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#lovemelovemyface

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ชอบหน้าตัวเอง 55555 #lovemelovemyface

Just finished reading this amazing book. Made me cry a few times.
#wonder #choosekind #tcs #treachercollinssyndrome #treachercollins #lovemelovemyface

@jonolanc
#lovemelovemyface
Просто вспомни, когда...когда тебе будет хреново....

Finished... Eine Hass-Liebe geht zu Ende!

2 Jahre durfte ich diesen Zahn-Schmuck nun tragen. 2 Jahre in denen ich mich so langsam daran gewöhnt habe, obwohl dieser mir nicht immer Freude bereitete. Trotzdem hat dieser auch viel Gutes bewirkt... Nun ist mein Unterkiefer gerichtet und die Zähne gerade gestellt worden.
Ich freue mich das ich es mit Erfolg durchgezogen habe und den Schmuck nun heute endlich rausnehmen lassen kann.
Also wundert Euch nicht wenn ich ab sofort Euch ein noch breiteres Lächeln schenken werde 💕

Prince of the greenhouse

Nena I do fishy face 😂💜 #treachercollins #beautiful #lovemelovemyface #lmlmff

อ่อ...ที่เขาว่าหน้าหมา มันเป็นแบบนี้นี่เอง 🐕#joyjeelife #snapchat #dogs #lovemelovemyface #goodvibes

#Repost @penny_suzanne (@get_repost)
・・・
On a day to day basis we are working hard at @love.myface to keep making waves not only in the TCS community but in all of our communities in general. The importance of togetherness and connecting with each other is beyond words. Our aim in helping our next generation in schools to be more tolerant and understanding of each other and the battles we all face at different times through different circumstances is only aided by ourselves and our community's. Children follow our lead and if they see us distancing ourselves from one an other and segregating each other for whatever reason they will grow up to believe that is how it should be. Be the change, do something positive for someone else today, ask someone how they are doing or if they need a hand or just reach out in a message or a hello on the street. You never know where your positive attitude may effect someone else in the greatest of ways!!! #lovemelovemyface #lmlmff #tcs #treachercollins #community #antibullying #togetherness #charity #wonder #bethechange #positivity #love #connect #reachout #youarebeautiful #youareneveralone #friendship #helpinghand #walkinsomeoneelsesshoes

Matthew was asked to read We're All Wonders to his 2nd grade class (he chose the shirt) ❤️#wonder #tcs #lookwithkindness #lovemelovemyface #cca #lovemorejudgeless #differentiscool #realauggiepullman #whyblendinwhenyouwereborntostandout

After a night sleeping like this, my favorite avocado toast was in order ❤️🥑❤️ #treachercollins #tcskids #ccakids #lovemelovemyface #lmlmf #justanothersleepstudy #chochospital #provisionsmarket

Had fun chatting with my love! These filter things are funny 🤣
#mylove #tcs #treachercollins #treachercollinssyndrome #lovemelovemyface

In recovery this morning after surgery. The surgeons removed my jaw distractors and put in dissolvable plates. I'm home now, and still resting. Very swollen and tired, but happy to be done with this chapter. #madeleinemarie #raisingawareness #treachercollins #tcs #craniokid #trachkid #ccakids #lmlmff #lovemelovemyface #jawdistraction #postop #surgery #choosekind

Post-op family time. Madeleine had her jaw distractors removed this morning, and we were fortunate enough to bring her home to heal. She always feels better here, and we've gotten to be pretty good at being nurses.
Thank you to the amazing surgeons & real nurses @chocchildrens for all you do every day, for us and others. True miracle workers.
#madeleinemarie #postop #surgery #raisingawareness #craniokid #treachercollins #tcs #ccakids #lmlmff #lovemelovemyface #trachkids #jawdistraction #thisismyface #choosekind

This is why we are, and will always be, more than a restaurant; we are family.
....... 📝: @havengastrochef ・・・
By now you probably know that @havengastropub feeds NICU parents once a month @chocchildrens in coordination with @marchofdimes as a way to give back.
We want the parents to have the opportunity to eat a great meal, and take a minute with others, with the hopes that it eases their burden for just a short time.
Last night, while dropping off food, I was invited to tour the new NICU unit - with upgrades like individual rooms for patients!! There was also a sibling activity room with games and toys! Amazing!
Something bigger happened though; I was introduced to a Mom and her 6 week old boy with Treacher Collins Syndrome, Joel.
Little Joel is a fighter, and he's been bounced around 4 hospitals, before ending up here for the best care. He was given a tracheotomy only days ago, and Mom had just been taught how to suction and care for it. Mom and Grandma were both by the bed, loving and caring for Joel. I asked and answered questions, talking about our @madeleinemariedaniels and everything we've been through. I told her about @ccakids, and that there were others out there like us, with similar experiences. I left my card, and encouraged her to reach out. Community is so important, and makes such an incredible difference. I hope she calls, or texts, or writes an email when she's frustrated and scared. I hope.
All of us are alone, until we're not.
Thank you @chocchildrens for all you do, and for allowing us to help.
#nicuparents #treachercollins #raisingawareness #tcs #craniokid #choc #trachkids #neveralone #family #choosekind #wearewonders #lmlmff #lovemelovemyface

By now you probably know that @havengastropub feeds NICU parents once a month @chocchildrens in coordination with @marchofdimes as a way to give back.
We want the parents to have the opportunity to eat a great meal, and take a minute with others, with the hopes that it eases their burden for just a short time.
Last night, while dropping off food, I was invited to tour the new NICU unit - with upgrades like individual rooms for patients!! There was also a sibling activity room with games and toys! Amazing!
Something bigger happened though; I was introduced to a Mom and her 6 week old boy with Treacher Collins Syndrome, Joel.
Little Joel is a fighter, and he's been bounced around 4 hospitals, before ending up here for the best care. He was given a tracheotomy only days ago, and Mom had just been taught how to suction and care for it. Mom and Grandma were both by the bed, loving and caring for Joel. I asked and answered questions, talking about our @madeleinemariedaniels and everything we've been through. I told her about @ccakids, and that there were others out there like us, with similar experiences. I left my card, and encouraged her to reach out. Community is so important, and makes such an incredible difference. I hope she calls, or texts, or writes an email when she's frustrated and scared. I hope.
All of us are alone, until we're not.
Thank you @chocchildrens for all you do, and for allowing us to help.
#nicuparents #treachercollins #raisingawareness #tcs #craniokid #choc #trachkids #neveralone #family #choosekind #wearewonders #lmlmff #lovemelovemyface

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