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Day 3 at the hospital. Got surgery on the 2 new flare up spots I got since December which u guys see in the vid but I'm also removing the old spots cuz of the multiple scars. Waistline got cut out same day as legs but both armpits will be done after. Instead of multiple scars I'll just have one fat ugly scar. #hidradenitissuppurativa #hsawareness #scarlife #noprettyskinhere #vietnam2017

Walk for #HidradenitisSuppurativa (HS) Springfield Missouri St. Patrick's Day Parade 2017 | #HSAWARENESS http://bit.ly/2kTj5Ge

So it's It's #HSAwareness Week! Im only just hearing of Hidradenitis Suppurativa and I've been suffering with it as long as I can remember. Always blaming it on my weight and shaving. Until I've lost the weight and stopped shaving to see I was still having really sore skin problems. Went doctors about it for the first time yesterday finally to be diagnosed with this condition. Dr said it common about 1 in 100 people have it. But due to the stigma and embarrassment of it people don't come forward for treatment. Dr recommended I go on the pill and use the gel for 3 months. Anyone else suffering go check it out. Your not alone and there is treatment to help ๐ŸŒบโœ…

Just want to share and discuss his product with my other #hswarriors that my dermatologist recommended for me. It's an over the counter antiseptic wash so you don't need a script to get it, I got a large bottle from Walmart for $10, the small bottle is $4 I believe. Used to wash your open wounds with and I love that it doesn't burn. It's also the only wash I've ever used that will completely get rid of that smell. I will definitely keep buying this stuff. #hidradenitissuppurativa #hsawareness

Finally, I can throw my arms up in a picture and not think about how it looks. Showing off nerd pride overrides HS self esteem issues.
#throwmyhandsintheairlikeijustdontcare

#nerdpride #ufo #hswarrior #hsawareness

Special Thanks to CHEX News Peterborough who did a few segments this morning on HS Disease with DR. Gooderham and one with me! #hs #iamhsaware #hsawareness #hsdisease #chexnews

I bought this fanciness today. We'll see if it makes any difference for my #HidradenitisSuppurativa #HSAwareness #CBD #RareDisease

Although it's not life-threatening but it's still, so debilitating... and depressing. .
"Is it really painful? It doesnt look like a big deal" .. A big nice slap on ur face will answer ur question.
@Regrann from @mrs_carpenter0 - #hidradenitissuppurativa #hsawareness #orphandisease

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Day 3 at the hospital. Got surgery on the 2 new flare up spots I got since December which u guys see in the vid but I'm also removing the old spots cuz of the multiple scars. Waistline got cut out same day as legs but both armpits will be done after. Instead of multiple scars I'll just have one fat ugly scar. #hidradenitissuppurativa #hsawareness #scarlife #noprettyskinhere #vietnam2017

๐Ÿ’ชโœŒ๏ธ๐Ÿ™ #hsawareness #hidradenitissuppurativa

I just beat a flare. Two more are forming. Tired of being in pain. #hswarrior #hsawareness #scarstellastory

About 4 years ago i started getting weird bumps and sores that i thought were just annoying pimples. I knew there had to be more to it with how often i got them, how big they were and where i was getting them. I've dealt with a non-contagious skin disease called Hidradenitis Supperativa(HS) and other than Lucus and a handful of people i have not told anyone what i deal with on a daily basis. HS is when hair follicles become blocked and inflamed. No one knows exactly why this blockage occurs. It can cause infections, restricts movement, significant pain in each flare up spot, and unusual scarring(top right), fatiuge, odor, and general aches & pain. It sometimes shows up as marble sized lumps that arnt always visible(top right) or as large deep red bumps(bottom right picture) that either go away or their own or pop and ozze blood or puss or both. The flares can appear in the armpits, thighs, under the breasts, or any other spot that skin may rub. Sometimes it creates large holes (top left picture) or simply super sensitive large pimples(bottom left picture)It happens to more women than men, and usually appears after puberty or between the ages of 20-29. There is so little research done about this. June 5th-11th is HS awareness week in the UK and in some states but it needs to be more known. It effects many people that sometimes go undiagnosed because they are either too embarassed to talk about it to even their doctors or sometimes medical professionals dont know much about it either. www.hsonline.ca #hsawarenessweek #hsawareness

Just want to share and discuss his product with my other #hswarriors that my dermatologist recommended for me. It's an over the counter antiseptic wash so you don't need a script to get it, I got a large bottle from Walmart for $10, the small bottle is $4 I believe. Used to wash your open wounds with and I love that it doesn't burn. It's also the only wash I've ever used that will completely get rid of that smell. I will definitely keep buying this stuff. #hidradenitissuppurativa #hsawareness

I bought this fanciness today. We'll see if it makes any difference for my #HidradenitisSuppurativa #HSAwareness #CBD #RareDisease

I want to close #HSawarenessweek2017 on a happy note. I just want to say thank you to all my family & friends who support me, judgement free & who have always been there for me, sometimes at my weakest moments. I truly have an incredible support system & I do not take it for granted. Please don't pity me because I have HS, I am stronger because of this. I have worked hard at staying positive & "happy" (as my family would label me lol) & I'm finally in a better place. I have become more compassionate toward people & don't feel the need to hide my struggle or the scars it's left. I'm hoping my awareness has helped at least ONE other person, I know it's helped me! So thank you all for sticking by my side, I wouldn't be ME without all of YOU ๐Ÿ’—๐Ÿ’™๐Ÿ’œ #hidradenitissuppurativa #hsspeaks #hsawareness #iwillnothide #HSwarrior #invisableillness #iwillnothide #illfixmyowndamnself

i didn't even kno that hs awareness week was a thing, which is rly weird bc i have it? i finally made an appointment with the dermatologist after seven-ish years of having this which is rly stupid but i was too freaked out to do anything about it, so hopefully i can finally get treatment before it gets any worse. ๐Ÿ’œ #hidradenitissuppurativa #chronicillness #hsawareness

I'm having a flare up of this hideous skin condition at the moment, most likely made worse by weight gain and then exercise. I decided to scroll through the tag see if anyone else on insta suffers, and I noticed it is Hidradenitis Suppurativa awareness week. The fact that a sufferer didn't even know this shows that more awareness is needed! You can ask me about it if you want, or just look it up online. Either way, help me spread awareness! #hidradenitissuppurativa #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #hydradenitissuppurativa #hsawareness #hs #hsawarenessweek #health #life #me #illness #skincondition

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