@andrewostler and I felt it was time to share the latest news about our baby girl. .
While visiting Utah, I had my 20 week ultrasound, where technicians and doctors look at your baby in great detail. Everly Jo Ostler was diagnosed with 2 separate heart defects. The first one is called an AV Canal and the second is called Hypoplastic Left Heart Syndrome. Although we don't know very much (yet), we know that she will need several surgeries when she is born and most likely continue to have them throughout different times in her life. From what we have heard, there is no cure for the left heart syndrome. We will meet with several specialist at Primary Children's Hospital at the end of this month. At that point Urban and I will be moving home to Utah since I will have frequent appointments with the specialist until I deliver her in November.
When we heard the news, our entire world flipped upside down. We are obviously terrified and devastated but we know that through faith we will get through this, whatever the outcome may be. We are praying for miracles, for the doctors that are taking care of her, and for modern medicine to help give Everly a happy healthy life. I find joy in knowing that she is healthy while in my belly and when I cry and she kicks me, those are love taps from her telling me 'everything will be okay'. I find joy in knowing that I am her mother forever and that no matter the outcome, I am blessed to be able to spend eternity with her. .
If anyone has any experience with either of these defects and wouldn't mind sharing with us what you know, please text or send a pm. We are already overwhelmed with love and support from those who already know what's going on. Please remember to keep Everly in your prayers.💘 #PrayersForEverlyJo #hlhs #hypoplasticleftheartsyndrome #avcanal