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#ibdfamily

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O afeto transcende a própria família. Não é um laço que une apenas os integrantes de um núcleo familiar, não é apenas um valor jurídico, mas um sentimento que nutre relações de amizade, companheirismo, humanidade, solidariedade.
Não é fruto da biologia, do sangue. É um motor social, componente de todas as relaçõeshumanas, principalmente daquela que é a base de nossa sociedade: a família. #helioeheloiseadvogados #direitodefamilia#copacabana #ibdfamily

For all of you fighters out there... these diseases can't stop you! #GutItOut every day. It will be worth it. Thank you all for the support! Proud to be a part of this #ibdfamily 👊🏽

missin on these people like, woah. 📸: @rp_stevens

#IBDfamily

When I first got sick 6 1/2 years ago, I was so alone. I had love and support, but no one around me really knew what it was like to be sick. I was also new to all of this. I didn't even know what an ileostomy was let alone how to take care of one. 😬 I did my best to find other patients to talk to, but I only found two or three across the country. A few years later, I started using Instagram. 📷 I didn't talk much about my health problems for a long time, but I'm so glad I decided to share my story. Today, my account hit 4000 followers! ☺️💕That's 4000 people (mostly strangers) that care about how I'm doing. That's nearly the population of the town I grew up in! 👥 I receive direct messages and comments daily from people of all walks of life: a nurse that wants me to know I've opened her eyes to the receiving end of medical care, a 14 year old girl that told me I inspire her and make her feel more confident with her scars, completely healthy people that just want to learn more and people from all over the world that just want to let me know that they are pulling for me. 🌏❤️ It isn't my intention to brag about being an inspiration or to boast about the number of followers. I want to say THANK YOU and that I'm extremely humbled by all of you. I'm not sure that I believe in a god, but I believe that everything happens for a reason. I'm almost exclusively happy and optimistic, but I'm like anyone else - I'm not bulletproof. Every once in a blue moon, I'll break and wonder, "Why? Why me?" ....until I read a comment or message from one of you. If even one person feels more confident or if I can educate someone, this will all have been worth it. 😊💜 (Also, please know that I do read EVERY comment and message. I try to respond to as many as possible, but please know that I do see your comments and they matter to me - even if I don't reply.) ❤️
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#spoonie #spooniefamily #IBD #IBDfamily #ulcerativecolitis #crohns #jpouch #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #autoimmunedisease #jpouch #ileostomy #stoma #ostomy #surgery #girlswithguts #chronicallymotivated

9 months ago, when I was diagnosed with Ulcerative Colitis I thought the world I knew will not be the same anymore. There was (and still is) so many questions and things to learn. If I wanted or not I was in for a bumpy ride... Luckily my loved ones were all aboard with me to help me conquer this illness and did not allowed me to feel like the disease can define me.
I decided to join #TeamChallenge with @crohnscolitisfoundation , speak up and run a half marathon to make #IBDvisible , to be part of the support system for all those with IBD and most of all to prove that diseases can make you weak, but they cannot break you ! Thank You for all the sweet messages and sharing your stories for past 2 days. Stay strong ! 👊🏼♥️ #TCfamily #IBDwarrior #IBDfamily #colitis #invisibleillness #awarness #halfmarathon #healthyGuts

Taken while we were Recording a video for @we_are_wisdo about our journey with Crohns and Colitis and our advocacy work in the #IBD community. I couldn't of asked for a more amazing person to do this video with. Megan is more like family now and beyond thankful to have crossed paths on our journey with #IBD. #HealthEVoices17 #IBDFamily #Crohns #UC

I've been away from this account for the past few weeks, so coming back to learn that this beautiful soul has left this world made my heart sink. #rememberingmartine
I had the honor of interviewing Martine on my blog 4 years ago, and I'll be making that the homepage for a while for anyone who wants to read. She gave some great words of wisdom and advice for coping with #chronicillness. She was one of the first people I connected with out here in the #ibdfamily cyber world and became a huge part of my support system. We shared a love of our furbabies, Henry and Sam, and I know Henry is truly missing his momma. She was the person who connected me to yoga to help heal my body, along with food and medicine. Martine was determined, funny, and caring. She shared her passion for cooking, love for her husband, her dog and learning with everyone out here, and was so kind. I will really miss her sweet messages of encouragement. My heart goes out to her husband and family, and I'll be keeping her in my thoughts for many years to come. For now, I'm playing some Vampire Weekend in her honor and will be snuggling my husband and dog a bit harder tonight. #restinpeace

MOST RECENT

Pre-op appointment #6 is complete! This morning I went in for a much needed iron infusion to help with the amount of blood I’ve been losing since I started the blood thinners.
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Only one more appointment and 13 short days before my surgery! For now, I will be cramming in as many Christmas festivities as I can before the big day. 🎄

A big thanks to the team at @clarahealth & @breakthroughcrew for letting me take over their account today & yesterday!

