OFF (my usual) TOPIC .
This photo was taken just a few hours before I was rushed into the hospital and my until then great vacation in Menorca/Spain came to a sudden end. I looked and felt fit, I was on a hike when this photo was taken, so what was the reason?
I am suffering from a rare autoimmune disease called Immune Thrombocytopenia (ITP, also called Morbus Werlhof). My immune system overreacts due to an infection or just out of the blue and mistakenly thinks that my platelets are unwelcomed intruders that need to be destroyed. Not a good thing when it comes to blood clotting. A low platelet account can be recognized by bleedings, bruises and small bleedings in the skin called petechiae. I'm lucky that I have a low tendency to bleed, so I usually “only“ get petechiae even when my account is very low. .
I had it for the first time when I was 9, it was treated with cortisone which suppresses the immune system, and went on remission for more than 8 years. It came back when I was 17, went on remission again after I was treated with steroids, it returned when I was 21/22, once again a remisson after I went through a therapy with Prednison. Now, with 28, I m on the P again, but I only take 7,5 mg at the moment. In just five weeks I went from only 2000 platelets (normal: 150.000 to 400.000) to 157.000 this monday! It has never been this quick on such a low dose and I hope it lasts. There is just one difference to the last times: In Spain, they also gave me immunoglobulins to make the platelet account increase faster because of my flight home. This has pushed it as well. I'm aware of how lucky I am that my body reacts this good. You never know what the future brings, but at the moment I am happy and grateful. I am also lucky that I have a great and experienced hematologist. I try not to think too much about the ITP and enjoy life as much as possible. .
Why am I posting this? Believe it or not, I have never talked to anybody with the same issue due to the fact that this disorder is quite rare. I want to get in contact with other people that are affected by it and share experiences. I feel like there's a great community here on the gram. ---> comments!