#greatormondstreet

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The lawyer representing Charlie Gard's parents told London's High Court that time has "run out" for the child #CharlieGard #London #HighCourt #Gard #connieyates #greatormondstreet #greatormondstreethospital

Not a great day today. It's looking like the lump is a stitch abscess, just waiting for an ultrasound to confirm.
Very quiet and lethargic and not wanting to do anything expect lie down 😔 started enteral Anti bs so hopefully will be feeling a bit better tomorrow #ileostomy #surgery #greatormondstreet #mylittlesoldier

Oh my #gosh she's only 18 and has done it #londonmarathon well done on such an amazing achievement and congratulations to everyone taking part. Raising funds for important causes. London Marathon DONE !!!! love you dad xxxx #greatormondstreet

Today's achievement: managing to walk back from Covent Garden without a breakdown from Alma. Happy days.
Always love walking past Great Ormond Street too, the amazing service it provides children makes me feel so grateful to have this in my city and I love how the street is lined with so much foliage planted everywhere too. 🌿🌿

So the fight continues! How is it fair that a health service aimed at saving lives, and our judicial system can reduce a pair of utterly devoted parents to this? #greatormondstreet #parentalrights #charliesfight #charliegard #charliesarmy

I'm sorry for this really sad post but I'm so heart broken I have to write this. Today Charlie Gard's parents withdrew their legal battle as his muscle deterioration is now too far gone to treat 😭 What upsets me most is if they had been allowed to go to the US to try the trial treatment 5 months ago, it may have been a very different ending!! How can a group of doctors & judges have the last say of what happens to your child?? I realise these laws are in place for children who are abused so terribly & that is fantastic! But what if the parents are not abusing their child but just wanting to take a different doctors opinion?? Is that abusive or just clever? They could have been the right ones. The law needs to be altered! My heart goes out to Connie & Chris, the best parents a child could ever wish for and this law has ruined their lives. But their son has done something beyond incredible & he is only 11 months old.. He has brought to the surface some very important & worrying issues that are law in this country- mainly the lack of parental rights..you have no say over what happens to your child & if you wish to have a 2nd, 3rd, 4th opinion which I think most good parents would want.. (and not in the same establishment) you may be legally stopped. I actually cannot believe this & it scares me. Then when you have been told your child must die but there are other specialists coming forward with possible treatment, you are not even allowed to take him home, to die in your arms with dignity. This is beyond horrific!! I am so sorry that you have had to both go through this torturous journey. The state's system has failed you & I have now met others who have told me their similar stories & it is frightening. I am so so sorry that his journey hasn't ended the way we all wanted it to, it's so unjust..But he has come to you for a reason! He is going to help so many more children & parents, what a very special little angel is your son!! Just wait and see. Thank you for being the most amazing parents to him and not giving up! No better example than you both! Thinking of you all, his angels will look after him, promise 💙

1 week to go for this one! Best of luck Meggie! You're gonna smash it xx #greatormondstreet #londonmarathon

Very proud big sister! #greatormondstreet

MOST RECENT

#SUPERHEROESSUPERMAN COMPOSITE 2006 TRADEMARK #DCCOMICS #POSTER IN FRAME, IN ORIGINAL AND UNOPENED SEALED PACKAGE.
WITH AUTHENTIC 10 CENT STAMP ATTACHED.
OFFICIAL LICENSED PRODUCT: 0010203505

FIRST ISSUE.
San Diego, CA 92101 DC.
BRAND NEW IN ORIGINAL UNOPENED PACKAGE.
AN ABSOLUTE MUST HAVE! FOR THE SUPERMAN #MEMORABILIA #COLLECTOR.
THE PERFECT #GIFT.
Not found anywhere else online.
Please note. Item has minor creases at top, middle and bottom of poster, hardly discernible, please see pictures.
This ultra #rare collectors item is offered for sale in aid of the #greatormondstreet #ChildrenHospital and other #charities. @oroccoholistics #giftsthatmatter https://www.ebay.co.uk/itm/253062872064

Shared some thoughts earlier on Twitter but do remember #CharlieGard and his parents in your thoughts and prayers. #PrayForCharlieGard #charliesfight #charliesfight #charliesarmy #istandwithcharliegard #Britain #gosh #london #greatormondstreet #greatormondstreethospital

THIS SUNDAY - CHARITY EVENT - For Great Ormond St. Hospital - Letchworth town church - 3-6pm #charity #greatormondstreet #hospital #gooddeed #giveback #eid #summer #food #slush #facepaint #photostudio #fun #masti #donate #healtheworld

Today's achievement: managing to walk back from Covent Garden without a breakdown from Alma. Happy days.
Always love walking past Great Ormond Street too, the amazing service it provides children makes me feel so grateful to have this in my city and I love how the street is lined with so much foliage planted everywhere too. 🌿🌿

Quella di Charlie Gard non è solo la storia di un bambino inglese malato, è la vicenda che ci permette di guardare in faccia il fallimento generale dell’opinione pubblica.

