This is why we are, and will always be, more than a restaurant; we are family.
....... 📝: @havengastrochef ・・・
By now you probably know that @havengastropub feeds NICU parents once a month @chocchildrens in coordination with @marchofdimes as a way to give back.
We want the parents to have the opportunity to eat a great meal, and take a minute with others, with the hopes that it eases their burden for just a short time.
Last night, while dropping off food, I was invited to tour the new NICU unit - with upgrades like individual rooms for patients!! There was also a sibling activity room with games and toys! Amazing!
Something bigger happened though; I was introduced to a Mom and her 6 week old boy with Treacher Collins Syndrome, Joel.
Little Joel is a fighter, and he's been bounced around 4 hospitals, before ending up here for the best care. He was given a tracheotomy only days ago, and Mom had just been taught how to suction and care for it. Mom and Grandma were both by the bed, loving and caring for Joel. I asked and answered questions, talking about our @madeleinemariedaniels and everything we've been through. I told her about @ccakids, and that there were others out there like us, with similar experiences. I left my card, and encouraged her to reach out. Community is so important, and makes such an incredible difference. I hope she calls, or texts, or writes an email when she's frustrated and scared. I hope.
All of us are alone, until we're not.
Thank you @chocchildrens for all you do, and for allowing us to help.
#nicuparents #treachercollins #raisingawareness #tcs #craniokid #choc #trachkids #neveralone #family #choosekind #wearewonders #lmlmff #lovemelovemyface