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#marianojonell

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Precious hands
Cute little feet
Soft skin like a baby
A true warrior to meet

#marianojonell #thegreatestwasLOVE

Happy Father's Day! From #marianojonell

Uncle Chuckie stopped by today! 😁. Thank u!
#marianojonell

EEG in progress... #marianojonell
#curemecp2

Great news! We get to go home today!
#marianojonell

In need of a haircut ✂️ but great thing is I'm out of the ICU and am now on the regular floor. On my way to getting out of this joint. The hospital staff had been amazing and so thankful for the love and prayers. God is good yal! #marianojonell

Instead of buying Mariano a gift we ask to please buy a shirt with all proceeds going to Rettsyndrome.org. --> link in bio
#marianojonell #happy3rdbirthdayNano
#cureRETT

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Precious hands
Cute little feet
Soft skin like a baby
A true warrior to meet

#marianojonell #thegreatestwasLOVE

Instead of buying Mariano a gift we ask to please buy a shirt with all proceeds going to Rettsyndrome.org. --> link in bio
#marianojonell #happy3rdbirthdayNano
#cureRETT

In need of a haircut ✂️ but great thing is I'm out of the ICU and am now on the regular floor. On my way to getting out of this joint. The hospital staff had been amazing and so thankful for the love and prayers. God is good yal! #marianojonell

Happy Father's Day! From #marianojonell

Got to wear my shirt my grandma June got me from Rome! And I am so tough I did not need my machcine or oxygen for a whole hour!!! 💪 #takethatrett #curemecp2 #prayersfornano
#marianojonell #gladiator #warrior #metgot #fuerte

Toughest, bravest, most loving Yankee fan! ⚾️ #marianojonell #yankees #pinstripepride #chasefor28 #pitcherpose #sandmanjr #prayersfornano

Taken back for a procedure... hopefully we will get answers.
#prayersfornano
#marianojonell

Co-Parenting at its finest.

People can formulate opinions and believe they know what is best for our son.
It's hard when life situations become complex.

Our main goal is to give Mariano the best quality of life, show him how much he is loved and to make decisions for him that help him be comfortable in life.

#marianojonell
#teamNano

@ahhhnuh73 @nellyrosa7314

Doing very well in recovery. Moving out of ICU to the general floor. Sleeping good due to eventful early am. But it's to be expected as it is his norm.
Thankful for continued prayers.
#marianojonell

Resting well after a better than expected surgery! #thank you for the love and prayers! God is so good! #marianojonell

Check in complete.
Vitals taken.
Awaiting surgery team to call him back.
He's asleep and stats look great.
BB8 and his favorite blanket will be with him for comfort. Gods Grace with keep him safe and in good hands. 🙏💜
#marianojonell
#curerett
#cureMECP2
#prayersfornano

Waiting to be called back.
#marianojonell #metgotboy
Please say a prayer or two for our little man. #godisgood

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