#marianojonell

650 posts

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I'm almost as tall as mommy #marianojonell #shesshort #almost3yo

Waiting to be called back.
#marianojonell #metgotboy
Please say a prayer or two for our little man. #godisgood

Daddies here!
#marianojonell

Resting well after a better than expected surgery! #thank you for the love and prayers! God is so good! #marianojonell

Got a new custom fitted wheel chair today! It's so much more comfortable!
Can you see the difference?
#marianojonell

Check in complete.
Vitals taken.
Awaiting surgery team to call him back.
He's asleep and stats look great.
BB8 and his favorite blanket will be with him for comfort. Gods Grace with keep him safe and in good hands. 🙏💜
#marianojonell
#curerett
#cureMECP2
#prayersfornano

Uncle Chuckie stopped by today! 😁. Thank u!
#marianojonell

EEG in progress... #marianojonell
#curemecp2

Co-Parenting at its finest.

People can formulate opinions and believe they know what is best for our son.
It's hard when life situations become complex.

Our main goal is to give Mariano the best quality of life, show him how much he is loved and to make decisions for him that help him be comfortable in life.

#marianojonell
#teamNano

@ahhhnuh73 @nellyrosa7314

MOST RECENT

Toughest, bravest, most loving Yankee fan! ⚾️ #marianojonell #yankees #pinstripepride #chasefor28 #pitcherpose #sandmanjr #prayersfornano

Taken back for a procedure... hopefully we will get answers.
#prayersfornano
#marianojonell

Co-Parenting at its finest.

People can formulate opinions and believe they know what is best for our son.
It's hard when life situations become complex.

Our main goal is to give Mariano the best quality of life, show him how much he is loved and to make decisions for him that help him be comfortable in life.

#marianojonell
#teamNano

@ahhhnuh73 @nellyrosa7314

Doing very well in recovery. Moving out of ICU to the general floor. Sleeping good due to eventful early am. But it's to be expected as it is his norm.
Thankful for continued prayers.
#marianojonell

Resting well after a better than expected surgery! #thank you for the love and prayers! God is so good! #marianojonell

Check in complete.
Vitals taken.
Awaiting surgery team to call him back.
He's asleep and stats look great.
BB8 and his favorite blanket will be with him for comfort. Gods Grace with keep him safe and in good hands. 🙏💜
#marianojonell
#curerett
#cureMECP2
#prayersfornano

Waiting to be called back.
#marianojonell #metgotboy
Please say a prayer or two for our little man. #godisgood

Daddies here!
#marianojonell

Got a new custom fitted wheel chair today! It's so much more comfortable!
Can you see the difference?
#marianojonell

I'm almost as tall as mommy #marianojonell #shesshort #almost3yo

Coloring some Easter eggs 🐣 and hopefully get to visit the Easter Bunny 🐰 tomorrow
#marianojonell

Sweet boy is headed home ❤️ #marianojonell

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