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#lupusnephritis

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Every time I get done “nail mail” I can’t wait to try them out! My lines are still not straight enough. I have the concept in my head but I’m still working on the execution. 💋💅🏻💎
#workinprogress #practicemakesperfect #rightconcept #wrongexecution #diy #gliiternails #redbottomnails #mattenails #matteblack #nailswag #chanel #nailcharms #crookedlines #cantleavethemalone #miami #florida #girlswithtattoos #girlswithpiercings #lupuswarrior #lupusnephritis #sle #rheumatoidarthritis #renalfailure #dialysispatient

LUP LIFE x GEAR. Support the Cause. Comment your size! #MICONENT #lupuswarrior #lupusnephritis #slelupus #lupus #ISTHISMICON

That’s right. I’m 84.2 pounds but that’s not going to stop me. #lupuswarrior #lupusnephritis #gastroparesis #invisibleillnessawareness

The fact that I’m a Leo & have chronic pain is such a bad combination for mood swings 😂 let’s not forget that awful prednisone...my family & friends know my mood swings are not towards them just all the awful pain my body is feeling... #LivingWithLupus #Lupus #LupusNephritis #KidneyDisease #Chronicillness #ChronicPain

I remember one of my first symptoms leading up to me being diagnosed with lupus, was me sleeping ALLOT and being so exhausted and I wouldn't do anything. I remember moments when I could sleep all day and my dad going in the room asking "what's wrong with you "and my sister even taking me to the pool and I fell asleep their. Their is a difference bw just tired and an ill person being fatigue. The feeling is a feeling of exhaustion with out having to do anything. Today my lupus had been acting up ! I'm tired af that I have not left my bed only in the morning and my legs are killing me. I feel like I ran or something. #lupus #lupusflare #lupuswarrior #lupuschick #lupuslife #lupussucks #lupusstrong #lupusfacts #lupustruth #lupusproblems #systemiclupuserythematosus #hemodiaylsis #diaylsis #kidneytransplant #kidneyproblems #lupusnephritis I never like to play the role of a sick Person .. I try my hardest to get up and go and I always suffer the consequences the next day .. it never fails.. but it will never stop me!!

Chandra Mohan, MD, PhD, of the University of Houston is one of seven new recipients of the Lupus Research Alliance Target Identification in Lupus (TIL) grants designed to move research discoveries quickly from laboratory to the patient's bedside. He is researching a protein, ALCAM, that is found in higher levels in the urine of individuals with lupus nephritis than in healthy controls. ALCAM might represent a new target for drug development to treat this complication of lupus. Read more about our TIL grant recipients at: 🔗bit.ly/TILgrants2017 (link is case-sensitive)

Be appreciative, be thankful, be grateful....always.
#igotthis💪#imstrong#lifeisbeautiful #kidneydisease #kidneytransplant#lupusnephritis

Thank you to the sweet friends and complete strangers that have donated for my next round of meds this week. #gofundme #thankyou #sosweet #grateful #lupus #systemiclupus #lupusnephritis #chemotherapy #canwefindacurealready

Just spent another day in hospital and this time it was for a kidney biopsy.
The reason I had to get it was because my lupus was so active it was affecting my kidneys badly and they wanted to figure out how badly it was affecting them. I won't get results until next week but hopefully the damage won't be the worst case scenario. I also have to go for stronger chemotherapy starting next week where I'll be getting intense doses for 3 months.
I only received all this news on Friday where I had to consider fertility options, as the chemo can affect fertility and I also had to consider the general side effects of chemo such as extreme nausea and hair loss and also just come to terms with everything that's going to happen over the next few months.
I am, as always, doing my best to stay positive and hope it all works out and hoping I will eventually start to feel better but until then I will go through my ups and downs and as always have the most amazing family and friends to help me through these next few months. #lupusqueen #lupusawareness #lupus #lupusnephritis #stage4 #chemo