I'm so thankful to have been able to read new patient stories and get to know others #IBD, as we know that each of our struggles are so similar.. but our course and progression of our disease is so different in all patients.

I'll leave you with this: there has been SO much that Crohn's has taken away from me.. relationships, grad school, and most recently a career that I loved. But no matter what IBD takes from me, I want you to know all it's given me: friends that have turned into family, new traditions for holidays with those friends, educating myself on my own disease & gaining empowerment from that, partnerships with ongoing patient education resources and being able to attend summits for #IBDSC that make me feel like anything but "just a number". You are NOT your disease, it's simply a part of you that altered your life and made you more empathetic and caring for others. Never let #crohns or #colitis dim your light & if you feel like your flame is fading, reach out for support. You'll find it in the strangest & most unique places of you put yourself out there❤️. And always remember, Hope is the only Rx that's free!

you can find me on instagram: @jojocrabb. or twitter: girlsgotguts & on facebook: #purpleproject or kellyontherun.com.

#breakthroughcrew #ccawarenessweek #ibdawarenessweek #crohnsdisease #colitis #uc #ulcerativecolitis #indeterminatecolitis #autoimmunedisease #autoimmune #warrior #fighter #NEGU #nevergiveup #IBDfamily #inflammatoryboweldisease #advocate

Through #advocacy, I've been truly blessed to meet others (in real life) who struggle with many of the barriers I experience. These are only a few of the ladies & members of the #IBDSC or IBD Social Circle.

Each one of us has a different journey with our #IBD, but that doesn't matter to any of us.

Support is truly the biggest form of therapy for my #chronicillness. I may go weeks or even months without talking with some of the people, but each of them understands how the course of illness goes and we are able to pick up right where we left off.

I'm not sure what I would do without my "tribe". It's cliche, but I DO believe in: "find your tribe. and love them hard". It took me a long time to find these people I consider family & would do anything to take their pains and complications away.

#IBDfamily #IBD #myIBD #crohnsdisease #crohns #ulcerativecolitis #uc #colitis #autoimmunedisease #autoimmune #chronicillness #chroniclife #mytribe #ccawarenessweek #neveralone #support

There are very few people who "get it" when you're going through a rough time involving illness. Ive found so much support in my own community, as well as extending myself and trying to knock down silos between health conditions.

Different events for patient advocates can be a fantastic way to gain support from the community and give back.

Recently, I participated in a Spin class event for Crohn's & Colitis. Our team included 2 patients with Crohn's Disease, a caregiver, their son & a teammate with #Parkinsons.

Although this type of event was a little out of my comfort zone, the people I did it with made me feel at home. Each of us struggled with our disease that day but we all came together to support one another & have a lot of fun while doing so.

#advocacy #patientadvocate #CCawarenessweek #IBDweek #IBD #inflammatoryboweldisease #crohnsdisease #crohns #colitis #UC #Ulcerativecolitis #support #IBDfamily #purpleproject #onamissiontoRemission

Not going to lie, I kinda assumed I’d be lying in a hospital bed mourning our break-up right about now....yet here we are heading down to the beach together. (My stoma clearly has separation anxiety 😂)

After surgery fell through last week, I was frustrated and upset. I had this weird feeling of emptiness and disconnection from everything around me. Someone suggested anti-depressants. I was so taken aback.

I do believe anti-depressants have their place, for me, last year I was there...briefly. However, I also believe we’ve been so conditioned to think we have to be happy all the time, that as soon as we aren’t, we assume something is wrong with us and we need a pill to fix it.

It’s completely normal to have a bad day, or even a bad week. If we didn’t have them we wouldn’t recognise or appreciate our good days. The feelings I had post ‘surgery’ were completely warranted. I allowed myself space to be upset, to cry...a lot. Then I put my big girl pants on and moved on with life. My disappointment was a natural reaction to an unnatural circumstance. It doesn’t necessarily make me depressed, it just makes me human.

