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Huntington's has characteristics of Alzheimer's such as dementia. My mom has started forgetting who I am & let me tell you it's not easy when a parent starts this process. But it just means that days where she remembers start becoming more & more special ๐Ÿ’™ #huntingtonsdisease #hopeforhd

My new wishbone spinner pendant has arrived!!!! It's so beautiful and holds my wish for a cure for HD, it sits on your heart chakra- how perfect is that! Thank you to @my_wishbone_jewellery for such a amazing pendant #gratitude #hopeforhuntingtons #hopeforhd #curehd

May is Huntington's Disease Awareness Month. If you aren't sure what it is, imagine being told you have a disease that combines ALS, Parkinson's, and dementia. Now imagine being told your life will be cut short because there's no cure. This disease is part of my family since my mom battled 17 years of HD. These are just some of many people who give me #HopeForHD and motivate me to continue to fight against HD. What gives you hope? #tbt #stayhopeful #raiseawareness

Getting too many messages/emails to keep up with regarding orders opening so I will post here. As some of you (mostly waiting to place an order) know we were supposed to open orders early June... sadly I lost my dad early June instead. So, as I try to grieve, adjust and catch up on a behind schedule I promise we will reopen orders soon. Thank you for understanding. #HDawareness #HuntingtonsDisease #cureHD #hopeforhuntingtons #hopeforhd

This month is Huntington's Disease Awareness Month. Huntington's is like ALS, parkinson's, and alzheimer's in one. this is a genetic disease that affects my best friend and more than 150,000 thousand Americans. These people right here are who give me #hopeforhd. in the future we hope for a cure for this horrific disease๐Ÿ’™๐Ÿ’™
#instagramlessvan #riphailey

May is #HuntingtonsDisease awareness month! Challenge accepted by HDYO (Huntington's Disease Youth Organisation): What gives you hope for HD?:
More than anything, my mom who has fought with every fiber of her being to show us the definition of a warrior. She has not one time in my 22 years on this earth, complained about her body failing her. That is truly amazing to me and with even half of her strength & resilience, I have all the hope in the world. #HopeForHD @hdyofeed ๐Ÿ’™

Grateful for rare but possible occasions #snowonthebeach #hopeforhd โ„๏ธ๐ŸŒŠ๐Ÿฆ‹

May is #huntingtonsdisease awareness month! ๐Ÿ’™Huntingtons disease is an incurable genetic disorder that can be described as ALS, Parkinson's & Alzheimer's all in 1. Every child of a parent that has HD has a 50/50 chance of also having HD. With that said my grandma lost her fight with HD 3 years ago. It can't even explain how heartbreaking it is to watch someone suffer with nothing to do about it. A year later my mom gets tested & the results are positive which means she has HD so not only does she have it but my brother, sister & I have a 50/50 chance of also getting this disease. This is really personal information but there needs to be more awareness. All that's left to do is trust god & leave everything in his hands. I have hope for a better outcome for my moms life & everyone else who is affected by this disease #HopeforHD ๐Ÿ’™ (for more info about HD you can go to hdsa.org)

We are excited to be at the @wehaveaface 2nd Annual Convention in Florida with so many amazing people from the HD community! #nofilterneeded #huntingtonsdisease #hopeforhd #TeamHDYO

MOST RECENT

Studying HD cells in Boston at Massachusetts General Hospital! ๐Ÿค“๐Ÿ‘๐Ÿป #research #fundraise #hopeforhd #hdawareness #hirschsprungs #hd #raiseawareness #raredisease #digitalhealth #igersdaily

Weโ€™re bouncinโ€™ around today with Hudson Bean as Tigger! Cute! - - - -> DM US YOUR PICS TODAY! ๐Ÿ‘ป๐Ÿ”ฎ๐ŸŽƒ
#hirschsprungs #hopeforHD #HDawareness #shithappens #photooftheday #contest #tigger #halloween

All smiles raising awareness for HD! Buy your shirt today! ๐Ÿ’š๐Ÿ’šwww.reachhd.org $20USD- all proceeds go toward HD research!
#hopeforHD #HDawareness #hirschsprungdisease #shithappens #reachhd #digitalhealth #raredisease #raredisease

Audrey enters our contest as a chicken ๐Ÿ” #cute #contest #hopeforHD #HDawareness #hirschsprungs #shithappens #raisewareness #raredisease

Not too long until Year 11 and 12 students start their final exams! It can be a very stressful time and it's so important to have some time out and find ways to relax. Keep an eye on our Facebook for relaxation and stress-relief tips!
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#huntingtonsdisease #iamavoice #findacure #curehd #aware #dementia #HopeforHD #PowerOfYouth #alzheimers #awareness #prevention #parkinsons #mentalhealth #curedisease #thehuntison #hdyouth #students #learning #knowledgeispower

Gannon, 5yrs old as Stitch! Cute! KEEP SENDING IN YOUR PHOTOS! ๐Ÿ‘ป๐ŸŽƒ๐Ÿ’š #Halloween #contest #hopeforHD #HDawareness #hirschsprungs #hd #shithappens #photooftheday #digitalhealth #doctors20 #raredisease #raiseawareness

#TBT to our visit over the summer in Boston with Dr. Allan Goldstein who's housing Harland Hirschsprung's desk in his office! Cool! ๐Ÿ‘๐Ÿป๐Ÿ˜€๐Ÿ’™ #hopeforhd #hdawareness #hirschsprungs #hd #reachhd #shithappens #raiseawareness #raredisease #photooftheday #igersdaily #igers #instagood #history #haraldhirschsprung #boston #digitalhealth #doctors20

This time last year we were racing against the clock go-karting! We love our youth events and hope to hold another as soon as possible. Want to get involved? Contact the office!
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#tbt #throwbackthursday #HopeforHD #PowerOfYouth #huntingtonsdisease #iamavoice #findacure #curehd #aware #dementia #alzheimers #awareness #prevention #parkinsons #mentalhealth #curedisease #thehuntison #hdyouth #students #learning #knowledgeispower #testing #genetictesting #choice #decisions #life #journey

CONTEST ALERT***Send us your pics today! ๐Ÿ•ธ๐Ÿ‘ป๐ŸŽƒ๐Ÿฌ๐Ÿ”ฎWIN A SHIRT! ๐Ÿ’š๐Ÿ’š๐Ÿ’š #hopeforHD #HDawareness #hirschsprungdisease #hd #raiseawareness #halloween #shithappens #contest #follow #share #cute #babies #spooky #win

@hdyofeed is creating a new website page on dealing with HD diagnosis and need experiences to help them! They would very much like to hear from anyone who has been diagnosed with HD on their experiences of being diagnosed, and long and short term coping techniques.
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#huntingtonsdisease #iamavoice #findacure #curehd #aware #dementia #HopeforHD #PowerOfYouth #alzheimers #awareness #prevention #parkinsons #mentalhealth #curedisease #thehuntison #hdyouth #students #learning #knowledgeispower

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