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#donatelife

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It’s DonateLife #ThankYouDay today. To the sixteen American’s whose incredibly gracious gift of tissue donation saved my life, Thank You. To their families and friends, Thank You. And to the people involved in recovering that tissue and getting it to me in Australia, Thank You. I would not be here today without that gift. 
Registering yourself as an organ and tissue donor is a simple act, but it creates a legacy of life that is unimaginable. How can you make sure you’re a donor? 1. Register (link in bio). 2. Let your family and friends know of your decision. #ThankYouDay #DonateLife

Aloha state of mind 🤙🏼🌺 || Spending the night in with my hubby and fur baby planning our honeymoon!!! • Thank you so much from the bottom of our heart for all our friends (old & new) who have contributed to making our marriage full of love and special memories!! Maui here we come!!! • Recommendations and tips welcome ❤️❤️❤️ #Maui #Honeymoon #Marriage #Love #fight2breathe #cysticfibrosis #65roses #unos #organdonor #donatelife #recycletourself #doublelungtransplant #livelifetothefullest

Such a special night celebrating a beautiful girl and her beautiful organization 💜 #HeartsForEmma #DonateLife

Last night me and my donor went somewhere really cool. Thank you @american_heart for having us at the Twin Cities Heart & Stroke Gala! Beyond blessed to be a part of such an amazing organization. #hearttransplantsurvivor

< #notYoga >
World Prematurity Awareness Day <yesterday>
...awareness that every baby is such a precious gift. And life shouldn’t be taken for granted. They don’t all survive. Be grateful for sleepless nights, the sounds of crying, fussy days, spit ups all over, messy diapers, more sleepless nights, nursing them to sleep.
We didn’t get all those things with our son (top pic 24 weeks). I listened to babies cry across the hall from the NICU. I can still vividly feel the pain, when it became clear that he wouldn’t make it to do that. There were lots of sleepless nights and crying—but me, not him, for years and years after he was gone.
And with our daughter (bottom pic, 30 weeks), those nights didn’t include our own bed or home. I was up pumping milk every several hours day and night; walking to the hospital—from a tiny hotel type room that was our “home”for months—for her care times—day and night. And terrified every time a monitor went off. Thankful she’s an amazing 10 year old now. ...So, this isn’t a boo-hoo, poor me post. This is simply a reminder to be grateful for a healthy child who is simply doing all the things a normal baby does. I have no pity when I hear sleepless night stories, sorry. Because I’d give anything to do it (i cant have more)—or have done it with a healthy child at home.
And not only be aware—do something to help, perhaps....donate blood (Of course, not only these premature babies can benefit from that, anyone!). Donate breast milk—I pumped for almost 3 years after our daughter was born (day and night) to send to the National milk bank—not all preemies have mommas there who care—and this milk is like medicine for a preemie. And so many other ways...donate hats, clothes, your time, etc to help these tiny humans who spend their beginning in this world in a hospital.

Feelin’ so fresh & so clean!! The wound from my surgery on my hip is starting to heal up nicely and I got to take a fresh shower this afternoon!!
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Today I will have been in the hospital 24 out of the last 26 days. While I was originally expecting to only be in the hospital for 24 hours after my sinus surgery you have to always expect the unexpected when it comes to transplant life. The final decided discharge date is going to be Tuesday...just in time for Thanksgiving!! I will have finished a full course of two antibiotics & will only be going home on one IV antifungal that I will be on for at least 8 weeks. This will make my home regimen much easier.
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This year I have so much to be thankful for. My loving family who has supported me along this entire transplant journey, my friends who are always by my side, modern medicine & the advancements of new drugs, my doctors and the rest of the medical staff who cares for me at the hospital, my donor Samantha. The list of things I am thankful for could go on forever! Most of all I am just thankful to be alive & to be able to take a deep breath every day! There are always things in life to be thankful for! If you’re going through a rough time, take a moment to think of all of the positive things you have going for you at the moment. Don’t focus on the negatives or the tough things, focus on the good. No matter what, there are always things to smile about! You will find something to smile about!
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What are you thankful for this holiday season? What has made you smile in recent days?
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#pricelessbreaths #doublelungtransplant #lungtransplant #cysticfibrosis #cf #donatelife #recycleyourself #blog #65roses #givelife #cff #cfirl #transplantirl #cfwarrior #cflife #transplantlife #transplantwarrior #organdonation #chronicillness #invisibleillness #avascularnecrosis #kidneyfailure #spoonie #pimpinjoy #choosejoy

#fridayfeeling Wayne Winters and his wife had been waiting for two years to find a kidney donor that could save her from her stage five kidney failure, and Winters became tired of waiting for a miracle. Instead, he took to the streets with a sign reading: “Need Kidney 4 Wife”. Every day, he would walk for miles down the road in hopes that the right person would see his sign and be inspired to donate the life-saving organ. They found a donor!!! 💚 #raiseawareness #organdonation #kidneydisease #donatelife via @fox13now

One of the many horrible symptoms of liver disease is jaundice, which influences uncontrollable skin itching especially at night when it’s time to sleep😣...this was the state of my legs for a good 6+ months prior to my liver transplant.. today and every day I am soo thankful for my donor and their family for consenting to be an organ donor and saving my life! #DonateLife #ThankYouDay 💝🙌🏽🙋🏽‍♀️🌻

