#holdingontohope

MOST RECENT

{#TPNdiaries}
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All my boys are here for the night, so no rest for me, but a full heart 😍 I’ll take that over rest any day 😉 // I usually try to hide the medical madness from the little guy, (he doesn’t need to be exposed to this) but B kept saying “Kyle fix you? All better!” & wanted to be right in the action, per usual — though I’m pretty sure he just wanted to wear the gloves & push the buttons 😂
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#fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #raredisease #neveradullmoment #autoimmunedisease #spoonie #spoontheory #health #wellness #healing #fight #awareness #justbreathe #peoplehopetribe #lifehappens #dayinthelife #expecttheunexpected #takebackyourlife #medicallycomplex #elhersdanlossyndrome #medicalnegligence #holdingontohope #failuretothrive #fullheart #tubefed #startthemyoung

It’s National Infertility Awareness Week. Infertility is no joke. I love my husband with my heart and soul. All I want to do is be able to carry his child, give birth to his child, hold our child in my arms. Care for our child, raise our child. This is a dream we both have. Thanks to infertility due to PCOS, this may never happen and it breaks our hearts. I hear the same things all the time. “Just adopt.” “Use a surrogate.” “Try IVF.” These sentiments are so insensitive. Just be my friend and listen. I don’t need the advice. Every day, we pray for a child and I firmly believe that God would not have given us such a desire to be parents if we wasn’t going to make us parents. #holdingontohope #faith #believe #infertility #infertilitystruggles #infertilityawarenessweek #infertilityawareness #infertilitysucks #pcos #pcossucks #imawarrior #prayers #godhasthis #itrustinhim #pleasestoptellingmetoadopt

The hard work starts now 💪🏼
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Again, finding myself in that post-hospital dazed state of mind, like my brain is in a tornado 🌪 I am home — beyond everything I am grateful to be home, but I’ve certainly got my work cut out for me 😅 Starting small with a list: appointments to make, physicians to call, then onto whatever I missed — like my car insurance payment 🤦‍♀️ It won’t all happen today, but hey, at least I’ll be organized 🤷🏼‍♀️
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#fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #raredisease #neveradullmoment #autoimmunedisease #spoonie #spoontheory #health #wellness #healing #fight #awareness #justbreathe #peoplehopetribe #lifehappens #dayinthelife #expecttheunexpected #takebackyourlife #medicallycomplex #elhersdanlossyndrome #medicalnegligence #holdingontohope #failuretothrive #malnourished #tubefed #whirlwind

Keeping my mind busy by mapping out the entire city of Boston from my stoop on the 15th floor 🗺 I see my world in maps, so this is actually pretty relaxing for me — especially in a place where finding peace is hard 😌
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I’m out of here in the morning 🙌🏻 Going over my discharge paperwork tonight, disheartened when we came to the “Problems Resolved” section and the answer was “None” 😒 So I’m going home, feeling just as crummy as when I arrived in the ER & I’ve got a lot of work to do 💪🏼
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#fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #raredisease #neveradullmoment #autoimmunedisease #spoonie #spoontheory #health #wellness #healing #fight #awareness #justbreathe #peoplehopetribe #lifehappens #dayinthelife #expecttheunexpected #takebackyourlife #medicallycomplex #elhersdanlossyndrome #medicalnegligence #holdingontohope #failuretothrive #malnourished #tubefed #cartography #bostonmassachusetts

Hope remains, even when it as small as a single yellow daisy in a field of sweet alyssum. I needed this kiss from heaven today. #MissyouMatthew #5years #seeyouinalittlewhile#holdingontohope

Dear Baby: 🌧🌈🌎 #happyearthday ! One day you will know how important this, and every other day on earth is. It is my home, and the home outside of your home. I hope you get to see all the colours of green🌿. I hope you get to see and taste all the rivers, lakes, and oceans🌊. I hope you get to imagine cloud animals and enjoy our bright blue sky☁️. I hope you get know and love honey bees 🐝, and get to smell the sweetness of spring and summer flowers 💐🌻🌺. I hope you learn to love and care for our Mother Earth, to right the wrongs of so many. My hopes for you are endless ✨
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#32weekspregnant #earthday #motherearth #holdingontohope #dearbaby #pregnancyphotos #peaceandlove #babybump #hellobaby #mommyinthemaking #thirdtrimester #mommydiaries #june2018baby #countdowntobaby

Caught both the sunrise & the sunset today 🌞 Believe me — I had bigger plans for Earth Day, but today took a weird turn 🤷🏼‍♀️
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I didn’t expect to be back in the hospital for an extended stay & I am one unhappy camper 😔 I was too stubborn to notice just how bad my body was struggling until I was forced to sit still. However, I am able to go home once I’m stable, yet everyday something proves to the docs that I still need to be here 🤦‍♀️ Day 1 was blood pressure drops, which haven’t resolved; day 2 revealed kidney problems, which also haven’t been resolved; day 3 brought heart arrhythmia & now day 4 has raised a question of intestinal bleeding 😳 So I’m putting my trust in these docs & staying put until my body decides to give me a break 😅
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#fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #raredisease #neveradullmoment #autoimmunedisease #spoonie #spoontheory #health #wellness #healing #fight #awareness #justbreathe #peoplehopetribe #lifehappens #dayinthelife #expecttheunexpected #takebackyourlife #medicallycomplex #elhersdanlossyndrome #negligence #medicalnegligence #holdingontohope #failuretothrive #malnourished #tubefed #earthday #sunrise