✨ Positive people also have negative thoughts, they just don’t let those thoughts grow and destroy them.

I know I am a little behind with this post, but better late than never right? In honor of Crohn’s and Colitis Awareness Week I decided to share this picture of myself which was taken right around the time of my diagnosis. I was incredibly sick, undiagnosed, underweight, and rushing to the bathroom countless times a day. Most of my memories from this time period surround the various testing and procedures I felt like I was always being forced into, but I know for my parents the memories of this year are much scarier ones. I can’t even imagine what it was like to see me so sick and having no clue as to why.
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While I may not remember much from the early years of me suffering from this disease, I know that over the past 16 years it has taken a lot from me. Both Crohn’s and Ulcerative Colitis encapsulate so much more than simply having to use the restroom a lot. They affect nearly every facet of your life and, in some cases, can rob you or a normal, healthy, and carefree childhood.
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However, that is not to say that these diseases are who we are. Yes they knock us down, and somedays it is hard to even get out of bed, but each and every person suffering from an IBD is a fighter. The little girl in this picture fought for 16 years trying to get control of her life back, and in 16 days, she’s taking it.

To celebrate ibd awareness week I'm going to share with you the people who have inspired me over the last year to raise awareness for everything #ibd 💜
So without further a do, I'd like to introduce @abellyfullofbryony or bryony 🤗 myself and bryony did a collaboration this year before I got very ill and we shared stories of our condition, how it effected us and our families and we ran around London eating food!! (All healthy and ibd friendly of course) Bryony has done so much over the last few months with her work and journalism, that she is getting ibd into the public eye. So good on you love haha 💜💪🤓
Give her a shout and I'll introduce another person tomorrow
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Much #ibdlove
#ibd #ibdfitness #ibdlife #crohnsandcolitisuk #chronicallymotivated #keepgoing #keepfighting #raiseawareness #ulcerativecolitis #yourstory #ibdfamily #invisibleillness #ibdweek

This was me after watching YouTube videos of how to give my husband shots for his new medication... Nurse Jessica is now available to administer Stelara! 💉👩🏼‍🔬
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#chrons #chronsdisease #chronsandcolitis #ibd #chronicillness #chronicpain #ibdfamily #cedarssinai #stelara #newmeds #medicine #selfinjection

I’m a little late in posting about this, but every year, the first week of December is Crohn’s & Colitis (IBD) Awareness Week! This photo of me is from several months back, but it’s a good representation of what these diseases can do to your body. I am smiling in this photo and I was genuinely happy to have had my surgery, but I know that with this surgery and the 14 or 15 others before it, I have experienced a myriad of emotions: everything from pure joy to shame to defeat to some of the lowest depressions of my life. IBD isn’t just a bathroom disease. It’s a life-long, internal civil war - not only physically, but mentally as well. It’s been a long 7 years of illness, but if I can raise awareness and offer any sort of help or hope to someone suffering the way that I have, it will have all been worth it. .
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#crohnsandcolitisawarenessweek #IBDawarenessweek #spoonie #spooniefamily #IBD #IBDfamily #ulcerativecolitis #crohns #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #depression #anxiety #bipolardisorder #autoimmunedisease #ileostomy #stoma #ostomy #surgery #girlswithguts #chronicallymotivated #selflove

Hi! I’m Hayden, 23 and I have Ulcerative Colitis. I’ve never shared my condition with anyone besides family and a few close friends I’ve kept close with throughout this ordeal (and a few strangers on the internet 😜), so I figured #CCAwarenessWeek is a good opportunity to write about my story/thoughts. ➖

At 19, I was in my freshman year of college when over the span of a couple weeks, I went from being a perfectly healthy guy to suddenly having to run to the bathroom, fearing if I’d make it in time or not (results varied 👀). I realized something was seriously wrong and met with a GI who scheduled a colonoscopy, and diagnosed me with UC. That was a lot to take in but my doctor was optimistic about treatment options and I never imagined I’d still be dealing with major symptoms four years later. Fast forward to today and we’ve now thrown everything from chemo to biologics to FMT (that’s a fun one) at this monster of a disease with no success; and surgery is on the horizon. Having a major organ removed is frightening, especially with no guarantee of success, but the thought of being able to function normally (even semi-normally?) again is incredible. Currently I’m lucky if I get out for a few hours per day, and even that takes careful planning- not eating beforehand, taking Imodium, etc ➖

As each birthday has gone by since diagnosis without progress, I’ve joked with my parents that I still feel like I’m still 19 and life has simply been on “pause” for the past few years - if only that were possible... Having some of the best years of my life taken from me (in regards to fun, relationships, professional development, etc), missed holidays, trips, etc... has been insanely difficult, but I’m thankful every day that I’m still alive and kicking, and optimistic that someday soon I’ll be free of this beast.
Sorry for the poor writing 😉. To all of you going through something similar, hang in there!

