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#gtubekid

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Nutrition is important, especially for those with frail bodies. I spent two years giving Elisabeth nothing but pediasure before the lightbulb went on and I realized I could feed her the same as my other children. The only difference is that I liquify it first. Elisabeth has been on a blenderized diet for five years now and her body is extremely healthy! Choose real food, I say!

Final #Surgery done thank God. He's resting with lots of morphine

#gtubekid #gtubesurgery #fnhairnfaith #finenaturalhairandfaith

Toughest + bravest kid I know. #gtubekid

Just a fluffy girl who loves her boy ๐Ÿ’œ๐Ÿฐ๐Ÿ™‡๐Ÿผ#cuddlebuddy #sleeptight #gtubekid

It may take her 10 bites and 20 minutes to get a 1/2 Tbl, but my girl is eating!!! #tubiebaby #tubiebaby #gtubekid #gtubeawareness #gtubefed

Oh I want this girls eyebrows. They are perfection. Her #gtube pokin out. #gtubekid #perfectbrows #rettsyndrome

The greatest Christmas gift of all!! Lucas had his first EVER Christmas dinner with the family. He didn't last long but tried everything on his plate. #merrychristmas #makingmemories #firsttime #gtubekid #proudmom

This is a still of his pudding thick consistency part of his swallow study. The dark line and spots are the barium. He has a hard time swallowing it and it sits in his throat and puts him at a very high rust of aspirating pudding thick consistencies. They only gave him the clear for just tastes. #tubiebaby #tubielife #tubiekid #tubiemom #tubie #tubefed #gtube #gtubefed #gtubeboy #gtubelife #gtubebaby #gtubekid

We've been working on getting Lucas to tolerate liquid (as of now he stays hydrated via gtube). He's been very resistant to it, but consistency pays off. GO LUCAS. #gtubekid #dontgiveup

MOST RECENT

A quiet morning with my girl (just until little brother woke up ๐Ÿ™ˆ). We love Wednesdays because it means DANCE class. Lately Nora has been dancing to all tunes Frozen and Tangled. What are you dancing to today?!

Just me and this cool dude, hanging out together waiting to have his G/J-tube replaced. -
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#timeforatuneup
#justmomandQ
#givemeallthecoffee
#gtubekid
#gjtube
#specialneedsmomma
#specialneeds
#specialneedslife

"I've got a BIG belly, mama." ๐Ÿ˜‚Yeah ok Liam. #tracheostomy #trachkidsrock #minibuttons #gtubekid #gtubelife #loveatubie

I hear you buddy. It's been a hard couple of weeks. Between school transition and hospital this boy has had it. Better he hits that than me. I may need to invest in one too. After he was done he gave me a hug and we both cried. โค๏ธ๐Ÿ’” #tsc #epilepsy #gtubekid #medicalmomma #transitions #hospitallife #newroutine #hesdone #getitallout #exhausted #punchingbag #betteritthanme #ineedone #onedayatatime #lovehim

#throwbackthursday fun fact I was in training to be a service dog for my 8 year old owner Dylan who has cerebral palsy, hydrocephalus and he's fed through a tube in his tummy and that's just to name a few of the things but I am too hyper active and clumsy, after my family found out I couldn't complete my service dog training they had the option to get a new dog that would work for Dylan and let me go live with someone else or keep me and they chose to keep me because they love me to much to let me go (can you blame them๐Ÿ˜‰)#failedservicedog #goldendoodle #goldendoodlepuppy #servicedogintraining #cerebalpalsy #hydrocephalus #dogs #puppy #olliethegolden #goldendoodleservicedogs #micropreemie #24weeker #gtube #gtubekid #servicedog

I had to bribe Lucas with a Kinder Surprise this morning to get him to go to the hospital. Honestly I feel like I need to start bribing myself too. I knew today's appt was going to be lots of talk about new tests that we are going to run to see if we can figure out more clearly what's going on with Lucas's body. As the doctor went over the "odds" of us getting definitive answers to help him I was discouraged. The odds aren't great and they may not give us answers that we want to hear. The whole drive to his school after I was frustrated. It wasn't until I remembered this statistic. There is a 400 Tilliom:1 chance of you even being born!! It's a miracle that we are all here to begin with. We all only have 1 shot at this life and we don't know when our time is up. I have 1 shot and so does Lucas. Regardless of the "odds" for better answers for him, I'm willing to take the shot. What a perspective shift!! #tsc #epilepsy #seizures #gtubekid #asthma #adhd #medicalmomma #oneshot #takeit #whatareyouwaitingfor #notimetowaste #starttoday #reflection #personaldevelopment #personalgrowth

