#lupusnephritis

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πŸ’œ perfect read this morning with Katlyn @kateeleeann #prayersforKate #lupusnephritis #faith

I lost my hair twice because of my treatment with my lupus nephritis so I've been growing my hair out the past two years just so I can donate it. I hope that who ever it ends up with it can feel blessed and beautiful! Now back to short hair πŸ’• #lupus #lupusnephritis #livingwithlupus

This is me in 2009 right before my skin took a turn for the worse with #scars and #LupusNephritis kicked in! I miss my clear skin! You know I may have tow up skin now due to severe case of discoid lupus caused by sun damage but I'm still Beautiful Me! #fuckedupfaceandall

Props to my nurse for not making this painful. #ChemoSession4 #Cytoxan #Lupus #LupusNephritis

This wasn't in my plan. We all have a plan in life. However, sometimes it doesn't happen for us. That's ok! What do we do then? Grieve? Sure! It's good for you but get over it and look past it because your plans don't have to be canceled. Keep working towards your goals. Dust yourself off and keep going.
A friend put it best this morning, "The climb might be hard but the views from the top will be worth it!" - Kathleen
I like the analogy. I can relate it to hiking, bouldering, or climbing. It sucks climbing all those rocks. Sometimes I gotta detour and climb back down to find a better route but I'll get there.
Today is my first day of infusions. I meal prepped, packed my laptop and books to study for MRI. And I'm ready to face this. #lupus #lupusnephritis #lupussucks #fucklupus #LuckFupus

Received some much needed GOOD news at the doctors office this week! As I've mentioned, having Lupus Nephritis lV my kidneys are under attack and not wanting to function properly causing extra protein spillage. A couple weeks ago my protein spillage count was in the 8,000's!!! As of this week, that number has come down to the 500s WHICH MEANS my body is responding well to the treatment!! It's working! I'm halfway done with chemo, 3 treatments done and 3 more to go! After chemo we continue a different type of treatment but hopefully no more IV infusions! #happydance #goodnews #lupusnephritis #lupus #stupidlupus

I'm going to take this little bit of good news and dance like David! πŸŽ‰πŸ’ƒπŸΎ . . .
#lupusnephritis #lupussistas #lupusawareness #healing #ineedakidneytho

Easter got me all swollen from the busy weekend I had. From baking to spending time with loved ones, just being up makes my feet swell. Just look at that ankle. The Edema from the loss of protein in my urine caused by the kidneys, make my feet swell so bad if I don' stay in bed most of the day with my feet up. The joys of having lupus nephritis. Annoying, and frustrating because I want to have some sort of life, but then this happens and it is so painful. Also, my legs mostly, but other parts as well keep cramping and spasming and that is painful as well but not sure why it's happening and why so much?? Whyyyy?? πŸ˜” Still smiling though. At least I look good πŸ˜‰ #lupus #lupusawareness #lupuswarrior #lupusfighter #lupussurvivor #livinglupie #makinglupuslookgood #butyoudontlooksick #edema #kidney #lupusnephritis #swollenfeet #swollenankle

My timehop today feels like a lifetime ago. Quite fitting when I FINALLY stopped steroids 2 weeks ago. DEFINITELY enjoying having some cheekbones and hair back in my life. For now, the πŸ˜‚πŸ˜‚πŸ˜‚ at the size of my face is real. #lupusawareness #lupusnephritis #lupus

MOST RECENT

πŸ’œ perfect read this morning with Katlyn @kateeleeann #prayersforKate #lupusnephritis #faith

2014 - My angel. My wife. You left me here 9 weeks ago to fight this pain. Look at what you left behind. Our perfect life. The perfect love. My memories of you brings tears to my eyes every time. But it makes me happy to see you smile. Laughing. I know I'll never see you smile with me again. I wish I could see you in my dreams but I know you're too busy protecting me and making sure I get rest.

To all #lupuswarriors, since my #beautifulwife Ben, left the torture and suffering of lupus behind, she has left the rest of us fighters behind to raise the awareness of this terrible disease. We must fight on for those who can't, for those who are weakened and for those who suffer along side these warriors. I have completed posting Ben's 42 pictures dedicated to her 42 day battle in hospital. Those pictures are from her happier moments when lupus was not ravaging her frame.

I will now dedicate every following image depicted with Ben's pink ribbon, lupus' purple ribbon and the white 'B' Butterfly to all of you warriors and supporters on the journey reminding you that you're not alone and you can still live a happy and fulfilling life with us forever by your side providing you strength and support wherever and whenever you need it.
My wife, Ben. You are the love of my life and no one will ever compare. 17 years of memories and the best years of our lives. Everything was perfect but that's all gone now. I'll never get over losing you. I love and miss you with all my heart and soul. Rest in peace my angel. I will see you again. Missing you dearly my love.

#rememberben #legacyimage19 #devotion #lupusnephritis #thailand #island #similan #lupuswarriorben #missingyou #dedicationtomywife #truelove #lupusfighter #thaigirl #angel #lovinghusband #beautiful #young #support #beautifulwife #autoimmunedisease #gonetoosoon #restinpeace

2008 - My angel. My wife. The good times...
To all #lupuswarriors, since my #beautifulwife Ben, left the torture and suffering of lupus behind, she has left the rest of us fighters behind to raise the awareness of this terrible disease. We must fight on for those who can't, for those who are weakened and for those who suffer along side these warriors. I have completed posting Ben's 42 pictures dedicated to her 42 day battle in hospital. Those pictures are from her happier moments when lupus was not ravaging her frame.

