#ivisibleillness

MOST RECENT

If you need a mobility aid, why not have some fun - right?! It’s still #dysautonomiaawarenessmonth and since I’ve been diagnosed. Ive had so many things change. I’m under investigations for two other conditions on top of my existing ones! We already know that I have PoTS (diagnosed in May) and are pretty sure I have hEDS and maybe CFS/ME? Who knows anymore! I’m just living my life with a scooter 🏎♿️🚺 #invisibledisability #ivisibleillness #dysautonomiaawareness #dysautonomia #potssyndrome #heds #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #chronicillness #chronicallyfabulous #disabledandcute #chronicfatiguesyndrome #chronicpain #chronicillnesswarrior #cfs #pcos #polycysticovariansyndrome #spoonie #spoonielife #syndromes

Ollie has been so good since I had my op in July, helps change my bag and not afraid to help clean it... Always drawing little red stomas on his toys so made him his own teddy with a stoma like big mamma HE LOVES IT
#urostomy#urostomyawareness#teddy #stomabag #ostomylife#proudmama #ivisibleillness#ostomyinspo #ostomyawareness #ileostomy #ileostomylife #teddybear #son #sepsisawareness #weebag #doctor #stomanurse #bagforlife #inperation #3yearsold #littleboy#ourlife #myhero #worldostomyday #bladder #kidneys #chrons #mitrofanoff #urologyawarenessmonth#theurologyfoundation

A MAJOR UPDATE!📝:
First of all, before I begin I want to apologise (Again😔) for my disappearance and thank you all for still supporting me and my page. Believe me when I say I’ve been wanting to go come back to my page and into continuous updates but, It’s been a mad one these past months and I’m here to tell you why.
⚠️LONG POST⚠️
Since my last post, I’ve been undergoing a major battle with my IBD, with numerous IBD related hospital and doctor appointments. The picture above was my last hospital admission (September), and my worst. My IBD is currently the worst it’s ever been, I’m now on more medications and have had my immunosuppressants and steroids dosage increased. To make it worse, I’ve been diagnosed with IBS (yes alongside IBD) and long-term Vitamin D deficiency (which I also now take tablets for) as I have the Sickle Cell Trait i’m suffering from anaemia and iron deficiency.
However, my most scariest experience (alongside this of course), was my allergic reaction I had to my Inflixamab Infusion, to cut it short I ended up on Cardiac Monitor and was immobilised for over 6 hours. This was my 3rd dose and until then I had not shown any side effects. Hot flashes, painful heart palpitations, sweating and dizziness you name it, I had it. I was told the cause was possibly due to how fast the meds was being administrated into my body, and that next time they’ll slow the drip timer (against my wishes as I’m worried what will happen next, my IBD doc recommends I cont. with the infliximab).
I’m hoping to hop back into regularly posting on here but, as you can imagine it’s a turbulent time for me right now, but I will try! I spread wishes to everyone on my page following me and watching my journey. This post was long overdue and I’m happy I made it!
- CT 💓
#crohnscolitis #infliximab #hospital #bristol #health #IBD #deficiency #sicklecelltrait #blackbloggers #britishblogger #mentalhealth #invisableillness #awareness #support #update #thankyou #treatment #crohnsfighter #crohnsdisease #crohns #crohnsawareness #update #lifestyle #blog #blogger #IBD #Crohnstrooper #ibdlifestyle #life #health #mentalhealth #ivisibleillness #fitness #mentalhealth #starterblog #awareness

Who am I? A girl who tries to live as normal as possible. I learned how to put a mask of smile and make up that covers tiredness on my face...
Chronic Pain and all stomach problems or depression are invisible illnesses so what you see its not how I feel... Don’t judge person you walking past You don’t know their story! On the left photo on bad day and on the right on better day how different we can look...
.
.
.
.
.
#chronic #chronicpain #chronicillness #ill #depression #endometriosis #awarness #dontjudge #ivisibleillness #Idontlookill #benice #polishgirl

You know, despite how much life may twist and turn and bring you up and slam you down, all you need to do is stop. Take a moment to think about where you are, who is with you on this rollercoaster and breathe.

There will always be times that are harder, we just have to embrace them, I guess.
#dysautonomiaawareness #dysautonomia #potssyndrome #pots #posturalorthostatictachycardiasyndrome #spoonie #spoonielife #disabledandcute #disabled #ivisibleillness #invisibledisability #positivity

If you’ve got to keep a migraine journal, you might as well make it pretty. 2nd pic simulates (as close as instagram filters would go) what my vision looks like during a migraine.
3rd pic is just for funsies.
#migrainelife #makingthebestofit #migraine #mermaid #journal #tracking #tracker #records #record #chronic #chronicmigraines #chronicillness #ivisibleillness #invisible #illness #awareness

💚

So I have decided to show y'all something I never have before. This is the reason I fight, the reason I choose to smile & the reason I never give up! The left lungs are some random person's lungs who have no lung disease & completely healthy. The right lungs are mine in 2016, my last hospitalization which I plan to continue to stay out of that darn place! You may look at me & see me as healthy because I choose to laugh, smile, workout & have fun but the harsh reality is I feel like I'm breathing out of a straw 24/7, like I'm constantly drowning in phlegm & my body is completely exhausted! In the end though, I choose to show Cystic Fibrosis that I am in charge, that there are no excuses & that this is only the beginning to something great! So your excuses are not welcome here! Lol 💜💋
.
.
.
.
#cysticfibrosis #cf #cfawareness #fit #fitness #fitfam #noexcuse #findacure #cure #ivisibleillness #terminalillness #noexcuses #fitnesslife #gym #gymrats #stfu #dedication #motivation #lungdisease #fitnessbabes #babe #cysters #fibros #genetics #ucsd #notgivingup #motivation #motivational

|| WEARING THE SMILE YOU GAVE ME ✨
Keep smiling and one day.. life will get tired of upsetting you 🤞🏻 hopefully. Cause I’m really tired!
________________________________________________________
#smile #selfie #sickandtired #mentalillness #anxiety #chronicillness #ivisibleillness #ibd #colitis #migrains #kickmewhenimdown #please #life #awareness #mentalhealthawareness

Most Popular Instagram Hashtags