#granmal

MOST RECENT

So glad to have my sis Dee to be well and healthy to keep going! Thank you Dee for the many times u supported me through thick and thin when I was in the RVH. We both met in the RVH and this girl is a warrior and a fighter!! So grateful that she is ok. This special amazing buddy of mine nearly died on Tuesday but I was so happy to hear her shout Ali when I went to get another friend to come down for fresh air as I got to know Nikki’s family a bit, and got a chance to meet her best pal Samantha! Two great people and Leanne again and Leanne sat with me at stormont and we were truly blessed to get to know her and other people!! No matter who you are or where u get such bad times of illnesses and especially epilepsy which is a silent disease which my friend had six gran meal seizures shouldn’t of even survived and we never thought she would be well enough to be sitting on a ward three days after she was in a coma for over 38 hours!! This one girl who has an amazing heart! We are like chalk and cheese but we get on so well and I was so thankful to get to know her favourite partner Nikki and the families. Life is very hard and things have really been such a hard time for Dee but she is a trooper!! We were able to spend good time with her on Thursday night when she was moved down to the ward from ICU. It was like Dee hadn’t ever been unwell but this lady fought for her life after 6 #granmal #seizures! #epilepsy is such a horrendous disease and I don’t understand the full Velocity of what happened!! I will always be there as best as I can for Dee and her family who mean the world to me and the reaction of seeing her sitting up after she was woken up from being in a coma was incredible but felt awful as she tried to get out of bed but was so glad she pulled through!! We shall be going to the Clayton all five girls will have a great time! #blessed #miracle #bestfriend #sister #and an#loving #caring #strong #warrior that night was one of the most happiest and funniest nights I ever had!!! Dee hasn’t changed since she came out of her coma and having my lady D back! #love #you #girl like a #sister! Thank you for those who supported her!!! @dopie1984 @clayton_belfast

Un nuevo día para celebrar la vida! Esta vida mía tan "especial"💜
Celebrar con el Sol de la mañana y sonreír hoy y siempre. 💜
Para mí cada CUMPLEAÑOS, no es envejecer, ni madurar, ni tener nuevos propósitos es una nueva ronda de vida. 💜
Reanudó mi vida pese a todas las circunstancias y pronósticos y sigo hacia adelante, con mis entrañables compañeros de viaje: Dios, mi familia biológica y de amigos que me acompañan, estimulan y sustentan.
Veintisiete años no son más que lo que deseo ser: una niña sana, adaptada a sus discapacidades, amada y feliz. 💜🎂
@unaayudaparadafne
#sindromelennoxgastaut
#granmal
#celebrandolavida
#cumpleañosfeliz
#vivoagradecida

Neurologists think they are so intelligent because they study the brain, (they make that clear as soon as you meet one, boastful bastards!) but most of them don't know half or even a fraction of what they THINK THEY KNOW...! #Brainsurgery #BrainsurgerySurvivor #Epilepsy #Epileptic #Siezures #HeadAches #Migraines #EpilepsyProblems #Keppra #KeppraRage #Survivor #Potd #GranMal #Abscence #Pain #Suffering #SUDEP #neurosurgery #Neurologist #Psychiatrist #Help

But it's hard as hell to get a pain reliever these days. Or a Doctor that will even acknowledge your pain. "Naw I just fell and hit my head, it doesn't hurt doc..smh"

#Brainsurgery #BrainsurgerySurvivor #Epilepsy #Epileptic #Siezures #HeadAches #Migraines #EpilepsyProblems #Keppra #KeppraRage #Survivor #Potd #GranMal #Abscence #Pain #Suffering #SUDEP #neurosurgery #Neurologist #Psychiatrist #Help

Sometimes "she" pops up in my memories. It's ok. Without her I would never be me. I had to reach the rock bottom to grow. I was a good person. I did the best I could. I had no idea what was about to hit. My life changed when I had a Gran Mal Seizure. It shook my life like nothing else could. It had me question my faith. It had me fear living. Then it gave me the moment where I realized my life was a gift. To find the joy in every moment. To put my health first lose that 125 even if there wasn't a tomorrow. Life is fleeting - that is not just for the elderly. That is for all of us. Enjoy your life, do your best, help others, love your family, tell them you love them - all - the - time. Today is a gift. #gghgirls #girlsgonehealthyus

