#ehlers

MOST RECENT

I’m Back and im starting it off with Top 25 players .
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#nhl #RIPRayEmery #austonmatthews #hockey #sports #top25 #ehlers #likethispost

1000 followers! Thank you all so much! Okay, you have 1 week to enter. 4 people will win. Next Friday, shoutouts start, and on the following Friday, I will release the promo for a new thing I’m running on my blog. This photo is your only hint. Here are the rules:
- Comment below why you want the shoutout
- Tag friends in the comments; every 3 friends is an extra entry. Every friend that follows (and continues to follow through the week) gives you 2 extra entries
- If this account gets to 1500 followers by next Friday, everyone who entered will get 1 shoutout!
- You MUST follow this account to be entered!
Comment below for your chance to win ⬇️⬇️⬇️



#medicalzebra #shoutout #ehlersdanlos #followback #comment #chronicillness #shoutouts #ehlers #chronicpain #spoonielife #disability #edsawareness #invisibleillness #chronicfatigue #zebrastrong #ehlersdanlosawareness #fragilebutunbreakable #dysautonomia #pain #health #followergiveaway #womenoftheword #sherreadstruth #artistsoninstagram

Monique and Ian’s wedding💍#ehlers#bridesmaids#bride#makingmemories🙌🏻

En blekt flagga och halvvissna blommor får symbolisera hur jag känner mig just nu. Ibland försöker man för mycket. Måste lära mig att ta min rekreation i små lätta steg med mycket vila rmellanåt. Så imorgon kanske jag är bättre igen. #vissen #inpain #oneofthosenights #juggijaur #jokkmokk #eds #fuckeds #edsawarness #ehlersdanlos #ehlersdanlosawareness #ehlersdanlossyndrome #ehlers #geraldrigupp #nevergivingup

Genetic testing, something every EDS'er has needed at one, or multiple times, in their life!
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In a time where we have the ability to read a genetic report and tweak habits to optimize our quality of life, why not?
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$200 can seem like a lot to pay for something that should be covered by our "health care" providers, but since it is not, prime day has it half for the next 24 hours or so, affiliate link in bio. You cannot get the prime day deal unless you look it up in your amazon app, and purchase direct, I just wanted to link in case someone had a hard time finding it.💚
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While the is plenty of information I'm not necessarily interested in, it, I am very interested in the "40+ carrier status reports" that go over everything from Sjörgen-Larsson syndrome, familial dystautonomia, fructose intolerance and cystic fibrosis!! All common comorbidities, and/or issues associated with #Ehlers -Danlossyndrome. Swipe through to see the other genetic health risk factors, and wellness reports that come included in addition to an ancestry report.
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Has anyone has this panel performed, or have you been waiting for a deal to have this done? 🔬
Do you feel it has benefited your health care, self care and or improved your quality of life in any way? Share below --- 👇🏽👇🏽👇🏽

Vet ni, jag har ont. EDS är inte att leka med. Jag har kring femton olika diagnoser och alla utom en är relaterade till Ehlers. Ibland har jag svårt att andas men här andas jag lättare. Ibland har jag så ont att jag inte vet vart jag ska ta vägen men här står jag ut med smärtan bättre. Ibland mår jag väldigt illa men här har jag inte kräkts en enda gång. Listan kan göras lång. Men idag är jag tacksam. Tacksam över livet. Över allting som jag har upplevt. Tacksam över min underbara dotter och tacksam för stunder som dessa. Jag kanske ser frisk och pigg ut men min energi är ofta så gott som obefintlig men här är den inställt på lite högre frekvens. Och jag tänker aldrig ge upp. Jag tänker fortsätta med att försöka öka volymen på min inre kraft och med hjälp av den klara av även det svåra. #yoga #mindfullness #roisinnet #roisjälen #nevergivingup #geraldrigupp #juggijaursjön #jokkmokk #norrbotten #sweden #lappland #sapmi #sverige #eds #edsawarness #ehlersdanlos #ehlersdanlosawareness #ehlers #ehlersdanlossyndrome #fuckeds #edsfighter #fighter #kämpe #älskalivet #life #lovelife

No me alcanzan las palabras para decirles lo increíblemente feliz que me siento por tener a 1001 personas que siguen mis locuras y achaques youtuberos 😂😂😂
Todo empezó como una forma de lidiar con todo lo que el #SED me había traido y con el sueño de poder ayudar a otros a transitar de mejor manera por ésta enfermedad. Sin embargo, nunca me imaginé poder llegar a tantas personas y mucho menos, tener la oportunidad de conocer a gente tan increíble como ustedes.
1001 suscriptores se dice fácil pero créanme que para poder llegar a tantas personas hace falta muchísimo trabajo, esfuerzo y dedicación; algo que no es fácil de lograr cuando se tiene #ehlers y #disautonomía. Así que para esta cebrita mexicana, es un verdadero orgullo haber logrado esto. ¡GRACIAS POR SU APOYO Y CARIÑO! Los quiero con cada contractura de mi ser 😂💟

