#lemtrada

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The beginning of the day four round one, almost done with this process!!! It's gone way better than I anticipated. And I couldn't be happier with the way the nurses and doctors here have made this process as easy as possible. Thanks to my wife @liv_fit365 for making me as comfortable as I can be while I go through this, and Thank you everyone for your support and I'll give you a heads up this afternoon😊#lemtrada #lemtradajourney #mssucks #fuckms

Look out MS. Here's comes the kryptonite ... err ... alemtuzumab.
#lemtrada #multiplesclerosis #kissgoodbyetoms

Port and Tims in my hand this morning.

Tims is the best thing to have when you're in the hospital all day.

#lemtrada #timhortons

Feeling Blessed today. Thanks to the soul fam for holding it down and keeping me sane during the last week of clinical trial weirdness. Now - we wait 😬 #LifeWithMS #UBCMSClinic #Lemtrada #sofresh

This little vial is changing my life ... it's also worth more than $12 000! Times that by 8 and, well, you do the math! 12 months ago I began a treatment for MS called Lemtrada, to completely wipe out and then rebuild my immune system with the hopes that it would stop attacking my brain and spinal cord. 12 months ago I had 5 days of infusions and now I'm back for my last 3 days!
Tomorrow I begin my second and final round. It's a 3-day cycle to kill off that malfunctioning immune system once and for all!
If you would, I'm asking you to pray! I am so relieved that this is my final round for 15 years (if all goes well!) but I am also aware that after his second round come the risk of the most severe side effects. I'll be hooked up Tues, Wed, Thurs from 7am - 4pm PST and if you'd like to pray specifically you can pray for no side effects (nausea, rashes, fever, etc) and for opportunities to speak hope!
These next three days I will keep you updated #LiveFromTheInfusionRoom if you want to follow along!
#MS #multiplesclerosis #lemtrada

I need help! Post #lemtrada patients... I am one week away from being three months post treatment and feel absolutely horrible can barely walk if you would even call it walking and can't even bend my left leg or pick it up! So all you #mswarriors please comment if you have done a Lemtrada treatment, & if it actually ended up helping you in anyway!
Much appreciate

OK.
I give in.
I was trying to catch up with my #365challenge #365project but the side effects of last week's #lemtrada #alemtuzumab treatment are still with me.
So, I give in- if you need me you'll find me on the sofa watching a film.
#fatigue

So glad it's over. Home in bed with my boy Alfie . Worst week of my life. 💖🐾 #lemtrada #ms #multiplesclerosis #mswarrior #campath

My home girl @favorinbattle got me into her gym on a guest pass while I was in town. Awesome! Then we run into my Suitland High School class of '91 classmate and friend @the_darrk_nite. Needless to say it was a great workout!
#fitfriends #fitover40 #suitlandhighschool #workout #lift
#fit40 #fit40s #weights #weightlifting #oldmanstrong #lift #shutupandlift #ms #multipleschlerosis #backday #mylifestyle #blackfitness #ebonyfitness #fitdad #fithusband #ymca #theY #JohnstonYMCA #consistencyoverintensity #lemtrada #artist #blackartistnews

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Hi everyone, I was very reluctant to create this, but since funding is no longer available, I wanted to try. This treatment will be a reset for my immune system, and as excited as I am about it, I do need help getting there. Any help is greatly appreciated. Thank you ☺

https://www.gofundme.com/ms-medical-trip-for-lemtrada

#multiplesclerosis #ms #MSFighter #lemtrada #MultipleSclerosisAwareness #multiplesclerosiswarrior

My home girl @favorinbattle got me into her gym on a guest pass while I was in town. Awesome! Then we run into my Suitland High School class of '91 classmate and friend @the_darrk_nite. Needless to say it was a great workout!
#fitfriends #fitover40 #suitlandhighschool #workout #lift
#fit40 #fit40s #weights #weightlifting #oldmanstrong #lift #shutupandlift #ms #multipleschlerosis #backday #mylifestyle #blackfitness #ebonyfitness #fitdad #fithusband #ymca #theY #JohnstonYMCA #consistencyoverintensity #lemtrada #artist #blackartistnews

🔊or read...had some technical issues. Must be the eclipse. IG must've burned its retinas. Nope just me🤦🏻‍♀️.
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My Lemtrada adventure continues into the next phases. My MRI's showed NO new disease activity. But, the fight will never stop! I'll always have MS.
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Small PSA- Lemmies get your labs. We're committed to them for 4years. If anything comes up get to your docs so stuff can be addressed quickly. I was able to witness a team of doctors come together (globally in one case) on my behalf because one thing came back a little off. It was moving. .
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For those of you without MS who follow me and aren't sure what hearing no new disease activity is comparable to...imagine taking the biggest test of your life. You studied. Crammed. Did EVERYTHING you were supposed to do. Took the test. And then had to wait a whole year for the results. That's what it was like. ⏲⏰🕰
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Before, hearing this all I could do was think about "it". I was letting the light slowly in. I didn't want to jinx it. I was breathing shallow and fast. .
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Now I can take the deep breath. Now I can let the light in. Because now I know the medicine worked. I'm proof. I still have MS, but maybe now it's going to pause for a little while and let me drive again. .
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#lemmietakeaminute #lemmiereflect #lemmielettheletin #lemtrada #lemtradajoirney #lemtradarecovery #lemmiekeepon #ms #fuckms #mswarrior #multiplesclerosis #chronicillness #breath #positive #light #lemmietakeoverms #lemmiedrive #nyc #weilcornell #nyu #bestdoctors #bestteam #blessed #luckyduck #msjourney #lemmies #spoonies #lemmielife

I always take a day off either on my birthday or near it. Today, I'm spending my day binging on @agentsofshield and hanging with this guy. We'll, and a #lemtrada blood draw, and an early 5am workout @otfdunnlorring, and some ice cream.

>>NEW VIDEO IS UP<< The 4th day of round 1 might have put me in the hospital, but I knocked out a few firsts like using a bed pan and riding in an ambulance. #msmonday #schuplindoeslemtrada

Today's #ms #psa : Was sooo excited yesterday to be done, started day feeling good and ran head first into doing too much, too quickly. Crazy headaches and stupid tired. I did just spend 5 days killing all my T- lymphocytes, sleeping and mediating for 7 hrs a day at an infusion center. Yooo! Remember to ease back into it! Today I remembered to #slowdown #appreciate everything and #takeiteasy ... ... ... #lemtrada #lemtradajourney #grace #grit #patience #seriously #lemmiechill

Sunny Sunday's in the backyard. 🌴☀😎 had a pretty good week. Was so happy I was able to help my sister move and set up in her new place. It was awesome to be there for her❤ I was also able to start a cool project that will be done this week. #sunny #smyelin #messyhairdontcare #bruises #therewillbegooddays #dragonfly #shamless #selfie #celebrate #gardens #gardendork #mswarrior #ihavefightinmetoday #tattoo #mslife #red #spoonie #lemtrada #curems #chronicallyill

Description is on point. Hoping to leave this behind! Day 2 Recovery #lemtradajourney . . #ms #mswarrior #lemtrada #lemmie #lemmiefeelgood #grace #grit #patience #hope @themightysite

Recovery Day #1 after #lemtrada infusion. Feeling tired, stomach a bit whacked, but damn happy to be hanging w my loves. #lemmie #lemtradajourney #ms #mswarrior #grace #grit #patience #hope

So proud of my girl, it's been hard being away from each other but she's been so good 💗 #daughter #blossom #love #hospital #ms #multiplesclerosis #lemtrada #proud

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