#jenniferbrea

MOST RECENT

I am finally getting the courage to watch the documentary Unrest, in which Jennifer Brea bravely documents her journey with chronic fatigue syndrome as well as interviewing other people around the world also suffering from this often incredibly debilitating and misunderstood illness. To say this is going to be emotional is an understatement, but I'm hoping it will continue to give me the determination and bravery to keep sharing my experiences/musings and advocating for people like myself with illnesses that are widely misunderstood, under researched and underfunded. I will let you all know my thoughts tomorrow. Why not have a watch as well and let me know what you think you think, it is on Netflix. Or perhaps you have seen it?
#unrest #Netflix #Jenniferbrea #cfs #physicalhealth #chronicillness #fibromyalgia is #emotional #fnd #unexplainedillnesses #spoonies #stigma #marginalised #Mentalhealth

Em choque. É assim que fiquei ao terminar de assistir Unrest, filme autobiográfico da cineasta Jennifer Brea. E o que fazer diante do que vi? Num primeiro momento creio que seja multiplicar a existência desse documentário.

Em resumo, ele aborda a luta dos portadores da Síndrome da Fadiga Crônica (SFC, ou “Myalgic Encephalomyelitis” -ME) e seus familiares. Jennifer mostra a cruel vulnerabilidade de pessoas com dor crônica e como ela transformou isso em ativismo e arte.

Por se tratar de uma doença crônica, limitante e (ainda?) sem cura, segundo o livro “Síndrome Da Fadiga Crônica: Um Guia Para Tratamento”, alguns médicos recomendam Cuidados Paliativos como abordagem terapêutica em alguns casos.

O filme revela também que pouco é investido em pesquisa e que há ainda muito o que fazer por milhares de pacientes com SFC/ME.

Para assistir ao documentário, basta buscar pelo nome “Unrest” no Netflix. Para saber mais sobre a Jennifer e seu trabalho em defesa do CFS/ME siga @meactnet.

#síndromedafadigacrônica #doençacrônica #myalgicencephalomyelitis #unrest #jenniferbrea

****Film/Movie review****
Unrest (2017)
RATING: 🌟🌟🌟🌟🌟
---------------------- This movie/documentary follows Jennifer Brea who is struck down by a fever that leaves her bedridden. Now being diagnosed with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, she sets out on a virtual journey to document her story as she fights a disease that medicine forgot.

I have recently been diagnosed with this condition after knowing that something hasn't been right with my body for years. This movie was recommended to me by several people that also have this life-sucking illness, and I honestly cried the whole way through. Although I'm not quite as bad as the amazingly strong individuals in this movie, everything that I saw and heard was extremely relatable and so incredibly raw, honest, emotional and touching.
I admire Jennifer Brea so much for sharing her story and raising awareness for this awful illness. The whole film was beautifully shot and really told such an intimate personal story that will touch many hearts. ❤❤❤
#millionsmissing
#filmreview #moviereview #unrest #unrestmovie #film #movie #cfs #me #cfsme #mecfs #chronicfatigue #chronicfatiguesyndrome #chronicillness #myalgicencephalomyelitis #jenniferbrea #omarwasow #like #follow ❤📽

Watched this film about ME/CFS on Netflix last night and I was so moved...@jen.brea, thank you for sharing your story and the story of others so honestly and openly. It is heartbreaking how little help there is out there, and indeed how institutions still seek to treat this as a ‘psychotic’ illness. There are certainly areas I recognise as true in multiple sclerosis, and the Epstein-Barr virus seems to be implicated in so many cases (mine included)...but as you say, MS lesions show up on scans whereas CFS remains invisible. Keep fighting to be heard...the #millionsmissing campaign is so poignant. For anyone who hasn’t seen @unrestfilm, I would certainly recommend it - a brave and beautiful couple 💗 #unrest #unrestthefilm #unrestfilm #jenniferbrea #cfs #chronicfatiguesyndrome #chronicfatigue #me #myalgicencephalomyelitis #neurological #neurologicalcondition #ms #millionsmissing #recommendation #chroniccondition #chronicillness #dailybattle

Watched a powerful doco today called #unrest. Please please please watch it. It’s on Netflix. #chronicfatiguesyndrome #unrest #me #cfs #real #invisibleillness #jenniferbrea #doco #partnership #support