If you ever decide to become a living kidney donor & for any reason you would need a kidney yourself you will be priority! #BecomeAnOrganDonor #LivingDonor #DeceasedDonor #Donate #DonateLife #KidneyDisease #Lupus #LupusNephritis #MarkYesToOrganDonation #IWillThankYou 🖤

First Hockey Game Ever! 🏒 I love him so much ☺️💕

I have a lot more to say but this one minute limit hatin on a playa. Makes me wonder if I should create a YouTube channel? 🤔 Anywho just wanted to give an update. Thank you for your prayers!! Y’all stay blessed 💜 #spoonielife #lupus #lupusnephritis #kidneydisease

We had a tough week at the Hassan House. My poor Marly caught Influenza B & was out of school all week. Thankfully she is feeling much better now. I’m thankful I wasn’t too sick to take care of her. Then this morning the #EndoFlare hit. It’s a sad reminder when you get a few good days to only be reminded that the pain isn’t going away. #Endometriosis #EndometriosisWarrior #EndometriosisAwareness #EndometriosisSurvivor #EndometriosisSupport #EndometriosisPain #EndoSister #EndoAwareness #EndoWarrior #ChronicPain #Lupus #LupusSupport #LupusWarrior #LupusNephritis #Arthritis #LupusPain #LupusAwareness #ArthritisPain #ArthritisSupport #ArthritisAwareness #ArthritisWarrior #ChronicIllnessAwareness #ChronicPain #ChronicIllness #ChronicPainAwareness #InvisibleIllnessAwareness #ChronicFatigue #InvisibleIllness #MomInChronicPain

So I decided to braid my own hair for the first time (box braids) and I LOVE how it came out! Only took me about 15 hrs or so lol
#DIY #youtubehelps #boxbraids #curlybraids #indigoblue #blueindigo #hardwork #cute #loveit #girlswithtattoos #girlswithpiercings #miami #florida #lupuswarrior #lupusnephritis #sle #rheumatoidarthritis #renalfailure #dialysispatient

One year ago today, my sister was diagnosed with Lupus. For those that don't know, Lupus is an autoimmune disease where your immune system attacks your own healthy tissues and organs. Lupus can affect you in many different ways. For my sister, it effected her kidneys and central nervous system. Her health deteriorated so quickly, we were all devastated and terrified. I remember mentally preparing myself that if it came down to it, I would give up my kidney for her. As long as I get my sister back, it'll all be worth it.

One year later, you're stronger than ever. Working fulltime with a side gig, travelling, blogging/vlogging, cooking, hiking - just doing you. I can't stress this enough, but you are the strongest person I know. Life has definitely changed with all the medications and precaution you have to take, but you don't let that stop you. To have gone through all of that and walk out like a champ, you are an inspiration. No matter what happens in life, you will always have your family to rely on. You have my full support in everything you do. I love you sis 😘

When you have a family of four, you have to love to cook. Because of my non salt diet, I prepare food with other spices. I like garlic, oregano, basil... Zucchini go yummy with almost every meat and I like to make them in several ways. 😄💪💜🥒🥕🍗🍽
#lupus #lupuswarrior #food #diet #lupusnephritis #lupuskidneyjourney #autoimmunedisease #chronic

22 down to 19!!! For the first time in 3 YEARS, my Lupus levels have gone down! I am so happy I cried, even if they are still sky high. Looked like those 5 months of Cytoxan did something right!!! 😭😁🤗 #omgomgomg #bestnewsever #finally #onedayatatime #isremissionpossible #lupus #lupusnephritis #lupuswarrior #lupusawareness #antidsdna #lupuslevels #cytoxan #cyclophosphamide #chemoisntjustforcancer #totallyworthit #autoimmunedisease #chronicallyillbadass #igotthis

A year ago I never knew I would be brave to fight on for my life after 21 years of having lupus and 5 years as a lupus nephritis (lupus with kidney disease) warrior. I had to start aranesp injections because my kidneys had failed and can’t produce a hormone to stabilise chronic Anaemia. This injection right here has helped me live normally a bit. #aranesp #kidneyfailure #lupus #lupusnephritis #anemia

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