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#lupus

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It’s starting to feel a lot like Christmas!

Living with the chronic illnesses that I do, I’ve also learned to live with chronic pain that sometimes come with them. I’ve become an expert at pushing through pain, putting on a brave face, and pretending that I am okay. Not always because I feel like I have anything to hide, but because I believe it often makes life more bearable and joyful, despite living in pain.
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But I find that the thing that isn’t so easy to hide, the thing that I can’t always mask, is the deep emotional pain that I sometimes feel. Chronic illness isn’t just painful because it physically hurts, but because it is a deep reminder of a life I feel that I have slowly lost parts of, a life where I constantly have to think about things that I don’t want to.  I carry a lot of burdens, ones I never necessarily expected to, and they are heavy. And I am tired. It is not something that I can always turn off, or push through. So on the days that I am feeling this heaviness a little bit extra, I allow myself some sadness. I leave the brave face at home. .

I’m no stranger to hearing bad news about my health. I distinctly remember the days that I was diagnosed with Addison’s Disease and Lupus like they were yesterday. And each time I enter into a doctor’s office, thinking it’s like any other day, only to hear something else, another piece of bad news, to add onto my list of worries, it feels like everything is crashing down around me. Nothing makes sense. My efforts toward my health seem pointless. I feel hopeless. I worry about my future. It feels like nothing could ever get better, and nothing could ever get any worse. Today was one of those days - a day where I couldn’t pretend the pain was not there, a day where the burdens became heavier.
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And on this day, I remember all of the bad news before this one, where I also felt that the pieces of my life were crumbling around me, where I felt hopeless and thought to myself that things could never get any better. But then, they did. With patience, and strength and the slow work of God, it always got better.
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I’m allowing myself to feel this pain today & not hide it, but I’m finding strength in the knowledge that it always does get better.

💙

Hot Matcha Tea Latte 🍵 on a cold winter morning ❄️. I love my owl mug collection 🦉💚

Nearly O N E year in remission 🙌🏻💜 So glad I have documented my journey from the start. I'm always amazed at how far I've come, physically and mentally. From a year of Hospital admissions and appointments, being bedridden and severely burnt, blood tests every 2 weeks and it goes on 😢 so Being able to actually leave my house (without wearing make up) and not walking with my head down fighting back the tears makes me so happy. Self love is so important and to feel happy in the skin that you're in 💜 Am truly very proud of myself and will be celebrating that year anniversary 🎉🎉🎉

First video is from today and second video is from 5 months ago...15# heavier, better front rack position, and more extension. Operation ditch the hitch has been a success! 🙌🏼
. . .
Just some of the MANY improvements I have made while working with @jfitzopex and @mikeleeopex at OPEX North Scottsdale. I am SO grateful I have the opportunity to be coached by them everyday.🤗
. . .
Can’t wait to see what the next 5 months will bring. This is going to be a great CrossFit season!💪🏼🏋🏻‍♀️😊
. . .
#iamopex #opexfit #gainz #progress #operationditchthehitch #jackedback #weightlifting #cleans #squats #winning #lift #athlete #competitor #competeeveryday #lupus #limitless #livealargerlife
@drivennutrition @vitamind @vibranthealth @competeeveryday @opexfitness @opexathlete

MOST RECENT

BOM DIA !
Mais um dia gelado e sombrio ...
Cafezinho brasileiro na cafeteira e daqui a pouco darei início à minha rotina.
Lembro que tenho uma infinidade de informações para ler e algumas para postar.
Lembro que todo dia é um recomeço e que a vida é maravilhosa também por isso. Novas chances, novas alegrias e novas energias!
Tenham um bom dia!