#myIBD #ulcerativecolitis #ccfa #invisibleillness #uc #crohns #ibdfamily #ibdwarrior #spoonies #crohnsandcolitisawarenessweek

I was diagnosed in 2001. Innards are (pretty much) behaving themselves at the moment but some days my guts seem to hate me.
Plodding along one toilet break at a time 🚽
#myibd #ibdstrong
#crohns #colitis #ulcerativecolitis #ibd #ibdfamily

As we kick of #ibdawareness week tomorrow, I wanted to share a bit about why I'm grateful for #myibd .
When I was hospitalized a year after my diagnosis, I was told by my nurse the I was the sickest patient she had ever seen. My doctor said I shouldn't be alive. And my story isn't unique. This is common for many people with this disease who push through and try to hide the symptoms. Our labs are shocking. We lose a lot of blood. We don't absorb nutrients like we should. But we are so tough. IBD shower me my strength.
I'm thankful for #myibd because it gave the universe a chance to surround me with incredible friends, family and support.
I'm thankful for my #remicade treatment that, while it makes me feel like crap for a while and sucks to get, works and gives me a chance to have a life.
I'm thankful to have a chance to enjoy these sunsets and to find more beauty in this world than I ever had pre IBD. It opened my eyes to appreciate a lot more.
Finally, I'm thankful for the connections I've been able to make with this diagnosis. Through #pfizer and @crohnscolitisfoundation I've met some of the best leaders (@rasheedclarke), the bravest beings @theycallmekole, hardest workers (@brklynbouncer, @chronicallystrongblog ) the strongest most fit humans (@the_real_jmw @truebluewill looking at you crazy kids), incredibly talented artists (@kristindunreathart @colitisninja) and some of the greatest hearts @jojocrabb @colitismama and I'm running out of room to tag all of you but this is why I'm thankful. If you're reading this, it's likely because of you. #flareuphopethanksandgiving day 28, 29, 30.

Thank you so much to everyone who sent me goodluck messages yesterday. Unfortunately as life tends to remind me at times, things don’t always go to plan!

I arrived at hospital yesterday morning with a resting heart rate of 140. Assuming it was just adrenaline I had precautionary bloods and went through the anxiety of 2 cannulas and an art-line before being sedated in theatre. Next thing I remember I was being wheeled into recovery. Surgery had been cancelled. My blood results had revealed thyrotoxicosis, which meant surgery was too dangerous to perform because I was at a high risk of heart failure during anaesthetic.

I was completely devastated and I may have spent my entire hour in the recovery ward sobbing to the nursing staff. A good friend of mine quickly pulled me into line and reminded me that things happen for you, not to you...so in hindsight, thank you Universe for steering me away from a life threatening situation.

I’ve been discharged from hospital and I’m hoping to reschedule as soon as my new meds work their magic and balance out my thyroid. In the meantime I’m throwing myself back into bag life and enjoying their perks while I can 💛

Crazy curly girl comin' atcha for a chance to win a plush colon from @iheartguts!!! Only TWO DAYS LEFT! When you donate to my Crohn's and Colitis Foundation fundraiser you'll be entered to win colon-themed prizes. Help me reach my goal? WE ARE SO CLOSE! Clickable link in my profile.
online.ccfa.org/goto/laurascavspins

Here we go again. The day has arrived. Can I just fast forward to post ileostomy takedown and show off my scars at the beach already! Yep, k thanks 😂

You know that feeling you get packing for a holiday...well, safe to say I didn't quite get that feeling last night as I finished up folding my pyjamas into my suitcase. In fact I may have sat on the floor and cried like a baby.

To my ostomy bag, thank you for giving me my life back. Although I didn’t like you at first, you have grown to become so part of who I am. I know I’ll miss you over the next few weeks and wish we didn’t have to end things so soon, but as they say, time heals all wounds and I promise to always look down at my scars and remember the good times we shared together.

