like a boss #marianojonell

The Force is strong with this one... #marianojonell #bb8 @seattlechildrens @starwars

I "mustache" you a question?

Will you buy a shirt to help me raise funds for Rett Syndrome Org?
Click link and get one now.
Last day to order is TODAY!!! https://www.customink.com/fundraising/happybdaymecp2?share=6701499358856689&utm_source=facebook&utm_medium=social&utm_content=happybdaymecp2&utm_campaign=desktop-post-launch-v2&ref=facebook_social_desktop-post-launch-v2&side=front&type=1&zoom=false
#marianojonell #curerett #curemecp2 #seattlechildrenshospital @rettsyndromeorg

Day 75 at #seattlechildrenshospital
I'm 3 for 3.
Been in ICU 3 times and have came out of it.
Take that Rett! #marianojonell #curemecp2 #curerett #metgot #strong #warrior #boywithrett

Lil man is back in ICU, not feeling too well. Please keep him in your thoughts and prayers. #marianojonell

Order today! --> link in bio

#curerett #curemecp2 #marianojonell

#bromance they love each other so much!!! #marianojonell #jjandnanoboy

Thank you #teamLuz my Rett sister and family for my robot pjs! #marianojonell #familyisforever #mecp2 #curerett

Happy Birthday America!๐Ÿ‡บ๐Ÿ‡ธ #marianojonell

Precious hands
Cute little feet
Soft skin like a baby
A true warrior to meet

#marianojonell #thegreatestwasLOVE

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