I feel like Evanna can never catch a break. Just a few days ago, our "problem list" was slowly starting to shrink and I could envision home, but now it feels like a mile long given the last 24 hours. I rarely get a phone call from the hospital, but last night around 2am we got one. So what's going on? Well, Evanna has a few infections brewing again, and it's from multiple places. First is from a urine culture that they did in Edmonton before we left came back positive. Secondly, and MUCH more concerning is that ulcer/hole at the top of her sternotomy scar and under her trach. Last night the intentivist put a q-tip in it, and it went quite deep. They're worried about it infecting the conduit in her heart which would be just devastating (seriously I can't convey how bad it would be if Evanna's conduit in her heart got infected). They're consulting radiology to see if they should do an ultrasound or CT to check exactly how deep that "hole" is, and we're praying it's not close to her conduit.
Last night Evanna continued to vomit a lot, so they turned off feeds completely. They've restarted them at an very low volume on a continuous rate this afternoon, and we're hoping to do a few small increased throughout the day as tolerated, and hopefully Evanna can keep everything down.
Finally, Evanna is on incredibly high ventilator settings, so much so, that they brought up that if they go any higher, they may have to flip her back over to the hospital vent. They're not rushing into anything, but we will definitely be consulting with Pulmonology today to get their opinion. He CO2 levels are pretty high right now, so between that and her "hole", Nick and I are pretty stressed at the moment. ✖✖PRAYERS PLEASE✖✖ Thank you.
PICU Day 268 || 30.06.2015