#lupussista

MOST RECENT

With the passing of our #lupussista @ashasharron and Aretha Franklin’s homegoing, I’ve been thinking about how I’d like to be celebrated and who, if I had the choice, I’d like to sing at my funeral. Have you thought about this? Who’s your choices? I’m still thinking on mine.
#homegoing #lupussistas #lupus #celebrationoflife

About last night! Victory Boyd was amazing last night. She comes from a musical family and each and every sibling (she’s one of 9!) can blow. I don’t regret digging in my pockets to make this trip. Such a talented family and she was not afraid to proclaim JESUS 🙌🏾. Debra Lee, former BET CEO, hosted and Synchopated Ladies, renowned tap dancers, performed. I got meet her and she knew who I was since I tag her in posts incessantly 😩🤣I told her my favorite songs and she was so genuine. I think she is my Beyonce lol. It. Was. A. Time.

#la #victoryboyd #acehotel #lupussista #issaexperience

So beautiful. So young. More importantly, so faithful and hopeful until the end. God bless you sweetheart and prayers for your family. Hugs to my Lupus family! 😢

#ripasha #lupussista #lupuswarrior #thegoodfight

About to spread #lupusawareness and get in today’s cardio session. 🏃🏾‍♀️🏃🏾‍♀️Today’s shirt brought to you by my awesome #lupussista @unikestyle! Go support her and like her page ✋🏾💜 #lupussistas #cardiotime #blackgirlmagic #lupuswontwin #preparingformyfuture

This is 36. Celebrating another year of life. Grateful, thankful and ready to take on another year 🙌🏾 #birthday #36ishere #amireallyalmost40 #lupussista #lupuswarrior

In honor of Lupus Month, I’ve created this 7 Day Challenge! It’s some of the things I do that keeps me off meds and out of the hospital! These are simple daily activities that are life changing! Are you ready? Link in bio.

Over 10 years ago, I was told I could NEVER be in the sun or go to the beach. It felt like a prison sentence. I mean it’s one of my favorite things in the world. The ocean. The sun☀️. The beach. I was determined to prove them (specialists) wrong. And I did. Sun doesn’t cause a rash or a lupus flare anymore. Are you ready to live your life and say F...U lupus? It’s time to live your life, to live it fully, and that may mean being able to go away to a tropical island and not hiding from the sun. It’s means no more joint pain or fatigue. It saddens me to read your posts and reading about the pain you are feeling. The time is now. It’s time to eliminate autoimmunity, one sister at a time. Trust me, it’s possible. Take my hand and let me show you. I’ve lived it. I’ve been there. You are not destined for this life, despite what they tell you. Watch out for my Free 7 Day Lupus Challenge. Follow me.

Me and sissy 💜💜💜 Snapchat got us looking like we been eating powder donuts tho lol 😂😂😂 #lupus #restday #lupiechick #lupielife #lupussista #happy #blessed #sistersister #sisterlylove #onedayatatime #family 💜🦋💜🦋💜🦋

Hey #lupussistas, here are the details to get to the @blackhealthmatters summit next Saturday in Harlem if you’d like to attend! I’m so grateful for y’all and can’t wait to see you all. It’ll be a #lupussista reunion for sure! Link to register to this FREE event will be in my bio.
#lupussistas #harlem #blackhealthmatters #lupusawareness #lupus

Got to hang with my #lupussista Dina tonight! She is so down to earth and a breath of fresh air.
#lupussista #lupies #spoonies #spoonieconnection #lupusawareness

After work, we werk 🏋🏾‍♀️. Tweaked my hip or maybe arthritis, verdicts still out, two weeks ago and had to lay off my workouts. Did decent in maintaining weight, but now I’m back baby. Felt like everything was being thrown at me all at once, but I gotta keep striving to be the healthiest me.

