#lupusstrong

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#DidYouKnow , Lupus Has Gotten So Bad That Doctors Are Calling It a 2nd Cancer? πŸ’­ Well... Did You??? #LupusFact Never Be Ashamed Of Your Illness ! #FIGHT #LupusStrong #DoItForKay πŸ’œ

There are days that I can't see too great and my sentences don't form properly. Some days, I tell myself the pain doesn't exist or that the pigment changes on my face aren't too visible. I also like to pretend that my energy is the same as everyone else in their 20's so I face no limitation or discrepancies with my peers. A big part of living with a chronic illness is lying to yourself to get through the day.. but an even bigger part is reminding yourself that you are strong, beautiful and capable of anything. So although Lupus has definitely disrupted pieces of my life, does it define me? Nope. #autoimmuneawareness #lupuslife #lupusstrong

πŸ’œπŸ’œπŸ’œNow put ya L's Up πŸ’œπŸ’œπŸ’œ each & everyday this month. Lupus Month, I thought y'all knew. πŸ’πŸ½ #LupusStrong #LupusSurvivor #lupusawarnessmonth

Last year this time I had major flare that made me lose a lot of hair, needless to say I cried... for a while lol, because I didn't feel "pretty", l but mainly because it was a reminder that I had no control over my body anymore. In December of last year I decided to just go natural to avoid putting chemicals on my already sensitive scalp, HOWEVER, Lupus decided to throw another curve ball my way and I got these MASSIVE painful cuts all over my head. Again I felt defeated, I could barely even touch my scalp but I just left it and kept it moving ( I still cried lol), but it's six months later now and this mane of mine is flourishing and I'm so happy, I may not wear it out much because I'd rather not expose my scalp to the sun too much due to my photosensitivity and how sensitive my scalp is but I'm so happy I got to this point. I feel like growing up in Jamaica we put so much emphasis on hair and the length determining how "beautiful" you are which is what I thought for a while. But now I feel more beautiful with my little mane that has represented how much I've been through and how much I've grown. This is me, this is my mane and we're out here flourishing. πŸ’œπŸ€ΈπŸ½β€β™€οΈβœ‹πŸΎ#LsUp #LupusStrong #lupuswarrior #lupusawarenessmonth #knowlupus

a battle i constantly fight every dayπŸ’œβ™‘οΈπŸšΊπŸŽ†πŸ’’β˜‚οΈπŸ‘ΈπŸΌ #lupusawarenessmonth #lupuswarrior #lupusfighter #lupuslife #lupusstrong πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

"He liked her with long hair, so she cut it short" #LupusStrong

People often times forget that I have Lupus because I work hard and never complain. But the truth is I've had it for almost 4 years now and it does get hard sometime. Some days I find it impossible to cope with fatigue and taking the amount of medication that I do. It's very hard. Having Lupus is a full time job that only few undersatnd. You have to carefully plan your day and activities sometimes days in advance, and even then your body still doesn't comply. I cannot simply consume whatever I want like once upon a time, I may get a flare. I have gained weight and have alot of stretch marks for my age because of it, but I've never been ashamed of showing them and sharing my story. I have Lupus and I'm stronger because of it. #LupusStrong #LupusWarrior ... THESE ARE OLD PICTURES BTW!

Freeeedom! ...of hair wigs and British Whigs! πŸ‡ΊπŸ‡Έ #LupusStrong

Lupus can be beautiful. Hair is still coming out but I'm rocking it. #lupus #lupusstrong #lupuswarrior

MOST RECENT

This is so true. It's very difficult having to explain that I'm fine one minute and sick the next. It's difficult explaining why I sleep for days at a time. It's difficult having to cancel plans because I suddenly became ill. Waking up day after day dealing with sickness isn't easy but I make it look easy! 😎 #lupus #lupussucks #lupusawareness #lupuswarrior #lupussurvivor #sle #prayer #healthyliving #healthyliving #endlupus #lupusstrong #faith #fitness #fitlife #blackmen #blackexcellence #menwithlupus

My Dr tells me that I'm going to be in the hospital soon!! πŸ‘πŸ½Lucky me!! I'm in #heartfailure and controlling it during these hot summer months is difficult first of all the AC hurts my chest but without it I would have difficulty breathing and hospital here I come!! Also watching your liquid intake is hard because it's so hot and I'm thirsty like I am in a dried out leaf πŸƒ or plant 🌱 begging to be watered πŸ’¦ so here I am feet so swollen I can barley walk or put on My shoes πŸ‘  they want me to take these water pills but I'm only allowed to drink the equivalent of 1 bottled water for a day... THE ENTIRE DAY ONE BOTTLE OF WATER!! So I will be rolling up in there soon!! I guess I will keep you posted because I talked him into going home on 40mg of lasix... #lupussuck #lupus #lupusawareness #lhandsign #systematiclupuserythematosus #nephritis #heartfailure #kidneyfailure #stupidlupus #lupielife #spoonielife #lupies #spoonies #lupusleaps #heprin #luckfupus #lupuswarrior #lupusstrong #lupussupport #lhandsign #lupusfighter #findacure

Just realized this year is my 15th year becoming lupus survivor(or warrior)
God really know what i need before i even think to ask Him. He direct me to a right doctor so i can get right treatment (after 4 or 5 inaccurate diagnosis from other doctors). He give me family and friends and music to fill my life. I am really grateful despite the odds of being a lupie i can serve God in music. I can play in sunday service and church orchestra etc which i love. My story is one proof that lupies can survive and i dont look sick according to all my friends...(wait till they know i have autoimmune disease they will drop their jaw)

