#edsiii

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Living with chronic pain and invisible illness means flare ups will come. Bad days come and go. I'm fighting to get back to the good days. Thank goodness I know my flare ups are few and I will recover. Ask me how I fight back?
#edsIII #chronicpain #piriformissyndrome #sciatica #fibromyalgiaawareness #fibromyalgia #flareup #fightback #nutrigenomicshelpedme #painrelief #naturalhealing #iwillbeatthis #advocate #advocateforyou

223/365 8.11.18 (novice) smoky eyes, wheelchair and all: hitting the road for the first time in months and months to meet my friends at the @alamocville Xanadu Glow-Along. I thought this scarf said “I want to open a disco with Gene Kelly”. #selfie #homebound #chronicillness #chronicpain #2018project #carla #apictureaday #apictureaday2018 #beyourownheroine #EDS #EDSiii #hypermobility #fibro #fibromyalgia #POTS #spoonielife #spoonie #zebra #zebralife #spooniestrong #zebrastrong #apictureaday2018carla #xanadu

Do you feel trapped inside your body?
Pain, fatigue, exhaustion, brain fog, etc.
Call me for Free Consultation. Escape the prison.
#ChronicPain #chronicillness #invisibledisability #invisibleillness #chronicfatigue #fibromyalgia #edhlersdanlos #edsIII #fightfatigue #fightdisease #dianevich

Message me ☎️📱 Long day touring St. Augustine. Thankfully pain free 1+ year now. Sun, heat and long days aren't holding me back. Ask me how?

220/365 8.8.18 Finally decided upon the quote for the wreath at the beginning of my #readingjournal — “People say I make strange choices, but they’re not strange for me. My sickness is that I’m fascinated by human behavior, by what’s underneath the surface, by the worlds inside people.” —Johnny Depp #quotes #quotestagram #johnnydepp #commonplacebook #reading #cursiveismagic #handwriting #doodles #handlettering #fieldnotes #fieldnotesbrand #homebound #chronicillness #chronicpain #apictureaday2018 #beyourownheroine #EDS #EDSiii #hypermobility #fibro #fibromyalgia #POTS #spoonielife #spoonie #zebra #zebralife #spooniestrong #zebrastrong #apictureaday2018carla

Not been on the ‘gram much lately. I have a lot to say in my head but I struggle to get it written down. Literally.
The sore hands - as I explained on stories seems to be down to me being hypermobile. Turns out what was pretty cool and helpful in terms of flexibility as a child is pretty painful and at times debilitating as an adult.
Officially I was told it was joint hypermobility syndrome. But there seems to be a lot of debate on how connective tissue disorders are named and classified.
Since I’ve been told, most people have congratulated me ‘that’s great’ - I’m not sure why. Presumably because no one really knows what it is- so that means it’s not that bad. Honestly I’m not sure if it’s good or not. Im glad it appears not to be progressive, more of a wax and wane kind of thing. However; the literature is also not overly promising. I don’t believe I have a complete diagnosis yet- seems I meet most of the criteria for Ehlers Danlos III - some rheumatologists classicist JHS JHeds- aka one and the same. Others regard it as a spectrum disorder. It is not just joint pain though. Lots of bits and bobs that have always been wrong or ‘weird’/‘off’/‘Inexplicable’ have suddenly all been explained.
The only problem is- I’m still in a lot of pain only because it’s not commonly diagnosed or an area with mass interest I’m now left again to carve my own path, fight for myself and work out what to do next. I had a bit of time out but now I’m ready to see what I have to do to get over chronic pain, fatigue, digestive issues, etc etc - but mostly the pain!!! Considerations;
I don’t tolerate NSAIDS so I’ve been prescribed a different anti inflammatory drug (not commonly used due to increased risk of heart failure 🤣) to try.
Back to good old amitriptyline possibly
Physio/OT/Lifestyle changes - such as using my phone a LOT less (hence the point of the post)
I’ve been using a paraffin wax bath courtesy of my mum- it relieves pain temporarily - but long enough to get stuff done! It’s @homedics and was on offer on @amazon for £20 so if you have hand or foot pain deffo consider it!
If anyone has any experience of managing with similar cont in comments

Do you want to fight back against your autoimmune disease? Call me https://squareup.com/appointments/book/8CHHPRPVGNZTZ/diane-s-wellness-miami-fl

You can fight back and win. I didn't think it was possible but I did it and succeeded. Ask me how?

