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#kidshavestrokestoo

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So he totally got himself into this swing on his own, using *both* hands on the chains to pull himself up. It's a rule that I must celebrate the small victories as much as the big ones! #hemiplegia #cerebralpalsy #kidshavestrokestoo

Purple tubie pad for IBD awareness day! Take some time today to read about IBD and spread the facts to others who may be less knowledgable about it! I personally do not suffer from IBD but lots of my spoonie friends do. Put on some purple today to do your part in spreading awareness! It's also pediatric stroke awareness month and purple is the color for that as well ๐Ÿ’œ๐Ÿ’œ #IBD #kidshavestrokestoo #awareness

Another great MD appt, one less med and she really impressed her doctor! #HUStrong #kidshavestrokestoo

Leo using his lefty while wearing his Hulk costume of course! #kidshavestrokestoo #kids #hulksmash

We didn't do any planned therapy today... was way to sunny to miss a garden play day... but Amelia likes to make her own physio.... just as I'm looking to buy her a little slide she can do herself she goes and works out the big one!! We have to lay down coming down the slide as Amelia doesn't have the core strength to hold herself in the seated position while coming down, and ends up falling either forwards or backwards if she tries, but she's pretty happy at the belly sliding.
#hemiplegia #kidshavestrokestoo #pediatricstrokeawareness #cerebralpalsy

Number 22 on the helmet. Here's to a great season that starts tomorrow! #chdsurvivor #coarctationoftheaorta #pediatricstrokesurvivor #kidshavestrokestoo #hockeymom

she and me at last year's heart and stroke walk!! i want to say an enormous, heart-felt THANK YOU to everyone who has already helped us by joining this year's team, sponsoring us, and showering us with kindness. i fixed my AHA page link, so if you'd like to help our team or learn more about swiss, go here: http://www2.heart.org/goto/swiss #audreycharlotte #prenatalstrokewarrior #kidshavestrokestoo #ahaheartandstrokewalk #heartandstrokewalk

On September 16th @nicklaus4kids will be hosting there 7th annual Walk/Run 5k. My Bestie @melissarospigliosi has created a team in honor of her son Niccolo who has been beyond blessed by NCH and it's marvelous team. I ask any and every one who can to join our team #forwardwithniccolo you can participate and/or donate. The link is in my bio. #CPwarrior #kidshavestrokestoo #cerebralpalsy #pediatricstrokeawareness #niccoloalessio #warriorbaby #warriormom

MOST RECENT

Aubree is now cruising along things! She is in therapy every week and it helps so much. She also started clapping. Every little thing she does makes us sooo happy. We love our baby girl. #hopeforhie #kidshavestrokestoo

TENS therapy. It is a little painful at times but he powers through. #kidshavestrokestoo #pediatricstrokesurvivor #godsgotthis #roadtorecovery #pediatricstrokes

We are taking it easy today. We didnโ€™t get home until 3am from the emergency room. The doctor said that my poor little Tater has an Upper Respiratory Infection and that we pretty much just wait it out. So, we arenโ€™t doing a damn thing today except for cuddling on the couch.

If anyone of you personally know Greyson, then you know that in the mornings, he eats breakfast and then turns into the Tasmanian Devil and wreaks havoc on our living room. This morning, the complete opposite... โ€ข โ€ข โ€ข
Last night, Greyson had a temperature of around 102 degrees but was still fine and acting like his normal crazy self.
This morning, his temperature is just under 100 degrees and he just looks like he feels miserable - He didnโ€™t eat all of his breakfast, and just wanted to lay on the couch and watch Mickey Mouse. AND today is double therapy day. So, letโ€™s hope he starts to feel better ๐Ÿคž๐Ÿผ๐Ÿคž๐Ÿผ

Haven't posted in a while as yet again phone isn't working.... Today with only the afternoon at pre school we planned constraint therapy for this morning... Amelias hand use has been really good the past week or so and we've been working really hard getting constraint and bimanual play in and it's really starting to pay off.. Amelia hand use were really good this morning so we packed up the mitt and left her to it... Instead tried to capture the moments where she used both hands, I missed loads I'm not as quick as I thought. This was just over a 60 min period between breakfast and pre school.
.. . Had to spread it through 3 videos with instagrams 1min videos limit . ..
#hemiplegia #hemihelp #cerebralpalsy #mildcp #perinatalstroke #kidshavestrokestoo #strokesurvivor #therapy #physiotherapy #occupationaltherapy #bimanualtherapy #constrainttherapy #cimt #toddlersofinstagram

I hope that one day, someone will look at me the way that Greyson looks at hash browns ๐Ÿ˜‚

STEPS!!!!!!

Another great MD appt, one less med and she really impressed her doctor! #HUStrong #kidshavestrokestoo

this is my 2nd child Kurt Dustin Theo <3 he has spastic hemiplegia, a type of cerebral palsy from pediatric stroke, he's 25months now . it affects his right side limbs, mainly his right arm and may have speech delay. he is most of the time cranky but is sweet and loving. we just got home from his rehab doctor after 12sessions of Physical Therapy, accdg to his doctor, he had improve lot, no need for braces he will soon walk, DIY constraint induced movement therapy will be good for his hands, will continue therapy once a week only, after 12 weeks will be back for assessment if he needs occupational and speech therapy. so thats 2weeks before Christmas.
Many wont understand his condition but it doesnt matter to us his parents, someone called him retarded before, God forgive that person, she doesnt know what she's talking about. many are thinnking that I am sacrificing my career for him, I dont see it that way, a job/ career would be just around anytime anywhere but my son needs me most today by his side <3 creating this post for everyone's awareness. positive vibes only. we dont need any negativity right now <3
#babylove #superkids #spastichemiplegia #hemiplegiaawareness #cpkidsrock #cerebralpalsykids #kidshavestrokestoo #babieshavestrokestoo #kidsonpt #rehabmed #rehabkids #cerebralpalsyawareness #time #hemikids #cmit #therapykids #cpph #hemiplegia #cerebralpalsyph #wewillwalksoon #cpwarrior

will answer pending PMs, emails later tonight, off to Theo's rehab doctor ,after 12rounds of PT he's learning to stand now :) #improving #hemiplegia #superkids
#hemiplagiaawareness #cpkidsrock #rehabkids #rehabmed #kidsonpt #kidshavestrokestoo #babylove #babieshavestrokestoo #waiting

I've created a hash brown monster! He loves McDonald's hash browns!

Sunday night bubble bath time!

So he totally got himself into this swing on his own, using *both* hands on the chains to pull himself up. It's a rule that I must celebrate the small victories as much as the big ones! #hemiplegia #cerebralpalsy #kidshavestrokestoo

Tristan received full get up from parasports! How awesome is that? And how handsome is he?! #cerebralpalsy #hemiplegia #kidshavestrokestoo

๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š#cpwarrior // thanks for sharing @lifewiththeks

Number 22 on the helmet. Here's to a great season that starts tomorrow! #chdsurvivor #coarctationoftheaorta #pediatricstrokesurvivor #kidshavestrokestoo #hockeymom

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