U can make art out of just anything. And with this I want to say that my right foot is finally starting to mend after years of trouble. My left foot is an a good way but not quit there yet. But I truley believe that the water in Juggijaur lake has an healing effect on me. #fuckeds #edsfighter #edsawarness #eds #ehlersdanlos #ehlersdanlossyndrome #ehlers #ehlersdanlosawareness #nevergivingup #kämpe #fighter #geraldrigupp

If you're looking for a suggestion on where to go wine tasting in the Napa Valley, we'd like to suggest Ehlers Estate. You can follow the link in our Bio to learn more about the winery, and our personal favorites. .
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#napa #ehlers #ehlersestate #napavalley #wine #winery #winetasting #petitverdot

Ology Essentials is a proud sponsor of the Ehler’s Danlo’s Society - a global community of patients, caregivers, health care professionals and supporters dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes. To learn more about why we are avid supporters of this community - check out this blog by Kayla Fioravanti 🌿 link in bio! ⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀
#fragilebutunbreakable #EDSawareness ⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀ ⠀ ⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀ ⠀ ⠀ ⠀⠀⠀ ⠀ 
#eds #ehlersdanlossyndrome #hypermobilitysyndrome #hypermobility #ehlersdanlos #ehlers #holistichealing #holistichealth #naturalhealthcare #naturalhealing #fridayvibes #cbdsaves #cbdheals ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀ ⠀⠀⠀⠀ ⠀⠀⠀⠀

Throwback Thursday strikes again with 2009 Cabernet Franc! Come by and do a flight of all 3 for $25 #tbt #cabfranc #larkmeadvineyards #ehlers #robertsinskeyvineyards #sommellier #sommlife #wineflights #winecountrylife #napavalley #calistoga #visitcalistoga #veraison

So I managed to break the base of my fifth metacarpal and hyper-extend my 4th and 5th fingers. By catching a football. Thank you EDS. At least im not in a cast! #Ehlers-Danlos #me #eds #ehlersdanlossyndrome #hyperextension #brokenbones #hand

New wheels came in today! #ehlers #70mm #cruisers #longboarding

all kinds of cheap jerseys on sale,visit our new website:www.jspinggood.com #happykid #toomuchsugar #ehlers

I love sparklers 💥
When I was a kid, I loved watching until they fizzled out. Then, my parents would always have us put the hot end of the sparkler into a cup of water, and it would sizzle. I loved that noise. I don’t really know why.
I think now, part of the reason I love sparklers is because they make me feel brave. With anxiety, I feel like I don’t really take risks in life. Maybe that’s true, maybe it’s not. But for whatever reason, holding this sparking bit of fire makes me feel brave. As I watch the fire burn, I can feel the hot specks landing on my hands and feet. I sometimes jump out of the way, or try to hold the sparkler as far away from me as possible, but I still hold it. In a way, I guess it’s a freedom that I don’t often feel.
QOTD (Question of the Day): What makes you feel brave? Tell me in the comments!
AOTD (Answer of the Day): Sparklers, horses, my blog/writing, Jesus, my EDS, art



#medicalzebra #eds #chronicillness #ehlersdanlos #brave #bravery #ehlers #chronicpain #spoonie #zebrastrong #courage #invisibleillness #love #spoonielife #heds #gastroparesis #edsawareness #dysautonomia #mentalhealth #hypermobility #chronicpainwarrior #chronicallyill #autoimmunedisease #strength #christianblogger #faith #christian #faithblog #gryffindor

THIS is in the book 'Comet's Tale' that I'm presently reading! It's a book about a rescued Greyhound. Little did I know, when I chose this memoir, that the author suffers from chronic pain. I have always said, the books that we choose to read, are put in our hands for a reason. Divine intervention? Spiritual alignment? Definitely!! The author understands how chronic pain sufferers feel. I really connect with how he discusses the 'progression' of chronic illness. I'm about halfway through this book, and so far I love it. And I highly recommend it.

#chronicpain #chronicillness #invisibleillnessadvocate #thestruggleisreal #dontjudge #raredisorders #butyoudontlooksick #physicalpain #ehlers #danlos #ehlersdanlossyndrome #fibromyalgia #fibrowarrior #thoracicoutletsyndrome #books #bookstagram #lovestoread #spoonielife #painawareness #progressiveillness #youdontgetituntilyougetit #book #memoir

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Often times when we relate symptoms and events to our caregivers, we may be referring to a pain scale they can differ slightly or greatly from your caregivers' understanding. 📖
This presents difficulties interpreting the severity of symptoms, and unnecessary hurdles when implementing effective therapies. 📖
Circle Where it Hurts takes the guess-work out of interpreting your pain with a dedicated Activity Left Scale in each workbook. 📖
By using this scale consistently and presenting it to your caregiver within the context of your workbook can make misinterpretations a thing of the past. This can also cut down time spent 'getting on the same page' which will in turn give you MORE time during appointments to discuss the things you need to!
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Circle Where it Hurts, helping others help you!
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