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#lifetakesguts

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"IV" finally got this down....Do "U.C." what I did there? 😏

#ulcerativecolitis #ivinfusion #entyvio
#LifeTakesGuts #TooBadMineSuck

got the amazing birthday present of getting rid of my ileostomy for good!! which means i'm officially cured of UC!after spending a year feeling so miserable and putting my life on hold to take care of myself, i'm finally back on track to where i need to be. the last year was definitely not easy and pushed me passed my limits but it definitely changed me for the better.
#riprichard #nocolonstillrollin #gutitout #lifetakesguts #ibdawareness

In February of 2015 I was diagnosed with Crohn's disease. The last two years have been filled with ups and downs medical wise but I am blessed to come as far as I have, and now I have this amazing piece of art to remind me everyday to keep fighting through it, and to spread awareness for Crohn's disease 💜 #lifetakesguts #crohnsawareness

sooo excited to begin volunteering for Crohn's and Colitis UK! anyone else attending this event soon?
#crohnsandcolitis #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #lifetakesguts

Looking back at my life's voyage, I can only say that it has been a golden trip. - Ginger Rogers
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#staygolden #lifetakesguts #gay
Photo courtesy of @mattxhuntxphoto

MOST RECENT

Made an oil blend in a rollerball to try and heal some scars. I did two drops of lavender, frankincense, lemon, tea tree, and one drop of eucalyptus with coconut oil as my carrier oil. 🌿

➡️ scar under my ribcage

➡️ scar on my left side

➡️ scar on my bellybutton

➡️ scar below pantyline on right hand side

I’ll post progress pictures as soon as I start noticing some results!



#ulcerativecolitis #nocolonstillrollin #uc #inflammatoryboweldisease #ibd #gutitout #lifetakesguts #mayoclinic #colorectalsurgery #ostomy #ostomate #ostomates #ileostomy #girlswithguts #coloplastsensuramio #coloplast #jpouch #jpouchlife #mayoclinic #colectomy #chronicillness #invisibleillness #notalldisabilitiesarevisible #spoonie #spoonies #scars #laparoscopic #laparoscopicsurgery #roboticsurgery #essentialoils #youngliving #colectomy

When I woke up this morning I noticed my wafer was about to spring a leak. Thankfully it was bag change day. 💩
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A couple of days ago I posted about some irritation/leakage I was having under my stoma. I took my bag off hoping it would look better, but it looks like things have gotten worse. 👎🏼
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I usually have high liquid output in the mornings, so being able to get a good crust around my stoma proved to be quite a challenge. It ended up taking me about 40 minutes to get everything under control. 🤦🏽‍♀️
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I did the crusting method and applied some Stomahesive paste to my wafer in hopes that would help protect that raw skin a little more. Fingers crossed for some healed skin when I change my bag on Tuesday! 🤞🏼
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Just when you think you’ve got the hang of this ostomy bag thing, it decides to throw you for a loop! 🌀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
#ulcerativecolitis #nocolonstillrollin #uc #inflammatoryboweldisease #ibd #gutitout #lifetakesguts #mayoclinic #colorectalsurgery #ostomy #ostomate #ostomates #ileostomy #girlswithguts #coloplastsensuramio #coloplast #jpouch #jpouchlife #mayoclinic #colectomy #chronicillness #invisibleillness #notalldisabilitiesarevisible #spoonie #spoonies #scars #laparoscopic #laparoscopicsurgery #roboticsurgery

It's crazy to think that this was me a year ago.. a couple of months post op, no confidence, almost no hair, attached to multiple machines, 3 stone lighter, covered in stretch marks, wounds and scars, and my confidence at 0 and here I am one year on happier than ever and super excited to be doing a photo shoot for @jasminestaceycollection before Christmas! I never thought I would feel good about myself again but I do and by doing this I want to make other people in my situation feel good too and know that it's not a horrible life and hopefully raise some awareness for the cause too.
I'm not going to pretend I'm the most confident person because I am not and it is hard to get used to the change but I'm fighting my insecurities because at the end of the day the only people who's opinion I care about accept me how I am and if they didn't then they don't deserve to be in my life 💪 and without people showing their tummys and talking about IBD there will never be enough awareness or support. There is no cure for this illness so the best thing we can do is stick together and support each other 💖💖💖
(Although no pressure to show anything you don't want to/are not ready to 😘)
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Ps. I have never shown a couple of these photos before which is pretty scary 🙈
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43/100 #100gratefuldays
#ibd #inflammatoryboweldisease #ulcerativecolitis #crohnsanscolitis @crohnsandcolitisuk #illness #surgery #scars #stretchmarks #oneyearon #recovery #mylife #support #awareness #lifetakesguts #getyourbellyout #jasminestaceycollection #photoshoot #insecurities #confidence #strength

Ok guys, I’m looking for suggestions on the best way to heal the scars on my incision sites. I have four really tiny scars left from my laparoscopic colon removal surgery. •

There are so many options! Mederma, Bio-Oil, Palmers, essential oils. Help!!! •

I’m not self conscious of them because those four little scars tell the story of me getting my life back! With that said, I would like to make them a little less noticeable if possible. •

What do y’all recommend?!


#ulcerativecolitis #nocolonstillrollin #uc #inflammatoryboweldisease #ibd #gutitout #lifetakesguts #mayoclinic #colorectalsurgery #ostomy #ostomate #ostomates #ileostomy #girlswithguts #coloplastsensuramio #coloplast #jpouch #jpouchlife #mayoclinic #colectomy #chronicillness #invisibleillness #notalldisabilitiesarevisible #spoonie #spoonies #scars #mederma #laparoscopicsurgery

It’s felt like Monday everyday this week, I swear! •
On Sunday evening when I was changing my bag I noticed that underneath my stoma there was a small area where liquid output was piling up. I thought it was leaking down from my opening, but I saw it actively seeping from this little raw area under my stoma. I was a little alarmed because I have an end ileostomy, so I know that output is only supposed to come from one opening. I was a little concerned, but crusted the area really well and put a new appliance on.

First thing Monday morning I called my ostomy nurse at Mayo to explain the situation. She suggested going to a local wound care clinic since we live six hours from Mayo. I literally called every single would care clinic in my town (and a few surrounding towns) and none of them would see my because I didn’t have my surgery there. How frustrating. I finally got in touch with one nurse who could see me if my surgeon sent over a referral. Fast forward to today and 35 (yes, I counted) phone calls later, the referral was finally sent and I was told I couldn’t see the ostomy nurse until November 30. That isn’t going to do me much good since I’ll be at Mayo on December 4 for my pre-op appointments for step 2. •
I finally spoke with my ostomy nurse at Mayo and after looking at the pictures I sent over to her, and she my surgeons PA feel that I will be ok until I get to Mayo in December. They said if I start to feel bad of thick output comes out of that area to head to the ER right away. •
They think this may be a mucocutaneous separation or a very small fistula. Either way I’m praying it doesn’t get worse and will heal itself up soon. •
I’m attaching some pictures of what’s going on. Has anyone else experienced anything similar to this? •

#ulcerativecolitis #nocolonstillrollin #uc #inflammatoryboweldisease #ibd #gutitout #lifetakesguts #mayoclinic #colorectalsurgery #ostomy #ostomate #ostomates #ileostomy #girlswithguts #coloplastsensuramio #coloplast #jpouch #jpouchlife #mayoclinic #colectomy #chronicillness #invisibleillness #notalldisabilitiesarevisible #spoonie #spoonies

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