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#kidneyfailure

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CF effects every cell in our body. Caused by a defective CFTR gene. This gene is responsible for transporting chloride ions (salt) in and out of the cells. The transport of chloride ions helps control the movement of water in tissues. This is necessary for the production of thin, freely flowing mucus. Because this gene is defective salt water is not transported to the cells of your body and mucus becomes thick and sticky. You also sweat out a lot of salt, taking it out of the body. If you lick my skin (won’t name my friend who did this!) i am quite literally salty. Mucus is found literally everywhere in the body and thick, sticky mucus causes infection to get trapped and causes organs to not function properly.
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CF affects every person differently. While I have serious sinus issues, someone else with CF may not have any. I have had about 6 sinus surgeries throughout my life. The early ones when I was a small child were to remove polyps and open up the sinus cavity. Since then, they have gone in and removed the thick sticky mucus that is stuck to the walls of my sinuses, trapping infection. Every few months I go to the ENT (ear, nose & throat doctor) and he uses tools in the office to suction out the mucus that he can reach. We do this with the hope to prolong the time between sinus surgeries.
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[[The more you know about CF...]]



#pricelessbreaths #doublelungtransplant #lungtransplant #cysticfibrosis #cf #donatelife #recycleyourself #blog #65roses #givelife #cff #cfirl #transplantirl #cfwarrior #cflife #transplantlife #transplantwarrior #organdonation #chronicillness #invisibleillness #avascularnecrosis #kidneyfailure #spoonie #pimpinjoy #choosejoy

It’s not about getting a trophy for me, it’s about finishing the journey and overcoming the challenges I set for myself. Wether I get 4th place or 12th place, the moment I step foot on stage, I won🏆 I set a goal for myself, now it’s time to shatter it!💪🏾 4:30am Cardio came to soon.. #LupusWarrior ✊🏾💜✋🏾 #Murse #trainer #lupus #healing #roadtorecovery #evolve #relentless #motivate #inspire #kidneyfailure #healthiswealth #fitness #motivation #inspiration #life #love #lupusawareness #family #faith #therelentlessbrand #relentlessbrandCo #newbeginnings #lupusfighter #lupusbodybuilding #ratedrsupplements #dailymotivation #dailyinspiration #transformationtuesday #tuesday

Estoy pagando un alto precio por vivir por eso tengo derecho hacer feliz 😍😍😍 #kidneyfailure

As some of you may know- this is our delicious 3 year old daughter and her incredible Pa (my father in law). For 2.5 years we struggled with her end stage kidney failure. It's was a tough road for a 2 year old on dialysis and constant sickness. This was all changed when her pa decided that he could give her the greatest gift of all- wellness! A new kidney. Through a exchange program our life was flipped completely and we will eternally be grateful for this incredible man. #victorfoxdesign #kidneytransplant #kidneyfailure #8months #nomoredialysis @kidneyhealth @donatelifetoday 📷 @gtmagazine

A little bummed tonight. For some reason my potassium levels have been fluctuating and have been super high almost every day. I’ve tried to eat less things that contain high potassium like potatoes, tomatoes & avocados but literally everything has some potassium it is nearly impossible to completely avoid. My number keeps skyrocketing. A normal potassium level is between 4.5 and 5.1. Mine has been well over 6 and this afternoon came in at 6.9. High potassium can cause your body to have irregular heart rhythms. In order to rid your body of potassium you have to drink this SUPER NASTY tasting drink called Kayexalate. Like it is really really gross. I mix it with a little milk to thin it out and chug it through a straw. This will be the 3rd day in a row I have had to drink it so you can basically call me a pro at it by now.
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These high potassium levels may keep me from being able to go home tomorrow because they cannot be closely monitored at home. So the only thing to do when you get some bad news? Make a funny face and hope for the best!
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Accepting any and all good vibes! I do not want to spend #Thanksgiving in the hospital!!