#tododia #amanhecer #atitude #energia #recomeço
#autoimune #lupus #lupuswarrior #dorescronicas #empatia #vulnerabilidade #lobas #reflexao #pessoasmelhores

I really really really wanted to take this home with me... But I must say that running into this Teddy bear today was very much needed... As soon as I left my Rhuemetologist office feeling optimistic about starting a new treatment for my #lupus ..I received a phone call that my insurance won't cover the medication so it was not approved... This is the 2nd treatment option that has been denied to me this year... And it's the treatment my Dr wants me to have.. So frustrating...#autoimmunedisease #chronicillness #needrelief #medicine #lupuswarrior #staypositive

#lupus has been hitting me hard this week.... Harder than normal... I'm tired of not being about to eat all my foods that I know my body needs.. And at the same time I'm so tired of my stomach killing me and even worse after eating..so this morning I decided to resort to my antioxidants-rich smoothie with berries, spinach, kale, pineapple, plain yogurt, banana, splashes of coconut water, pineapple juice and almond milk... #smoothie #autoimmune

Dealing with #lupus is hard enough let alone having #dementia on top of it can make it all most impossible to have a will to live. Many others suffer what you can call #lupusfog , which can also be brought in by meds if one is not careful enough. This is why I a!ways tell people to ask questions and research before or after there #doctor visit. #educate #healthcare #rheumatologist #men #menhavelupus

Morning Dolls 💛

No excuses really!

Moh keluar dari sarang
Jumpa rakan dan taulan.
#Selfie #Zoe #lupuspatient💜 #Lupus #LupusFighter

Morning King & Queens 💜

Move out of your comfort zone!

my poor baby! I always have to remember how strong she is love her soo much ♥️ #selenagomez #lupus #kidneytransplant #strongerthanever #love #godslove #jelena

“... Dance to your own rhythm...” ❤️❤️❤️ I hope you all have a wonderful start into the weekend. 😊😉🙂 Check out: www.myramusic.net

xoxo
#Myra

#selfie #quote #goodmorning #coffee #world #lupus #friday #ff #follow #lupie #spoonie #life #love #music #singer #composer #tbt #instagram #instahub #instamorning #instadaily #hello

9 Manfaat Vivix:

1. Anti-penuaan ; menggalakkan penuaan yg sihat.

2. Membantu mengelakkan kanser.

3. Membantu mengurangkan risiko penyakit jantung dan komplikasi diabetes.

4. Menyokong kesihatan sendi.

5. Membantu mengelakkan masalah Alzheimer.

6. Menggalakkan kehilangan berat badan.

7. Meningkatkan sistem imun bdn

8. Menyokong kesihatan mata dan kesihatan keseluruhan.

9. Utk cantikkan kulit.

Hidayah Mohamad
Whatsapp 019-983 5090.

Beautiful textured Italian Wave.⚜️Virgin & Raw Hair Supplier @cdeliteextensions offers nothing but quality! ⚜️For all purchase inquires please visit our website, the link is in our bio or contact us directly. -------------------------------
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I am so excited to see how many inspiring women have been booking calls to discuss my new Pilot Program!

I only take on clients I know are dedicated to taking back their lives and if you’re interested in joining, it’s not too late.

I will be having conversations for the rest of the year about it.

The Pilot Program is a 90-day, life-changing opportunity to identify and heal the root causes of your autoimmune disease and chronic illness with 1:1 attention from me the whole way!

What you get:
- stellar support
- empowering perspective
- consistent accountability
- successful strategies
- real results ...all for 50% off.

The goal is to create an individualized self-care plan to help you partner with your doctor, build a support system, and get rid of stressful triggers so that you can take back your life!

Are you ready to talk about how you can heal? Click the link in my bio to book a FREE call with me.

