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#heartwarrior

MOST RECENT

Day 5 workout. The 2 old guys crushing the partner work out. All cardio. Dam my legs hurt.
100 squats
100 cal bike
80 squats
80 cal bike
60 burpees over partner
60 cal bike
40 burpees over partner
40 cal bike
20 burpees over partner
20 cal bike.
Bench and weighted pull ups
#heartwarrior #heartattacksurvivor #crossfit #crossfiteastvale #eastvaleathletics #eastvalecrossfit #crossfitbuddies #gomezparty #dontstopgetitgetit #masters #mastersathlete #viejostrong

Frank had a great day today because his blood pressure was stable and his heart rate was at baseline 150. He's on morphine ivy to relax his body so he doesn't get agitated about having a breathing ventilator tube in his mouth.
#chd #chdawareness #chdwarrior #cardiomyopathy #heartwarrior
#cardiology #1in100 #nicu #nicumom #pediatrics #nurselife #medschool #rnlife #nicunurse #lpn #registerednurse #nursingstudent #nursinglife
#fathers #parent #newdad
#daddyandme #lovelansing #annarbor #happybabies #lovekids #theluckyfew #mommybaby #ilovebeingamom #nursingstudents @thebossbabymovies @thebigsickmovie

hey fam! so my incredibly talented brother designed these shirts to sell to raise awareness for chd, and to help raise money for me and my sweet girl during this long stay in nashville. he will be selling them for $20 each! we are trying to see which colors are the most popular, so if you would like to potentially buy one, please comment on the color you'd like. once we total the votes, we will make an official post about placing an order! thanks so much everyone! also, please check out my brothers page and give him a "like" at @codymartdesign ♥️("hlhs awareness "is written in small print on the bottom) #heartwarrior #shilohkori #hlhsawareness

One year ago today was one of the scariest days of my life. It was the day we handed our tiny 10 day old baby over to his surgeon who would perform his first open heart surgery. His perfect little body gained and even more perfectly beautiful scar that day. A daily reminder of just how resilient this sweet boy is! Happy one year to the strongest, and bravest heart warrior I know. I love you so much Theodore ❤️💙 #tetralogyoffallot #chdawareness #heartwarrior

Eating Wendy’s at McDonalds because the girls want ice cream cones, not frostys (heaven help me!) 🤦‍♀️😂. At least Miss Lucy’s toes are right on point 😍! Happy Friday night! #downsyndrome #downsyndromeawareness #joubertsyndrome #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #pulmonaryhypertension #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #happybaby #changingthefaceofbeauty #hearingloss #bilateralhearingloss #hearingaids

Just a quick view of the book shelves in the nursery. Urban and Everly sure have a good collection going.. That top shelf is kindof a tribute to Everly. Her bows are on her zebra and giraffe, as well as the cross stitch my friend made for her, and the picture of her with Jesus. I am obsessed. ♥️
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#books #bookstagram #babybook #bookshelves
#findacure #nursery #babynursery #babynurserydecor #heartbaby #chd #chdawareness #1in100 #openheartsurgery #congenitalheartdefect #heartwarrior #zipperclub #primarychildrens #universityofutah #csection #infantloss #infantlossawareness #grieving #mourning #familiesareforever #angelbaby #mybabyhaswings #lds

The last two days have been pretty tiring for these two. Shirley and mama aren’t getting much sleep while the little girl tries to fight this fever. It’s down from yesterday but still sticking around.

love the billboard reminder for me, to remind you, to get your tickets for the @jaydendelucafoundation Masquerade Ball coming up on Feb. 17th!
and if you're not convinced yet, word on the street is a certain uber adorbs little tidbit has a special video appearance 😘

#chd #chdwarrior #chdawareness #heartwarrior #hearthero #zipperclub #1in100 #savetheheartbeat #jdf

In the last 24 hours this little tubie heart warrior has only had one feed by tube. One. She truly amazes me. #tubiebaby #heartwarrior #heartbaby #babyaria #superaria

So if I sit here long enough... I wonder if mama will notice that I blend in! 😂😘 #bubuś #17monthsold #loveofmylife #youaremysunshine #mysuperhero #chdwarrior #chd #chdawareness #heartwarrior

[1/5] this is me
I'm usually alone or with my absolute favorite people in the world at any given time. like these two I met at cosmic convergence and fell in love with upon first hug.

