#hie

MOST RECENT

Greetings
Lookout Tower 3d model ready for VR,AR, games and other real-time apps with PBR textures.

Official: https://hardideaent.com/
Sketchfab: https://skfb.ly/6xL66

#hardideaent #HIE #3d_model #UE4 #Unity #substance #substancepainter #gameready #photoreallistic #render #PBR #fire #horror #camp #pillar #leafs #rocks #wood #lookout #tower

4 months later and it still smell like him😊
I love that I can fit my Siah's shirts. Now we can go bike riding together.
Continue to Sleep in Peace my Super Hero 😚#superhero#bikerides#kimberly#yeainamedmybike#webeout#nowsiahcancometo#HIE#specialneedsmom#mommyofanangel

#Hie shrine

Mummy and daddy were told when I was a baby I may not have the ability to understand or process language. They never gave up and just Look at me go now 😜 not even 3 and a half yet and I can not only have amazing receptive language skills and can follow directions brilliantly , I can also use objects in correct context, and being visually impaired doesn’t stop me, my hands and my memory help me to find things. I can do all 6 of these objects but can only share a one min vid :) #clever #braininjuryawareness #cerebralpalsy #hie #hopeforhie #cpwarrior #visualimpairment #touch #feelings #seeingwithmyhands #recall #blueeyes #bigblueeyes #miracle #mrtumble #pjs #somethingspecial #amazing #icandoanything #abilitynotdisability #smile #bestsmile #bestsmileever #language #languageskills #receptivelanguage #followdirections

Yesterday my amazing big sister @jade_kilduff and big cousin @same_tbh_with_you free fall abseiled 160ft off the top of Liverpool cathedral to raise money for my conductive education centre @rainbow_house_charity once all the moneys in they will have raised close to £300 well done girls, thank you so much. I attend Rainbow house twice weekly and when I started there April 2017 I couldn’t weight bear, crawl, roll, hold things, feed myself or sign and now 16 mths on I can do all these things and more, it’s an incredible place and so worth the 70 mile round trip twice weekly xx #rainbowhouse #legacyrainbowhouse #cathedralabseil #liverpoolcathedral #liverpoolcathedralabseil #brave #hopeforhie #cerebralpalsy #cerebralplasyawareness #cpwarrior #hie #visuallyimpaired #mygirls #bigsister #cousin

Always be yourself, unless you are Panda, be a Panda 🐼 #moomooishere #hie #sundayvibes #love

I came across this picture and it made me really think about our journey. I went out and got these flowers for myself immediately after my pregnancy with my daughter was confirmed. This is our timeline:
I was introduced to a wonderful man who was different. He put labels on his kitchen cabinets, loved taking anything mechanical apart and putting them back together in better ways, was adorably socially awkward, and almost painfully intelligent. He showed me a new perspective of the world and I love him fiercely.
We had a son who amazed us every day. Our son had a spotlight focus. He didn’t speak for what felt like the longest time, but he showed his cunning with his interests in ways that astounded us. His problem solving knew no limits. He did not enjoy busy places or unfamiliar people, but for us he would shine with undivided love.
Mara made a dramatic entrance in the world. We were told in the delivery room that she would be different. I was so profoundly sad because I didn’t know what that would mean. I didn’t know what she’d be capable of and what her life would look like. I didn’t know who Mara would grow to be.
Two months later I took both of the children for a check up. I naturally expected the pediatrician to talk about Mara’s laundry list of concerns. To my surprise the doctor said he greatly suspected my son was autistic and he needed to go to a screening. Apparently there was a name for all of the things about him I loved. It absolutely blew my mind in how much it didn’t matter. Of course there were things we could do and learn to help nourish him, but Bailey was Bailey.
So we started reading and reading. I was shocked at how familiar some of the “tells” were. At one point I turned to my husband and said, “You know there is no way that you’re neuro-typical, right?” To which he simply said, “Yep.” I wouldn’t change a single thing about my husband. I wouldn’t change a thing about Bailey.
It really solidified that Mara would also just be Mara. She is so determined and so loving. Every day is a surprise and joy. Of course I would love to protect her from every struggle - but that is true of any mother. ❤️

