"Today I chosed healing for my heart, mind, body and spirit." HEALTH-UPDATE Part 2: DIAGNOSIS ...The tests stressed me out & at the end, I was barely able to move or stay awake, but that's okay because at the end, I received a diagnosis:
My lungs aren't working properly & because my muscles are too weak. If I am doing things, my muscles are to weak to give me enough energy, so my lungs work harder to get enough oxygen for my muscles. But my lungs work to hard for that because of low lung function, so i am to tired to do anything afterwards. Than I get rest & the rest causes muscle weakness as well, because I can't train them. A devil circle has started. Moreover, my heart-lung circulation started to build collateral vessels. If there is too much pressure in the oxygen rich /poor blood circle, they build to connect those two circles. I already have a mixed one. So if too many if those vessels built up, there will be too less oxygen in the blood which can cause multiple organ damage & mostly leads to heart or lung transplant, depending on which organ has more collateral vessels.
Now I'm planning to go on rehab to build up muscles, keep on breathing treatment and figure out if oxygen might be a help for me on bad days. Than, I will receive new medication for breathing problems, because of a certain form of asthma as a accessory symptom of heart-lung disease.
If I can improve my muscles and lung function, I can hesitate the building of those vessels and everything which goes along with this disease. Moreover, they still think about tachycardia / arithmea, so I still wear my 21 day ECG.
I'm tired. Tired of all those tests & to finally receive a diagnosis made me just speechless for hours. I am happy to have a diagnosis & shocked at the same time that I don't have a problem which could be "just easily fixed", as some people in my area thought, but the start of one of the most dangerous complications of single ventricle heart disease / Fontan circulation.
But now I know what to do. I have a plan. And I have hope. Because every misdiagnose I went through helped me to find the right doctor, a diagnosis & strength in friendships, in relationships and in myself.