I am a traveler, and I like my roots. I love freedom and deep juicy partnership. I thrive by myself and with soul family. I'm constantly learning - self knowledge is one of my main paths in life.

and I'm actively practicing a less talking more doing mentality in my approach to life and social media right now. less processing on a screen, more seeing the world, talking to new people, feeling the earth under my bare feet and receiving the healing of stranger's smiles, late night fire circles and lush green forests.
🔥

#projectphoenixmagic <--join in for a free scholarship to @maggiemccloud 's
incredible program designed to integrate business and shamanism to help you launch the project of your dreams. it's going to be so epic.
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#lakeviews #soulfamily #lagoatitlan #sheexplores #graciasguatemala #guatemaya #guatemalavibes #travelhappy #travelwild #staywild #optoutside #rainbowtribe #heartwarrior

The word 'congenital' means present at birth. #chd #chdawareness #heartwarrior #heartkid #chdwarrior #tommytough #factfriday

7/2/16 5:14 pm
🥔🍴While it’s been a mere 30 hours since transplant, it’s been 70 hours since I’ve eaten. So of course, I got out of bed to sit in a chair and cherish hospital food; mashed potatoes, green beans, and a fruit cup.
Not to mention find a way to brush my teeth!😬
You may be wondering what that thing is coming out if my neck. Don't worry, I am too! 🤷🏼‍♀️ 💉 This obnoxious thing sticking out is called a Swan Ganz Line, Swan for short. The catheter is usually placed via the left internal jugular vein in the neck. It is then threaded to the pulmonary artery, which transports blood from the heart to the lungs. The catheter measures heart function, pressures within the heart and lungs and oxygen levels within the blood.
Medication “can” also be delivered, however, I had a central line to deliver a barrage of medications. While it serves a great purpose, it sure doesn't let you lay down comfortably or get much sleep. But hey, do the nurses or doctors ever let you sleep when you're in the hospital? 🤭
#cardiomyopathy #hearttransplant #hearttransplantsurvivor #iambecauseofyou #lifeaftertransplant #organdonation #endthewaitinglist #becomeanorgandonortoday #organdonationsaveslives #itsavedmine #transplantlife #heartwarrior #indianadonornetwork
#americanheartassociation #mylifechangedforever
#transplantrecovery #theroadtorecovery

#GrandmaSandy wore red for Calla today too... she just doesn’t know how to Instagram yet! 😂 She says “Way To Go, Calla and medical team!!” We are all so glad that sweet Calla did so well with her surgery today! #CallasCrimsonArmy #CongenitalHeartDefect #CHD #HeartWarrior #GoodJobBabyGirl

Happy Half Birthday Rycker!!
Rycker just got done with the procedure on his heart. It took about 3 1/2 hours. We just spoke with the director of cardiology, who actually did Rycker’s surgery this time around. We need some time as a family to process everything and talk with our friends and family about what is going on. Rycker was also moved back down to the cardiac intensive care unit. Which wasn’t the plan before surgery. However I will explain later as to why he needs to be in intensive care. He also had the NJ feeding tube placed. We will post an update later after we have processed everything.
Today is and was a very big day!
Rycker is now 6 months old! Our big boy is already half of a year! He will be sedated throughout the day so we plan on singing him Happy Birthday anyways! Which is probably better so he isn’t awake to hear our terrible singing voices!( which he for some reason loves!) Rycker loves to play peek-a-boo and hide and seek with his blankeys! He also loves chewing on them.( actually chewing everything!!) He just found his feet last night for the first time! Mommy is so happy about that!
Don’t forget to wear red for Rycker today! #ryckersheartheroes
#IWEARREDFORRYCKER
You can also post your pictures in our I Wear Red for Rycker Campaign FB event page
Make a donation or send Rycker a half birthday present!
https://www.gofundme.com/ryckersheartherosfundraisingpage

If you are unable to donate please share!
All donations over $10 get a ribbon today! Just message us after and we will send one out! All donations over $50 will get a #ryckersheartheroes T-shirt ! I will be doing a post if anyone wants a T-shirt also!
#hearthero #heartwarrior #ryckertheupsanddowns #birthdayboy #heartsurvivor #mommysboy #savetheheartbeat #myheart #trisomy21 #homiewithanextrachromie #blessed #heart #survivor #catinthehat #drsuess #crotchet #redbooties #iwearredcampaign #heartheroes #project #momlife #momblogger #monthlybirthday #halfbirthday #milestones #babymodel #brandrep

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