#gastroparesisawarenessmonth

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💚 It's August and that means 💚it's Gastroparesis Awareness month.
What is Gastroparesis? I hear you say. In short, It's just a fancy medical term for slowly starving to death ...
Gastroparesis is a life destroying and debilitating gastrointestinal disease. Gastroparesis originates from a Ancient Greek word. 'Gastro' meaning stomach, and 'paresis' meaning paralysis- this literally translates to ‘stomach paralysis’. It is a condition which results in extreme weakness of the muscles that control the stomach - food can not empty from the stomach to the small intestine effectively. Normally, the stomach contracts to move food down into the small intestine for additional digestion and then the body usually continues to process, break down and absorb nutrients; the vagus nerve controls these contractions. Gastroparesis may occur when the vagus nerve is damaged therefore the muscles of the stomach and intestines do not properly function.
In severe cases, Gastroparesis can completely paralyse the stomach and can cause partial if not full paralysis from the oesophagus to the anus. Food stops moving through the digestive tract and this can often cause bacteria overgrowth, blockages and may cause the bowel to perforate. Many sufferers are feeding tube or TPN dependent [due to the reasons above.] It's not pleasant but we have no choice but to accept the situation in order to move on. The medical accessories that 90% of us Gastroparesis fighters have is a medical necessity. It keeps us alive.
The primary symptoms of GP are: nausea, vomiting and abdominal pain. Other symptoms include bloating, abdominal distension, constipation, early satiety (feeling full quickly when eating.) Secondary symptoms include other GI conditions such as GERD, Colitis or Gastritis, plus severe neurological or cardiovascular disorders, weight loss and deficiencies due to malabsorption and malnutrition which can cause many acute and/or chronic complications.

This gastrointestinal disease is not very well known, but it's very common. There's no cure, but by raising awareness I hope that one day Gastroparesis will be as well known as diseases just like cancer or heart, lung and kidney disease.
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As many of you know I have been struggling with a disease called Gastroparesis for the past year. August is Gastroparesis awareness month so I thought would post some facts about this disease. -gastroparesis, which literally means paralyzed stomach, is a motility disorder of the stomach, where food cannot move from your stomach to your intestines quick enough - symptoms of this disease are nausea, vomiting, abdominal pain, and severe bloating or swelling of the stomach -most gastroparesis patients are dehydrated and malnourished which is why most sufferers receive fluids and nutrition through a feeding tube or a picc line/port -an example of my delayed gastric emptying is that during stomach surgery my doctors discovered there was still food in my stomach after fasting for two days -gastroparesis is not common and because of that there are not many treatments available which is there needs to be more awareness
If you want to learn more I have posted a link to a video in my bio! Happy #gastroparesisawarenessmonth 💚💚

SWIPE FOR MORE PICTURES ➡️➡️💚 So it's Gastroparesis Awareness Month so I'll be posting a few things throughout this month to show you guys my life with Gastroparesis and how it affects me! So the word Gastroparesis literally translates to Gastro and Paresis meaning paralysed stomach. So I have this condition as a result/complication of a genetic syndrome called Ehlers Danlos (type 3) which unfortunately comes along with some other nasty conditions such as POTS. Gastroparesis means I can't digest food properly meaning I throw up after eating and it causes severe nausea, bloating, and pain. There is no cure for gastroparesis but it can be managed with certain medications and treatments. There are medications that can speed up your motility but in severe cases feeding tubes or TPN are needed to give the body nutrition when you can no longer manage orally. Gastroparesis can be fatal in some cases and it leaves a lot of its victims severely malnourished and weak! There needs to be more research into Gastroparesis to help find a cure! 💚Unfortunately I rely on a feeding tube (NJ tube) for all my nutrition needs I also rely on it to keep me hydrated and for my medications, although I hate my tube it keeps me alive and I am grateful for this tool!🙏🏼Please help spread awareness this month by sharing my post or writing your own, or using the hashtags #gastroparesis #cureGP #gastroparesisawarenessmonth 💚🙏🏼💪🏼

