#jenniferbrea

MOST RECENT

Such true words from Jennifer Brea - ME Campaigner #jenniferbrea #mecfs #fibromyalgia #millionsmissing

June 11th I'll be hosting my charity evening at @cinemacoswansea to show Unrest, a powerful documentary film about living with M.E
Anyone who wants to learn more about this condition and ways to live as best as possible with M.E will have the chance to ask @vape_life90 any questions at the end of the film.
All money from ticket sales will go to the charity Action for M.E Hope to see you there. Ticket details in my bio 💙💙💙 #timeforunrest #unrest #jenniferbrea #cinemaandcoswansea

“If we are truly going to build a world where everyone with ME gets diagnosed and has access to effective treatments, we are going to need to set our sights higher. We’ll need to shake up medicine and science itself.

Let’s link arms with the women’s movement, the disability rights movement, and with all people with chronic illness fighting for recognition and access to care, especially those with: Ehlers-Danlos syndrome, POTS, dysautonomia, endometriosis, mast cell activation disorder, multiple chemical sensitivity, chronic Lyme disease, fibromyalgia. We know we are cousins or at least, doppelgängers, and we don’t yet know why but we have to find out.

We will liberate ourselves and build the world that we need for our disease, but let’s never forget the fundamentals that have shaped what people with ME have had to face – the stigma of disability, sexism, and what is broken in the way medicine diagnoses, treats, and listens to patients.

And now, I want to talk to Washington. Francis Collins, you have the power to help end this criss and return millions of people around the world to their lives. You said “good science takes time.” I don’t have time. I am young now. I am alive now. And every day that you do nothing, I am losing my life. We have already lost so many people, to suicide, to neglect, to the severest forms of the disease. And we have already lost decades. The time to act is NOW. Half-measures, small steps, tokens, gestures, these are the same as inaction and we will not accept them. We will accept only what we need and deserve – massive investment and a plan, a real plan for what you are going to do to help cure ME.” ME/Awareness Month #jenniferbrea speech (Pic Repost from @yourachingart_m.e 😘) #nih #franciscollins #millionsmissing 👠 #dysautonomia #solvemecfs #meaction #mecfs #openmedicinefoundation #bedbound #invisibleillness #dysautonomia #housebound #chronicillness #chronicpain #fibromyalgia #lymedisease #soundsensitive #lightsensitive #skinsensitive #myalgicencephalomyelitis #spoonie #painsomnia #insomnia #migraine #brainfog #memoryloss #invisibleillnessawareness #mecfsawareness

💙LINK IN MY BIO💙 This Saturday brings a public screening of UNREST; the award winning documentary on ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) by Jennifer Brea. This screening is a great opportunity to find out more about ME/CFS. What does it mean when someone has Chronic Fatigue Syndrome? What's life like for that person? If you'd like to understand it more, this is your chance. If you're a health professional or medical student this will also be very informative.
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Find out more about the film - www.unrest.film
See a TED talk by the director - http://bit.ly/2j6zlQo
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ME/CFS is a chronic neuroimmune disease. It has many symptoms, affecting all systems of the body. About a quarter of people with ME are severely affected and are housebound or bedridden.
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Doors open at 7:00 PM
Screening starts at 7:30 PM
Entry Price: £3.50
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All money raised will go toward ME/CFS research - https://www.unrest.film/donate
https://www.facebook.com/unrestfilm/
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The venue is near bus stop and London Road train station.
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Buses which stop outside are 46 and 26.
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Parking is Pay and Display - Closest Hollingbury Park Avenue.
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For further enquiries please contact us at
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brightonunrestpublic.screening@gmail.com
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Venue Information
http://www.twitter.com/StMatthiasBTN
https://www.facebook.com/StMatthiasBTN/
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#stmatthias #stmatthiaschurch #unrest #unrestdocumentary #me #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #cfs #jenniferbrea #brighton #brightonfringe #brightonfringefestival #awardwinningdocumentary #awardwinning #documentary #neuroimmune #immunesystem #immunedisease #raiseawareness #awareness #charityevent #charityevents #filmscreening #filmscreenings #healthawareness #healthprofessional #healthprofessionals #medicalstudent #medicalstudents #tedtalk

