I'm often at odds with you. I went from just feeling self-conscious about my short legs, to having to accept damage from medical device after medical device, surgery after surgery. Disease progression and treatment has caused my face to plump and chins go grow in number. Weeks, months of being bedbound has caused my muscles to atrophy. Malnutrition + vitamin deficiencies has caused my hair to thin and bald spots to form.
It's easy to feel less than beautiful with this type of wear at such a young age.
Paralysis, sepsis, atrial fibrillation, pacemakers, defibrillators, strokes, feeding tubes, formula, central lines, total parenteral nutrition....these aren't words typically in a young adult's vernacular but they're my norm.
Emery-Dreifuss Muscular Dystrophy...you've tried and tried again to beat me. You may have changed my body and daily vocabulary....but you have not broken me. My scars prove my strength. They're constant reminders of battles I've overcome.
HEY BODY...thanks for fighting hard - you're beautiful just the way you are.