#lupusgoddess

MOST RECENT

Seemingly accurate...but isn’t it more telling that I’m taking and posting this FB quiz at 3:30am??? FYI...Chronic Mixed Insomnia sux rocks!!! And my pain sucks too, since I’m complaining, we’ll explaining... I’m actually 41, (42 in DecemberπŸ‘) (but sounding 34-why is this a thing?), spot on about that IrishnessπŸ€ (miss getting to drink insomnia away), ummm acting suspicious....how’s being a lurker on FB for 7 years before first posting (social media addict now), as for that nickname, maybe previous life...they call me Bubbles, Queen Bubbles!!! πŸ’œ #fbquiz #tiredofinsomnia #painproveslife #fibrowarrior #lupusgoddess #hollowofHishands

Hi My name is Nay and I’m a #lupusgoddess .No disease can stop me from feeling beautiful, every single inch πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ Shot and creative design by @sylvianicole_
Outfit by @say__nay
#fucklupus #teamlupus #lupusfighter #lupusmodel #lupusawarenessmonth #lupuswarriors

A model, a hair stylist, a fashion designer, and all around beautiful soul... the toughest battles are fought by people who walk this earth seemingly painless all the while feeling aches and pains no one could even understand. She is all of this, and also a #LupusWarrior ... say hello to @say__nay ! Nay you’re just as amazing as you are gorgeous! πŸ’œπŸ’œπŸ’œπŸ’œ #Repost @say__nay with @get_repost
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#lupusawarenessmonth day 10 is LUPUS DAY πŸ’œπŸ’œπŸ’œπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œImagine you’re about to turn 21. Supposed to be The best year of your life and instead your doctor says your ANA Tests are positive and you are officially diagnosed with #lupus ! Your whole word comes crashing down. I am not gone lie this road has been so tough and I’m sure it tougher days to come I haven’t always been this confident and strong. but I got so tired of letting #lupus dictate my life. I spend a lot of days in pain but I make sure I do what I love to do ! I love myself more and more each day knowing I don’t let #lupus stop me!
My good friend @sylvianicole_ and I decided to put together this shoot. #lupusgoddess in the flesh enjoying life and doing what I love. And encouraging anyone with #lupus to try your hardest to do the same. Stay tuned for this pics πŸ˜πŸ˜πŸ˜πŸ‘€πŸ˜†πŸ€ŸπŸΎπŸ€ŸπŸΎπŸ€ŸπŸΎπŸ™ŒπŸΎπŸ™ŒπŸΎ #fucklupus #teamlupus #lupusmodel #lupusdaymay10 #lupusday

#lupusawarenessmonth day 10 is LUPUS DAY πŸ’œπŸ’œπŸ’œπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ™πŸΎπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œImagine you’re about to turn 21. Supposed to be The best year of your life and instead your doctor says your ANA Tests are positive and you are officially diagnosed with #lupus ! Your whole word comes crashing down. I am not gone lie this road has been so tough and I’m sure it tougher days to come I haven’t always been this confident and strong. but I got so tired of letting #lupus dictate my life. I spend a lot of days in pain but I make sure I do what I love to do ! I love myself more and more each day knowing I don’t let #lupus stop me!
My good friend @sylvianicole_ and I decided to put together this shoot. #lupusgoddess in the flesh enjoying life and doing what I love. And encouraging anyone with #lupus to try your hardest to do the same. Stay tuned for this pics πŸ˜πŸ˜πŸ˜πŸ‘€πŸ˜†πŸ€ŸπŸΎπŸ€ŸπŸΎπŸ€ŸπŸΎπŸ™ŒπŸΎπŸ™ŒπŸΎ #fucklupus #teamlupus #lupusmodel #lupusdaymay10 #lupusday

I am always saying this about myself. I am an emotional person and I lead with my heart but it doesn't mean I am not a bad ass goddess. I have been given more than my share of hardships and a bitch called lupus but I have always thought, "I can sink or I can swim" I make the conscious choice to swim. You always have a choice...chose strength and chose love. #Repost @refinery29 with @get_repost
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πŸ† @onherturf πŸ†#loveandspoons #lupus #sensitive #emotional #strength #choose #courage #youbeyou

This is completely true. Thanks Jessica for this reminder once again timing is perfect. As a strong woman, it's very easy for others to take things for granted that you do so freely and willingly. The fact is if you are dealing with illness and other things weighing you down, you have to turn your shift at times to nurturing and loving yourself more. It's hard at times when you are usually the first one to roll up your sleeves to jump in and help but if you don't help yourself first you can not be there for anyone else. #strongwomen #strength #loveandspoons #loveyourself #selfcare #selfpreservation #lupus

