#ehlers

MOST RECENT

Meet Bowen and Jayden. They are some amazing kids that share Ehlers-Danlos syndrome. That didn’t slow them down this morning. Jayden made a great shot and bagged his first deer. #Ehlers-Danlos syndrome #bepositive #begreatful #passiton

#invisibleillness affects everyday and every second of my life. I have #Mitochondrial Disease, #Ehlers Danlos Syndrome, endometriosis, and many many many comorbid Disease that go along with them. Unfortunately too long to list. Since I was born with these diseases I am mainly used to the roller coaster ride that #chronic illness takes you through in life. That doesn’t mean I have my bad days and get fed up with my situation but it makes my good days feel like I can conquer anything (balance can be hard for me 🤣) I hope to anyone fighting any battle that you allow yourself to feel down and like things are unfair but to remember your goals in life and to try and fight beyond your circumstances. I know this varies in capabilitiy from person to person but just remember even having these illnesses is like a part time job you are still YOU!! ❤️
#invisibleillnessweek
________________________________________________________#believeinyourself#justlive#mitochondrialdiease#ehlersdanlossyndrome#jtube#gtube#port#chronicillnesswarrior#mentalhealthmatters#model#chronicloveclub#modeling#headshot#photography#blonde#blueyes#fashion#wlyg#followyourdreams#love#fun#travel##nyclife##vocalist#singersongwriter

The Jets were up 4-1 tonight and even managed to hang on to the lead all the way until the end of the game! Awesome win tonight, and my NHL19 game sim was somewhat accurate as Bryan Little was named first star!





#unofficialwinnipegjets #jetsvscanucks #nhljets #nhl #vancouvercanucks #nhldiscussion #winnipegjets #winnipeg #gojetsgo #laine #ehlers #little #canucks #boeser #horvat #nhl19 #byfuglien

Here’s tonight’s #winnipegjetsgamesim. A nice big 5-2 win for the Jets over the Canucks with Little scoring twice and being a +3. I four-one would love to see the Jets bounce back tonight after blowing a 3 goal lead to the Oilers last game. With Big Buff back in the line up will the Jets come out with the 2 points tonight?





#unofficialwinnipegjets #jetsvscanucks #nhljets #nhl #vancouvercanucks #nhldiscussion #winnipegjets #winnipeg #gojetsgo #laine #ehlers #little #canucks #boeser #horvat #nhl19 #byfuglien

😲El profesor Claude Hamonet, de la Facultad de Medicina de Créteil, de la Universidad Paris-Est-Créteil, y autor de numerosas publicaciones científicas sobre el síndrome de Ehlers-Danlos, indica algunos signos característicos que permiten diagnosticar el síndrome. Entre estos síntomas:⠀

– Dolor en las articulaciones y alrededor de las articulaciones.⠀
– Sentirse cansado en cuanto te levantas.⠀
– Trastornos del control de movimientos voluntarios.⠀
– Inestabilidad articular responsable de los esguinces.⠀
– Adelgazamiento y palidez de la piel mostrando las venas.⠀
– Hipermovilidad de las articulaciones.⠀
– Reflujo gastroesofágico y / o vómitos.⠀
– Presencia de moretones o manchas rojas inexplicables.⠀
– Hipersensorialidad, exacerbación de los sentidos.⠀

El equipo médico de la consulta de Ehlers-Danlos dirigida por el profesor Hamonet, indica que "la falta de conocimiento de los signos del síndrome conduce (...), principalmente debido al dolor, a otras orientaciones de diagnóstico, más conocidas en reumatología como la espondiloartritis anquilosante, artritis reumatoide, pira de Sjogren, osteoartritis.⠀

Actualmente, los signos utilizados para establecer el diagnóstico de fibromialgia son una copia auténtica de los del síndrome de Ehlers-Danlos. ⠀

¡WOW…La salud es demasiado compleja! 😳⠀

Les dejo este material que encontré como “cultura general” y para seguir consultado con nuestros médicos para identificar nuestra verdadera condición…⠀

Les dejo información complementaria aquí: https://fibromialgianoticias.com/diagnosticos-a-considerar-en-fibromialgia/⠀

¡Sigamos investigando!🙅🏼⠀
...⠀
#fibromyalgiawarrior #fibromyalgiaawarness #ayudaqueayuda #Ehlers-Danlos #EhlersDanlos #ClaudeHamonet #FibroNews #CulturaGeneral #InvestigandoAndo

DysHAUNTonomia, the Halloween DisloKate, is now on the blog!
Also, I think I’m going to join in on the pause of talking about Chronic Illness this week ☺️
I’ve got a lot going on this week, and it would be fun to show some other areas of my life that you might not know as much about. (My birthday may or may not be this week 😱)
What is one thing that you are going to focus on this week? Tell me in the comments ⬇️