National Infertility Awareness Week is April 22-28, 2018. 1 and 8 couples face the painful challenges of infertility. Be the Voice, Break the Silence! Hold on to hope, You are not alone! #kennedysangelgowns #infertility #infertilityawareness #infertilityawarenessweek #bethevoice #holdingontohope #forsomeitsajourney #youarenotalone #westandwithyou

Today’s all about progress, after a real rough night 💪🏼
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I tasted watermelon & toast today (not very successfully 😖) and got to go down to the cafeteria — which was quite an adventure because I’m on the 15th floor 😳 Staying another night because I still can’t regulate my blood pressure, sugars or temperature but I’m in a good place for that 😉
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#emmeeats #fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #raredisease #neveradullmoment #autoimmunedisease #spoonie #spoontheory #health #wellness #healing #fight #awareness #justbreathe #peoplehopetribe #lifehappens #dayinthelife #expecttheunexpected #takebackyourlife #medicallycomplex #elhersdanlossyndrome #holdingontohope #failuretothrive #tubefed #watermelon #interoception

I may be known for my adventures, which have become short & sweet — yet for now, put on hold. I’m fighting the good fight, but right now I’m not winning the never-ending battle to feed my body 💪🏼
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{more updates over @thejourneytowellness, per usual 😉}

Everyone please send good thoughts and prayers for Maude she was rushed to the emergency room and admitted! She’s had major bowel issues with blood, and vomiting and also low blood pressure and low temperature. She was admitted straight away to the hospital and we don’t have a clue what prognosis is yet. I’m far away for work and her other dad is having to go through this alone. It’s been a horrible night but we’re hoping for the best. She’s had an extensive past medically. Thank you in advance!!! #fightlikeafrenchie #love #sickbaby #sickdog #holdingontohope #positivevibes #healing #frenchie

Look at that, we have a plan ✔️
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However, we’re looking at a good news/bad news type of situation... I thought I was done with problems caused by my previous doctors but not quite yet 🤷🏼‍♀️ Apparently there was one hell of a miscommunication, that has now cost me the healthy function of my liver & kidneys 🤯 Over the past month my health has been rapidly declining, but I started TPN & should’ve been getting better...so we thought. My previous doc has been restricting my medical record (which is a whole other problem entirely) but never sent my new doc the TPN orders, & my new doc thought the nutrition team was handling it <— there’s the miscommunication 🤦‍♀️ Long story short, the TPN I’ve been getting has been improperly formulated, I’ve been getting barely half my nutritional needs, starving my body of nutrients while causing damage to my organs 😧 Thank goodness Ky was here to do the yelling for me because I didn’t know if should scream, cry or sigh of relief first 😅
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But like I said, there is good news... the good thing is this is such an easy fix! Properly formulated TPN will help my body heal 💪🏼 They’re doing further testing on my liver & kidney function while I’m here, they’re a bit concerned but hopeful so I’m holding on to that 🤞🏻
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#emmeeats #fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #raredisease #neveradullmoment #autoimmunedisease #spoonie #spoontheory #health #wellness #healing #fight #awareness #justbreathe #peoplehopetribe #lifehappens #dayinthelife #expecttheunexpected #takebackyourlife #medicallycomplex #elhersdanlossyndrome #negligence #medicalnegligence #holdingontohope #failuretothrive #tubefed

⭐️📚 NEW RELEASE 📚⭐️ #NewRelease #LGrubb #HoldingOntoHope #ReleaseBlitz #Live #ebook #amazon #kobo #BN #iBooks
#romace #MC #CrusadersMC #available #Hope #Mack #badassbikers
Title: Holding onto Hope
Series: Crusaders MC #3
Author: L. Grubb
Release: March 9, 2018 ⭐️📚 WHAT READERS ARE SAYING 📚⭐️ “ I was beyond pleased, the storyline was brilliant and the chapters are, well they’re perfect for this story. I sure do hope we get a book from Ranger in the future, he’s intriguing, that’d be awesome.” – Lisa Morgan, Two Bookish Brits Blog “The book was well written and the character of development was outstanding. I loved Hope and Mack’s chemistry. The story was fast paced and action-packed and had me sitting on the edge of my seat throughout.” – Ashley Westphall-Carr “Wow oh wow I wasn't disappointed in reading holding onto hope, yet another well written book. I couldn't put the books down, I was on edge just wanting go know what happens…” – Tania Shrimpton ⭐️📚 Goodreads 📚⭐️ https://www.goodreads.com/book/show/29071435-holding-onto-hope ⭐️📚Buy Links 📚⭐️ Amazon US: http://amzn.to/2Ex7a7N
Amazon UK: http://amzn.to/2D03WgF
Amazon CA: http://amzn.to/2qOm8ny
Amazon AU: http://amzn.to/2APXSBc
Kobo: http://bit.ly/2EGunFO
iBooks: https://apple.co/2s50MmH
B&N: http://bit.ly/2BUzhfb

PAPERBACK LINKS:
Amazon US: http://amzn.to/2FwqPoV
Amazon UK: http://amzn.to/2txK7J4

One day 🤣👊🏾 #holdingontohope #beautifulblessing

Hope bracelet & lotus earrings on this Wednesday #wearitwednesday #paparazziaccessories #5dollarhabit #bracelet #earrings #holdingontohope

Sigh. I guess we didn’t really want any plums this year anyway. #aprilsnow #holdingontohope #snow #readyforsummer

When you have the opportunity to give the keynote address on the conference theme and you have to fight back tears because you're holding on so strongly to HOPE for this generation and for generations to come. #HoldingOnToHope #IBelieve #ACFConference #DrKThings

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