#gastroparesis

102964 posts

TOP POSTS

The new GJ button is in! 🎉 I'm so grateful for my husband, the dedicated medical team and God's grace seeing me through. 😌 This feeding tube is not generally used in my hospital system, so the entire staff was very interested in it's versatility and convenience! 👌 Anesthesia was rough, but thankfully everyone was prepared to help me through it. I'm dealing with pain: typical site/abdominal discomfort and my throat is *killing* me (raw esophagus from frequent vomiting + a scope = 😷). I'm happy to be resting well at home, and tomorrow my home nurse visits to show me how to properly use it. But... I HAVE MY NEW TUBE! 🙆‍♀️ Things finally came together and all is well - God is good! A big thanks to everyone for all the well wishes and prayers. 💙
#FeedingTube #Tubie #GJTube #Adventure #StayPositive #Strength #Blessed #SpreadAwareness #Advocate #Autism #Asthma #Allergies #Narcolepsy #Migraine #Dysautonomia #POTS #EhlersDanlosSyndrome #Gastroparesis #Immunodeficiency #ChronicPain #Spoonie #ChronicIllness #InvisibleIllness #Disability

Well I yanked on my feeding tube accidentally while I was napping (probably during my nightmare about a murderer 😳) so it had to come out. I was told it wouldn't be painful but yowza it was for me. I guess I have like a small nasal cavity or something cause the placement and removal caused bleeding. Not sure what the next steps are but gonna enjoy this tube free face until we find out 😊 (thanks @katefarms for the awesome hat!!)

She was thrilled that he knew "bang" (play dead). She also said I was her favorite of the day hee. Hero loved her.
#servicedogsofinstagram #servicedog #dogsofinstagram #disabled #spooniestrong #sickgirl #pots #hemiplegicmigraine #mobilitydog #gastroparesis #GP #potsie #disneyland @disney

Having such a good holiday up the coast 🌊 I love being up here as the beaches are so lovely !😊 unfortunately my stomach is flaring ATM and feeds are not going good , but it's my own fault for doing so many things the past 2 weeks , I'm not regretting anything as I've had such an amazing time ⚡️ #gastroparesis #cfs #me #pots #dysautonomia

May this post bear words of honesty and vulnerability, of authenticity and raw emotion, and also the lamest introduction ever.
This is a photo I treasure, of me and my old retriever Remi. She was once a symbol of recovery and new beginnings, a puppy we got during one of my hospital stays, but she now lives with an ex-partner since we separated almost three years ago. At the time, my eating disorder was well-ingrained but untreated. I'd had multiple hospitalisations for suicide attempts and mood stabilisation. But I remember moments of happiness here. I remember the warmth of the sun on my back in this picture, the softness of her coat amongst the creek-water smell. She was also due with puppies in the not-too-distant future.
Fast forward three years and I don't have Remi anymore, nor my sweet Marlow whom I tried to fill her void with. I've had countless hospitalisations - in the midst of one now - and a diagnosis list a mile long. And this is the most anti-recovery thing to say, but my eating disorder has been rampant every moment to this one, but my body clings to the kgs no matter what I do, and I can't stop until my body is back how I think it should be. I'm tired and fed-up, frustrated and overwhelmed. Sick of being hospitalised. Sick of feeling like a dysfunctional and broken human being. Because it never ends. All the meds and therapy in the world aren't bringing peace.
I crave nights by the fire snuggled with Remi. I crave having Marlow curl up under my covers as I fall asleep. I crave love and someone to share it with. Because no matter how hard I try, I cannot find any for myself.

#dogsofinstagram #selflove

Cure iv des lundi, une perte importante de ma capacité respiratoire... Je dois attendre l'appel pour une nouvelle hospi pour des examens et une " opération " que je refuse de faire mais de ce fait pour l'examen comme la dernière fois on avait pas réussis à me la faire à cause des fortes douleurs cette fois on me plongera dans un sémi coma pour 24h pour ne sentir aucune douleurs et ne rien voir pour ne pas être déranger... Digestivement parlant rien ne va.. La mucos aura raison de moi, elle finira par me tuer d'ailleurs on me répète sans arrêt que je ne dépasserait pas les 30 ans... d'ailleurs je remercie mes médecins surtout mon gastro pour sa façon de dire les choses devant ma fille de 6 ans et demie !!! Bref je vais faire un break, je.me.suis tellement sentie mal que j'ai demander qu'on arrête les examens et que je parte de l'hôpital avant d'en entendre encore alors pour le reste c'est reporter en attendant je profite de ma fille ... #cystiquefibrosic #cysticfibrosisprayerwarrior #cysiticfibrosis #cftr #cfwarrior #cureiv #hopital #operation #leuven #mucoviscidose #muco #gp #gpwarrior #gastroparesisfighter #gastroparesie #gastroparesisawareness #gastroparesis #masque #like4likeback #likes #like4like #likeforfollow #liker #like4follow #merefille #maman

"Never be ashamed of a scar (or tube) it simply means you were stronger than whatever tried to hurt you." Love yourself and show off those bellys! #gastroparesisawareness #chronicallyill #gppiefacechallenge #gastroparesis #gastroparesissucks #spoonie #spoonielife #selflove #bellysout #tubie