#ehlersdanlossyndrome #chronicillness #spoonie #ehlersdanlos #ehlers #invisibleillness #eds #zebrastrong #chronicpain #chronicallyill #dysautonomia #hypermobility #pots #spoonielife #pain #chronicillnesswarrior #potssyndrome #butyoudontlooksick #mentalhealth #disability #spoonieproblems #gastroparesis #dysautonomiaawareness #wegotdys #spooniestrong #dysautonomiaawarenessmonth #potsie #dislokatewarrior

What do you think is the best stick Bauer has ever made? Comment below 👇🏻👇🏻


Personally
#3 - Original XXX Lite
#2 - 1X Lite
#1 - Original APX (2013)

One95 gets an honorable mention

#prostockhockey #prostock #bauer #bauerhockey #hockey #nhl #nhljets #winnipegjets #ehlers #laine

Golden October 🍁🍂#anzeige

....
That monent when you don’t have a restricted lingual #frenulum 👅
In its absence, the tongue can basically travel all the way back to the #pharynx!! It was found to be associated with classical and #hypermobility types of #Ehlers-Danlos syndrome.
#medical#surgery#cardiology#nursery#nurses#nurse#medical#medicine#phisician#قلب#پزشکی#پرستاری#کاردیولوژی#جراحی

#TBT ... When your husband and friends conspire to deliver #CountdownTo40.
----------
Last Nov 11 was the kickoff to the one year #CountdownTo40. Today that countdown is down to #OneMonthTo40!!! ----------
Let the celebration begin (or is it continue???)
----------
#MyHubbyInduglesMyWhims #FriendsWhoAreFamily #SignsAreBetterThanDiamonds #AskForBradleyWard #Ehlers #Insignia @saldhanji @ehlersestate @josephphelps

Compression pants!
Did you know that compression pants not only aid those with Dysautonomia, but also people with EDS?
I love my compression pants! I use them for hEDS and the OH form of Dysautonomia. Since getting them, I have noticed a lower number of subluxations, but also a higher blood pressure. I don’t run into walls anymore, either 😅
November’s #DisloKate Comic Strip, titled Spatial Awareness, will discuss this topic! Stay tuned ♥️
Comment below and tell me if you wear compression pants ⬇️



#ehlersdanlossyndrome #ehlersdanlos #chronicpain #spoonie #chronicillness #ehlers #invisibleillness #hypermobility #dysautonomia #pain #zebrastrong #disability #potssyndrome #gastroparesis #butyoudontlooksick #raredisease #spoonielife #mentalhealth #fatigue #chronicallyill #dysautonomiaawareness #zebra #spoonieproblems #dysautonomiaawarenessmonth #dysautonomiasucks #chronicillnesswarrior #wegotdys

These two guys are still fighting it out. Who is the winner? Check my IG story to vote. #gojetsgo #laserfocusedwideangleview #laserfocusedwideangle

Have you had a chance to purchase the new Libby Lu Guru merchandise yet? The link is in my bio!
If you have Dysautonomia, you know these things to be true:
1) Salt is basically a food group
2) Compression socks make everything better
3) You carry water with you EVERYWHERE
4) Fainting happens, and it’s normal (mostly)
5) “Is it hot in here?” is a normal phrase
For the entire month of October, if you purchase something from the Libby Lu Guru shop and post a photo of yourself with it, you’ll get a shoutout!
Comment below and tell me what you plan to purchase ⬇️



#ehlersdanlossyndrome #ehlersdanlos #chronicpain #spoonie #chronicillness #ehlers #invisibleillness #hypermobility #dysautonomia #pain #zebrastrong #disability #potssyndrome #gastroparesis #butyoudontlooksick #raredisease #spoonielife #mentalhealth #fatigue #chronicallyill #dysautonomiaawareness #zebra #spoonieproblems #dysautonomiaawarenessmonth #dysautonomiasucks #chronicillnesswarrior #wegotdys #dislokatewarrior

Looks like we’re going to be seeing the Jets going back to experimenting with Laine, Ehlers & Little together again tonight! Although the two skilled wingers are not known to have the best chemistry with Little, I love the line and see lots of potential! Are you glad to see the trio back together? Projected starting lineup is Connor-Scheifele-Wheeler and Morrissey-Trouba on the back end with the last line of D tonight, Connor Hellebuyck.





#unofficialwinnipegjets #jetsvskings #nhljets #nhl #lakings #nhldiscussion #winnipegjets #winnipeg #gojetsgo #laine #ehlers #little #hellebuyck

The Alchemists struggled, and failed, for generations trying to turn lead to gold. But they discovered chemistry. Two years now of coding. Maybe I’m trying to find signals where there is only chaotic noise. But all this math, all this fresh, new learning. My desks are again as busy as they were back in the days of C, Clipper, Unix and the wild, open, possibility of it all... #codeinglife #easyLanguage #algorithmictrading #tradestation @joanie.loves.chachi #volume #ehlers #missoula

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