I will now dedicate every following image depicted with Ben's pink ribbon, lupus' purple ribbon and the white 'B' Butterfly to all of you warriors and supporters on the journey reminding you that you're not alone and you can still live a happy and fulfilling life with us forever by your side providing you strength and support wherever and whenever you need it.
My wife, Ben. You are the love of my life and no one will ever compare. I love and miss you more than anything in this world...it's less fulfilling now that you are gone. 17 years of memories and the best years of our lives. Everything was perfect but that's all gone now. I'll never get over losing you. I love and miss you with all my heart and soul. Rest in peace my angel. I will see you again. Missing you dearly my love.

#rememberben #legacyimage18 #devotion #lupusnephritis #boxer #dogs #pets #lupuswarriorben #missingyou #dedicationtomywife #truelove #lupusfighter #thaigirl #angel #lovinghusband #beautiful #young #support #beautifulwife #autoimmunedisease #gonetoosoon #restinpeace

"The two most important days in a persons life, is the day that they were born, and the day they find out why." -Mark Twain
Honey, it arrived today. I'm now a registered organ donor. You were too, but #lupus made sure you couldn't donate anything to help anyone. Anymore. What kind of evil does this? A beautiful intelligent person willing to give to others now deprived by this malicious #disease. I'm doing this for you hun. I was undecided for a long time but now I know sometimes those in need have no choice. But I do. I know you would be proud that I'm continuing to help others despite what I'm going through. Live for something or die for nothing. I'm trying to be strong so I'm never going to stop. Your legacy, is never going to end.
There are those who'll never understand why I'm doing this and believe that it's not healthy. Maybe there's a bigger picture and it's not all about me. Maybe it's because I couldn't save you, my wife, but believe that my support for others with your condition will continue fighting and knowing that someone is always there providing words of strength and encouragement regardless. Why am I posting everyday? I'm lost for words on how to explain. I'm so tired of explaining.

Ben, my honey, my wife, we had this amazing love and blissful life for over 17 years. We were so true and honest in everything we did for eachother. It was perfect. But that's all gone now. Keep smiling for me my angel, it helps me alot but I'll never get over losing you. The pain is still very present. I love and miss you with all my heart and soul. Rest in peace my angel. I will see you in my dreams. Miss you so much hun. XXXOOO

#rememberben #devotion #doitforothers #organdonor #lupuswarriorben #broken #lupusnephritis #dedicationtomywife #truelove #lupusfighter #thaigirl #angel #lovinghusband #beautiful #young #beautifulwife #autoimmunedisease #gonetoosoon #restinpeace

Promoting #lupusawareness. I think I'm just getting angry. It'll only take another lupus patient to die on stage next to Selena GOMEZ for this disease to receive the appropriate funding for research and development it deserves. I thought that a lupus warrior, my wife, and her tragic battle, would help further bring this in to the light. So far I have had 3 generous donations in 2 months. It just goes to show how much or little people really care about the cause. I just needed this bitter purge.

My wife, Ben, you are the love of my life and no one will ever compare. I love and miss you more than anything in this world...it's less fulfilling now that you are gone. 17 years of memories and the best years of our lives. Everything was perfect but that's all gone now. I'll never get over losing you. I love and miss you with all my heart and soul. Rest in peace my angel. I will see you again. Missing you dearly. XXXOOO

#rememberben #devotion #chronicdisease #lupuswarriorben #missingyou #heartache #brokenheart #dedicationtomywife #truelove #lupusfighter #thaigirl #angel #lovinghusband #beautiful #young #support #foundation #beautifulwife #donation #charity #lupusnephritis #autoimmunedisease #gonetoosoon #restinpeace

All i wanna do is put a pair of shoes on #simplethingspeopletakeforgranted i have not been able to where shoes since April this year its soo hardto walk but shiiit Anybody that know me know im still wiggling lol i may have lupus but IT DOESN'T HAVE ME and it will not stop me #betterbelieveme. #lupusnephritis my baby aj was so concerned he sat with me and rubbed my legs and feet for me when he first seen me like this 😍😚
#lupussle #fucklupus #lupusawareness #lupuswarrior #imexhaustedyall πŸ’œπŸ‘‘πŸ’ͺβœ‹ #iknowgodgotmesoimgood #justgivingyallalittlelupusawareness 😁😊😏#thiswasbackinmay walking around with 35pounds of fluids aint easy... #fucklupus

#hair #skin and #nails are often the most visible indicators of #autoimmunedisease . My symptoms are more internal #nephritis and #stomach #paralysis . Any #tips on relief from dark #scars and nails that are yellow, have dark #longitudinal ridges and fall off? #lupusawareness #lupustips #lupusnephritis #severe #organ #involvement #lupuswarrior #lupusfighter #lupussucks #lupussurvivor

Doctor: We really have to try and get your Lupus under control.
Me: Haven't that been the story of my life all these years πŸ€·πŸ½β€β™€οΈ. It just seems unlikely right?
Doctor: Sorry there's no better answer."
πŸ’œ
Despite the constant downs, I've been feeling optimistic. In my mind, labs ain't nothing but a number! .
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#DearLupus #MemoirsOfLupus #NajjiShifaa #SLElupus #SystemicLupus #LupusNephritis #AutoimmuneDisease #LupusFlares #FaceOfLupus #LupusIsReal #FightingForMyLife #LupusMuslimWarriorPrincess #LupusProblems #CopingMechenism #SurvivingLupus #LupusFighter #MyLifeWithLupus #Inflammation #ActiveKidneyDisease #FollowLupus #KnowLupus #LearnAboutLupus

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