Giving you all love today on Giving Tuesday. Would you give back by donating to my Crohn’s and Colitis fundraising event? My spin team is SO CLOSE to our VIP goal. The event is 4 days away! Your donation will help fun research for cures and other resources for patients with IBD. Donation link is on my profile and insta story. 💚💚💚💚#spin4cures #ulcerativecolitis #crohns #givingtuesday

missin on these people like, woah. 📸: @rp_stevens

#IBDfamily

Is it weird if I say I’m scared of pooing again?! But seriously, the thought of having to use my bum again after 11 months is so strange.

At first I never thought I’d adjust to stoma life, but it became my new normal and here I am 4 days out from reversal surgery freaking out at the idea of going back to functioning ‘almost’ normally again. What I’ve realised is that it’s not the thought of using my bum again that scares me at all, but rather a fear of the unknown….of not knowing what’s to come.

Having an ostomy bag this year has given me a glimpse of freedom. I’ve been able to make plans without worrying about whether I’ll have an emergency trip to hospital or just be battling with a particularly bad flare day. I’ve become so used to knowing what my day will hold with my ostomy bag that I’m scared of not knowing again.

So with surgery approaching in just a few days, I’m reminding myself to embrace this uncertainty and go into J-pouch life without any expectations other than to give into the flow of everything. Whatever happens, happens and just like I did before, I will find another new normal.

For now, I’m savouring my last few days of morning swims and slobbery kisses from my main man ♥️

My family did a John Wayne puzzle on Thanksgiving bc that's how cool we are. Everyone is healthy today. No flares, no cancer, just here. So thankful. Day 23 #flareuphopethanksandgiving #givealittle #lovealot #ibdfamily #supportsytem #whereifindmystrength #hope #puzzletime #cancerfree #ulcerativecolitis

10 days away!!!! Tis the season for giving. And we are 10 days from the Crohn's & Colitis spin event in NYC!! I would so appreciate your donation for a future cure. You’ll be entered to win this cool colon-themed gifts from @iheartguts! You can donate to my fundraising page linked in my story and profile. http://online.ccfa.org/goto/laurascavspins

It was my 25th birthday a couple days ago and for the first time in 4 years I actually went out to celebrate with friends!

This time last year I couldn't even leave my house because I'd risk having an accident in the car, let alone be able to indulge in a night out with friends. I would never have imagined that just 1 year later I'd be living with an ostomy bag, and of all things, actually enjoying it.

I'd be lying if I said this year has been an easy one, change never is, but it's through change that I've transitioned into a newer and better version of myself. So rather than looking at this phase in my life as wasted time I now see it as a year of intense growth. I’ve learned to give into the flow of life and see every obstacle as life’s way of redirecting me towards something better…and it has.

Thank you so much to everyone in the insta world, for allowing me to share my story with you, and allowing me to follow yours. Knowing there are people all over the world who share very similar experiences to my own has inspired me to openly share mine. You've given me the confidence in becoming a proud ostomate who is no longer afraid of hiding her story, or her bag for that matter, so thankyou 🙏🏼

wishing it was last weekend & i could relive some of the events that made it so special. when your friends live so far away, it makes saying goodbye & readjusting that much harder..especially because they are truly the ones who "get it". they love me despite my flaws & massive insecurities. they are my family and only family can make an introvert smile this big.

#IBDfamily #AIBD2017 #IBDSC #familyisntalwaysblood #advocacy

It only took 4 hours, but I’m finally getting some fluids. 😅 I hate taking up a bed in the ED when I’m just dehydrated. Hopefully I won’t be here long. 😬
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#spoonie #spooniefamily #IBD #IBDfamily #ulcerativecolitis #crohns #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #dehydration #autoimmunedisease #ileostomy #stoma #ostomy #surgery #girlswithguts #chronicallymotivated

Fell asleep after work last night and forgot to post, but I yesterday I sent a gift to one of my fav IBD gals down in Louisiana to read to her sweet new baby. Dr. Suess was a fav of mine when I was little and I thought the worlds he made up were hilarious. Imagination was definitely encouraged while I was growing up and I'm so grateful for that. Day 14. .
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#flareuphopethanksandgiving #givealittle #lovealot #family #ulcerativecolitis #remission #ibdfamily #supportsytem #drsuess #hope

When I got sick 5 years ago, I was in a bad place in my life. I was unsure of who I was and who I wanted to be, I was in a bad relationship that I didn’t quite have the guts to leave, I was having regular panic attacks, I wasn’t nurturing my body with the right foods and I continued to push myself despite early warning signs that my body wasn’t happy.  I had completely stopped seeing myself, and my health as a priority.