White lines means lipid day.... Does anyone else feel insanely bloated after doing lipids in their tpn? The other day I had a moment of realization on how some people can be so ignorant. I can see how people can have insecurities about themselves. A few years ago, my health was really good. I was even technically overweight. At that time, I remember people telling me how fat I was. Yes, they said I was getting fat. Of course hearing people tell me made me feel insecure. Then a few months after I got sick I was very underweight... 79 pounds. I'm not even joking when I say complete strangers would come up to me saying how sick I look. Asking me if I had an eating disorder or even cancer! Compete strangers! At that point not only was I sick, I was feeling so poorly with myself being rail thin. Now.... I am at a healthy weight thanks to #tpn. But.... I wear a back pack during the day while I infuse with tpn. At work... People ask me literally all day Why I wear a back pack. Normally, being asked why I wear this wouldn't upset me. But people look at me with disgust when they look at me because I have this line coming out of my arm into my back pack. No wonder people have insecurities about how they look. People are always judging... And are vocal about it... I would Absoltuely never say anything negative about how someone looks. Ask me questions.... But don't be so mean! #gastroparesis #gastroparesisawarenessmonth #gpwarrior

As many of you know I have been struggling with a disease called Gastroparesis for the past year and a half. August is Gastroparesis awareness month so I thought would post some facts about this disease. -gastroparesis, which literally means paralyzed stomach, is a motility disorder of the stomach, where food cannot move from your stomach to your intestines quick enough, this is an invisible illness - symptoms of this disease are nausea, vomiting, abdominal pain, and severe bloating or swelling of the stomach -most gastroparesis patients are dehydrated and malnourished which is why most sufferers receive fluids and nutrition through a feeding tube or a picc line/port -an example of my delayed gastric emptying is that during stomach surgery my doctors discovered there was still food in my stomach after fasting for two days.
I personally cannot have people see me struggle with this, I feel weak for not being the strong one anymore. The only ones who have seen me extremely struggle has been my family. Laying curled up on the carpet crying as my mother strokes my back trying to get me to calm down, coming in at 3am to give me meds, traveling to meet different doctors over the country, cleaning up vomit, people carrying me up and down steps to make sure I do not pass out. I will never admit to anyone when I'm feeling crummy until I can feel the pain pulsing through my body. This is what I of 5 million other people deal with, being told it's "fake", all in the head, it's an eating disorder, wanting attention. Those who think that, are not a part of my family and have never met another person with this condition. Meeting others with some sort of IBS and being able to talk about what no one else can understand or see is what supports our IBS umbrella of the gastric diseases. -gastroparesis is not common and because of that there are not many treatments available which is there needs to be more awareness
If you want to learn more I have posted a link to a video in my bio! Happy #gastroparesisawarenessmonth #spoonie 💚💚

Gastroparesis Awareness! A great post by @trinitymccourt sharing her experience with this disorder.. ・・・
As many of you know I have been struggling with a disease called Gastroparesis for the past year and a half. August is Gastroparesis awareness month so I thought would post some facts about this disease. -gastroparesis, which literally means paralyzed stomach, is a motility disorder of the stomach, where food cannot move from your stomach to your intestines quick enough, this is an invisible illness - symptoms of this disease are nausea, vomiting, abdominal pain, and severe bloating or swelling of the stomach -most gastroparesis patients are dehydrated and malnourished which is why most sufferers receive fluids and nutrition through a feeding tube or a picc line/port -an example of my delayed gastric emptying is that during stomach surgery my doctors discovered there was still food in my stomach after fasting for two days.
I personally cannot have people see me struggle with this, I feel weak for not being the strong one anymore. The only ones who have seen me extremely struggle has been my family. Laying curled up on the carpet crying as my mother strokes my back trying to get me to calm down, coming in at 3am to give me meds, traveling to meet different doctors over the country, cleaning up vomit, people carrying me up and down steps to make sure I do not pass out. I will never admit to anyone when I'm feeling crummy until I can feel the pain pulsing through my body. This is what I of 5 million other people deal with, being told it's "fake", all in the head, it's an eating disorder, wanting attention. Those who think that, are not a part of my family and have never met another person with this condition. Meeting others with some sort of IBS and being able to talk about what no one else can understand or see is what supports our IBS umbrella of the gastric diseases. -gastroparesis is not common and because of that there are not many treatments available which is there needs to be more awareness #gastroparesisawarenessmonth #spoonie 💚💚 .
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#CRPSnetworkAustralia #gastroparesis #CRPSawareness