#lupuswarrior #lupusgreateroh #lupusstrong #lupussupport #lupusstory #lupusawareness

πŸ˜‚ As funny as this may be, there is always truth behind every joke... some of us with #lupus suffer with Brain Fog regularly. For those who experience this for the first time it's a scary feeling... it can be a jarring moment that can cause stress and we all know what stress does to a #lupie... I find that I go through this when I'm about to be in a #lupusflare so from my journals πŸ““ from #mylupusjourney I know that this #lupusfog is a sign of #mylupus about to flare!! Tell me about your Lupus symptoms and clues that you know when you are about to flare or if you are able to at all... and If you suffer from this #symptomofLupus here are a few tips that may help you cope! #lupussucks #lupussurvivor #lupusstrong #lupuswarrior #lupuswarriors #lupie #lupielife #stupidlupus #spoons #spoonielife #lupusawareness #systemiclupuserythematosus #lupusfighter #lupusflare #lupusadvice #findacure

Step 1: fight through the pain Step 2: make it through the day Step 3: wear a smile #justkeepfighting #lupustruth #lupusstrong #lupuswarrior

Five miles and Winnie has had enough of my motivation lol #hike #doglife #shewasntready #fitness #fun #lupusstrong

My first time volunteering at a #Lupus #Fundraiser! Please come support me and my fellow #LupusWarriors by shopping at any Charming Charlie stores in San Diego or Riverside County. They will donate 10-20% of their proceeds to The Purple Rose Foundation, an Inland Empire Nonprofit Organization spreading #LupusAwareness. #IAmALupusWarrior #LupusStrong #LupusFighter #KnowLupus #LupusNeedsACure #CharmingCharlie #CharmingCharlieNorthCountyFair #Charity @kimberlirose #PurpleRoseFoundation @cc_northcounty

Please stop by and shop at any Charming Charlie Stores in San Diego or Riverside County and they will donate 10-20% of their proceeds to The Purple Rose Foundation, an Inland Empire nonprofit Organization that brings #awareness for #Lupus! #IAmALupusWarrior #LupusFighter #LupusStrong #LupusNeedsACure #LupusSucks #KnowLupus #CharmingCharlieNorthCountyFair #CharmingCharlie #Charity #CharityEvent @cc_northcounty @amberjackson18 #ThePurpleRoseFoundation @kimberlirose #LupusAwareness

UPDATEπŸ’œβœ‹πŸ»: For months I been feeling really good with my pain and haven't had to miss school , work , or miss out on things because of pain. I also haven't had to resort to my strong drugs to deal with my pain in a very long time which is great ! Today I awoke with both my hands stiff , a bit swollen & and pain through out my joints . No matter how long you live with a chronic illness this pain never gets easier when it hits hard like this . Pain Day ☹️ #LupusBlog #LupusBlogger #Lupus #SLE #SystemicLupus #LupusLife #LupusProblems #LupusChick #LupusAwareness #LupusWarrior #LupusPain #LupusFlare #ChronicPain #ChronicPainWarrior #ChronicIllness #ChronicIllnessLife #Spoonie #SpoonieProblems #SpoonieChick #SpoonieStrong #LupusStrong #Lupie #LupieChick #LupieProblems #LupieStrong #InvisibleIllness

Lupus can be beautiful. Hair is still coming out but I'm rocking it. #lupus #lupusstrong #lupuswarrior

Hello Friends, Family and Fellow #Lupies! Please help me and the #Lupus Community by visiting all Southern California Charming Charlie stores this weekend, July 22-23. Come in and purchase a cute outfit or accessory to complete your summer or fall wardrobe and 10-20% of the proceeds with go to The Purple Rose Foundation!!! The Purple Rose Foundation is nonprofit organization in The Inland Empire that supports and helps spread #LupusAwareness. And Thank you to my fellow lupus warrior @kimberlirose and Purple Rose Foundation for making this happen!!! #IAmALupusWarrior #LupusFighter #LupusStrong #LupusNeedsACure #ThePurpleRoseFoundation #Fundraiser #CharmingCharlie #sandiego #escondido #westfieldmall #shopping #shopper #shopaholic #mallrat #awareness #help #retail

UPDATEπŸ’œβœ‹πŸ»: Today I got to adventure out to Beverly Hills in California to talk to some partners at LupusLA . I had a small meeting about in the future working closely with them interning to do more stuff for Lupus LA. I'm just excited to becoming a small part of a bigger cause in advocating for awareness . I feel like more adventures are to come and doors opening to find what I was meant to do on this Earth . More updates to come with this journey 😊. #LupusBlog #Lupus #LupusAwareness #SLE #SystemicLupus #LupusLife #Lupie #LupieLife #LupieChick #LupusChick #LupusWarrior #LupusAdvocate #Spoonie #SpoonieLife #SpoonieStrong #LupusStrong #SpoonieChick #ChronicPain #ChronicIllness #ChronicIllnessLife #ChronicIllnessWarrior #InvisibleDisease #InvisibleIllness #LupusLA

When you go to the doc and she tells you it's your digestion and gallbladder so your hubby comes home w all this :) #lupusstrong #tummy @teaonic @kevitadrinks

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