Then I got sick and it felt like the Universe had just stopped me dead in my tracks. I stopped uni, I changed my diet….I changed everything in my life except the environment I was surrounding myself in. I was too sick to go through the emotional turmoil of that kind of change, so I didn't. Yet, I continued to feel that niggle...that little gut feeling reminding me my life wasn’t quite aligned the way it should be.

Turns out it took losing my guts to get guts...and I finally mustered up the courage to leave an environment that I knew wasn't healthy for me to heal in. So I encourage you, if you’re in a situation in your life that takes more out of you than it does nourish you, LEAVE. CHANGE. GIVE INTO THE NIGGLE...listen to your gut, even if you don't have a whole one. You can’t heal in the same environment where you got sick in the first place.

throwin up deuces to sunny Florida & going back to snowy landscapes in Wisconsin. already missing my advocate family.

#IBDSC #IBDfamily #AIBD2017 #IBD #crohns #colitis

Tonight we sent some kitty treats to our fav friends over the lake. That's you, @crabbkin.littles . We love you. 😻😻😻👸
Day 10 #flareuphopethanksandgiving #givealittle #lovealot #ibdfamily #cats #catmoms #spoonies #jojothecat

I’m in the middle of a conversation with a woman at Joann’s when all of a sudden, my belly felt warm..... Too warm. I started to feel it running down my side so I ran to the bathroom. Of course, I don’t have the supplies on me to fix this. Thank god they have a single bathroom. I’m determined to buy what I grabbed so I’m in line, but the anxiety I feel is unreal. My jeans are soaked (and stuffed with paper towels and toilet paper 🙈). All I can do is keep pulling my sweatshirt down as far as I can... Happy Wednesday! 😬
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#spoonie #spooniefamily #IBD #IBDfamily #ulcerativecolitis #crohns #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #depression #anxiety #autoimmunedisease #ileostomy #stoma #ostomy #surgery #girlswithguts #chronicallymotivated

Today and Tomorrow.... Bazar ... support some Venezuelan foundations and Artisans suppor... we wait for you!!!! #foundation #artisan #venezuela #idb #bid #ibdfamily #bazaar @filomenamicucci @psshowroommiami @piso8andreinasuarez @alimentalasolidaridad

‘This time next month I won't have a bag anymore!!!’

It's a thought that keeps replaying in my head over and over again. I’m experiencing waves of total excitement followed by complete and utter fear. I've loved the freedom my ostomy bag has given me. For the first time in 5 years I've been able to live life without being held back by my body. The thought of giving all that up so soon again scares me ‘shitless’ (pun intended😂). Taking a step back to take a step forward seems so unnatural.

With ostomy take-down looming in just 3 weeks I'm having as much fun as I can, eating to my heart's content and also focusing on allowing myself space for nothingness - for the old to flow out and the new to flow in...mentally preparing myself to close this chapter in my life and move onto a new version of myself - Jess 2.0! Thank you Ulcerative Colitis for testing how strong I can be, and for shaping and transforming my life in ways I could never have gained without you ✨

I use to be the one of those people who burns their toast...I was completely hopeless in the kitchen…then I got sick. In an attempt to heal myself naturally I eliminated a multitude of inflammatory foods from my diet: dairy, gluten, eggs, corn, soy, cane sugar and nightshade vegetables. Of course, this made cooking even more difficult, and burning toast became the least of my worries. I’m too much of a foodie to eat boring meals so I taught myself to cook. It became my therapy…whenever I was in a bad mood the kitchen was always calling my name.


To this day you'll still find me in the kitchen after a stressful day cooking my worries away. So thank you Ulcerative Colitis, if it weren't for you I would never have discovered something I've grown to love so much.


I’m currently obsessing over my chai pancakes (feel free to dm me for the recipe)! What has your disease taught you?

