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Suatu saat nanti kami #ECOST akan menjadi orang sukses seperti mereka #HEDS 😇 [2/2]

Only in Järvsö. Country & Cowboys. Family & fun. #family#heds #familj#järvsö

Härligt med snö 😀 Vi har snöslungor i lager för omgående leverans. Då blir snöskottningen betydligt roligare. #yamahacenterlulea #nukommerdetsnö #yamaha #heds

#Repost @brittos13
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One of the neatest machines I've seen. So this is the Alter-G which is an anti-gravity treadmill. They inflate it and can control how much weight you're putting on your legs. They've started me at removing a quarter of my weight and will eventually work their way down. Seriously cool since the main thing in dealing with EDS is not putting too much strain on the joints. Removing the weight allows the muscles to strengthen without further risk of damaging the joints.
#HEDS #EhlersDanlos #EhlersDanlosSyndrome

Heja! Heja! Heja! #heds#familj#annatänspring

E M M Y L O U 💜 #heds #family #annatänspring#love

MOST RECENT

Black Weekend! http://www.hedsyamshop.se/sv/ #hedsyamahashop.se #heds #yamaha

Première volée diplômée technicien en radiologie médicale avec le certificat d'expert en radioprotection 🎊

#msclsa #hes_so #heds #certificat #event #university #radiology
Marianna Gulizia || Master ès Sciences en science de la santé

Thankful for so many people, places, and things- Hope being one of them... Hope that tomorrow’s pain won’t be as bad as today’s; hope that those who are suffering will be able to spread compassion and understanding to the rest of the world; hope that, if nothing else, our struggles will stand as a reminder that we have triumphed over ever single battle we’ve faced; hope that we will find a cure(s). (P.S. Also incredibly thankful for this platform and all of the wonderful ppl in my life that l couldn’t live w/o 🙌🏼) #dontstopgetitgetit #happythanksgiving #nevergiveup #chronic #chronicillness #pain #chronicallyill #eds #classicaleds #heds #hypermobility #migraine #herniateddisc #pcos #lyme #lupus #crps #ddd #me #ibd #ibs #depression #anxiety #spoonies #dontstopgetitgetit #thrivingandsurviving #strongerthanyouraverage #sickerthanyouraverage #lifehacksforchronicillness

2 years ago, but still pertinent today; however, I never would have imagined then what the next two years would be bring and that the challenges I would experience were nothing I had ever dealt with, nor hardly heard about. - ‘6 REASONS WHY I’M THANKFUL FOR MY BODY THIS THANKSGIVING’ (2015) - http://strengthflexibilityhealtheds.com/2015/11/27/6-reasons-why-im-thankful-for-my-body-this-thanksgiving/ #EhlersDanlosSyndrome #Chronicpain #invisibleillness #Spoonie #ChronicIlness #ChronicFatigue #chroniclife #InvisibleStrength #Stronger2gether #OurStoriesOfStrength #CFS #autonomicdysfunction #AutoImmune #Dysautonomia #POTS #Fibromyalgia #MCAS #LiveEDSStrong #EDSStrong #medicalzebra #hypermobile #hypermobileyogi #Flexible #doublejointed #hyperextensibleskin #hEDS #hypermobility

Happy Thanksgiving to all of our US friends!

Today is also National Family Health History Day. As your family gathers for the holiday season, consider taking the time to talk to your relatives about the genetic disorder and other conditions that run in your family. If your family would like more information about the Ehlers-Danlos syndromes, ehlers-danlos.com/ehlers-danlos-info/ is a great place to start.

We wish you all a fantastic holiday season!

#EDS #EhlersDanlos #EhlersDanlosSyndromes #hEDS #vEDS #cEDS #HSD #Thanksgiving #FamilyHealthHistory #Spoonie #DazzleTogether #ZebraStrong

Been having lots of medical tests over the last couple of weeks, so have been feeling a bit shit tbh. Tropical lounge pants have helped brighten my mood (and the room). #passthesunglasses #tropicalliving #loungepantsarelife #spoonie #heds #eds #pots

My selfmade advent wreath in silver for the Xmas time.
I've a really bad night with nightmares, pain. I don't know what I can do. I hope it goes better the next days. I try to stay strong and think positiv. Thank you all for your support❤
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@ehlers.danlos @ehlers.danlos.syndrome
@hypermobility_syndrome
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#chronicillness  #awarness #invisibleillness #ehlersdanlos #chronicpain #splints #spoonie #spoonielife #POTS #dontjudge  #TMJ #HSD #spooniefamily #invisibledisability #love #ehlersdanlossyndrome #heds #MCAS #gastroparesis #splints #dontjudgeaperson #braces #alwaysfighting #hypermobility #mylife #mastcell #chronicfatigue #silversplints #edsawareness #eds #zebrastrong #dontjudge

It’s been a good few months since I was diagnosed with hEDS, and I have to say it’s a relief to finally have a reason on why my bones decide to pop out on a whim, why my skin bruises from a little poke and why I’m always so tired. When I was a little girl, my knee caps would slide to the sides of my legs and my mother would have to force them back into place. This prevented me from doing a lot of normal kid stuff. They sent me to physio once a week for years with no improvement. In the end they just gave up. This was one of the first signs. I’ve always done ‘party tricks’ with my hands and legs on nights out to get some free beer too. I hadn’t even heard of hEDS at this point. Since being diagnosed I’ve took it upon myself to do research and get myself all educated, and now all I want is for everyone to get educated on it. There are probably so many people out there with no idea they have it. #ehlersdanlossyndrome #ehlersdanlosawareness #heds

Not having a good day. Nova is sick and had a massive accident while we were at my moms appointment. I dealt with that and it’s honestly kind of funny now. He’s fine at the moment. I the had two panic attacks because there was a wasp stuck in my car. Twice. Two Xanax later and I had to lay down on the floor in Joann fabrics. We are cleaning for thanksgiving and I am shot. So out of spoons. #servicedogintraining #sdit #tasktrained #servicedoghandler #aussie #aussiesofinstagram #australianshepherd #australianshepherdsofinstagram #redmerle #dogsofinstagram
#ehlersdanlos #ehlersdanlossyndrome #hypermobileeds #hypermobileehlersdanlos #heds #chronicpain #spoonie

I’ve had a tough few days where I lost control of the pain. Much improved today. I’ve been beating myself up over what I haven’t done and what I have (ordering too many lovely clothes). But I just thought - hey it’s been hard but I need to congratulate myself on what I have managed even with the extreme pain: I’ve got my kids to school, I’ve taken time off work to rest (allowing myself to do that is a positive), I’ve made it to my #Pilates class tonight, and whilst I sat and rested I worked on my embroidery (a hobby I always want more time to do) and I’ve managed the right #selfcare to be getting over the worst. So instead of feeling brow beaten, I’m giving myself a little cheer tonight. Off to bed with numerous hot water bottles and supportive pillows. Will I be awake in time to catch some of the #ashes test tomorrow.... #eds #heds #chronicpain #chronicillness #chronicfatigue #invisibleillness #invisibledisability #spoonie #spoonielife #smallwins #kindnesstooneself #lookforthepositive

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