Congratulations @unrestfilm! 👏👍👌🙌 Repost from @meactnet - You have spoken. 🗣
We extend our hearty congrats to @unrestfilm, winner of the 2018 #IndieLensPBS #AudienceAward. Kudos and ❤️ to all #documentaries in what was a very engaged competition: You cast more votes this time than in ANY previous year.
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#unrest #jenniferbrea #documentary #myalgicencephalomyelitis #ME #chronicillness #wwmea #kitchener #waterloo #cambridge

♡Today’s #FollowFriday is Jennifer Brea (@jen.brea) ! Jennifer is an independent documentary filmmaker based in Los Angeles, as well as an activist for people with invisible disabilities and chronic illness, and the founder/director of Shella Films. Jennifer was a PhD student at Harvard when she became ill and bedridden, initially told it was “all in her head,” then eventually diagnosed with myalgic encephalomyelitis (ME). In 2013, she began chronicling her experience with ME from her bed. This became her feature documentary Unrest (@unrestfilm), which premiered at the 2017 Sundance Film Festival and won a Special Jury Prize. Jennifer also co-founded the #MEAction, a global advocacy network for individuals living with ME. Follow along!

Image Description #1: a movie poster featuring a woman lying down, looking up, with electrons and wires connect to her head, and the word “UNREST” at the top of the image.

Image Description #2: A woman sitting in a wheelchair, wearing a red top and jeans, staring ahead at the camera.

Image Description #3: A woman staring up, holding a microphone, and wearing green earrings.

#Repost @vape_life90 (@get_repost)
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June 11th I'll be hosting my charity evening at @cinemacoswansea to show Unrest, a powerful documentary film about living with M.E
Anyone who wants to learn more about this condition and ways to live as best as possible with M.E will have the chance to ask @vape_life90 any questions at the end of the film.
All money from ticket sales will go to the charity Action for M.E Hope to see you there. Ticket details in my bio 💙💙💙 #timeforunrest #unrest #jenniferbrea #cinemaandcoswansea

El Síndrome de Fatiga Crónica/Encefalomielitis Miálgica es una enfermedad devastadora y multisistémica que causa disfunción de los sistemas neurológico, inmune, endocrino y metabólico. Se estima que entre 15 y 30 millones de personas en todo el mundo padecen SFC/EM. ⠀
Para informar y concienciar sobre esta dura enfermedad, Rivas celebra el próximo lunes 4 de junio en la sala Pedro Zerolo del Ayuntamiento una jornada especial organizada por la Confederación Nacional SSC y la Asociación Fibrorivas.⠀
A las 18.00 proyección del documental ‘Unrest’ -galardonado con el premio especial del Jurado en el festival de cine de Sundance 2017- que cuenta en primera persona la historia de su directora, Jennifer Brea, y su convivencia con el SFC; y, a continuación, coloquio con varios expertos: Teresa Ceacero Guerrero, médico internista; Juan Carlos Segovia, de la Unidad de Evaluación Funcional de Sannus Cliniic; María López Matallana, afectada y presidenta de SFC-SQM Madrid y vicepresidenta de la Confederación Nacional SSC, y Rosa María Villa Díaz, presidenta Asociación Fibrorivas. ⠀
Entrada libre hasta completar aforo.⠀
@rivasaldia @aida.cast #sindromefatigacronica #encefalomielitismialgica #enfermedad #jornada #cine #documental #unrest #tiempodeunrest #jenniferbrea #scf #sundance #ayuntamientorivas #asociacionfibrorivas #confederacionnacionalssc #coloquio #concienciar #rivas #rivasvaciamadrid

Such true words from Jennifer Brea - ME Campaigner #jenniferbrea #mecfs #fibromyalgia #millionsmissing

June 11th I'll be hosting my charity evening at @cinemacoswansea to show Unrest, a powerful documentary film about living with M.E
Anyone who wants to learn more about this condition and ways to live as best as possible with M.E will have the chance to ask @vape_life90 any questions at the end of the film.
All money from ticket sales will go to the charity Action for M.E Hope to see you there. Ticket details in my bio 💙💙💙 #timeforunrest #unrest #jenniferbrea #cinemaandcoswansea

“If we are truly going to build a world where everyone with ME gets diagnosed and has access to effective treatments, we are going to need to set our sights higher. We’ll need to shake up medicine and science itself.

Let’s link arms with the women’s movement, the disability rights movement, and with all people with chronic illness fighting for recognition and access to care, especially those with: Ehlers-Danlos syndrome, POTS, dysautonomia, endometriosis, mast cell activation disorder, multiple chemical sensitivity, chronic Lyme disease, fibromyalgia. We know we are cousins or at least, doppelgängers, and we don’t yet know why but we have to find out.