It's November. Time to light the cinnamon candles, snuggle up under flannel and down blankets and surround yourself with the people you love as we all gear up for the Holiday season. There's a lot of bad shite going on in the #chronicillness community (and the rest of the world) right now. Sometimes all that bad stuff can block out all the things to celebrate and the opportunities to give back to others. I'm blessed enough to still be in remission and have a solid medical team, and lots to celebrate. I am well aware that there are still a lot of people who do not have these things. They aren't finding treatments that work, who are being denied healthcare, who are struggling to make ends meet. This month, I'm making it a practice to give thanks or to give back a bit every day. I'd love for you to join me! If you do, use the hashtag so we can see it 😊 Let's bring a bit of hope into the world this month. #flareuphopethanksandgiving
I can't tag everyone so please add people in the comments to join in if you want! 🤗🙋🙌❤

O afeto transcende a própria família. Não é um laço que une apenas os integrantes de um núcleo familiar, não é apenas um valor jurídico, mas um sentimento que nutre relações de amizade, companheirismo, humanidade, solidariedade.
Não é fruto da biologia, do sangue. É um motor social, componente de todas as relaçõeshumanas, principalmente daquela que é a base de nossa sociedade: a família. #helioeheloiseadvogados #direitodefamilia#copacabana #ibdfamily

Ahhh!! So close! In a month I am participating in a “spin 4 cures” relay for Crohn’s and Colitis. I’m only $330 from my promised fundraising goal! But I need your help - and I know you will. 💜 Anyone who donates will be entered to win colon-themed @iheartguts goods. You will be the reason for a future advancement, patient healing, and a cure!! ➡️DONATE to enter & win: bit.do/spin4⬅️ clickable link in profile.
Donations are tax deductible and go to @crohnscolitisfoundation.

This weekend, I finally got the 'guts' to show off my bag at the beach...and on a Saturday at Bondi of all places. It was invigorating, freeing and completely petrifying all at once. I had no intention of showing my bag when I left for the beach that day. Zero at all. In fact I hadn't even packed my bikini. It wasn't until I jumped on a bus to get there with friends that I realised it was my first bus ride in 3 years. Public transport was one of my biggest fears while suffering with IBD. Trains, buses, airplanes, even taxi's...I avoided them at all costs, and if I happened to be forced into one I'd starve myself and then sit like a bundle of anxiety, with sweaty palms praying my stomach would cooperate for the journey.


Thanks to my stoma, yesterday I was able to hop on a bus, just after a meal without any anxiety about needing a bathroom. So with the support of my friends, I thought I owed myself a 'thank you, you can do this, flaunt what gave you your life back', because without my stoma I wouldn't have even made it to the beach in the first place.

Ladies, I have discovered THE HOLY GRAIL of sexy panties for those of is with ostomies! 😍 Even for totally healthy people, the first time you're physically intimate with someone new is nerve wracking - maybe even awkward. Add a medical condition to the mix, and the nerves only get worse. 😳 One of the hardest parts of being physically close with someone new, especially when you have an ostomy, is feeling confident and sexy. The panties I wear now cover my ostomy and keep it flat against my body giving me a sense of security during everyday activities and I'm happy I found them. They help me blend in - which is the point. BUT, these absolutely gorgeous high-waisted panties from Victoria's Secret totally change the game when it comes to physical intimacy.Wearing these, I wouldn't feel the need to awkwardly take a break to change into something sexier before being intimate with someone. These panties cost about $25/pair - which is a bit expensive to wear every day. But if $25 is all it takes for me to feel confident in myself, it is definitely worth it. I haven't bought any of them for myself (yet), but I'll post more about it if/when I do! ❤️
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#selflove #confidence #spoonie #spooniefamily #IBD #IBDfamily #ulcerativecolitis #crohns #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #ileostomy #stoma #ostomy #ostomytips #ostomysolutions #surgery #girlswithguts #chronicallymotivated

Mais livros para nossa biblioteca! Direito para nós é paixão! #helioeheloiseadvogados #advogadosempreendedores #direitodefamilia #ibdfamily #congressoibdfam

Today is 1 year since I was to stop taking the medicine immediately as they found through other blood tests the medicine was making me sick. I was just over 2 years into treatment with it and felt so awful from the side effects. I've remained in remission without having to switch to another one and without having to up my maintenance dose. I hope to remain IBD strong!!!!👊💪💟
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#beautifulday #embraceyourflaws #lifeisbeautiful #ulcerativecolitis #nevergiveup #spoonie #spooniefamily #ibd #ibdfamily #crohns #jpouch #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #autoimmunedisease #ileostomy #stoma #ostomy #surgery #ibdfighter #chemo #shitbag #tbt #poop #wedding #uc #trainanyway #workhard

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