I have discovered over the past year that kids can eat more than just chicken nuggets, hot dogs, grilled cheese, and peanutbutter and jelly ๐Ÿ˜œ. After MANY tears, failed attempts, and successful sessions with nutritionalists, feeding clinics, and occupational therapy to help with my littles feeding issues I Iearned it can take up to 10 encounters for a child to TASTE food let alone like a food.

It takes time and patience but kids can learn to like healthy options. K is living proof โค

#healthyforall #couscousandfishfordinner #lickintheplateclean #preemiewin #specialneedsandproud #livinthegtubelife #gtubekid

Having my dinner while Jili holds my naughty left hand (the hand that has learned to bump the tube at every opportunity). See you next time, #wheatlandmusicfestival! #specialneeds #specialneedskids #specialneedssiblings #gtube #gtubekid #cpwarrior #kernicterus

Just a fluffy girl who loves her boy ๐Ÿ’œ๐Ÿฐ๐Ÿ™‡๐Ÿผ#cuddlebuddy #sleeptight #gtubekid

This is how my counter looks at any given time. When you have a sick child and that same child requires normal medicine daily, your counter becomes the catch all. Bottle will forever be in the drying mat. Syringes and extensions for feeding are always out. I need to find something to kind of hide all of this stuff. #goaltomorrowtofindabasket #medicine #gtubekid #babybottleforformula #needtobeclutterfree #needsomehelp

New BLOG on Wordpress copy & paste this link โžก๏ธhttp://wp.me/p8DYyE-lE. Learn more about feeding pumps and they fit into @thedailynedds lives #blog #blogger #bloggermom #wordpress #followme #gtubekid #gtubeawareness #feedingpump #kangaroojoey #enteralite #blenderizeddiet #pureediet

Two lunches today๐Ÿ™Œ๐Ÿพ Well a lunch and a snack! Breakfast for lunch for Nevaeh! Chicken & waffles, strawberries, and some cool swirly yogurt! Mr. Aaiyden has a simple snack of chicken nuggets & strawberries!
#backtoschool #schoollunches #schoollunchideas #easyschoollunch #momvlogger #schoollunch #lunchbox #lunchboxlove #kidslunchbox #kidslunchboxideas #rockthelunchbox #3rdgraderocks #1stgraderocks #affordableschoollunchideas #kidslunchbox #targetdoesitagain #targetlove #gtubekid #gtubefed #feedingtherapy #feedingtubeawareness

Well Luke has been doing great! He was excited tonight to try out the new G-tube covers his favorite Child Life Nurse gave him. Letting me put this on was huge since he is so protective of his tube and doesn't want anyone to ever touch it except him.
He's growing so fast. He's one of the biggest kids in his class. He's a little over 50lbs and about 46" tall!! It's so amazing and he still hasn't started eating enough food to sustain him nutritionally so he's still on his pediasure smoothies I make him. Can't wait to see how much he grows when he starts eating even more food. He has found out that he likes pizza and lo mein noodles. That's another huge step. He's up to eating 8-10 bites now so inching closer to eating food!
He is loving school and still wakes up in the mornings excited to go. He thinks he's a big man since he walks in to school by himself and keeps up with his own backpack and work. #transpant #kidneytransplant #gtube #gtubekid #transplantkid #strongboy #strongkids #happyboy #gtubecovers #transplantlife

Grade 2!!! He was up at 6am playing Monopoly with the kitten (seriously) waiting for school to start. He's so excited AND has the same aid as last year. She already knows him and his medical needs. What a relief!! It's going to be a great year!! #grade2 #firstdayofschool #prairiewaters #chestermere #medicallycomplex #epilepsy #gtubekid #adhd #asthma #medicalmomma #advocate #worththehardwork #theexcitementismorethanthechallenges #gonnabeagoodyear

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