Can’t wait for these two men to escort me to #MBC! They are going to be by my side and encourage me in. Thankful for their support, the Hubbs and son! Can’t wait to go in this journey with them! My son I tried explaining what I was having done and the he already said “I know what it is mom I did all my research” of course he did! #futuresurgeon #vsg #vsgcommunity #vsgbeforeandafter #vsgphotojourneychallenge #vsgjourney #vsginstacrew #vsgsurgery #vsgstrong #vsgbabetobe #vsgmexico #vsggoals #vsgsleeve #vsgirls #vsgfamily #vsgnewbie #vsgnewlife #vsgnewbody #lupus #lupussucks #lupuslife #lupusfacts #lupusfighter #lupusstrong #mexico #mexicobariatric #mexicobariatriccenter #mexico2018 #TakeMyTummyOut

So when i want to give a gift. i always go for an inspirational quote or saying. I have to say that you can't go wrong with a bracelet or necklace from @mantraband. I love the quality and how well these are made. When i have had a hard day or just extra pain from #Lupus
I always have a reminder to be #Fearless, #Brave, to know I have #InfiniteLove, #ToDreamBelieveAchieve, and to have #Hope. Just to name a few. I plan on many more purchases in the future.
My favorite brand of makeup Palettes are hands down the @Tarte #Tartelette's I find that they are highly pigmented and long lasting on my eyes they don't crease and the palettes are beautiful. The Toasted palette is another amazing one I need to add to my collection. **What products are you crushing on this christmas? Any i should try? #GiftCrush #contest @Influenster

The official L hand sign for my disease called systemic lupus erythematosus ✋🏼
I just wanna take a sec to share some love with everyone suffering from this so-called wolf 🐺
I can't even find words that describe how grateful and blessed I am to feel this healthy. Just because I do know the other side.
Everyone who's going trough disease relapsing and pain right now, you are not alone. I will never forget what that feels like. I have you in my prayers ❤️
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@lupusorg .

#knowlupus #lupus #lupuschick #girlwithlupus #lhandsign #systemiclupuserythematosus #systemiclupus #sle #strongtogether #disease #blessedtobehealthy #gratefulheart #lupuswarriors #lupuswarrior #nephritis #lupusnephritis #kidneyfailure #lupusfamily #standstrongtogether #lupuswillnotwin #lupusdiet

Good herb medicine at 130am for the most painful flare. My face is all rashy and I’m so nauseas. Here I am looking like the poster child for lupus. #butterflyrash #lupus #medicalmarijuana #bestmedicine #painsomnia

My beautiful wonderful magical friends! I want to say thank you! So many of you have liked, donated, and shared our kickstarter. I am humbled by all the love. And the disease. But mostly the love.

We are very close to reaching our goal, and have less than 48 hours left! Please please please like, share, and donate if you can! We can do it!
www.kickstarter.com/projects/womenrulebroadway/women-rule-broadway-presents-lupus-is-sexy-too

#women #lupus #blackgirlmagic #musicals #theater #feminism #flipthescript #representation #kickstarter

💏My wifee hun. Its going to be a sad christmas without you my angel. 😔 We use to love visiting the city to see the decorations and festive atmosphere Melbourne offers during this time if the year. The #myer Christmas tales windows would always hold our attention for a while. This is season 67 of those displays. Loving you always🌹🌹🌹💜💜💜🛐❇👼🕯 #rememberben #iloveyou #christmas #devotion #dciwarrior #spirituality #loveneverdies #truelove #lupus #lupiechick #lupuswarriorben #missingyou #dedicationtomywife #truelove #sle #thaigirl #lovinghusband #beautiful #beautifulwife #autoimmunedisease #gonetoosoon #restinpeace

💕My angel. It was so hard walking past the hospital today. I had just completed the last part of my first aid course for personal training and I stopped and looked up. The first room I see, is the last room I held you, as you took you last breath. The 3rd room from the top. I stood and looked at the large green panned windows divided me and the inside of that room for a moment and thought of you and how happy we made eachother during our 17 short years together. I had to put my sunglasses on...I couldn't continue to look on. 💏I love you and miss you so much honey🌹🌹🌹💜💜💜🛐❇👼🕯 #rememberben #iloveyou #hospital #devotion #dciwarrior #spirituality #loveneverdies #truelove #lupus #lupus #lupuswarriorben #missingyou #truelove #sle #thaigirl #lovinghusband #homesweethome #autoimmunedisease #gonetoosoon #restinpeace

