What a surreal emotional rollercoaster these past 3+ months have been. If you've been following me for a while now you'll know back in March I posted about my echocardiogram showing increased gradient and last month how I had to have more tests, the few days away abroad helped me so much to escape.
It's been hard going and tiring going back and forth to Liverpool hoping every time it would be my last and waiting for results has been mentally and physically draining. I've had 11 hospital appointments, echocardiogram, 24 hour ECG monitor, 3 ECGs, MRI scan, chest x-Ray, Transoesphageal procedure (TOE), blood tests, blood cultures, 24 hour urine samples and a CPEX test.
It's been a yo-yo ride with being told I may or may not need second open heart surgery 3 and a half years after my first when the average is 10 years.
The good news is my bloods and urine tests have come back normal so it's not an endocrine problem.
My TOE procedure has shown a mild Posthetic Patient Mismatch Valve and My aorta has grown to 4.5cm (3.3cm last year) my CPEX test has shown limitations and my heart rate being too high while doing exercise and over exerting
I am being referred for cardiac rehabilitation to see if this will show any signs of improvement, my consultant is giving it 6 weeks max to see if its showing signs of working, if there is no signs of improvements or worse case i become more run down that will be the final straw and I will referred to St. Bartholomews in London where my consultant has moved and I will under go a mechanical valve replacement (metal) and graft conduit (replacement of the aorta)
Let's see if these cardiac rehabilitation sessions improve my heart and daily lifestyle
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