#gtubekid

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Nutrition is important, especially for those with frail bodies. I spent two years giving Elisabeth nothing but pediasure before the lightbulb went on and I realized I could feed her the same as my other children. The only difference is that I liquify it first. Elisabeth has been on a blenderized diet for five years now and her body is extremely healthy! Choose real food, I say!

We've been working on getting Lucas to tolerate liquid (as of now he stays hydrated via gtube). He's been very resistant to it, but consistency pays off. GO LUCAS. #gtubekid #dontgiveup

Final #Surgery done thank God. He's resting with lots of morphine

#gtubekid #gtubesurgery #fnhairnfaith #finenaturalhairandfaith

This guy was quite the character today... We special ordered him this dinosaur backpack to try to get him excited about wearing it while his feed is running. #missionaccomplished #gtubelife #gtubekid

It may take her 10 bites and 20 minutes to get a 1/2 Tbl, but my girl is eating!!! #tubiebaby #tubiebaby #gtubekid #gtubeawareness #gtubefed

Oh I want this girls eyebrows. They are perfection. Her #gtube pokin out. #gtubekid #perfectbrows #rettsyndrome

The greatest Christmas gift of all!! Lucas had his first EVER Christmas dinner with the family. He didn't last long but tried everything on his plate. #merrychristmas #makingmemories #firsttime #gtubekid #proudmom

When you have the best big sister and brother they push you around the yard in your new wheelchair, they talk to you and they play music for you. #cp #epilepsy #gtubekid #specialneedsadoption

MOST RECENT

We've been working on getting Lucas to tolerate liquid (as of now he stays hydrated via gtube). He's been very resistant to it, but consistency pays off. GO LUCAS. #gtubekid #dontgiveup

My travel buddy!! Getting this kid ready for a trip is quite the event. Thankfully we are flying WestJet and they were awesome with all his medical stuff!! We packed 80lbs of supplies and had no extra charges for heavy luggage and security was a breeze to get through with equipment. Next stop... Ontario!! Lucas gets lots of family time and I can focus on business and expansion. One week later and we are off to France!!! #travelbuddy #medicalequipment #specialneedsmom #tsc #epilepsy #gtubekid #80lbsofstuff #ontariobound #travel #wfg #entrepreneur #business #expansion #loveit #wouldntchangeathing #nextstopisfrance #summer2017 #westjet

When you use a two foot long extension and your to lazy to take it off an put the one foot size on... lol #gtube #gtubebaby #gtubeboy #gtubekid #gtubefed #tubie #tubefed #tubiemom #tubieboy #tubiebaby #gtubeproblems #tubieproblems

Prayers appreciated. This little guy is having a rough go on the sleeping front. Between night feeds, seizures and their side effects (bed wetting is the main one right now), sleep walking all throughout the house and attempting to get outside even, he hasn't slept through the night in 2 weeks. This means I haven't either. We are both physically, emotionally and mentally drained. Tonight we are trying a new med for sleeping and praying it works. Thankfully he also has a history of quick recovery too. Hoping that's the case this time too. #tsc #epilepsy #seizures #gtubekid #nightfeeds #sleepwalking # nosleep #upforhours #exhausted #needsleep #soonerratherthanlater #specialneedsmom #myboy #notenoughcoffeeintheworld

Happy 4th early! Please continue to pray for him. He's going in on Wednesday to be admitted for a 24hr VEEG. #gtube #gtubefed #gtubekid #gtubeboy #gtubebaby #tubie #tubieboy #tubiebaby #tubiemom #tubiekid #seizures #possibleseizures #infantilespasms #possibleinfantilespasms

Nutrition is important, especially for those with frail bodies. I spent two years giving Elisabeth nothing but pediasure before the lightbulb went on and I realized I could feed her the same as my other children. The only difference is that I liquify it first. Elisabeth has been on a blenderized diet for five years now and her body is extremely healthy! Choose real food, I say!

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