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#ehlers

MOST RECENT

#Repost @26blakewheeler
The Jets held their inaugural #UglySuit road trip!
Who takes home “best-dressed” honours?
#Perreault? #Ehlers? #Little? #Scheifele?

#Winnipeg #Jets #NHLDiscussion

A fire and a glass of @ehlersestate Bring it Friday night! #ehlers

Quick Update:
Had on the spot #Biopsy. Won’t know until March 16th the results. Also having an ultrasound done on this day.
For the record: I screamed during the procedure and the pain was one of the worst in my life. But @venombdp was my rock! I momentarily passed out, when getting up to go to the bathroom. Thank God, he was there to assist.
Pain at my surgical site, worsening when eating. Not a fun day, but I did what was necessary, because I’m #Zebrastrong! 🦓
#ehlersdanlossyndrome #EDS #ehlers #dysautonomia #spoonie #spoonieforlife #chronicpain #chronicillness #chronicfatigue #earlymenopause #prematureovarianfailure #menopause #dysautonomiaawarness #invisibledisability #zebra #zebrastrong #zebrasnap #blackandwhitephotography #photographer #mastcells #mcad #gynecology

#BeachVolley - World Tour 3* Kish Island

@alexranghieri e @marcocaminati92 raggiungono i QUARTI DI FINALE!

La coppia azzurra ha battuto 2-1 i tedeschi #Ehlers e #Schümann (21-17; 17-21; 15-6) e si ritrova così tra le migliori 8 coppie presenti al torneo iraniano. Quarti di finale che si giocheranno alle ore 13:30 italiane, con Alex e Marco che affronteranno la Polonia di #Prudel e #Szalankiewicz. Forza Azzurri! 💙

#BeachWorldTour 🏐
#KishIsland 🇮🇷
#beabeacher 🏆
#EA7 🇮🇹

check our website:www.vipjerseysstores.com, sell all kinds of NFL,MLB,NHL,NBA Jerseys,price $20-45,50% big discount #happykid #toomuchsugar #ehlers #mnwild #mondays #mondaygotmelike #mondayssuck

This is my seven-year-old zebra. And even though she does not know what lies ahead of her, I see these pictures and it makes my heart ache. She is just a child and I'm trying to make her understand how she cannot be doing these things with her body though her body allows her to. They might not hurt her now or all the time but eventually something's bound to happen. She does suffer from joint pain but she cannot comprehend why it's happening and that these party tricks definitely make things worse.#EDS #ehlers-danlos syndrome #partytricks#joints#hypermobility #flexible#zebrastrong #dazzler #gumbygirl

Scheifele is @nhl 3rd Star Of The Week! @mscheif Since returning from a 16-game absence, Mark Scheifele has looked unstoppable with three goals and four assists in his last five games. Connor Hellebuyck is also on fire right now with 31 wins and 5 shut-outs 🔥🔥 (Follow @wpgjetsmemes for more content like this)
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GO JETS GO!! . .
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#winnipegjets #jetshockey #winnipeg #gojetsgo #nhljets #scheifele #patriklaine #hellebuyck #wpgjets #nhlmemes #hockeymemes #oc #nhledits #hockeyedits #dance #memes #204 #pegcity #ehlers #byfuglien

Hey everyone! It's been a very long time that I haven't written or posting anything but I'm having a few very bad months... The new year started very bad and it seems not to stop! I don't know what to do anymore... I wanna do so many things but I have no energy and courage at all! And I hate being sick so much... I'm struggling with my life for the moment and I'm feeling lost!
I hope you are feeling ok and that life is smiling at you right now! ❤❤❤ #ilovemydog #mydog #dogs #dogstagram #cute #doglover #Ehlers-Danlos #eds #spoonies #illness #invisible #pain #spooniesupport #connectivetissue #chronicpain

check our website:www.vipjerseysstores.com, sell all kinds of NFL,MLB,NHL,NBA Jerseys,price $20-45,50% big discount #happykid #toomuchsugar #ehlers #mnwild #mondays #mondaygotmelike #mondayssuck

This is the scar from the #folliculitis that was on my left leg. If you look closely, you can see the outline of the bandages, used when it was draining. Yeah, gotta love that EDS skin! Our bodies tell such interesting tales... #ehlers #ehlersdanlossyndrome #EDS #skininfections #reactions #spoonie #spoonieforlife #chronicillness #chronicpain #chronicfatigue #zebra #zebrastrong #zebrasnap #invisibledisease #invisibledisability #mastcells #mcad #mcas #dysautonomia