#pricelessbreaths #doublelungtransplant #lungtransplant #cysticfibrosis #cf #donatelife #recycleyourself #blog #65roses #givelife #cff #cfirl #transplantirl #cfwarrior #cflife #transplantlife #transplantwarrior #organdonation #chronicillness #invisibleillness #avascularnecrosis #kidneyfailure #spoonie #pimpinjoy #choosejoy

So sad we have to say goodbye to our sweet Cali girl today. Her body isn't holding up and we need to do what's best for her. #heartbroken #kidneyfailure #englishcream #goldensofinstagram

My love!!! Times like this, wish hospital beds came in a queen size. Miss my guy!!!! He is in the best place he can be right now. Thank you to all the nurses who have worked so hard over the last few day's! !!!!! #huganurse #nursesrock #kidneyfailuresucks #kidneyfailure

MOST RECENT

SWIPE LEFT☝️link in bio to buy swag. With #GivingTuesday around the corner, how about giving YOURSELF and OTHERS the gift of EMPOWERMENT. Buy a sticker pack from the @liveagreatstory website. Put one sticker in a place where YOU will see it daily, then give stickers to 2 friends and have them do the same. A simple reminder to LIVE YOUR BEST LIFE. 🙌💕 👕 Why not buy a shirt while you’re at it? Show everybody you are LIVIN despite your health diagnosis OR if you’re a donor, show what a great story you are living - giving life 👊
#liveagreatstory
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#livingtuesday #kidneywarrior #donorhero #livingkidneydonor #shareyourspare #kidneydisease #kidneyfailure #awarenesscreateschange #kidneyawareness #livelifetothefullest #livelifegivelife

ムーが見つめる先にはキャピキャピしている小春😹
おじいちゃんは子どものエネルギーにタジタジ😹
仲良くなれる日は来るのかなあ😓
#cat #ネコ #猫 #しろくろねこ #はちわれ #うしがら #bicolor #blackandwhitecat #腎不全 #kidneyfailure #老猫 #oldcat #さびねこ #tortoiseshellcat #新入り

Talk about the power of social media! @mjbiscone donated his kidney to his buddy, Matt, after learning about his need through Facebook. These two men took Facebook friendship to a whole new level! Learn more about Mark and Matt’s #LivingTuesday story on our Facebook page. Link in bio.

Bingo at dialysis. I officially feel old. 🙄🙄🤦🏽‍♀️🤦🏽‍♀️😂😂 #bingo #dialysis #dialysispatient #kidneyfailure #kidneytransplant #kidneydisease #renalfailure #kidneywarrior

*New Blog Post*
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“Being a caregiver isn’t easy. It means you’re committed to helping someone, before you can help yourself. It means that you’re willing to put someone else’s needs before your own. Being someone’s caregiver is a choice, it’s not a requirement. And the decision to be one is done out of love.”
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Last night I suddenly had excruciating, unbearable pain in the hip/leg I had operated on a couple of weeks ago. Pain I haven’t felt in a long time. The kind of pain that brings hysterical tears and trying to keep your breaths calm and deep. This started around 11pm. I called my mom & she immediately drove to the hospital. She helped guide my deep breathing, rubbed my arm & kept me calm until I could get relief from pain medication. And then this morning at 7am her alarm clock went off (after nearly no sleep) and she headed home to help get my dad up, who has muscular dystrophy. The only word to describe her is incredible. She is a saint. My mom always chooses joy, even in the hardest of situations.
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It’s national caregiver month so this weeks blog post is about my mom. You really won’t regret taking the time to read about her! Link in profile. 🤗



#pricelessbreaths #doublelungtransplant #lungtransplant #cysticfibrosis #cf #donatelife #recycleyourself #blog #65roses #givelife #cff #cfirl #transplantirl #cfwarrior #cflife #transplantlife #transplantwarrior #organdonation #chronicillness #invisibleillness #avascularnecrosis #kidneyfailure #spoonie #pimpinjoy #choosejoy

“You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.” -Eleanor Roosevelt
#Murse #trainer #LupusWarrior #lupus #healing #roadtorecovery #evolve #relentless #motivate #inspire #kidneyfailure #healthiswealth #fitness #motivation #inspiration #life #love #lupusawareness #family #faith #therelentlessbrand #relentlessbrandCo #newbeginnings #lupusfighter #lupusbodybuilding #ratedrsupplements #dailymotivation #dailyinspiration #transformationtuesday

It’s not about getting a trophy for me, it’s about finishing the journey and overcoming the challenges I set for myself. Wether I get 4th place or 12th place, the moment I step foot on stage, I won🏆 I set a goal for myself, now it’s time to shatter it!💪🏾 4:30am Cardio came to soon.. #LupusWarrior ✊🏾💜✋🏾 #Murse #trainer #lupus #healing #roadtorecovery #evolve #relentless #motivate #inspire #kidneyfailure #healthiswealth #fitness #motivation #inspiration #life #love #lupusawareness #family #faith #therelentlessbrand #relentlessbrandCo #newbeginnings #lupusfighter #lupusbodybuilding #ratedrsupplements #dailymotivation #dailyinspiration #transformationtuesday #tuesday

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