[PR] Gain and Get More Likes and Followers on Instagram.

#gtubekid

MOST RECENT

Snow Day-Sew Day! Enjoy a coupon code today! Check out our previous video to claim any of those avaliable fabrics. The large majority are for 500ml #infinitybags. #sewveryfoxy #gtube #gtubebaby #gtubekid #tubie#tubiemom #tubiebaby #tubiemom #tubefed #fedisbest #feedingtube #tubielife #gtubelife #jtubelife #gtubelove #feedingtubebaby #continousfeeds #feedingonthego #etsysellersofinstagram

My sweet boy got to play in the snow for the first time today.... needless to say, he loved it! #gtube #gtubebaby #gtubefed #gtubelife #gtubekid #tubie #tubiebaby #tubielife #tubiemom

Lucas's first EVER curling practice!! He was pumped!! Finding a sport that he can do both physically and mentally has been a challenge. I think we have found it! I'm so grateful that WFG introduced him (and me!) to this incredible sport. The curling community is definitely one big family. What he lacked in skill he sure made up for in enthusiasm!! Added bonus was that he could eat WHILE he played. There are definitely some advantages of a feeding tube. #curling #littlerocks #sweep #hurryhard #heknewalltherules #chestermerecurling #lovedit #firstofmanygames #wfg #proudsponsor #enthusiastic #nobalance #gtubekid #feedingtubeadvantage #eatwhileyouplay

Day 4 of being sick in bed (well my bed today) and he needs to be on a plane to Grandma's tomorrow night! I'm pulling out all the stops. Meds, inhalers, magic bag, essential oils diffusing and now chicken broth in his tube. He may not be able to drink it, but thankfully I can still get it in him with a continuous feed all day. So grateful for that pump!! Poor kid thought I was feeding him PEE!!! LOL!! #sickkid #day4 #cold #flu #medicallycomplex #asthma #comingoutbothends #1sleeptillgrandmas #essentialoils #doterra #onguard #magicbag #inhalers #itsbrothnotpee #funnykid #gtubekid #homestretch

Oh this crazy hair boy!
My love for you grows by the second and even more when you show me your strength!
Today was a very long day all because of one doctors appointment that wasn’t scheduled by me!
I always schedule Uriah’s doctors appointments before noon because Uriah does better in the morning, but his pediatricians office schedule his appointment today with the airway clinic at 3:30... Then we get there at 3 and aren’t taking back till 4 and leave at 5:30 with maybe 25 minutes of actual dr/nurse interaction the rest being waiting... And to top it all off Uriah has been super fussy the past two days due to teething so he was not having it and just wanted to run free and then the scoped his airway which put him over the edge!
But once again he cried for a minute after the scope finished (yea he screamed the whole time they were doing it) and then he was back to being his fun loving inquisitive self.
He gives me strength!
#tubie #tubiebaby #tubielife #tubieboy #tubiemom #gtube #gtubebaby #gtubelife #gtubefed #gtubeawareness #gtubekid #gtubeboy #geneticdisorder #genedeletion

When you finally find out where the tube leads too..🤣My #son trying to pull out his #sister #gtube #gtubebaby #gtubekid #gtubefeeding #laryngomalacia #babygirl #babyboy #babyhair #babybrother #youngest #lds #polynesian #love

Lucas's new feeding tube backpack arrived today. I love it!! The inside is totally customized for the pump, feed bag and supplies!! He's eating in style now. #gtubekid #gtubefeeds #medicalmomma #medicallycomplex #backpack #bagapetit #starwars #eatinginstyle #myboy #lovehim

As a child me and my siblings would always hit my dads belly as he laid on the floor, we thought it was so funny and made for hours of entertainment.

