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"The great thing about going to the Global Lyme Alliance benefit last year was seeing weโ€™re not alone. People talk about their health struggles and what the family goes through..." @thisisrobthomas Read the article, link in bio โœจ#GLAgala17 #lymedisease #robthomas #globallymealliance #entertainmenttonight #lymediseaseawareness

Started off my birthday celebrations early with @sarahbroadfield1 ๐ŸŽ‰๐ŸŽŠ We went to a really cute authentic Italian restaurant in Birmingham which did yummy gluten free pasta ๐Ÿ˜โค๏ธ Today I'm resting up because tomorrow I'm going for a meal with some of my friends for my birthday ๐Ÿ™‹๐Ÿผ๐Ÿ’๐Ÿผ I'm eagerly anticipating lots of test results from Breakspear - on Wednesday I had blood taken for general Haemotology & Biochemistry tests, tests to measure my lithium levels since the dose I'm on was increased, tests to see if there are still any toxins attached to my DNA & tests to see if there are any toxins blocking my mitochondria after the detox programme I did in August! Fingers crossed the results will all be positive news ๐Ÿ˜Š

โค๏ธTODAY IS THE DAY!! My book is officially on sale, Check out my interview with @entertainmenttonight tonight! I'll be talking with @keltieknight about my book, BELIEVE ME, and my battle with Lyme Disease...... #LymeDiseaseAwareness #WeMustFindACure #Affordable4All

Slowly progressing. I need to eat more. My diet is nowhere where it needs to be. Feeling better than ever before. #womenwholift #backandlats #eatandgrow #refusetofail #motivatedmindset #lymediseaseawareness #stillwontstopme

Who wants a Lyme Warrior wristband? #seelinkinbio
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I just got 150 more in -
Supplies are limited so if you did not get one last time, make sure to click the link in our bio and submit your address!

2018 is 3 months away... let that sink in. How many of you said "I'm going to get in the best shape this year" or "I'm going after that job I've always wanted " or "This year I'm starting __ habit"
How many of you actually did that? How many actually worked really hard for something all year and are still working for it? The thing is, actions speak louder than words. We are all guilty of saying things and never actually doing them, but is this the case for most things in your life? Instead of starting your new habit or goal in 2018 START NOW. If you continue to say I'll start on Monday or next year that means you are to lazy to do it. People who succeed start right away. They don't let life events constantly hinder them from progress. Get after your goals, and crush them ๐Ÿ‘Š๐Ÿผ#Goalcrusher

6 months of clinical with a PICC line โœ… It took me two months longer to finish school than the rest of my class, countless IV meds, 60 pills per day, injections, and more but it was all worth it. I'm DONE. Thank you to everyone who's helped me along the way and to all of my Lyme warriors out there who didn't let me quit ๐Ÿ’š๐Ÿ’ช๐Ÿผ Officially Doctor of Physical Therapy
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Only novel I ever want on my bed tray: @yolanda.hadid 's Believe Me. #lymedisease #lymediseaseawareness #myfavoriteperson

Klinghartd Academy. ART-12&3. Retreat week. So fortunate to learn always. @klinghardtacademy #grateful #neverstopexploring #alwayslearnjngalwaysgrowing #lymediseaseawareness

MOST RECENT

Pre and post pictures of a minor oral procedure I had done. Check out that mellow expression on the right. Thank God for drugs. .
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Full disclosure, I'm terrified of anyone in the dental business, one bad experience was all it took. Luckily today by the time I hit the chair, I might have been sweating profusely, but all my meds had kicked in, and I was mellow, relatively pain free and my nausea was under wraps. .
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Post procedure I SnapChatted some friends while I was infusing and was feeling good. Fast forward 2 hours and my story was dramatically different, ALL my meds wore off at the same time. But here I am, looking back at my anxiety with a sense of humor. I was so worked up for what? A relatively painless and quick procedure done by one of the nicest guys I know. I'm curious to know if I'll still feel the same in 48 hours when my swelling peaks, but today I walked out of that office knowing that I have one less doctor to be afraid of, and that is an awesome feeling.
#babysteps #everymilestonecounts #theystoleapieceofmygum #andiletthem #ithinkmyfilehasaflagonit #laughinggasforthisone

You may not control all the events that happen to you, but you can decide not to be reduced by them. Like having to visit the medical center on vacation... #CouldAlwaysBeWorse #MyHealthJourney #SpoonieLife

This is an LDA (low dose antigen) injection. It's similar to an allergy shot. I get one every 7 weeks for inhalants/allergies and foods to help my system calm down and not overreact to these things. Then my immune system can focus on fighting the Lyme instead
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I can't say I've noticed if it's helped :/
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Who else has or is doing LDA or LDI? What's been your experience? Helpful?
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#allergies #spoonie #lyme #ldi #lymie #chronicbadass #chronicillness #chroniclymedisease #chronicillnesswarrior #lymehealing #lymedisease #lymediseasewarrior #invisibleillness #chroniclymediseasewarrior #holistichealing #holistichealth #lymetreatment #lymedontkillmyvibe #fancynotsick #lymediseaseawareness #alternativehealing #cfs #fucklyme #chronicfatiguesyndrome #tickawareness #foodallergies #adrenalfatigue #babesia #lda #bartonella

