#gtubekid

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Final #Surgery done thank God. He's resting with lots of morphine

#gtubekid #gtubesurgery #fnhairnfaith #finenaturalhairandfaith

This guy was quite the character today... We special ordered him this dinosaur backpack to try to get him excited about wearing it while his feed is running. #missionaccomplished #gtubelife #gtubekid

When you have the best big sister and brother they push you around the yard in your new wheelchair, they talk to you and they play music for you. #cp #epilepsy #gtubekid #specialneedsadoption

It may take her 10 bites and 20 minutes to get a 1/2 Tbl, but my girl is eating!!! #tubiebaby #tubiebaby #gtubekid #gtubeawareness #gtubefed

Oh I want this girls eyebrows. They are perfection. Her #gtube pokin out. #gtubekid #perfectbrows #rettsyndrome

The greatest Christmas gift of all!! Lucas had his first EVER Christmas dinner with the family. He didn't last long but tried everything on his plate. #merrychristmas #makingmemories #firsttime #gtubekid #proudmom

Today is the two year anniversary of Orson's g-tube placement! He also ran into his Fairy Godmother that day. Slink into bio for blog link. #cfisnotforever #gtubekid #kingofbrave #Godshareshislove #fairygodmothersarereal

chocolate Cheerios & Me #gtubekid #gtube #tubefed #vacterl #highchair

He was waiting for his brother and sister to get back from the park. #specialneedskids #trachkid #gtubekid #littlebrother

MOST RECENT

Wearing blue today for Global TSC Awareness Day. TSC is a rare neurological disease that affects all the major organs in your body. There is no cure. Lucas was diagnosed before he was born and this disease affects him every day. He inspires me with his strength, courage and zest for life!! @tsalliance #tsc #globaltscawarenessday #wearblue #nocure #lovehim #heinspiresme #epilepsy #adhd #gtubekid #asthma #hiswholebodyfights

When you have the best big sister and brother they push you around the yard in your new wheelchair, they talk to you and they play music for you. #cp #epilepsy #gtubekid #specialneedsadoption

Day 2 - one step closer to the new wheels. By Thursday evening my little man will have a wheelchair with seating customized just for him. Such a cool process. #cp #epilepsy #gtubekid #mommasboy #specialneedsadoption

Wheelchair fitting! We are pretty excited. #cp #specialneedsadoption #epilepsy #gtubekid

#PPodGiveaway this handsome guy would love a PPod so when it's story time he could sit with his brother and sister. @inspiredbydrive Noah would really love one of these! Friends and family - feel free to post this to help Noah win a cool PPod seating system! #cp #epilepsy #gtubekid #specialneedsadoption

We went to town yesterday for some groceries. We ended up coming home with groceries, a new wooden truck with horsey's and an ice cream cone. Mommy fail. I gave in so much so I didn't have to deal with a complete meltdown while in the store. Most of you know taking Stetson shopping is a mess. Which is why I try to go when Dusty can be with me or while Stetson is at school. Well we really needed groceries so I thought I'd try and brave this trip alone. Stetson has just figured out how to say cone so I told him that if he was good the rest of the time while I hurried and loaded up the cart we would go get an ice cream cone. Wasn't sure if it would work since he still doesn't really try much food but it was a winner. He actually really liked it. He tried 5 tastes and everything time he would go 'mmm". I couldn't be more proud. I'm hoping this is a new start on trying food and getting him eating by mouth. Even though I gave in it was a good reward in the end.#documentyou52 #icecreamcone #medulloblastoma #gtubekid #childhoodcancersurvivor #fightingforourcowboystetson #mommysboy

Today is the two year anniversary of Orson's g-tube placement! He also ran into his Fairy Godmother that day. Slink into bio for blog link. #cfisnotforever #gtubekid #kingofbrave #Godshareshislove #fairygodmothersarereal

Trying to teach a toddler to swallow food is hard you guys. And messy. And hard. Did I mention this is really hard?! On a positive note, we have mastered the art of chewing up just about anything and spitting it out. #gtubekid #gtubelife #toddlerproblems #pleaseswallowsomethingbesideswater

It's hard to look back at dark days. See how strong my girl is this week on the blog. #linkinbio #raygen #seattlechildrens #norwood #gtubekid #trachbaby #hlhsprincess #chdprincess

❤️one major heart surgery and then a tracheotomy and only 3 months old. She's definitely a miracle. #hlhs #raygen #chdprincess #hlhsprincess #trachbaby #gtubekid #norwood #seattlechildrens

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