In attesa di nuovi sviluppi, ci sentiamo di dire una cosa.
La vita ad ogni costo non è necessariamente giusta.

Il lavoro nel link in bio o sul mio profilo Facebook.

#medicine #charliegard #london #usa #italy #health #medicine #baby #dna #europe #etic #massmedia #fakenews #lmius #university #rome #humanrights #sanita #medical #uni #greatormondstreet #greatbritain

Breaking my heart watching the news about Charlie and his courageous parents who fought so hard for him - bless you all 🙏🏻❤️#charliegard #onelove #greatormomdstreethospital #greatormondstreet

Well hopefully we're nearing the end of coming here, it's pre op time ready for operation day tomorrow #anxious @greatormondst #preop #operation #myworld #myboy #ryan #myson #myprince #snapback #baseballcap #teddy #teddybear #greatormondstreet #hospital #theendisinsight #hissobrave #braveboy

I'm sorry for this really sad post but I'm so heart broken I have to write this. Today Charlie Gard's parents withdrew their legal battle as his muscle deterioration is now too far gone to treat 😭 What upsets me most is if they had been allowed to go to the US to try the trial treatment 5 months ago, it may have been a very different ending!! How can a group of doctors & judges have the last say of what happens to your child?? I realise these laws are in place for children who are abused so terribly & that is fantastic! But what if the parents are not abusing their child but just wanting to take a different doctors opinion?? Is that abusive or just clever? They could have been the right ones. The law needs to be altered! My heart goes out to Connie & Chris, the best parents a child could ever wish for and this law has ruined their lives. But their son has done something beyond incredible & he is only 11 months old.. He has brought to the surface some very important & worrying issues that are law in this country- mainly the lack of parental rights..you have no say over what happens to your child & if you wish to have a 2nd, 3rd, 4th opinion which I think most good parents would want.. (and not in the same establishment) you may be legally stopped. I actually cannot believe this & it scares me. Then when you have been told your child must die but there are other specialists coming forward with possible treatment, you are not even allowed to take him home, to die in your arms with dignity. This is beyond horrific!! I am so sorry that you have had to both go through this torturous journey. The state's system has failed you & I have now met others who have told me their similar stories & it is frightening. I am so so sorry that his journey hasn't ended the way we all wanted it to, it's so unjust..But he has come to you for a reason! He is going to help so many more children & parents, what a very special little angel is your son!! Just wait and see. Thank you for being the most amazing parents to him and not giving up! No better example than you both! Thinking of you all, his angels will look after him, promise 💙

SAVE THE DATE!

We're holding a charity ping pong tournament at Allpress Espresso Roastery & Cafe in Dalston on Fri 8th Sep from 7pm, and you should definitely be there. It will be THE sporting event of the season: think Wimbledon meets the Tour de France meets the Lions Tour meets the Open - but with slightly fiercer competition.

The event is being held to raise money for two hospitals: Great Ormond St Hosp (GOSH) in London, to buy a new children's ventilator, and Shrimad Rajchandra Hospital in Southern Gujrat, India, which treats babies from the poorest communities at no cost.

The funds were set up by two couples - @emilysarahwise@peteshaw82 and Sonali & Harry Boyle - whose babies tragically lost their lives shortly after they were born, from different causes. Rahul Boyle died in Nov 2015, just 12 days old, and James Shaw died in Oct 2016, just five weeks old, on Rahul's first birthday.

These astonishingly brave & dedicated people have already raised a remarkable £150k between them, but are hoping to get past the £200k mark with a little more help. More about their stories can be found here:

https://www.justgiving.com/fu…/littlejimmybrighterfuturefund 
https://mydonate.bt.com/fundraisers/rahulboyle3110

Further info & ticket details to follow, but please save the date if you can. There will be lots of exciting things alongside ping pong to entertain you - including all-you-can-eat sausages. How can you say no?

@littlejimmybff
@allpressespresso
@greatormondstreet
#pingpong #wiffwaff #tabletennis #charity #greatormondstreet #allpress #allpresscoffee #allpressespresso #fundraiser #fundraising #sport #competition #greatormondstreethospital #baby #india #London #Dalston #courage

The lawyer representing Charlie Gard's parents told London's High Court that time has "run out" for the child #CharlieGard #London #HighCourt #Gard #connieyates #greatormondstreet #greatormondstreethospital

Giving Stanley his first introduction to Football Manager. Seemed to enjoy it. #myboy #baby #stanley #footballmanager #firstdayathome #relief #greatormondstreet #besthospital #budweiser #sunday #funday

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