#imback #strengthtraining #lupussista #lupuswarrior #dialysiswarrior #thankyouGod

My new medical machine to help with these lungs of mine #Smartvest does anyone else have one? #lungtherapy #Technology #nomedtherapy #lupuslife #mylife #lupus #lupie #lupussista #lungs #faith #lupusHOPE #smartvest

Happy Thanksgiving 🍗 immensely happy to be feeling well and to be sharing this day with my family and enjoying this wonderful food 🙏🏾💜🌹 #blessed #happy #thankful #lupie #lupuslife #foodie #family #lupus #lupussista 💜💜💜💜💜💜💜💜💜💜

Last doc appointment for the month 🙌🏾 gonna rest up and enjoy this thanksgiving 🙏🏾🙏🏾🙏🏾 #blessed #lupuswarrior #lupie #faith #onedayatatime #myhunni #support #blacklove #lupielove #lupusHOPE #lupussista 💜💜💜💜

Had a real overly fatigue weekend on top of that my o2 couldn’t stay out the 80s which isn’t normal for me unless I’m having an asthma attack 😷so I️ was basically on oxygen all weekend and used up all my tanks and the compressor wasn’t helping so now I’m in the ER. I️ honestly believe I’m having a lupus flare but having damage lungs does not make things easier. My hunni was trying to keep my spirits up as usual and I️ had a wonderful weekend with family 💜 I️ Just wasn’t feeling well (Lupus knows exactly when to kill my vibe 🙄) #lupus #lupussucks #lupie #lupuschick #lupussista #lupuswaarrior #myreality #hospitaltour #faith #lupusHOPE #lupuslife #lupusawareness

Day 3 Blog: Your Silence Is Deafening is up! Link in bio.
Every now and then you'll come across good friends who were there when you were healthy, but when times got rough they went ghost.
It's bittersweet because you miss them but obviously you don't want people in your life who can't handle being around you because you're not feeling well. This blog talks about how I dealt with it.
How do you deal with friendships when this happens?
#lupiefriends #spoonies #lupussistas #lupussista #blackbloggers #bloglikecrazy

Had a wonderful day with family on my way home 🌻 not over doing it but i fell well 🙏🏾 time to rest 😌 #onedayatatime #recovery #positivethinking #positivevibes #positiveenergy #lupus #hope #faith #lupuschick #lupuslife #lupussista #blessed 🌻🌻🌻🌻🌻🌻💪🏾💪🏾🌻💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾🙏🏾🖤🖤🖤🖤💜💜💜🦋🦋🦋🦋🙏🏾🖤🖤🖤

Confession: I’ve always had a dislike for Wednesdays. I don’t hate Wednesdays per se. I was born on a Wednesday, but there’s something so… meh about Wednesday. I don’t know what it is, but I figure we can use it for our good and starting today and forever more call it Woosah Wednesday! Not that you need my permission, but today is a today to unload, vent, release (from small annoyances to deeper issues). Of course you’d have to be OK with this being seen by our community… but I believe something supernatural and good happens when we open ourselves in a safe place.

I have only ONE RULE– after your vent you have to say how you’re working for a solution. Because there’s nothing glorious or healing about venting and then being in the same place next week.

I’ll go first. Even though it’s been such an incredible year for lupus advocacy, I haven’t been in the best place emotionally. I feel under pressure to perform, as I usually do when I try to take on too many things. There’s so much good work to do, I’m genuinely excited about it, but it is overwhelming too. God has hit me upside with signs to get in closer connection with him – through sermons, conversations, songs… it is time to get a little introspective and get some balance so I don’t hit this low place too many more times.

I’m working to spend more time with God through reading and meditating (in the mornings while on the machine) before my day starts. In order to do this, I must go to bed at a decent hour! LOL.
Your turn to Woosah! 💜💜✨✨ #woosahwednesday #lupussista #venttime #lupussurvivor #lupus #spoonie

On this gloomy Wednesday I'm thinking about what a fabulous weekend I had at the Take A Loved One to the Doctor Day in Sanford. And I got to hang with these two cuties, radio personalities Monica May and Jojo of @star945! Thanks for all you do ladies; your tireless work for our community is appreciated 🎉✨✨ #lupuswarrior #lupussista #lupusadvocate #wecare #lupusawareness

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