PLEASE HELP... My son Bruno was born on June 14 2011...he suffers from Dravet Syndrome, the most devastating form of epilepsy! He has easily suffered from 300 seizures a day! up to date, he still seizes everyday! This has caused Bruno to regress! He is unable to sit up on his own, non verbal, non mobile, and is very delayed! He is growing, and weights around 50lbs! When carrying him is like carrying dead weight as he is not able to control his body! At his young age Bruno has visited the hospital more than 3-4 times a year, seizures requiring oxygen which I must pay for, he has been diagnosed with drug induced lupus, autism, extremely delayed, had 10 teeth extractions and 6 root canals, eye stye removals , and many hospital stays as his condition is very delicate, a simple cold has sent us to the icu.
Bruno attends therapy sessions at B&V Therapro but needs to continue practicing his sessions at home due to his regression caused by his seizures. He keeps growing and it's very difficult to carry him to put him in a car seat and carry his wheelchair stroller! I was diagnosed with two herniated discs and arthritis on one of my knees! Unfortunately I'm not able to lift heavy weights but I am the only one that can care for Bruno forcing me to carry him! Dr recommended I do not carry him as I might need surgery in the future preventing me to care for him if surgery is needed! I need to avoid this.
Our goal is to obtain Special needs equipment for home, be able to afford his medical expenses, bur most of all, obtain a wheelchair van which he desperately needs.
Please help us obtain the equipment needed for our little family needs! we truly appreciate it and thank God for each one of you! Every little dollar helps! I need this for him and for us!
God bless you! ❤
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