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Did you know you can sponsor a bag for a heart family? There are two options... a one time donation or a monthly sponsorship! If you’d like to help us love on these heart warriors, check out the link to our website in the bio and go to the contribute page! >> joyforcaden.org/contribute
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Are you or someone you know expecting a baby with a congenital heart defect? Make sure to request a bag today using the link in our bio! ❤️you can gift them or request one for yourself❤️
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#hlhs #tapvr #chd #congenitalheartdefect #preggo #expecting #warrior #chdaware #chdawareness #heartwarrior #joy #hypoplasticleftheartsyndrome #tga #chdlife #openheartsurgery #heartkids #heartbaby #heart #tetrologyoffallot #tof #1in100 #nonprofit #spreadhope

Update : Friday January 20 she had her picc line remover from her chest to have a new one inserted in her leg . They went up on her feeds , she was currently on 16mL per hour being fed through her feeding tube & now she’s on 18mL.
A PICC line is a thin, soft, long catheter (tube) that is inserted into a vein in the child's arm, leg or neck. The tip of the catheter is positioned in a large vein that carries blood into the heart. The PICC line is used for long-term intravenous (IV) antibiotics, nutrition or medications, and for blood draws.

Actualización: el viernes 20 de enero removieron la línea de piccros de su pecho para tener una nueva insertado en su pierna. Continuaron con su alimentación, ella estaba actualmente en 16 ml por hora siendo alimentada a través de su tubo de alimentación y ahora ella está en 18 ml
Una línea PICC es un catéter (tubo) fino, suave y largo que se inserta en una vena del brazo, la pierna o el cuello de los niños . La punta del catéter se coloca en una vena grande que transporta sangre al corazón. La línea PICC se usa para antibióticos, nutrición o medicamentos por vía intravenosa (IV) a largo plazo y para extracción de sangre.
#hypoplasticleftheartsyndrome #hlhs #turnersyndrome #heartwarriorprincess #chd #waitingonahearttransplant

Archer pulled out his ng tube one too many times and is now stuck wearing the sock of shame. .
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#childrenshospital #congenitalheartdefect #chd #chdwarrior #doubleoutletrightventricle #hypoplasticleftheartsyndrome #hlhs #ngtube #baby

Full video on our Facebook page ❤️
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Are you or someone you know expecting a baby with a congenital heart defect? Make sure to request a bag today using the link in our bio! ❤️you can gift them or request one for yourself❤️
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#hlhs #tapvr #chd #congenitalheartdefect #preggo #expecting #warrior #chdaware #chdawareness #heartwarrior #joy #hypoplasticleftheartsyndrome #tga #chdlife #openheartsurgery #heartkids #heartbaby #heart #tetrologyoffallot #tof #1in100 #nonprofit #spreadhope

She is why Poppy & Miff began. Every year she wants to raise money for Heartkids. This is her fundraiser video. #heartkids #hlhs #hypoplasticleftheartsyndrome

Share & Tag your friends ♥️
JOIN US for Mended Little Hearts 4th Annual Roar 'N Run Virtual Charity Race

Participants can pick their distance goal
5K , 10K, 13.1 miles or 26.2 miles
Then run, jog or walk your distance ANY TIME and ANY WHERE this is a VIRTUAL RACE during CHD Awareness Week, February 7 -14.
Registration Cost: Adults $25 and Children 13 only $15. ALL participants receive a commemorative medal and a certificate of completion.
You can join our team “Team Baby Allison” or donate to help us meet our fundraising goals.
Fundraising prizes for individuals are:
$100 raised--a MLH lion drawstring backpack
$500 raised--a stainless yeti-style MLH tumbler
$1000 raised--a MLH blanket
By participating in this event, you are not only helping Mended Little Hearts create awareness of CHD, the most common birth defect in the USA, but you also are helping us directly support families of children with CHD. All proceeds from the event will be going to our Bravery Bag program.
https://www.crowdrise.com/o/en/campaign/team-baby-allison-/allisonbelen

LINK ON BIO
#chdawareness #hypoplasticleftheartsyndrome #hlhs #heartwarriorprincess #chd #allisonbelenhernandez #rainbowbaby #turnersyndrome

She took one step forward , Allison was removed from the graham cánula & put on the hi flow . Which means less oxygen support & more breathing coming from her.
Dio un paso adelante, Allison fue removida de la cánula nasal y puesta en el flujo alta. Lo que significa es menos soporte de oxígeno y más respiración proveniente de ella.
#hypoplasticleftheartsyndrome #hlhs #chd #turnersyndrome #heartwarriorprincess #allisonbelenhernandez #rainbowbaby #egspring18

Sometimes it seems like yesterday sometimes it seems like centuries ago. Three years ago today we met our sweet Victoria. Can’t help but wonder what she would look like, sound like, if she’d be spunky like her sisters, or mellow and chill. Happy Birthday in Heaven Torie Cate. 😘👶🏻 Gramma loves you! “I praise you, for I am (she was) fearfully and wonderfully made. Wonderful are your works; my soul knows it very well.”
Psalm 139:14
#VictoriaCatherine #HonorVictoria #VictoriasJourney #HypoplasticLeftHeartSyndrome #HappyBirthday

We got to hold Allison for the second time on Monday January 15 😍❤️ she’s making progress

Es la segunda vez que la pudimos cargar Lunes Enero 15 , esta haciendo progreso
#hypoplasticleftheartsyndrome #hlhs #turnersyndrome #chd #heartwarriorprincess #allisonbelenhernandez #rainbowbaby

One of my favorite views! Watching Caden’s legacy live on through love and support makes my mama heart so happy ❤️
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Are you or someone you know expecting a baby with a congenital heart defect? Make sure to request a bag today using the link in our bio! ❤️you can gift them or request one for yourself❤️
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#hlhs #tapvr #chd #congenitalheartdefect #preggo #expecting #warrior #chdaware #chdawareness #heartwarrior #joy #hypoplasticleftheartsyndrome #tga #chdlife #openheartsurgery #heartkids #heartbaby #heart #tetrologyoffallot #tof #1in100 #nonprofit #spreadhope

1.17.18 | today I am F I V E {5} months old! I am such a happy, smiley baby! Mommy& Daddy can’t thank @nicklauscardiacteam and @redmondburkemd enough for taking such good care of me & giving me this fighting chance to have such a bright beautiful life at just 5 months old! ...
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#HLHS #hypoplasticleftheartsyndrome #singleventricle #cardiacbaby #CHD #chdawareness #mckennasfightingheart #zipperclub #1in100 #heartwarrior #heartbaby

Bit early for feel good friday but, home sweet home after a busy couple days in Birmingham children's hospital and all went well. Thanks to all for your well wishes

Waiting for the snow to come so we can go outside and play! #snowday #boyswillbeboys #hearthero #hypoplasticleftheartsyndrome #thisislove

Playing in the snow with my brother and lil cousin #snowday #boyswillbeboys #hearthero #hypoplasticleftheartsyndrome #thisislove

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