Founded by activist and filmmaker Jennifer Brea, #Millionsmissing is a global campaign for Myalgic Encephalomyelitis (ME) health equality. Lead by #MEAction, the first global protest took place in May 2016. By September, 2016, it had grown to 24 cities. On May 12th, 2017, activists took to the streets again in 18 cities in seven countries to demand change. They asked for increased government funding for research, clinical trials, medical education and public awareness. This year’s march took place on May 12, 2018 in cities around the wold, and online.
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ME (commonly known as "Chronic Fatigue Syndrome") is a systemic neuroimmune disease characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound and an estimated 75% unable to work. ME affects 15 to 30 million around the world, yet this disease remains invisible and people are missing from their own lives." - From #MEaction
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My new and dear friend, @lcillustrate has been educating me about this disease which affects millions of people around the world. Those affected are often unable to leave their house, and therefore are not physically able to advocate for themselves. Last week was #MEAwareness week, so she started a project called #shedaday. Modeled after the isolated Lammermuir Hills sheds in her home country of Scotland, Laura’s sheds represent the isolation of living with chronic illness. I love this project. It is important to advocate for the medical, civil, and human rights of those whose voices need to be amplified. Believe people when they tell you they are in pain. Help, however you can. Watch the film Unrest @unrestfilm on @netflix
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#DailyFeminist #MillionsMissing #BeliveWomensPain #ShedADay #JenniferBrea #MEAction #MEcfs #CFS #ChronicFatigueSyndrome #MEAwarenessWeek #HealthEquality @jen.brea

Saturday 12th May was ME/CFS Awareness Day I had planned to post what’s pictured but didn’t. I generally try to disguise that I’m unwell or struggling. But I understand that’s not very productive for anyone so this was my post and a little about me.

#canyouseeMEnow #millionsmissing #chronicillness #chronicfatigue #unrest #jenniferbrea #MEpartone

💝Today is Invisible Illness Awareness Day💝 Today thousands of Friends and Family members of those striken with an invisible, chronic illness have taken to the streets in major Cities All Over The World to Bring Attention To All Of Us Missing In The Society Due To Being Unacknowledged By The Medical World, By Placing A Pair Of Our Shoes In Public And Demonstrating For Our Rights To Be Visible As Patients, Which We Still Are Not. Our conditions are whispered by few but shunned by most physicians. The medical help we need is very sparse, as it is pretty impossible to prove a "non-exsisting" illness. Ofcourse these Illnesses EXSIST!!!! They have Names, are Documented in Dictionaries as well as most Medical Journals, yet, because they cannot as yet be Medically Proven ( whose fault is that! ) WE are forced to suffer behind closed doors and in silence. Sometimes I really feel ashamed of my fellow man...we can fly to the moon...but we cannot heal the sick 🙈🙉🙊#millionsmissing #jenniferbrea #unrestthedocumentary #chronicillness #invisibleillness #invisiblediseases #awarenessmonth #helpus #spreadtheword #wearenotalone #wemattertoo #livingdead #painrules #exhausting 💔💝💔 #FIBROMYALGIA #ME #CFS #LUPUS #MENTALILLNESS....the list is longer, much, much longer....and it will get even longer as more diseases mutate. Please, lets break the silence. Health is so much more important than wealth #wakeupworld 💝

Most people are unaware that since 2011, I have been recovering from Chronic Fatigue Syndrome or ME as it is also known. The early years were terrifying, tough and lonely.
I am lucky one of 5% of people who make a recovery. 5% a shocking statistic!

There is still no cure and no test for diagnosis. It is also a condition that is very very underfunded, largely unrecognized and was only designated as a disease in the last 12 mths.
UNREST an amazing documentary available on Netflix about CFS and the campaign #missingmillions is helping to raise its profile.
Help change this and if you can donate to the campaign http://igg.me/at/MfgBg1EGyPk/shre

#cfs #missingmillions #timeforacure #drdavis #stanford #jenniferbrea #unrest
https://www.meaction.net/

It's Millions Missing Day Today!
#Repost @dragonfliesanddreams (@get_repost)
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We were dancers. We were athletes. We were adventurers. We had careers. We had plans. We had dreams. We had lives. Now we are the #MillionsMissing.