He's my SONshine!! My only SONshine!! ☺️Thank you for always being truly amazing. Your kind heart and soul are a huge testament of how a real man should be. Ever since you were a baby, you've an amazing gift...Your smile lights up a room. No matter how bad and beat up I feel, you always somehow see me beautiful. If that's not love, not sure what is! Thanks for choosing me! Love you! #myprideandjoy #loveandspoons #love #mysonshine #myson #myworld

Dearest sister, only God knows why I’m here figuring out how to say goodbye. I’m so heart brokenπŸ’”so empty inside. My big sister/my best friend how can I go on w/o you BOOP...I need you mama, I can still feel you near me. We had plans, we were going to take over the world the pinky to my brain, the annamae to my Ike. Now what? 😒😭So I hold on to you with every tear I cry. #Rip Nov20,1983-Nov25,2017 #myangel #sistersforever sister til we meet again you know I love you, hold a place for me!πŸ’•β€οΈ #lupuswarrior #lupusgoddess

In a world where people get easily caught up in the material world, limiting beliefs and fear...always remember that you have the power to be your own superhero. Life is way to short for anything but greatness. Do you want to save yourself from the perils of evil; bad relationship, illness, a job that doesn't fulfill you, heartbreak, feeling stuck or many of the million other reasons that cab hold you back from living your best life?? Remember that just like Dorothy in the Wizard of Oz, you've had the power all along. So tap into you through meditation, yoga and/or journaling and remember that YOU can be your own superhero. Shine baby shine #loveyourself #beyourownhero #superhero #loveandspoons #unleashyourpotential

When you have lupus or any other autoimmune illness or chronic condition, everyone has an opinion of what you should do or how you should feel. My personal favorite line, "but you don't look sick". Trust your intuition and listen to your body. Be kind to whomever you meet because you never know what struggle they may be facing. #Repost @lupus_team (@get_repost)
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Coping with a lupus diagnosis is a very personal journey. Although it can be very helpful to share the burden with people you care about, sometimes well meaning comments from loved ones or acquaintances can feel unhelpful or even hurtful. Here's a reminder that you and only you are the one living day to day with your diagnosis, and you are the one working with your doctors making the best care decisions for yourself. Don't let uninformed opinions, comments or advice get you down πŸ’œ Repost @byisatg #lupus #lupuswarrior #lupussucks #lupusawareness #loveandspoons #spoonie

Just a little Saturday wisdom for all of us. Love is always the answer. #loveandspoons #lovequotes #love #lovelife #wisdom

You know that moment when you laugh so hard that not only your face hurts but you loose your voice?? Yeah this just happened with my little one. I do not think Marissa, Alina or katie will forget the funny Seinfeld moment we had in the city. Too bad we didn't take any pictures. Being present is what life is about and grateful for the opportunities to be in that moment to create that magic. #nyc #nycinthefall #autumn #memories #laughter #laughterbestmedicine #loveandspoons

The only limits I have are the ones I impose on myself. #Repost @soulsistrens (@get_repost)
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And this morning I washed my self with tears of gratitude . Thankful for everything and everyone but most importantly today I am thankful for my spiritual growth - my releasing of Karma- my sharing of light with others and them sharing with me - thankful for confusions that lead to clarity- thankful for life itself , peace, love and harmony . Namaste

Yes we are πŸ‘ΈπŸΌπŸ‘ΈπŸΌπŸ‘ΈπŸΌπŸ‘ΈπŸΌ! 😜 #womenempowerment #blissfulwomen #carmenrichards #Repost @marielafuentes_ (@get_repost)
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Just a reminder...πŸ˜˜β€οΈπŸ™ too awesome not too forward along. #Repost @queenofmylife.london (@get_repost)
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@queenofmylife.london
I only roll with Queens
Tag a Queen πŸ‘‘
#goddesslife
#alignedanddivine
#chakrabalancing #lupusgoddess #awareness

Just a reminder...πŸ˜˜β€οΈπŸ™ too awesome not too forward along. #Repost @queenofmylife.london (@get_repost)
・・・
@queenofmylife.london
I only roll with Queens
Tag a Queen πŸ‘‘
#goddesslife
#alignedanddivine
#chakrabalancing #lupusgoddess #awareness

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