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#edsfighter

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Looking forward to the future.. grad school, living on my own, "big kid" job, & full independence💛

Sunnaas mode ❤ finaly here.... TRØTT sliten å klar før møta. 😴😮😆 #sunnaas #eds #edsfighter #sunnaassykehus

Imma do me
Just started running and if you know me, I've never been a runner. When I started I didn't have feeling in half my foot, now I've only got a few toes that are numb. Went from 15 min mile to 12 in three weeks. I'm falling in love with running. #immadome #thelbbrand #edsfighter #ehlorsdanlossyndrome

Ikke rare greiene enda, men det kommer seg!💪🏼😅 #hjemmetrening #edsfighter #treningsglede #detteklarerjeg

Another month, another doctor's appointment. #eds #ehlersdanlossyndrome #edsproblems #edsfighter #suicidegirls

Ready for my morning yoga! #edsfighter #zebrastrong #yoga #healing

Back and biceps done! 2 sessions today, extreme muscle fatigue due to adrenaline issues but I did it! My gym face is horrendous! I'll smile next time 😊😊. Just remember, progression in the gym is different for everyone, NEVER compare yourself to anyone else ❤️❤️❤️
The meal was for my son who's a young MMA fighter and young dad who follows a high protein high fat low carb diet. Get following him too @kingg_xx !
#grandmotherswholift #girlswholift #edsfighter #proudmmamum#tattooedgrandmother

To end May EDS awareness month, here is an x'ray of my thumb sublexing backwards.
What was once a party trick growing up, now hurts like all f#%k. Try opening a simple jar, or can of drink with a thumb that pops backwards. Its seriously so not fun... 👎😣
#edsfighter #ehlersdanlossyndrome
#eds #edsawareness #dementedfingers

MOST RECENT

I spent the morning with a dear friend doing something I've never done. Songwriting.
What a beautiful Saturday feeling CARE FREE with @richybizz
https://www.youtube.com/watch?v=FYvvEqV2VLI&feature=share

Ehlers-Danlos syndrome (EDS) is the name for a group of rare inherited conditions that affect connective tissue. EDS can be a complicated chronic disease that is both extremely painful and life changing. This pin is to raise awareness of this illness. •Handmade from shrink plastic resin, with a coating of dimensional glitter to add that extra sparkle we all need. • Link in my bio • As someone who suffers from multiple chronic illnesses, I wanted to create pins that would reflect us Spoonies as brave warriors we are. Wear with pride, whatever your illness or disability 💜 💪❤🥄✨
#eds #edsfighter #edsawareness #invisbileillnessawareness #brainfog #spoonie #spooniemagic#pinbadge #badge #lapel #hatpin #patch #lapelpins #patchgame #pingame#lapelpin #pinsofig #lapel #pins #pin #flair#badges #patches #pingamestrong #pinsofig #pincommunity #pinlife #pinoftheday #pinstagram #chronicallydivine

Idag behövs lite gånghjälp för mig. Testade om jag kunde få plats med Puffs bur och den passade perfekt. Nu får jag med mig Puff även om jag har väldigt ont 🐭💕 #ehlersdanloswarrior #edsfighter

Var på Gekås igår, mycket lyckad shopping. Hittade nya skjortor till hösten, yay!
Men som med alla andra äventyr blir jag sliten, så idag är jag helt slut. Orkar knappt att tänka. Därför fick det bli den stora koppen med kaffe. Mums!
#gekås #eds #edsfighter #zebraworrier #höstenärpåväg #kaffe #bigbreak

Looking forward to the future.. grad school, living on my own, "big kid" job, & full independence💛

One of the sweetest boys you'll ever meet by the "root beer" falls. 99 steps down & 99 steps up. #edsfighter #livingwithinvisiblepain #ehlersdanlos #soblessed #littlebrother

I'm really super depressed right now. Every day feels like another bad day. I'm not even sure why #depression is hitting me so hard right now. Maybe it's because I realized I don't really have friends. Not close ones, at least. I feel lost in my own self doubt. I don't know what to do anymore. I also am sick of being cast aside like I'm carrying a contagious disease and the only way anyone can be sure they don't catch it is if they forget about me altogether or use me then chuck me aside. I don't think people understand that I am in a lot of pain, both physically, and mentally, and I am so over trying to hide it. #badday #chronicpain #chronicillness #rareillness #raredisease #broken #upset #needlove #ehlersdanlossyndrome #eds #edsfighter #edsiswinningrightnow...

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