Millions of men, women and children all over the world are desperate for a treatment or cure for a disease that has robbed them of their lives. Please support the work of the Open Medicine Foundation (www.omf.ngo) as they search for the cause and a cure.
If you like like this post, there are a few t-shirts, posters, bags, etc. available at https://www.zazzle.com/collections/we_had_lives-119199419081737098?rf=238815562360798957&CMPN=share_dctit&lang=en&social=true.

All of these items have fully editable text, so you can change the text to make it more personal to you, or translate it into another language! To edit the text, just click the personalize option on the right next to the product photos and replace the text with your own. If you do order any items and wear/use them during awareness month, please send me a photo. 😉

#MyalgicEncephalomyelitis #TimeForUnrest #CanYouSeeMENow #mecfs

May 12th is International Awareness Day for Chronic Immunological & Neurological Diseases. -under resourced, under researched, #millionsmissing.
M.E. Ireland have organised national screenings of Jennifer Brea’s documentary activist film, which examines Myalgic Encephalomyelitis.

#chronicillness #jenniferbrea #unrest #film #healthactivism #millionsmissing #missingmillionsdublin #m.e. #illness #body #healthcare #meireland #cfs #chronicfatiguesyndrome #postviralfatigue #chronicfatigue #chronicfatigueawareness

Unrest Film & Panel with Council member Ashby @ Sacramento City Hall. May 12, 2018. #MillionsMissing
Come watch the award winning documentary and learn more about the devastating effects of M.E. and why we (millions) so desperately need funding.
Make sure you come say hi! I'd love to see/meet you there! It's free! Reserve your tickets on Facebook!
#unrest #jenniferbrea #documentary #myalgicencephalomyelitis #chronicfatiguesyndrome #me #cfs #unfunded #research #findacure #peoplearedying #suicide #wewantourlifeback #missing #chronicillnesswarrior #invisibleillness #may12th #meawareness #wearenotinvisible #seeme #seeus

Millions Missing campaign for ME/CFS awareness month. On the 12th of this month there will be people getting together in public and campaigning for better treatment and more funding, all over the world! There are dozens of cities in the UK taking part (where I am). PwME who can't attend but want to, send shoes with a note attached telling a bit about themselves. It means they can still protest without having to be there. The shoes are all laid out, so people can read their stories, and see how many are "missing".
Jen Brea who made the movie "Unrest" about her personal battle with ME, has been instrumental in really boosting the profile of the community, and campaigning for better treatment and research. Please, try to watch it if you can. It's a real eye-opener, and helps people understand what it's like to have M.E. ❤❤❤

💙 ME AWARENESS WEEK 💙 ~ Millions Missing! #Millionsmissing is a global campaign for ME health equality. Lead by ME Action, the first global protest took place in May 2016. By May 12 2017, people took to the streets again in 18 cities in seven countries to demand change.

We want increased government funding for research, clinical trials, medical education and public awareness. This year, the movement has grown to over 100 cities across the world!!
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I will be posting each day this week, turning my feed 💙blue💙 for ME awareness.
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[Image description: #.MM spelt out using blue Millions sweets].
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#canyouseeMEnow #meawarenessweek #meawarenessday #meawareness #spoonie #fibromyalgia #myalgicencephalomyelitis #chronicfatiguesyndrome #cfsme #CFS #pwme #meresearch #chronicillness #chronicpain #chroniclife #spoonies #spooniestrong #spooniewarrior #spoonielife #facesofinvisibleillness #butyoudontlooksick #disability #invisibledisability #disabilityawareness #notjusttired #timeforunrest #jenniferbrea #spoonieblog

Went to a film viewing of Unrest today, an incredible documentary about Myalgic Encephalopathy aka ‘chronic fatigue’ #filmscreening #unrest #millionsmissing #myalgicencephalopathy #me #chronicfatigue #cfs #jenniferbrea #omarwasow #mustsee #10outof10wouldrecommend

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