#hopeforhd

694 posts

TOP POSTS

May is #HuntingtonsDisease awareness month! Challenge accepted by HDYO (Huntington's Disease Youth Organisation): What gives you hope for HD?:
More than anything, my mom who has fought with every fiber of her being to show us the definition of a warrior. She has not one time in my 22 years on this earth, complained about her body failing her. That is truly amazing to me and with even half of her strength & resilience, I have all the hope in the world. #HopeForHD @hdyofeed πŸ’™

May is Huntington's Disease Awareness Month. If you aren't sure what it is, imagine being told you have a disease that combines ALS, Parkinson's, and dementia. Now imagine being told your life will be cut short because there's no cure. This disease is part of my family since my mom battled 17 years of HD. These are just some of many people who give me #HopeForHD and motivate me to continue to fight against HD. What gives you hope? #tbt #stayhopeful #raiseawareness

Huntington's has characteristics of Alzheimer's such as dementia. My mom has started forgetting who I am & let me tell you it's not easy when a parent starts this process. But it just means that days where she remembers start becoming more & more special πŸ’™ #huntingtonsdisease #hopeforhd

My new wishbone spinner pendant has arrived!!!! It's so beautiful and holds my wish for a cure for HD, it sits on your heart chakra- how perfect is that! Thank you to @my_wishbone_jewellery for such a amazing pendant #gratitude #hopeforhuntingtons #hopeforhd #curehd

Getting too many messages/emails to keep up with regarding orders opening so I will post here. As some of you (mostly waiting to place an order) know we were supposed to open orders early June... sadly I lost my dad early June instead. So, as I try to grieve, adjust and catch up on a behind schedule I promise we will reopen orders soon. Thank you for understanding. #HDawareness #HuntingtonsDisease #cureHD #hopeforhuntingtons #hopeforhd

May is #huntingtonsdisease awareness month! πŸ’™Huntingtons disease is an incurable genetic disorder that can be described as ALS, Parkinson's & Alzheimer's all in 1. Every child of a parent that has HD has a 50/50 chance of also having HD. With that said my grandma lost her fight with HD 3 years ago. It can't even explain how heartbreaking it is to watch someone suffer with nothing to do about it. A year later my mom gets tested & the results are positive which means she has HD so not only does she have it but my brother, sister & I have a 50/50 chance of also getting this disease. This is really personal information but there needs to be more awareness. All that's left to do is trust god & leave everything in his hands. I have hope for a better outcome for my moms life & everyone else who is affected by this disease #HopeforHD πŸ’™ (for more info about HD you can go to hdsa.org)

This month is Huntington's Disease Awareness Month. Huntington's is like ALS, parkinson's, and alzheimer's in one. this is a genetic disease that affects my best friend and more than 150,000 thousand Americans. These people right here are who give me #hopeforhd. in the future we hope for a cure for this horrific diseaseπŸ’™πŸ’™
#instagramlessvan #riphailey

Our HDYO board member, Beth, got a nice selfie with the Pope! #hopeforhd #raiseawareness #huntingtonsdisease

I never knew how happy I could be to change a poopy diaper. πŸ’©πŸ‘πŸΌ #bowiekazuma #hirschsprungsdisease #hirschsprungsbaby #hopeforHD #raredisease

MOST RECENT

REGISTER TODAY!!! September 15th 2017 9am-1pm 5thannualreachsymposium.eventbright.ca πŸ˜€πŸ’™#winnipeg #hopeforhd #hdrphotography #hischsprungs #hirschsprungdisease #raiseawareness #raredisease #digitalhealth #doctors20 #hsc #medical #photooftheday #igers #igersdaily

Check out our Facebook page for a history on HD! πŸ’™πŸ’™πŸ’™ #history #hirschsprungs #hopeforHD #HD #HDawareness #hirchsprungdisease #raredisease #raiseawarenss

#MCM Michael, 4 years old with total colonic Hirschsprung'sπŸ’™πŸ’™πŸ’™ #hopeforHD #HDawareness #hirschsprungdisease #hirschsprungs #raiseawareness #raredisease #digitalhealth #doctors20

Most of you only have to think about this occasionally ... or when I post it to my wall or profile or account. But I #wakeeveryday with this #onmymind #inmyheart #inmyprayers saying "keep calm" is a cute little #catchphrase , but I like to insert one more word in there, making it a #prayer β€’ Keep Me Calmβ€’ I've got to tuck my #trust in prayer. And then... #dream #hope #keepcalm #curehd #hopeforacure #hopeforhd #huntingtonsdisease #advocate #theunaffectedparent is such a lie

Thank you to Lennard Taylor Design Inc for supporting the HD Awareness Campaign! Buy a shirt today! www.reachhd.org under "Donate" πŸ˜€πŸ˜€ #hopeforHD #HDawareness #hirschsprungdisease #HD #raiseawareness #raredisease #digitalhealth #doctors20 #REACH #lennardtaylor #winnipeg #designer #fashion

This is one of my worries for my family, loosing me while I'm still here. πŸ’™πŸ™πŸΌ #HDTruths #HopeForHD #HaveFaith

With all I am and all I'll be, He still wants to marry me. How lucky am I. πŸ’™
#LoveThisMan #LuckyAmI #SeptemberWedding #HopeForHD #hdawareness

Shout out to 30 of our employees and their guests who took their shot in an effort to raise money and support research to improve the lives of individuals affected by Huntington's Disease at the 16th annual Shoot to Cure in Liberty Station. We were honored to sponsor this incredibly charity event for the 11th year which raised $80,000 benefiting the Huntington's Disease Society of America San Diego Chapter. Click the link in our bio for the full photo album!

Get your First Friday Questions in! Comment BELOW! #REACHfirstfriday

#hopeforHD #hdawareness #hirschsprungdisease #hirschsprungs

Huge thank you to @kevinburgin_ from @680cjob for helping to raise awareness for Hirschsprung's! You look great in our shirt! πŸ˜€πŸ’š #hopeforHD #hdawareness #hirschsprungs #hd #digitalhealth #shithappens #photooftheday #winnipeg #cjob #raredisease #raisewareness #support

Thanks to @kevinburgin_ from @680cjob for sporting our Hirschsprung's awareness t-shirt! πŸ‘ŠπŸ»πŸ’™ #hopeforhd #Hdawareness #raredisease #raiseawarenss #digitalhealth #shithappens #winnipeg #supporthd #photooftheday #hirschsprungs #hd #reach

REGISTER TODAY! ---> https://www.5thannualreachsymposium.eventbrite.ca 5th Annual Symposium in Winnipeg, MB --->Registration is free! #hopeforhd #Hdawareness #hirschsprungs #hd #reachhd #photooftheday #events #raiseawarenss #raredisease

REACH board member Liz Crawford spoke about her companies Swish Productions inc and Swish Model Management on a local radio station in Winnipeg, CJOB & spoke about REACH and its research and education efforts. Way to go Liz! πŸ’™πŸ’™πŸ’™ #hopeforhd #Hdawareness #hirschsprungdisease #hd #cjob #digitalhealth #raiseawareness

LISTEN ONLINE- https://itunes.apple.com/ca/podcast/saturday-morning-show-talks-to-liz-crawford-from-swish/id1169334020?i=1000390263015&mt=2

Final numbers are in and we've raised just over $18,000 for REACH & HD research πŸ˜€ Thank you so much for support and donations! ❀️ #hopeforHD #HDawareness #hirschsprungdisease #HXD #raiseawarenss #raredisease #digitalhealth #doctors20 #fundraise #donate

Most Popular Instagram Hashtags