Gastroparesis and other forms of Digestive Tract Paralysis are relentless diseases, they leave their victims #starvingforacure You never know when something as simple as eating painlessly will be taken from you. Please never take the little things for granted. #GastroparesisAwarenessMonth

"In the study of digestion as a necessary function in the maintenance of life, one comes very close to the fundamental question of life itself" - Dr. Charles Mayo
#GastroparesisAwarenessMonth

Thought I should share on my IG too. Much love to those who shared. 😘
"I have not been very public about this in the past, but in honor of Gastroparesis Awareness month I thought I would tell a little about my story and maybe it can help someone else. Here is a collage of the many faces of this debilitating condition. I have been diagnosed with Idiopathic Gastroparesis since 2008/2009, but it has flared up badly since this February. Gastroparesis is paralysis of the stomach. There are very, very few treatments and no cure. Many have noticed my weight loss and have commented, and thank you for the kind comments, but I have not tried to lose it. This condition prevents me from eating and digesting normally; and I have gained a lot of weight in the past and now most recently lost too much weight. I was on a feeding tube last month for 10 days. I have started to improve a little on my own without the help of a tube now, so I may be able to avoid a surgically placed, permanent tube, yay! I have learned so much over the years, like how to be your own advocate and how to keep trying to find a doctor who will listen. If you need any advice, please let me know.

There is currently only one organization in the world compiling research on this condition called www.g-pact.org. We need more awareness so that we can research for a cure. There is currently a bill we are trying to raise support for so that it can be considered a disability and be researched with federal funding. Please tell your senators about it!"
https://www.congress.gov/bill/114th-congress/house-bill/2311/text
#GastroparesisAwarenessMonth #CureGP #Gastroparesis #CureforGastroparesis #augustisgastroparesisawarenessmonth

MOST RECENT

I am someone who has Gastroparesis.
I am someone who didn't even know what this was until diagnosed almost 10 yrs ago (not even spell check recognizes it).
I am someone who has days like this picture where my stomach is flat.
I am someone who has days like today where my stomach is so bloated it looks 6 months pregnant and wishes it were always flat like in this photo.
I am someone who can't wear fitted clothes for more than an hour without getting stomach pain.
But what I ALSO know is:
I am someone who is the healthiest I have been since high school.
I am someone who has finally accomplished getting in shape after trying for almost 7 years and has failed, until now.
I am someone who has a kick ass yoga practice.
And I am someone who can recognize HARD work and give credit where it is deserved.

So this one's for you self: this photo rocks! #gastroparesisawareness #gastroparesis #gastroparesisawarenessmonth