#day24 #typeofepilepsy #challenge
#granmal #epilepsy
LEPhotoChallenge 💜💜💜💜 #epilepsy #seizures #health #atx #challenge #photo #photochallenge #fun #epilepsywarrior #💜
- started with • blank out spells
- In addition had • petit mal - Eventually produced • PNES

DAY 5: My #MEDICAL #IDBRACELET is #essential for days like this morning. I had a #seizure, but I am at my brothers house so luckily I was #safe. Should I be in #public or around anyone who doesn't really know much about my #illness, 911 will be called and this allows #EMS to give me the proper #aid. Took me 12 years to finally #wear one it only made it THAT MUCH harder, but it's #necessary. The Top one visibly says #Epilepsy and on the inside the type of seizure I have, #granmal, while the bottom is simply a reminder for me of how #strong I know I have to be and am saying #WarriorForLife. #spreadtheword #smtx #purplenovember #spreadawarenessmonth #epilepsy #seizures #educate #lifeelektrik #lephotochallenge #seizure #epilepsywarrior #purplefightersclub #30daychallenge #novemberchallenge #intractableepilepsy #tonicclonic

DAY 4: #BIGGEST #SUPPORTER goes to my #bestfriend #Rocky the #pomchi. When I don't feel well and he's with me since he's my #brothers @livinlikeleno doggie, he somehow knows so he follows me around or simple #cuddles in #bed with me. #FUNFACT: This one time I had a #seizure, and as I was #seizing he was literally ON TOP of me during mid #granmal #barking at everyone NOT allowing my #family to get close to me. #Protective #smartdog #smtx #spreadtheword #spreadawarenessmonth #epilepsy #seizures #educate #lifeelektrik #lephotochallenge #seizetheday #epilepsywarrior #purplefightersclub #novemberchallenge #intractableepilepsy #tonicclonic

2 days ago I posted how I had been #1month #seizurefree and I always get to that mark and I then get one, well last night the #granmal #seizure that began to take hold of me...let me go. The actual #seizure itself didn't fully happen, however, I still felt my #brain misfiring and eyes #involuntarily roll to the back of my head. I'm #happy I didn't get the #seizure, but between being #conscious and #feeling what I felt, I'll take the #seizure because that's the #easy part; I black out...... #Seizureville #brainfog #tired #epilepsy #epilepsywarrior #seizuressuck #aura #epilepsyawareness #purplefighters #💜 #novemberisepilepsyawarenessmonth

I really can't stand how Marijuana is considered a schedule 1 drug and being listed as more dangerous than cocaine while alcohol and cigarettes are legal and killing thousands of people a year. Lately I've been getting nocturnal gran mal seizures, I believe it's a side effect of a medication I started which I now stopped. I got two in a week then I smoked out of my bowl for the first time in a while and I was clear of seizures for a full week until I got another. After getting the third seizure I went to the hospital to get an ambulatory eeg for 48 hours and I'm still waiting on the results. I took a CBD gummy and it's been a few days since have had a seizure knock on wood.

Linked in my bio is my article for this week.
Sharing my experience with seizure activity. Truly did not see it coming!

https://livingyourlifethroughtime.wordpress.com/2017/07/21/straight-out-of-nowhere/ .
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#ms #multiplesclerosis #fuckms #daveagainstms #mswarrior #seizures #seizurefree #tysabri #pml #overcoming #perserverance #reality #mystory #scary #outofnowhere #granmal #hospital #cane #assistivedevice #mindsetiseverything #handicap #handicapparking #dealwithit #trialsoflife

Gran mal today... Fell on the concrete out in the snow. Hit my head, and got a large bump, and jammed and scraped my fingers. Felt like the tips were crushed. Frozen bag of peas to ease the pain and swelling. Lots of little seizures have followed due to hitting my head. Rough day and night... I had made it 9 weeks without a gran mal, and 5 weeks completely seizure free. That was the longest in years. This came as a surprise today. Always something to keep me humbled and dependent on The Lord... I will get through this too, and keep my hope and faith strong. I won't kid you though, not easy at all...

On 35 pills, took myself down to 22 pills@day HSSDI tax$$$$ | paid has denied me 9 times for #granmal (HDRUG RESISTANT) #epilepsy.. from a 15ft fall( fainted on ladder!?)@ #bebe 15ft fall head first into the marble floor. 15 yrs of ins.dropping me like last month!... #Go fund me!$20 in 3 yrs, lost biz, house, car/ Im ok!\ Loosing My independence now THATS TAKEN ALMOST ALL THE #HOPE LEFT!

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