This is my left breast,that I had examined on Friday, as the infections are recurring. I also was a lucky (sarcasm) recipient of an X-ray on my right hand shortly after. In the webbing between my thumb & pointer finger it’s swollen, and sore if pushed on/squeezed in the crease. I suffered a partial fall out of my bed, approx a month ago. Yes, I have a bedrail but it was of no use to me, in the position I slipped. I was getting out of bed, for what I don’t recall and I started to slide off the bed, and my only means of not landing on the floor, was to grab the bedpost, which is why I got injured. Anyway, I found out that I now have Folliculitis. Which I did not have before my gallbladder surgery, but I digress. The Doctor informed me it’s because of my weight. Which is odd as I was heavier before and never had it. I researched it and unless I am missing something, I have not found ANY concrete evidence that weight is to blame. Now, I am not denying that being fat, increases my chances of these issues but I have read of several accounts where the sufferer was thin, normal weight or underweight. I don’t wear tight clothing either. The usual recommendation is to use Hibiclens wash (chlorhexidine) but I’m allergic to bleach. I’m also sensitive to Clindamyacin gel and tend to break out, more when it is used. The oral version landed me in the ER years ago! My husband picked me up some Dr. Bronner’s Castile Tea Tree soap. I’m hoping this will help! I just changed the bandage a few minutes ago, and it’s still draining but also healing. I will post the one that recently healed on my left leg. It left an interesting scar. #skinsensitivity #folliculitis #ehlersdanlossyndrome #ehlers #EDS #multiplechemicalsensitivity #zebra #zebrastrong #spoonie #chronicillness #chronicfatigue #chronicpain #invisibledisability #invisibledisease #skinreactions #connectivetissue #infections #compromisedimmunesystem #stretchmarks #spoonieforlife #dysautonomia

So, for the last 2 days, I have been completely bedridden due to a severe migraine, vomiting and feeling like poop! Just like my usual episodes/flares, I couldn’t even keep sips of water down. I kept throwing up between every 15 minutes to half hour. It was horrid! What really shook me, was when I was able to keep down a SIP of iced water, this happened! Does anyone have any clue on what is going on? I wanted to see Dr. Castells at Brigham’s but I don’t meet her prerequisite criteria! I’m actually getting kind of scared. As these rashes/reactions are happening regardless of what I eat, don’t eat, drink or don’t drink! Help?!
#ehlersdanlossyndrome #eds #ehlers #hypermobility #mastcells #mcad #mcas #reactions #hives #atwarwithmyskin #spoonie #spoonieforlife #chronicillness #chronicfatigue #chronicpain #zebra #zebrastrong #zebrasnap #invisibleillness #helpme

Disclaimer: I did not take this picture, it’s from a free image website. Target Buyers Beware!
So, fellow #Zebras thought you should be aware of an incident that happened at #Target. As most of you know I’m not able to shop in physical stores, due to my #multiplechemicalsensitivity. So, my amazing husband @venombdp has to do it for me. Well, he went to a Target store tonight to purchase 2 #Futuro wrists braces. Due to my #ehlersdanlossyndrome #Hypermobility condition, I easily sprain, strain, dislocate or sublux my joints. I need them for each wrist (left & right). My husband asked Target to price match the price listed on THEIR OWN site (Target.com) A Manager was called and they agreed, but only for 1! Apparently, they reserve the right to refuse to price match for multiple items. I understand if I was buying DVDs or something, but a medically necessary brace? Needless to say, my husband tried to explain about my being disabled and how I needed these braces. The Manager refused to honor the request. So, I physically called the Target Customer Service number and talked to a rep. He confirmed it IS store policy to limit multiple items, but that it’s up to the individual store to decide whether or not to honor a request, and that she COULD have allowed my husband to purchase 2, but that it’s her right to refuse. Heartless much? I could have ordered online through free store pickup, but I didn’t even think of this option until right now. Nor did the unsympathetic Manager suggest this option. Now, looking back I am even more disgusted that I have to go through such trouble, just to purchase 2 wrist braces. I have to ask myself should I take my business elsewhere or continue to support an organization that has Managers with no heart? #spoonie #zebrastrong #chronicillness #invisibledisability #spoonieforlife #chronicpain #chronicfatigue #ehlers #connectivetissue #ethicallydisgusted #wheresthelove #storemanagershouldbeashamed #whatifitwasyourlovedoneinneed #flexibility #zebrasnap

Been to the doctors this morning for my knee, and been referred to a&e for an X-ray, possible ligament damage. Great!!! #eds #edsproblems #edsprobs #ehlersdanlos #ehlers #danlos #pain #hospital #difficulty #jointpain #edsfriends #edswarrior

I put some faces to the names #winnipegjets #byfuglien #ehlers #perreault #schieffle #hellebuyck and others I’ve now forgotten. I got the important ones right?

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