I have a very contentious relationship with the date March 1st. On March 1, 2005, at 19 years old & after years of battling severe chronic pelvic pain caused at first by widespread, Stage IV (severe) endometriosis, & then second by scar tissue adhesions formed after the MANY surgeries I’d had to diagnose & treat my endo, I made a decision that, even 13 years later, breaks my heart wide open—to have a complete hysterectomy. That decision in itself isn’t what breaks my heart. What really upsets me is that my story is SO common. According to @endofound ONE IN TEN American women suffer from endometriosis, and many go undiagnosed. They also estimate that approximately 176 MILLION WOMEN WORLDWIDE are affected by this disease—a disease for which there is NO cure & no definitive cause.
March 1st is also the first day of #nationalendometriosisawarenessmonth So, throughout the month of March, I’ll be using my social media to disseminate as much information as I can, including articles, new advances in research, and testimonials of women and their experience with this horrible disease (side note: if you or anyone you know would like to share your story, please feel free to message me here). And a very special thank-you to @kaitlinlewiskemp who sent me the photo attached to this post—this particular March 1st was a lot tougher than usual, & this quote helped me remember just how strong I really am 💛 #iamthestorm #endowarriorsofinstagram