SO, I know a lot of people don't like to see "negative" posts come up on their feeds, but I keep sharing cause we need awareness cause some of us can't get away from this being our constant reality.
After spending the morning getting my monthly IV, I ended up needing to go to the ER. I knew my body wasn't going to be able to fight anything on its own since I had just gotten the IV, which weakens my immune system. Heck, dentists require I get written medical release for treatment from my rheumatologist before they treatment because of the lupus. Kinda stuff most people don't have to worry about.
I ended up needing to have a procedure done that is nothing short of traumatizing to me (I've had to have it done once before) ... & then ended up having the pericardiatis flare up... & they thought I might be having a heart attack. While in in the middle of that flaring, I simply can't talk... it's one of the worst and scariest things I deal with linked to the lupus. I couldn't explain that, unfortunately, it's something I deal with more regularly than I would care to & its lupus related.
So it was another IV...morphine this time, a procedure including getting cut up, more bloodwork, a pelvic scan, chest xray, EKG, urinalysis, etc, etc, etc, & few hours before I could go back to my parent's.
We were supposed to have come down for 2 nights and have gone home today, instead we had to stay so I can go back to the ER tomorrow to follow up on the procedure, then follow up with specialists next week. 😕
I would love to not have to spend so much of my life having to deal with all this medical stuff.
So, seriously, don't take your health for granted... if you're not CHRONICALLY ill, don't have to worry about how your body can't fight things on its own, or about crazy medications to try to keep your body from attacking itself, or deal with all sorts of other crazy symptoms on a regular basis or crazy stuff that can randomly come up without any warning... do not take your health for granted and be thankful to be "normal." #Lupus #LupusAwareness #SLE #KnowLupus #NoLupus #ChronicIllness #FindACure #LupusSurvivor #LupusSTRONG