Watching my son hit his pappy’s belly this weekend and the smile it put on his face made my heart full! Then to see Uriah stop hitting pappy’s belly and lay his head down as if to say “i love you pappy”made my heart explode.
Uriah’s personality is slowly showing itself and he is such a loving little boy!
#gtubebaby #tubielife #tubiemom #gtube #gtubekid #gtubeboy #tubiebaby #tubielove

My daughter is 100% gtube fed! Apparently because she can walk and talk people even in the medical community think this is weird!! It's not when it comes to extremely premature birth... feeding doesn't come easy to her. It never has. She stopped eating by mouth at age 2. Up until that point she was bottle fed.. at 2 she was less than 20 pounds.. and we fed her every two hours it was exhausting... she vomited everyday of her life for 4 years!!!! 4 times or more 😭so there you get oral trauma. Which is only experiencing negative things happening with your mouth. She is scared of things in her mouth and when stuff comes out. She can't chew. She just doesn't understand that concept. Making a bolus with your mouth requires rolling the food with your tongue and making a ball while you chew .. breath and swallow. Her brain just can't comprehend all these steps. People take eating for granted. It's seriously not a simple task. Babies are born knowing how to suck. Prematurity makes it different. Suck- swallow and breath is the last step that will keep many preemies in the NICU an extra month or more!! Gabriella likes to lick the chocolate off the 🍩 then she uses her hands to crumble it up like teeth do in her opinion 🤣... this is how she learns! She's NEVER eaten one birthday cake yet. I'm hoping age 9/10 she will enjoy cake. This is a life long battle for her! We love our Gtube and I teach her to love it because it's not going anywhere!
.
.
.
.
.
#gtubekid #gtubefedkids #specialneeds #awareness #beyondthewanderlust
#momtogs
#cm_prep
#atdiff_kids
#pocket_sweetness
#redtricycle

#theartofchildhood

#mynameismama
#loveourbigkids
#documentyourdays
#infinity_children
#childrenofig

Lookin super comfy there, kid. And not at all difficult for me to attach your feeding tube. (I swear she plans these things)

#specialneeds #momlife #weirdsleeper #gtubekid

Lucas: Mom, I'm so tired!!
Me: I know buddy. Me too. We are working hard with the drs to help you be able to sleep at night.
Lucas: the last 2 times (2 nights) I didn't have seizures so that's good, right.
Me: sure is!! ❤️
Once again Lucas has shared such a valuable lesson. He found something good out of a negative. Most nights he doesn't sleep. He wakes up at 3ish and stays awake. Wide awake. While it's exhausting for all of us I'm thankful that it's not seizures waking us all up. Figuring out his meds is like playing Russian roulette. I'm going to keep playing until we win. It's going to be a great day and much to be grateful for. #myboy #tsc #nosleep #coffeeivneeded #epilepsy #medicallycomplex #medicalmomma #gtubekid #perspective #myhero #grateful #itsgonnabeagreatday

A good nurse makes all the difference

Endoscopy went well. Waking up.

Shipping a Holly g-tube friendly t-shirt today. Did you know it has extra wide sleeves so you can dress easily and ontrend ties at the wrist.
.
.
.
.
#tubies #specialneeds #gtube# #gtubefed #gtubelife #gtubekid #additonalneeds #rettsyndrome #rettilife #easydressing #adaptiveclothing

And just when you thought she couldn't get any cuter photos she sends me this ❤️❤️❤️ @_amandagetsfit_ - too awesome for words. #amandaarchphotography captures emotions in her photos. These will be treasured forever! #rareandloved #specialneeds #medicallyfragile #auntieproud #NKHbaby #warrior #fighterbee #gerd #gtube #gtubekid #feedingtube #maddensjourneywithnkh #nonketotichyperglycinemia #infantilespasms #infantilespasmsawareness #epilepsy #ketokid #ketogenicdiet #ketobaby

Third week at feeding therapy and she’s doing great! Today she tried apple sauce (consistency she doesn’t like) & she swallowed a few bites!! #foodaversions #feedingclinic #feedingtherapy #heartwarriorisa #chd #gtubekid #gtube #tubiekid #inovachildrens

Guuuuuuuysssss - my girl @_amandagetsfit_ outdid herself! Look at Mr Madden looking all manly!!!! I got the outfit from @carters and the little suspenders are ADORABLE paired with the hat she had! #littlefighter #warrior #NKHbaby #nkh #glycineencephalopathy #nonketotichyperglycinemia #rare #unique #genetics #metabolics #neurology #gtube #ketogenicdiet #ketobaby #tubiebaby #gtubekid #rareandloved #epilepsy #hypotonia #gerd #littleman #geneticdisorder #auntieproud #amandaarchphotography

Most Popular Instagram Hashtags