It wasn't until I created my instagram for Lyme, that I realized weight-loss and the inability to eat (from gut/flora problems created by antibiotics, organ problems and problems absorbing nutrition caused by presence of borrelia bacteria, nausea from all of the meds, ETC) can become HUGE problems for patients w Late-stage Lyme. While in the hospital, I realized I was quickly losing weight. This was because of the hyperthermia treatments, and the fact I wasn't allowed to eat the day before or the day of treatment, and then was too nauseous to eat normally for the remaining days (also the hospital food was not too nice on the nausea). Since I got home, I've gotten comments from concerned friends about how skinny I've become. It turns out I've lost 15 pounds from two weeks of treatment. A guy (probably out of concern) told me I am now a "tiny girl". I'm 6ft1, so the idea of being "tiny" has always been novel to me. But the truth is, I don't really want to be "tiny", because I also feel brittle. I don't like it when my ribs and hip bones have no protection, and when my muscles don't feel strong from lying down for two weeks. When I was 12/13 years old, and probably going through a flare w Lyme (my heart symptoms popped up 4 years after the initial infection), I was made fun of for being so "skeletal". A random doctor told me I had a "lack of nutrition disorder" when in reality, I'm sure now it was just the borrelia bacteria taking my nutrition and problems occurring w internal organs. As someone who used to dance (and also as an observer of patriarchy ๐Ÿคท๐Ÿปโ€โ™€๏ธ) I know that this skeletal look can be appealing to girls. When I am this fragile I feel light, but I feel weak. Dancers are actually some of the most physically strong people in the world. I want to be STRONG in my body again. I want to eat healthy fats and lots of protein (did I mention butter) and when I'm feeling up to it, be able to dance a little again. AND I want my BOOTY back๐Ÿ‘๐Ÿ˜ฟ Also, to those who shame women for being "too fat" or "too thin", shame on you. What's important is how STRONG, HEALTHY and GROUNDED someone feels in their own body๐Ÿ’ก

Happy First Day of Fall! Consider The Squad for your tick protection needs this season. ๐Ÿ‚ ๐Ÿ

Who wants a Lyme Warrior wristband? #seelinkinbio
-
I just got 150 more in -
Supplies are limited so if you did not get one last time, make sure to click the link in our bio and submit your address!

"The great thing about going to the Global Lyme Alliance benefit last year was seeing weโ€™re not alone. People talk about their health struggles and what the family goes through..." @thisisrobthomas Read the article, link in bio โœจ#GLAgala17 #lymedisease #robthomas #globallymealliance #entertainmenttonight #lymediseaseawareness

2018 is 3 months away... let that sink in. How many of you said "I'm going to get in the best shape this year" or "I'm going after that job I've always wanted " or "This year I'm starting __ habit"
How many of you actually did that? How many actually worked really hard for something all year and are still working for it? The thing is, actions speak louder than words. We are all guilty of saying things and never actually doing them, but is this the case for most things in your life? Instead of starting your new habit or goal in 2018 START NOW. If you continue to say I'll start on Monday or next year that means you are to lazy to do it. People who succeed start right away. They don't let life events constantly hinder them from progress. Get after your goals, and crush them ๐Ÿ‘Š๐Ÿผ#Goalcrusher

My heart will never be the same because Lyme is to blame, Life through your ears after all these years, my Bandit Boo, I will always love you, Down different paths we go, we must . . . But what a Beautiful Dream it was #horse #horses #evencowgirlsgettheblues #cowgirl #cowgirlspirit #song #countrygirl #country #nashville #beautifuldream #lovemyhorse #lymewarrior #lymediseaseawareness #lymedisease #western #bohocowgirl

Raise your Paw if you are protected from biting Ticks this Fall. Bugga Bandanas - offering style and protection all in one beautiful bandana! www.BuggaBandanas.com
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#buggabandanas #dailydog #berner #dogwalking #dog #doglovers #ilovedogs #tick #lyme #lymedisease #permethrin #sawyer #bernedoodlesofinstagram #bandanas #bandana #bandanalife #bandanastyle #pethealth #pets #dogsoutside #dogsonadventures #protectyourpet #cutedog #lymedisease #lymediseaseawareness

Raise your Paw if you are protected from biting Ticks this Fall. Bugga Bandanas - offering style and protection all in one beautiful bandana! www.BuggaBandanas.com
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#buggabandanas #dailydog #berner #dogwalking #dog #doglovers #ilovedogs #tick #lyme #lymedisease #permethrin #sawyer #bernedoodlesofinstagram #bandanas #bandana #bandanalife #bandanastyle #pethealth #pets #dogsoutside #dogsonadventures #protectyourpet #cutedog #lymedisease #lymediseaseawareness

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