Ever since, I started focusing on becoming who God created me to be... My life got harder... but Isaiah 54:17... And I know once this dream the Lord put in my heart comes to pass.. it will be all worth it. 👑

www.KenWeal.com
#NeverGivingUp
#KenWeal
Repost @the.future.entrepreneur

GREAT NEWS TODAY!!! My doc took me off all my #Lupus meds!!! Before I can start celebrating remission I know this means I realllllly need to take good care of myself now. Keeping up the routine will be key, and listening to my body. I'm so happy to hear this now. What a crazy year it's been, I'm ready to embrace the upside. Jumped on the trainer for 45 mins just to keep the momentum up. There will be bad days, but hopefully more good ahead! Woo hoo! #lupuswarrior #swimbikerun #tritraining #bettydesigns #trek #garmin #badassisbeautiful #happypace #cyclops #beatyesterday

Эльбрус - самая высокая горная вершина России и Европы. Высота :5642 метра #эльбрус #горы #кбр #снег #зима #отдых#кавказ #курорт #mountains #elbrus #caucasus #snow #winter #relax #кабардинобалкария #travel #tourist #путешествие #туризм #lupus

- Website link is in the bio. Health benefits of avocados. #diabetesawareness , #cardiovascularhealth #arthritis, #lupus , #depression, #detox, #skincare and more.

God can heal wounds that no medicine ever can 💯🙏 #ThankyouGod #healing #growth

Why am I awake at 4am? I hate this insomnia!!!

This spring, I will be working towards my second Master's Degree! Lupus, will not control my life. No bragging, but thankful. I have been through hell and back, but things are falling into place. I can do all things through Christ who strengthens me! I will accomplish this goal, and work as I desire to. My life is in God's hands..#believe
#kickrockslupus💜 #positivethoughts #LupusAwareness #SystemicLupus #LupusWarrior #LupusSurvivor #ChronicIllness #AutoImmuneDisease #Educate #Facts #MyReality #RaiseAwareness #CureLupus #AlopeciaBeauty #Lupus #LifeOfALupie #chronicpain #RheumatoidArtiritis #motivationalquotes #inspirationalquotes #livelife #selflove #stillbeautiful #prayerchangesthings #peaceofmind #positivethoughts #Fibromaygia #hanginthereluv

rose are red,
violets are blue.... Yeah idk.
- @selenagomez - - Happy Friday my Selenators! Its been a hectic week for me thats for sure! Next Monday I'm taking four exams on four different topics. Dont you love life? 🤗😐
-#taylena #london #billboard #womanoftheyear #wedonttalkanymore
#zaynmalik #taylorswift #blonde #lupus #lupusresearchgala #blackfriday #backstage #selenaxamas #blonde #leather #selenagomez #fanaccount #beautiful #slay #wizardsofwaverlyplace #princess #alexrusso #jelena #wolves #goodforyou #nice #gainpost #f4f #idontwannaliveforever #justinbieber #arianagrande #gainpost

This show was phenomenal!! @turnpiketroubadours

Just keep living your best life the way you can without judging yourself or letting others get in the way of your happiness. We were put on this earth to live it and breath it. Allow yourself to live one day at a time and do what makes you happy 😊 ✌🏼 #chronicillnessquotes #chronicallyill #chronicillness #chronicpain #chronicfatigue #spoonie #spoonieproblems #fibromyalgia #itp #lupus #cancer #ibd #eds #endo #ra #ms #pots #lyme #crohns #pcos #ptsd #anxiety #depression #insomnia  #eccedentesiast #butyoudontlooksick #thyroidproblems #pain #staystrong #thespooniechronicles

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#depression #anxiety #insomnia #autism #fibromyalgia #lupus #add #adhd #cbd #diabetes #pain #arthritis #migraines #autism #multiplesclerosis #headaches

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