#gtubekid

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Final #Surgery done thank God. He's resting with lots of morphine

#gtubekid #gtubesurgery #fnhairnfaith #finenaturalhairandfaith

It may take her 10 bites and 20 minutes to get a 1/2 Tbl, but my girl is eating!!! #tubiebaby #tubiebaby #gtubekid #gtubeawareness #gtubefed

The greatest Christmas gift of all!! Lucas had his first EVER Christmas dinner with the family. He didn't last long but tried everything on his plate. #merrychristmas #makingmemories #firsttime #gtubekid #proudmom

This guy was quite the character today... We special ordered him this dinosaur backpack to try to get him excited about wearing it while his feed is running. #missionaccomplished #gtubelife #gtubekid

He was waiting for his brother and sister to get back from the park. #specialneedskids #trachkid #gtubekid #littlebrother

Oh I want this girls eyebrows. They are perfection. Her #gtube pokin out. #gtubekid #perfectbrows #rettsyndrome

chocolate Cheerios & Me #gtubekid #gtube #tubefed #vacterl #highchair

We're living the tubie life. #cuteasabutton #gtubekid #boymom💙

BYE BYE G-TUBE ✌🏼This is a HUGE day for Sawyer, as most of you know his struggle with learning to love food has not been an easy one. For a long time, we thought we would never see this day. Going from vomiting when just brushing his cheek with your finger to hearing, "hey Mom, can I get an adult meal @ McDonald's instead of the happy meal but still get the toy? I just want a bigger burger." Is surreal to say the least! So, Mickey button, you have done us well. You brought him home from the NICU and you kept him healthy. Thank you, but we are moving on. #gtubelife #gtubekid #nomoregtube #mickeybutton #autismstars #autismspeaks #thiskidisawesome

MOST RECENT

❤️one major heart surgery and then a tracheotomy and only 3 months old. She's definitely a miracle. #hlhs #raygen #chdprincess #hlhsprincess #trachbaby #gtubekid #norwood #seattlechildrens

Business owner by day and "mom nurse" by night definitely has me exhausted. Being obsessed with my goals and where I am going really helps me push through each day. Without the flexibility of my business I don't know how I would survive. #specialneedsmom #tsc #epilepsy #gtubekid #nightfeeds #exhausted #notenoughcoffee #entrepreneur #ceo #immyownboss #flexibility #moneycoach #financialfreedom #financialindependance #financialeducation #financialhealth #wouldntchangeathing #myboyismywhy #thistooshallpass

Night feeds have officially got the better of us. Between pumps beeping, extra bathroom runs because of overnight meds and fluids and upset tummy neither of us are sleeping. I hope his little body adjusts and we can both start to sleep. Tonight has definitely been one of the longest. Thankfully this too shall pass. #myboy #tsc #epilepsy #gtubekid #specialneedsmom #nightfeeds #sotired #nosleep #itsaseason #thistooshallpass #hurryupplease #ishouldbuyacoffeeshop

Today we celebrate🎉 Tausa'afia has gained enough weight and grown enough that her GI dr took out her g tube today!! 5 years ago making the decision to put a g tube in was really hard and emotional for me- besides consenting for her to have 3 open hearts 💔 Tausa'afia said she didn't want it out and is worried about not having it in anymore- her dr said that's normal as for many it is part of who they are! But reaching this milestone makes a mother happy- however that means there will be no more visits with Dr. King - who took great care of her this last few years!! #gtubefed #heartwarrior #chdwarrior #chdawareness #gtubekid #chd #zipperclubmember @kapiolanimedctr

THERE IS NO PLACE LIKE HOME!!! Lucas got to come home tonight!! I am so grateful for so many things this week. Of course there were times when I thought to myself that I was sick of this hospital life. That was soon replaced with reminders of the great visitors I had who brought company for both Lucas and I, food, laughter and good conversation. I didn't know what life would be like with TSC but I do know my boy is a fighter and inspires me everyday. I'll take med changes and all night feeds any day as long as he's home. #tsc #epilepsy #gtubekid #myboy #heinspireme #hospitallife #onedayatatime #homesweethome #thereisnoplacelikehome #toughboy #lovehim

BYE BYE G-TUBE ✌🏼This is a HUGE day for Sawyer, as most of you know his struggle with learning to love food has not been an easy one. For a long time, we thought we would never see this day. Going from vomiting when just brushing his cheek with your finger to hearing, "hey Mom, can I get an adult meal @ McDonald's instead of the happy meal but still get the toy? I just want a bigger burger." Is surreal to say the least! So, Mickey button, you have done us well. You brought him home from the NICU and you kept him healthy. Thank you, but we are moving on. #gtubelife #gtubekid #nomoregtube #mickeybutton #autismstars #autismspeaks #thiskidisawesome

Final #Surgery done thank God. He's resting with lots of morphine

#gtubekid #gtubesurgery #fnhairnfaith #finenaturalhairandfaith

I support rare disease day not only for Lucas but for all those who suffer from rare diseases. I will not give up in my pursuit for a cure and better quality of life for Lucas!! #rarediseaseday #tsc #epilepsy #adhd #gtubekid #findacure #nevergiveup #hesmyeverything #hesmyhero

We are so inspired by the McConnell family, their fight for love and health for their children despite all odds. We love you! 💖







Lisa McConnell and her husband have done medical foster care for 18 years and have adopted 4 out of 8 of their beautiful children.
They adopted Alex (pictured below) when he was 9 months old. Due to his special needs, his biological family did not feel they could care for him well. Alex is blind, developmentally dalayed, and has autism. "When he first came to our family, he could not even handle human touch, but through love and a lot of patience he is a happy little boy who loves life." Alex is totally G-tube fed. The McConnell family is really concerned with Alex's quality of life, especially nutrition, and have tried many different formulas, discovering along the way that Alex has severe allergies to dairy and soy. Through an excruciating process of not being able to find the right product for Alex, Lisa was about to give up when she stumbled upon Toddler Health. "...we needed something that could be mixed easily and not clog his G-tube but still be healthy. We were really impressed by your product. Not only was it dairy and soy free, but it had REAL food in it. It was easy to prepare and healthy...we wish that all companies would be concerned with producing better options for a healthier life for our children."
#autismawareness #autismkids #gtubekid #specialneedsmom #autismmom #gtubekidsrock #kidsnutrition

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