We will liberate ourselves and build the world that we need for our disease, but let’s never forget the fundamentals that have shaped what people with ME have had to face – the stigma of disability, sexism, and what is broken in the way medicine diagnoses, treats, and listens to patients.

And now, I want to talk to Washington. Francis Collins, you have the power to help end this criss and return millions of people around the world to their lives. You said “good science takes time.” I don’t have time. I am young now. I am alive now. And every day that you do nothing, I am losing my life. We have already lost so many people, to suicide, to neglect, to the severest forms of the disease. And we have already lost decades. The time to act is NOW. Half-measures, small steps, tokens, gestures, these are the same as inaction and we will not accept them. We will accept only what we need and deserve – massive investment and a plan, a real plan for what you are going to do to help cure ME.” ME/Awareness Month #jenniferbrea speech (Pic Repost from @yourachingart_m.e 😘) #nih #franciscollins #millionsmissing 👠 #dysautonomia #solvemecfs #meaction #mecfs #openmedicinefoundation #bedbound #invisibleillness #dysautonomia #housebound #chronicillness #chronicpain #fibromyalgia #lymedisease #soundsensitive #lightsensitive #skinsensitive #myalgicencephalomyelitis #spoonie #painsomnia #insomnia #migraine #brainfog #memoryloss #invisibleillnessawareness #mecfsawareness

💙LINK IN MY BIO💙 This Saturday brings a public screening of UNREST; the award winning documentary on ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) by Jennifer Brea. This screening is a great opportunity to find out more about ME/CFS. What does it mean when someone has Chronic Fatigue Syndrome? What's life like for that person? If you'd like to understand it more, this is your chance. If you're a health professional or medical student this will also be very informative.
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Find out more about the film - www.unrest.film
See a TED talk by the director - http://bit.ly/2j6zlQo
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ME/CFS is a chronic neuroimmune disease. It has many symptoms, affecting all systems of the body. About a quarter of people with ME are severely affected and are housebound or bedridden.
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Doors open at 7:00 PM
Screening starts at 7:30 PM
Entry Price: £3.50
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All money raised will go toward ME/CFS research - https://www.unrest.film/donate
https://www.facebook.com/unrestfilm/
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The venue is near bus stop and London Road train station.
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Buses which stop outside are 46 and 26.
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Parking is Pay and Display - Closest Hollingbury Park Avenue.
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For further enquiries please contact us at
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brightonunrestpublic.screening@gmail.com
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Venue Information
http://www.twitter.com/StMatthiasBTN
https://www.facebook.com/StMatthiasBTN/
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#stmatthias #stmatthiaschurch #unrest #unrestdocumentary #me #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #cfs #jenniferbrea #brighton #brightonfringe #brightonfringefestival #awardwinningdocumentary #awardwinning #documentary #neuroimmune #immunesystem #immunedisease #raiseawareness #awareness #charityevent #charityevents #filmscreening #filmscreenings #healthawareness #healthprofessional #healthprofessionals #medicalstudent #medicalstudents #tedtalk

Founded by activist and filmmaker Jennifer Brea, #Millionsmissing is a global campaign for Myalgic Encephalomyelitis (ME) health equality. Lead by #MEAction, the first global protest took place in May 2016. By September, 2016, it had grown to 24 cities. On May 12th, 2017, activists took to the streets again in 18 cities in seven countries to demand change. They asked for increased government funding for research, clinical trials, medical education and public awareness. This year’s march took place on May 12, 2018 in cities around the wold, and online.
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ME (commonly known as "Chronic Fatigue Syndrome") is a systemic neuroimmune disease characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound and an estimated 75% unable to work. ME affects 15 to 30 million around the world, yet this disease remains invisible and people are missing from their own lives." - From #MEaction
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My new and dear friend, @lcillustrate has been educating me about this disease which affects millions of people around the world. Those affected are often unable to leave their house, and therefore are not physically able to advocate for themselves. Last week was #MEAwareness week, so she started a project called #shedaday. Modeled after the isolated Lammermuir Hills sheds in her home country of Scotland, Laura’s sheds represent the isolation of living with chronic illness. I love this project. It is important to advocate for the medical, civil, and human rights of those whose voices need to be amplified. Believe people when they tell you they are in pain. Help, however you can. Watch the film Unrest @unrestfilm on @netflix
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#DailyFeminist #MillionsMissing #BeliveWomensPain #ShedADay #JenniferBrea #MEAction #MEcfs #CFS #ChronicFatigueSyndrome #MEAwarenessWeek #HealthEquality @jen.brea

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