Decided to get real about one of the things I've been hesitant to share...Hair loss.
I know a few of my fellow crps warriors are dealing with the same problem and are also hesitant to share, whether from embarrassment or because it may seem so trivial compared to the billions of other things we're forced to deal with because of this monster of a disorder.
For me personally, my Drs haven't really taken my hair loss concerns all that seriously. They all look at me and say "what do you mean you're losing your hair? You've got SO much!" My reply is always yes, but for how long? The amount of hair I lose on a daily basis is sad. The bathroom floor regularly looks like a grave yard of my poor dead hairs. The amount of hair I lose in the shower is terrifying and honestly makes me not want to wash my hair because I'm afraid to see how much will come out next time (another post on that later). As you can see in this photo, my hairline is becoming wild. The clump of hair is what I now consider a small amount of loss.
After doing tons of my own research and talking to both drs and other crps warriors, I’m still not really sure what’s causing the hair loss. It could be from stress, the wonderful concoction of meds I’m on, the disorder itself - it could be that my body doesn’t bring enough blood to my scalp because it’s too busy bringing it all to my arm to try to “heal” the injury (guess it hasn’t figured out that it doesn’t work that way anymore) or it just doesn’t think worrying about my hair is all that important since it’s dealing with a shit ton of crazy with everything else, or most likely, a combo of it all.
I’ve been using coconut oil for weekly leave in treatments (recommended by one of my old drs secretaries) when I can work up the energy to do it and notice less hair loss when I do use it. I take biotin daily and use biotin shampoo. But other than that, I’m not sure of any other things I can do to try to save my hair.
If anyone has any ideas PLEASE share. I will be eternally grateful. 🧡