[PR] Gain and Get More Likes and Followers on Instagram.

#initforbennett

MOST RECENT

Forgot to post this yesterday but thank you all for wearing purple #initforbennett

We’re home. Bennett is asleep. It’s bittersweet. #initforbennett #cysticfibrosis #cfwarrior

It’s always a good sign when IV is out! Bennett’s IV blew so docs decided not to put back in as his clean out is almost over! We are getting closer to discharge! #initforbennett #cysticfibrosis #cfwarrior

My very first drink and meal of the day came around 6pm when these two lovely faces showed up to eat with me in the hospital cafeteria. Brian is staying with Bennett tonight so I can finally get a good nights rest at my sisters house. Thanks to my sister for helping me with the kids. Eating felt so good. But it sucks to know Bennett still can’t eat anything. This ride is likely to go for days. 😣 #initforbennett #cysticfibrosis #cfwarrior

Second enema of the day. And it doesn’t look like it worked like we hoped to resolve Bennett’s DIOS, a bowel blockage common to people with #cysticfibrosis . 🙁#initforbennett #cfwarrior

IV is in, thanks to the gangbusters work of an awesome male nurse we’ve had all day and a fabulous child life specialist. Our rockstar patient has been incredibly brave and patient all day. We’ve been in the ER for 10+ hours. Unfortunately, we are being admitted. #initforbennett #cysticfibrosis #cfwarrior

We’re still waiting to hear plan but looks like this morning’s barium enema shows no stricture! So, this is good news! So are symptoms due to CF induced constipation? Can we resolve at home? Waiting to hear from docs. #initforbennett #cysticfibrosis #cfwarrior

The worst part of #cysticfibrosis is how it unexpectedly robs your day, your plans and your control. The best part of cystic fibrosis is that you have to be on “contact isolation” (away from other patients) while in the ER so that means you get own room to catnap while you wait for hours. #initforbennett #cfwarrior

Bennett and Avonlea, snuggled in warm pajamas, bond over Minecraft while Bennett does his lung percussion therapy in a hotel on a recent trip. .
.
#initforbennett #cfwarrior #cysticfibrosis #cf #afflovest #percussiontherapy

If you live in Texas, you will understand the love we have for Buccee’s. #bestgasstationever #itsanexperience @bucc_ees #initforbennett

When your big brother has CF, you assume the whole world does! 😜 (text is from our babysitter who was watching Avonlea, 4 years old, this afternoon)
.
.
.
#cysticfibrosis #initforbennett #cfwarrior #cf #vesttherapy

Bennett gets his first DEXA scan today to evaluate the health of his bones, something cystic fibrosis patients are advised to do periodically over their lifetime. This comes after a positive CF clinic appointment this morning. #initforbennett #cysticfibrosis #cfwarrior #cf #bonehealth #dexascan

This little guy rocked blowing his own glass ornament this weekend. #itshardyall 🙌🏼 Quarterly PFTs at #CF clinic are good practice!! 😜#cysticfibrosis #cfwarrior #initforbennett #pulmonaryfunctiontest #stronglungs #stantonglass #waco

When cleaning #cysticfibrosis nebulizers is a family affair. #4yearoldscanbehelpful #initforbennett #wacotx

Little sister dressed ready for her ballet lessons snuggles on the couch with big brother while he does his #breathingtreatments and plays his iPad. #cysticfibrosis #initforbennett #wacotx

Quarterly CF Clinic Day (aka 4 hours of being with 3 kids in an exam room) has us all being like 😜 #initforbennett #cysticfibrosis #childrensmedicalcenter #goodoverallreport

4th of July Waiting for the Fireworks Family Selfie! 🇺🇸#4thofjuly #fireworks #initforbennett

Happy Father's Day to a daddy who dispenses and organizes meds, cleans and sterilizes equipment, gives morning and night breathing treatments, turns off the beeping feeding pump in the middle of the night, carries loads of our stuff to and from the car during hospitalizations and does much more to care for Bennett's #cysticfibrosis on a daily basis. We love you!! #initforbennett

Baseball all evening, a late dinner at Bdubs and now some Full House! Yep, it's been pretty great!! #welovebaseball #initforbennett #bennettsbuddies

Quarterly CF Clinic visit for Bennett in Dallas for Bennett this morning. Lungs sound good. Weight is up. But goal is to gain 10lbs. #initforbennett #cysticfibrosis #childrensmedicalcenter

Most Popular Instagram Hashtags