MOST RECENT

@animals_rock889 and my niece Maddie @ the drive in 😎 They are so sweet, they kept saying to me "we're not going if you don't feel well! Seriously and that's final!!!" @animals_rock889 knows I'll just do it anyway regardless of how bad I feel. She keeps me in check, makes me cancel things, tells me to rest, asks me if she can do anything for me, asks me if I'm worried or anything is bothering me, rubs my back, gives me hugs and kisses. I'm so glad I have her in my life.
#firstthingithoughtof #cottoncandy #whatagreatthrowupbowl #prettysad #gastroparesis #gastroparesisyousuck #driveinmovie #driveintheater #driveintheatersrock #nutjob2 #emojimovie #driveinmovietheater #theywatchedthemovies #islept #notsadimissedthekidsmovie #😂 #ilovemydaughter #ilovemyniece #cousins #love #family #movies

I sent out my first blanket to a very lovely lady who is Chronically ill.
#chronicillness #invisibleillness #crochet #sendingloveandhugs #gastroparesis #eds #IC

Had a pretty rough day. But it's looking a little better. I'm super nauseous after only eating a little bit but I think I'm going to take a nap now. I see the GI on monday so now I just have to survive tomorrow. -
-
-
-
-
-
-{#anxiety #beach #chronicpain #chronicillness #chronicallyill #Chiari #diabled #dysautonomia #eds #ehlersdanlossyndrome #gastroparesissucks #gastroparesis #rapidgastricemptyingsyndrome #ivtherapy #jaxbeach #masscellactivationdisorder #mcas #pots #pinstagram #potssyndrome #panicdisorder #posturalorthostatictachycardiasyndrome #spoonie #servicedog #wheelchairlife }

No one plans on getting sick at a young age. And one of the most devastating parts of chronic illness for some is having to say goodbye to some of their dreams. But with time, you start to have new dreams, pursue those dreams, and somehow maybe decide that you ended up exactly where you're supposed to be. #chronicloveclub 📷: @kyrenian

Nog een paar weekjes en dan mag ik weer van dit uitzicht genieten 😍🌅 #tenerife #puertodesantiago #vakantie

We absolutely love @ez1zclothing for the convenience of gtube feeding, the easy stretch and such cute styles! We definitely need to revamp our wardrobe ❤️#gtube #gtubebaby #gastroparesis #hypoxicischemicencephalopathy #cerebralpalsy #epilepsyawareness #adaptiveclothing #specialneedsmom #specialneedsfamily #specialneedschild #specialneedsbaby

Sometimes I forget the fact I can't eat, it's become so normal for me that everyday life without food isn't as hard as it once was,
The one thing I will never forget is the feeding-tube that saved my life when I was starving; the fear of a 13 year old girl thinking about the possibility of a surgery.. at that time I was more afraid of pain than anything. After I got through it I became stronger, every surgery, procedure, ER visit; I learn more about myself and how to grow to do better and be stronger in the situation.
As some may know when I'm in a situation and know I need to go to the ER, in the past I have had times where I said no over and over not wanting to go; I am very hard headed. But I've also learned a lot and I'm trying to stay in tune with my body and when things get to bad where I just need to be seen, I'm thankful for the family I have who help and make sure I'm taken care of.
My situation is a hard one nevertheless, but it will never define me and make me see life any differently; I have dreams and ambitions just like anyone else.
Also I want to thank POP for this wonderful shoot and photos, as some may notice I truly can see a lot of emotions in this; thinking of all I've been through, and learned. I'm just so honored to be the senior ambassador for @powerofthepossiblenc
Photo: @chiekoalice
Hair and Makeup: Mellie White (with help from Teresa Womack)
#model #modeling #pop #powerofthepossible #alistmodelsandtalent #photo #gp #gastroparesis #gastroparesisawarenessmonth #gpawarenessmonth #ibd #chroniccondition #thegirlwhocanteat #inspirational #makeup #gastroparesis #skincare #naturalskincare #organic #beauty #photo #model #modeling #changingthefaceofbeauty #beautywithatube #chronicillness #gp #spoonie #crohnsdisease #alistmodelsandtalent #manikenagency #mmgny #bookme

Having #OCPD, I'm pretty particular about how I track things. When I was discharged from my last hospital admission, I bought a notebook to track my symptoms, log my food & feed intake, and keep track of all other relevant medical information! I've found this super helpful in seeing how each day plays out and what I could have done differently. I also have notes pages for each date that I track what I eat, anything going on that day, and what could have triggered or affected the severity of the symptoms.
.
.
.
#gastroparesis #gp #gastroparesiswarrior #reactivehypoglycemia #hypoglycemia #pots #addisons #addisonsdisease #ptsd #ocpd #borderlinepersonalitydisorder #anxiety #mentalillness #mentalillnessrecovery #chronicillness #chronicillnessawareness #chronicillnesswarrior #chronicillnesswarrior #bulletjournal #symptoms #symptomtracker

Most Popular Instagram Hashtags