Trysail - Truth (Ost. BEATLESS)
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Request : @azzahragemala 👌
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⏩For full version video you can download in my blog.
⏩You can request to translate some pv / amv in my blog.
⏩Our blog link in my bio
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#trysail #trysailtruth #beatless #beatlessanime #ostbeatless #aratoendou #lacia #ericaburrows #yukaendou #ryoukaida #shiorikaida #kouka #methode #kengosuguri #olgasuguri #hiE #animeost #animepv #animemv #jpop #jrock #jsong #mikatsutsumi #gingawatarai

LINK IN MY BIO
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PLEASE TAKE 5 MINUTES TO READ JULIEN'S STORY! THANK YOU!
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#thankheavenforlittleboys #newbornbabyboy #HIE #hypoxicischemicencephalopathy #sweetbabyboy #prayersneeded

Peyton had her first HBOT appt on Thursday where we met the famous Dr Harch. He is so knowledgeable and explained things to us so well.
He did a physical exam of her and her deficits are
-Roving of the eyes (eye deviation), does not close completely or blink
-Suck, swallow gag reflexes absent
-Hearing/vision
-High tone in her arms (right not always relaxed)
-No smile, cry, laugh

Peyton will be doing 40 "dives" in the chamber with Lou over the next 2 months. They go in for 45 min at 1.3 atmospheres. The first things they say you will see start to resolve are the eyes with better tracking.

We did our first dive on Friday. I can't be in there with them due to HIPPA of other patients so I have to sit in the waiting room. Only 1 parent can go for all the dives. Lou said she did great. They were worried about her ears but she did not show any signs of irritability, pain, or shortness of breath. Lou said she slept on his chest and was relaxed the whole time.
Peyton had a R sided pneumothorax at the hospital that we were told was resolved, but when Dr Harch looked back at her last XR in the hospital he said she still had a sizable one. He said that that is a contraindication to go in the chamber. Hen said that since she already went in on Friday and didn't have any complications he assumes it has gone away but is requiring another XR of her chest before our 2nd dive on Monday.

After her dive she did great. We noticed later that night that her eyes were focusing slightly better and when I walked with her they didn't bounce either my step nearly as much as before. It obviously isn't corrected but was already a slight improvement with just 1 dive.

I will probably update weekly with her dive progress and then just randomly whenever we do stuff!
Please keep us in your thoughts and prayers that this is the answer to help give us back our baby girl and get her back on track for hitting her milestones like a typical child!

https://www.gofundme.com/aa3nra-prayers-for-peyton?member=327794

#hbot #stemcelltherapy #drharch #hyperbaricoxygenchamber #gainsfordays #1of40 #petytonraehopestremer #warriorprincess #prayforpeyton #hie #hopeforhie #hypoxicischemicencephalophy

Greetings
Forest Pack 3d model ready for VR,AR, games and other real-time apps with PBR textures.

Official: https://hardideaent.com/
Sketchfab: https://skfb.ly/6xJSI

#hardideaent #HIE #3d_model #UE4 #Unity #substance #substancepainter #gameready #photoreallistic #render #PBR #bone #fantastic #fire #horror #camp #pillar #axe #tent #leafs #rocks #wood

We’re going on a trip to Gogo’s! Thankful for so many amazing products to help this mama travel with my two girls while Daddy is deployed!

/ / N I N E M O N T H S / / how is it this long? Since I held you..Held your hand..brushed your hair..smelt your smell..heard your voice..felt your love..heard your last breath..How is it 9 months? This is one of my fav pics of Rubs at 9 months. #ninemonths #rubypowell #thoughshebebutlittlesheisfierce #chasingladybirds .
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#grief #griefblogging #griefandloss #griefjourney #specialneedsmum #specialneedsblogger #complexneeds #cerebralpalsy #hie #niblogging #bloggerni #nichildrenshospice #childloss #loss

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