#GastroparesisAwarenessMonth Day 12:
Gastroparesis often means becoming very familiar with your local hospitals. Uncontrollable vomiting and pain is difficult to manage at home. Especially for those who are underweight, dehydration can rapidly lead to complications like fainting and arrhythmias. The other common reason gastroparesis patients may end up in the emergency room is fecal impaction or even full blown obstruction. Unfortunately, gastroparesis isn't widely understood and patients may find unhelpful hospital staff who are not educated in this disease. If you work in healthcare, please listen to what your chronic disease patients have to say. They or a caregiver/family member will usually be able to explain their condition and what acute treatment is necessary to stabilize them. I have personally seen emergency room staff actually mock a gastroparesis patient for belching and heaving without producing much vomit. This is extremely painful and puts pressure on the heart and lungs as the stomach is so severely distended with air. It's no laughing matter. In the ER, gastroparesis patients should receive IV fluids and nausea medication. Depending on the situation, enemas, pain medication, abdominal imaging and gastric lavage may be needed. Watch out for refeeding syndrome in gastroparesis patients even if they are not underweight. Bezoars and complications with the gallbladder and pancreas should be ruled out as well. To prevent some of these ER visits, your gastroenterologist may be willing to take like preemptive steps like standing orders for IV fluids at an urgent care center, or home healthcare to provide IV fluids and medication.
#gastroparesis #stomachparalysis #digestivetractparalysis #dysmotility #DTP #CIPO #mysterydiagnosis #diabetes #diabeticgastroparesis #neuropathy #idiopathicgastroparesis #vomiting #spoonie #chronicillness #butyoudontlooksick #ehlersdanlossyndrome #heds #feedingtube #starvingforacure

Let me clear something up regarding the post from the other night. I truly truly appreciate those friends that do contact me, send messages and are genuinely concerned about myself and my family. However, the ones who send me messages or call to fish for information or just want to gossip, those are the ones I choose not to associate with and want no type of relationship with. I'm not a total bitch and if you hurt me, I will usually stand back and let karma do its job but when you do something out of spite or something to hurt my family then I go into defense mode and protection mode. I become the karma. I will speak my mind because that is who I am now. I have a lot going on (and YES I KNOW) there is always someone worse off than me but right now, at this point in my life, my chemical imbalance is way off, my emotions are off the charts and I'm exhausted so excuse me if I react in a passionate manor and I realize not every situation needs a reaction but some do. I am in no way shape or form the person I used to be but I will not stand by and let others continue to harass me and my family. .
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#myjourney #exhausted #myfamilyismyconcern #myhealthisworthit #stayingstrongforthefam #anxietyoverload #migraineproblems #neuropathicpain #mylifemystory #myjourneyneverstops #gastroparesisawarenessmonth #gastroparesisfighter💚 #cancerfighter🎀 #bringingawareness #findacure

And like that, the tube was gone.
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Things didn't get better after Tuesday. I met with one of the registrars on my GI team today and discussed things.
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There may be a surgical tube, or even parenteral nutrition in store for me. Won't know for a few weeks yet though, and frustratingly in the meantime I'm back to desperately trying to not lose weight.
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#ParenteralNutrition #TubeFed #NJTube #Tubie #Gastroparesis #GastroparesisSucks #EhlersDanlos #EhlersDanlosSyndrome #GastroparesisAwarenessMonth #Spoonie #spoonieWarrior #AintGotNoTubeInMyFaceAnyMore

August is gastroparesis awareness month so I decided to make a post dedicated to it. The name comes from the Ancient Greek words gastro=stomach and paresis=paralysis. It is also referred to as delayed gastric emptying. Gastroparesis is a gastrointestinal condition that affects the movement of stomach muscles (motility) which prevents the proper digestion of food. Some of the symptoms are nausea, vomiting, acid reflux, abdominal blotting, abdominal pain, poor appetite, weight loss and many more. Gastroparesis is usually treatable but has no cure but by raising awareness hopefully one day there will be💚 ______________________________________________________________________________________________#photo#photooftheday#Gastroparesis#GastroparesisAwarenessMonth#gastroparesisawareness#gastroparesiswarrior#chronicillness#chronicfatigue#chronicpain#spoonie#spooniewarrior#spoonielife#chronicillnessawareness

"At some point after diagnoses, in our cycle of grief, we stop looking for a cure and begin to advocate being "as well as possible"- for as long as possible. It stops being about delaying life until we're cured, but enjoying the moment. - Lisa Copen"
Very happy to say the week of August 13-19 is now officially gastroparesis awareness week in the State of Virginia! 💚🥄💪🏼 #chronicillness #fightforacure #spoonie #gastroparesisawarenessmonth

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