2959 posts


When you're still awake at 3.30 am and you went to bed at 9 pm... #goingcrazy #insomnia #chronicillness #chronicpain #fibrofighters

Yay. I finished.. I used Marvy markers, Twistables, Staedtler pens, and Gelly Roll metallic pens. So much fun. I had no idea. And perfect for those fibro fog days. #coloring #mandala #somethingnew #spoonies #fibrofighters

Time for myself is reserved for recuperating and overcoming the week of work or even a days work sometimes.
I'm constantly searching for motivation and energy on a regular basis and it's so much harder than people realise.
My symptoms of fibro; •Insonmia •Fatigue •Cramps •Pain (consistently) •Fibro Fog (something that's only getting worse) • Anxiety •IBS •Pins & Needles (min. 4x a day - these are more painful and debilitating than they sound)

Separate to my fibromyalgia, I also have nerve damage in my lower and upper spine and hands which means I shake constantly!
You can not see any of these symptoms but that doesn't mean they are not there and that me and my fellow #fibrofighters are not suffering.
Be empathetic and lend support to those you know.
It is so so hard.
Getting from one day to the next is a battle and we might not complain but we are in pain - that doesn't go away or get easier, it's the first thing you feel in the morning....stiffness in my legs and arms - pain in my back and legs but with #fibromyalgia you have to have a strong mind and soul to power through this initial welcome to the day ahead because giving up isn't a option.
#MindOverMatter is crucial just to get out of bed.
I'm writing this because people often say to me "well you don't look ill" or "how bad can it be if you're working still" and sometimes even "I've never heard of it, if it's that bad more people would know"
This is NOT the case - just because you haven't heard of fibro doesn't mean it doesn't exist and just because you can't see it doesn't mean it's not there.
In regards to my shakes - people say to me "Are you on a comedown" ?!?!?! NO I am not! And this is such an insulting assumption to make so don't be those people...please

If you could see fibro it would look something like picture 2 and only if it did would some people give their time and attention.
Don't be naive, be aware!
#fibromyalgia ☠️

This is one is for our #FibroFighters, who know the beauty of strength and pain more than anyone else. ❤️❤️ Sending you support and love from the #FibroAidFam. ❤️
#fibromyalgiasucks #fibroaid #fibrofree #fibrosucks #fibromyalagia #fibromyalgialife #fibroaid #fibrowarrior #fibrowarrioirs

@maya_renae "My name is Maya, I'm 30 years old and live in Atlanta, GA. I was diagnosed with Fibromyalgia in April 2016, but have had symptoms for several years. Through the pain and fatigue , I still try my best to stay active and I keep myself around good positive people. My twin sister and husband are a huge support! Sometimes I smile to keep from crying, but my faith and family help me through the tough times. Keep pushing #FibroFighters ✌🏾️#Fibromyalgia #FibroWarrior #FibroAwareness #Chronicpain"

This has been a typical conversation for me for years. It may be the one day I've put on makeup and done my hair and people will say they are glad I'm better now.
They didn't see me go back to bed after my shower to rest, take pain killers before attempting to blow dry my hair with painful arms, see me go back to bed again for another rest, then tackle putting on surgical stockings and arthritis cream, another rest, then do my make up, another rest, have breakfast, another rest, get dressed, another rest, leave the house and sit exhausted in the car.
They just see me smiling when I get there because I'm so happy to see them, I've been lonely to see them.
So they assume I'm not that sick after all... whereas I'm fighting to get quality of life too.
Trust me Fibro and chronic fatigue are trying to suck me dry.

#fibromyalgia #CFS #chronic #fibromyalgiaawareness #sick
#spoonie #invisibleillness #chronicillnesses #dontgiveup #support #disability #spoons #positivethinking #fibrofighters

Today was the #hbfrunforareason I had an amazing day today, and although I'm thoroughly exhausted I wouldn't change anything. I clocked at 8 mins faster than last year, which I am super proud of. Thank you to everyone who supported me, with major thanks to Joe who ran with me this year. It is amazing to have such a supportive friend.

I will be back next year to do this crazy thing all over again❤️
#fibromyalgia #fibromyalgiaawareness #fibrofighters #hbfrun2017


Why Self Empowerment is so important for sufferers of Chronic Pain & Fibromyalgia

Although currently there is no cure for Fibromyalgia, it is important to know that if we can try and approach our condition with healing thoughts, this can help us cultivate a more positive attitude and a better chance of seeing improvements. We can feel empowered to know that we have the ability to affect our own health by making decisions which are good for us. This means working to establish what activities and what foods have a positive impact on our health and then banishing those that encourage flares and make us feel unwell.

Despite the aches, pains and chronic fatigue of your Fibromyalgia, what is the one thing guaranteed to make you smile through the tough times? For me, it is my best friend & super pup Yeshi 😊

Ok so my first cup of beef bone broth. An acquired taste I think and the greasy first taste was a bit off putting but going to persevere as the health benefits are supposed to be fab.

My first attempt at Bone Broth.

My plan is to drink a cup a day as it is meant to be a great anti-inflammatory, fab for joints and fantastic for the immune system.
Anybody else out there take Bone Broth and what benefits have you gotten as a result?
Also any tips for cooking? I am planning on doing 24 hours in the slow cooker.

Who gets affected by the stormy weather? Weather warning in the UK for tonight and I am feeling dreadful already. I always know when they are about to hit 😔

My BF & I joke that I'm just like "sleepy" the dwarf lol I'm always 😴 but this morning was one of those days were I just couldn't open my eyes and my body was not helping so I kept sleeping after a total of 12 hrs of sleep I can finally wake up! #fibromyalgia #fibromyalgiaawareness #fibrolife #fibroflare #fibrosucks #endometriosis #endowarrior #migrainessuck #migrainelife #migraineawareness #endometriosisawarenessmonth #fibrofighters #fibrofighter_

När kroppen är så kass att jag knappt kom upp i sadeln trots pall. Att händerna värker så jag snart gnager av dom 😣😣 Men där uppe på hennes rygg känns allt så lätt, plötslig så rörlig. Hon tar mig ut i skog och mark när min kropp egentligen bara vill ligga i soffan. Men oj så bra man mår efter! Vad skulle jag gjort utan min Vaka?! ❤
#vakafraakranesi #islandshäst #icelandichorse #bästa #underbarahäst #vadhadejaggjortutandig #händersomvärker #fibrofighters

Wij gingen nog even een ijsje eten in de stad 😊 #zaterdag #weekend #ijsje

Most Popular Instagram Hashtags