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#hsawareness

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Walk for #HidradenitisSuppurativa (HS) Springfield Missouri St. Patrick's Day Parade 2017 | #HSAWARENESS http://bit.ly/2kTj5Ge

Just want to share and discuss his product with my other #hswarriors that my dermatologist recommended for me. It's an over the counter antiseptic wash so you don't need a script to get it, I got a large bottle from Walmart for $10, the small bottle is $4 I believe. Used to wash your open wounds with and I love that it doesn't burn. It's also the only wash I've ever used that will completely get rid of that smell. I will definitely keep buying this stuff. #hidradenitissuppurativa #hsawareness

A lot of the people I know have never seen what I guess I would call "The Real Me." The "healing" me. Not the me you see out rarely at a concert, full of energy and hiding behind a shirt. The me that sleeps for 13 hours and usually can't even get out of bed to make breakfast.

The point of my posting this is because I'm sick of hating how these scars look and hiding it. I'm always worried about what thoughts people might have for themselves if they catch a glimpse of it when I'm moving my shirt. So I'm just throwing it out there. I'm pulling my boogeyman out of the closet. I truly believe now that because of these scars, it's impossible for anyone to find me attractive or appealing. I truly believe that, and now my goal is to break away from it
I hope everyone had a good 4th

P.S. I hope I didn't bum you all out too much, so I'll leave you with this at least: I am on the right track and am indeed healing. It is simply a marathon and not a sprint :) #HS #HSAwareness #HidratenitisSuppurativa

Day 3 at the hospital. Got surgery on the 2 new flare up spots I got since December which u guys see in the vid but I'm also removing the old spots cuz of the multiple scars. Waistline got cut out same day as legs but both armpits will be done after. Instead of multiple scars I'll just have one fat ugly scar. #hidradenitissuppurativa #hsawareness #scarlife #noprettyskinhere #vietnam2017

So it's It's #HSAwareness Week! Im only just hearing of Hidradenitis Suppurativa and I've been suffering with it as long as I can remember. Always blaming it on my weight and shaving. Until I've lost the weight and stopped shaving to see I was still having really sore skin problems. Went doctors about it for the first time yesterday finally to be diagnosed with this condition. Dr said it common about 1 in 100 people have it. But due to the stigma and embarrassment of it people don't come forward for treatment. Dr recommended I go on the pill and use the gel for 3 months. Anyone else suffering go check it out. Your not alone and there is treatment to help 🌺✅

This has been going on for months and just gets worse day by day. having a flare on the eyeball really fucking sucks #fuckhs #hswarrior #hsawareness #hidradenitissuppurativa #fuckthis

With biotin supplements my hair started to slowly grow back. Losing my hair was scary. But thank God I looked good bald!! Not everyone call pull it off. When life gives you lemons in the form of a skin disease and hair loss, make lemonade and go on a journey of self-care. #amoshine #realbeautycomesfromwithin #iamnotmyhair #hsawareness #healthiswealth ♡♡♡

Never judge a woman's strength, everything she has gone through has led up to this very moment and has prepared her for the next. A woman’s true strength really is in her survival story, whatever it may be.You see a woman’s strength isn’t just physical. A woman’s strength is also mental and emotional. #autoimmuneawareness #autoimmunedisease #autoimmunepaleo #autoimmunity #autoimmunedisorder #autoimmunecondition #hidradenitissuppurativa #lupus #arthritis #fibromyalgia #pcos #polycysticovariansyndrome #hidradenitis #hidradenitissuppurativaawareness #hsawareness #rheumatoidarthritis #osteoarthritis #anxiety #socialanxiety #depression #mentalhealth #mentalillness #disability #mentalhealthawareness #anxietydisorder #mentalillnessawareness #irritablebowelsyndrome #irritableboweldisease #ibs #colitis

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Never judge a woman's strength, everything she has gone through has led up to this very moment and has prepared her for the next. A woman’s true strength really is in her survival story, whatever it may be.You see a woman’s strength isn’t just physical. A woman’s strength is also mental and emotional. #autoimmuneawareness #autoimmunedisease #autoimmunepaleo #autoimmunity #autoimmunedisorder #autoimmunecondition #hidradenitissuppurativa #lupus #arthritis #fibromyalgia #pcos #polycysticovariansyndrome #hidradenitis #hidradenitissuppurativaawareness #hsawareness #rheumatoidarthritis #osteoarthritis #anxiety #socialanxiety #depression #mentalhealth #mentalillness #disability #mentalhealthawareness #anxietydisorder #mentalillnessawareness #irritablebowelsyndrome #irritableboweldisease #ibs #colitis

My amazing Nurse Ambassador for Humira overnight shipped this to me at no cost to me. This is a Practice pen for Humira. To update you all on recent occurrences, after three months of waiting for humira to be pushed into high gear, I've been approved and won't have to pay a dime for it. I work and have medicaid right now till next year. I won't have to do any copays or anything. My starter kit and all other supplies I need will be delivered to me on Tuesday at my local pharmacy that I've gone to for years. I'm really nervous because of the load injections I'll be recieving that Tuesday afternoon or Thursday. I'm crossing my fingers and hoping that it won't be as bad as I'm over thinking it will be. Any tips you can provide for me in the comments are greatly appreciated. I love you all my HS brothers and sisters. We must #staystrong 💜💜💜
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#hs #hidradenitis #hidradenitissuppurativa #hswarriors #hidradenitissuppurativaawareness #hsaware #hsawareness #hidradenitissuppurativawarrior

This is so true. The last 2 hours my #HS has been awful. Multiple flares and stabbing pain. #hsawareness #hswarrior #chronicillness #spoonie #hssucks #hidradenitissuppurativa #fuckhs

Hidradenitis Suppurativa isn't some simple skin condition that you can put an ointment over and it goes away. Many people who has it suffers greatly and we can't live our lives 100%. Since Xmas 2016 I got two flares that put my ass out of work and away from friends and family. 9 months later and I'm still recovering from it. I lost my job because I couldn't make it back in time. I'm staying in Vietnam til I fully recover.

I pray for all my HS warriors to find relief and get help. We are stronger than our condition and it definitely doesn't define who we are. We are all unique and strong individuals. Keep fighting, you're worth it.

#hswarrior #hsawareness #hidradenitissuppurativa #hidradenitissuppurativaawareness #skin #autoimmunedisease

I showered today, that's a victory with #hidradenitissuppurativa
Update after the #ervisit I had celluitis, they put me in antibiotics and it's cleared up almost all the way thanks for the love 💖💖💖 #HSawareness #hswarrior #autoimmunedisease #allclean #feelingokay #thanksforthesupport

#challenges up the wazoo this week... I don't talk much about having hiradinitis suprativa it's kind of an embarrassing disease, though go it shouldn't be, it's an autoimmune dysfunction and my HS is ruled by hormones I have no control over, I've suffered from HS since age 9. This week I've been contending w an angry monster of a lesion the size of a plum on my abdomen and while I've had to make quite a few major modifications to my aerobic routine, I've been putting in the work! I've got my eye on the prize and I will NOT let hurdles, excuses and pain stand in my way of reaching my goals! #iwannabehealthyagain #imisssleep #mybodyhatesme #ilovemybody #HSawareness #chronicpaincankissmyass #imdoingthisforme #madeformore #zumbafitness #poweredbyjuiceplus #onesimplechange #accountability

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