#autoimunewarrior #autoimmunedisease #edhlersdanlos #edsIII #leakygut #fibromyalgiaawareness #invisibledisability #invisibleillness #lupus #biohacking #mindfullness #wellness #chronicfatiguesyndrome

183/365 7.2.365 Tracking my daily average heart rate in my #bujo #fieldnotes black cover large edition. (Keep making them, please, @fieldnotesbrand) My Fitbit tracks my heart rate, and then serves up my daily averages in the app. I closely monitor it, because I have POTS; it’s important to know about sudden low and high spikes, as well as brachycardia (resting rate lower than 60). The orange colored-in bars denote days when my average was brachycardiac. #bujotracking #commonplacebook #planner #trackinghealth #homebound #chronicillness #chronicpain #2018project #carla #apictureaday #apictureaday2018 #beyourownheroine #EDS #EDSiii #hypermobility #fibro #fibromyalgia #POTS #spoonielife #spoonie #zebra #zebralife #spooniestrong #zebrastrong #apictureaday2018carla

181/365 6.30.2018 New glasses have arrived, and I am super pleased with them! Thank you, @warbyparker ❣️ Not only did I receive an incredible pair of bifocals (#noshameinmygame) but someone who cannot afford a pair of glasses will now receive one, thanks to my purchase. Love that business model! I can see my phone without taking off my glasses again! Hooray and huzzah! And I feel so pretty. 💞 #selfie #eyeglasses #eyeglassesselfie #warbyparker #payitforward #homebound #chronicillness #chronicpain #2018project #carla #apictureaday #apictureaday2018 #beyourownheroine #EDS #EDSiii #hypermobility #fibro #fibromyalgia #POTS #spoonielife #spoonie #zebra #zebralife #spooniestrong #zebrastrong #apictureaday2018carla

There Might Be Cupcakes Episode 40: Tachy Tacky. URL: http://braintrust.fm/cupcakes/40-tachy-tacky/ & #linkinbio In which I face down the shame that can come from (certain) POTS’ symptoms. #tachycardia #brainfog #cognitivedisorders #dysphasia #dysphasiawarrior #POTS @braintrustfm #chronicillnesspodcast #chronicpainpodcast #spooniepodcast #spooniepodcaster #zebrapodcaster #zebrapodcast #braintrustnetwork #EDS #EDSiii #fibro #fibromyalgia #dysautonomia

Life with #EDS and #POTS and a podcast:
finally ending an unintended hiatus, thinking I got this, take that, health; I gather my materials to finish episode 40’s script, and I am good to go; I drop the landline 📞 on my foot. I call EDS the disease of Everything I Want Is On the Floor, because it is either already there and I can’t get it, or it will be there because I’ll fumble and drop it. EDS being what it is, an injury of the foot becomes an injury if the knee really quickly. Inflammation ahoy! Episode 40 is coming out no matter what. (Am I jinxing myself by typing that? Does anyone have bubble wrap? What a month this has been.) Thanks for the #cardsagainsthumanity meme, @themightysite ❣️#zebrapodcast #podernfamily #spooniepodcast #spooniepodcaster #zebrapodcaster #braintrustnetwork @braintrustfm #podcast #theremightbecupcakes #beyourownheroine #chronicillness #chronicpain #EDSiii

I have lived autoimmune disease, chronic pain and fatigue every day for 39 years. Let me help you identify your symptoms, food trigger and natural treatment options. You will fall in love with taking care of yourself and feeling great again.

Let someone who has lived it and overcome, help you overcome it too.

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