MOST RECENT

It's Donatealife #thankyouday today. To the amazing family who donated their loved ones liver and to the awesome team of doctors and nurses who took such great care of me. I am alive today because of them. Here's me getting up for the first time 5 hours after surgery 💪🏽 #donatelife #livertransplant #thankful #9monthsposttransplant

Sorry I’ve been mia again! I’ve been in SF for the past couple days. It’s been fun, we’ve been eating lots of good food and exploring the city. It’s a lot of walking and I have to take lots of breaks but it’s nice to be able to travel. The picture of me above is me today in Muir Woods🌲🌲🌲

I brought my machine with me and all my supplies. It’s super important to make sure I bring all my health care supplies like my blood pressure cuffs, and dialysis supplies.

Update on my shortness of breath: it’s gotten better over the past few days. The first day I was in sf it was difficult to walk normally because I would lose my breath so quickly. I am feeling better though. I think my body needed time to absorb the iron or something🤷🏻‍♀️
Heading home soon after dinner🍗



#donatelife #chronicillness #chronickidneydisease #kidneyfailure #shareyourspare #ckd #sanfrancisco #muirwoods

♻️Every day 20 people die from not receiving the organ they need. About 83% of people on the wait list need kidneys and wait an average of 3-4 years for one.
♻️Today marks 1 month since my donation surgery. 30 days and I'm almost 100% back to normal. 30 days of my recipient not needing to be hooked up to machines to clean her blood and get in the way of her life. 30 days of being back to living a normal life and not worrying if she will die waiting on a transplant. ♻️We have the ability to save lives while we're alive. Recycle yourself. Donate Life.
#donatelife #kidneydonation #shareyourspare #mymklife #recycleyourself #savealife #pairedexchange #solokidneybean art by @trishathompsonadams

Today our nonprofit did something Holly and I could not have even dreamt we would have been able to do 5 years ago. After our 4th Annual Steve Muenchow Memorial Outing & all our generous donors, we were able to make a $3,000 donation to Restoring Hope Transplant House in Middleton. This house, and the families in it, has a special place in our hearts. They house transplants patients and their families from all over the country at an affordable rate. They provide a home away from home for these families during the most difficult period of their lives. You all at Restoring Hope are true heroes. You change people’s lives every single day. Live.Love.Donate. Inc is honored to help play just a small part in what you do for the transplant community. We know Dad was looking down today, seeing what we were able to do, and is so incredibly proud of what’s been accomplished as a community through our nonprofit. Thank you, Restoring Hope, for everything you do. You give us, and families all over the country hope, and gratitude. We are honored and grateful to be a part of it. #RestoringHope #DonateLife #OrganTransplantation #Hope&;Gratitude

Thank you to Dr. Connie Davis, CMO at Skagit Valley Hospital, for her rose vial dedication that will be a part of the Donate Life Rose Parade Float! #DonateLife #RoseParade2018 #TY

Today @jthompson3136 and I had the pleasure of helping to decorate the "Donate Life" at the Capitol which is a tree in memory of organ donors. This was the first year I've gotten to place an ornament for Dad and I had the honor of placing it as the first one on the tree. It was very humbling to place the rest of the ornaments on the tree and read of the many gifts of life that others have given. 💚

#donatelife #lifesource #dakotalions #organdonor #christmas #christmastree #christmasatthecapitol #southdakota #hifromsd #recycleyourself #cornea

Such a special night celebrating a beautiful girl and her beautiful organization 💜 #HeartsForEmma #DonateLife

Powered by recycled parts ♻️#donatelife

Thank you @bea_donor for the incredible box of gifts. I will wear this with pride! I so enjoyed spending my birthday with you and speaking at your conference. Thank you Kenneth Boyd for the books. You're the man! #beadonor #donatelife #washingtonregionaltransplantcommunity

Perfect gift for the organ recipient in your life! Not pictured: Liver Donor and Kidney Donor keychains also available! Link in bio!

@theshopforward sells products to pay it forward. A portion or all of the proceeds from every single one of their products is donated to charity. One of my favorite items they sell is the customizable #4ThingsTote. The proceeds from this tote benefit an orphanage in Haiti that @radioamy works closely with. You can put any 4 things on the tote. The four things I chose are related to cystic fibrosis & my lung transplant.
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New Lungs : Because I got new lungs!!
06/21/2016 : The date of my lung transplant.
65 Roses : A nickname given to cystic fibrosis. If you say “65 roses” and then “cystic fibrosis” out loud you will notice they sound very similar.
@PricelessBreaths : The name of my blog and because every breath really is priceless.
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Check out theshopforward.com...they have some really cool stuff, all for a good cause! And maybe by liking this post/commenting we can convince them to spend a period of time donating the proceeds from an item to the @cf_foundation. 😉🙃 It would mean the world to a lot of people & because we need funding to have CF stand for Cure Found one day!!



#pricelessbreaths #doublelungtransplant #lungtransplant #cysticfibrosis #cf #donatelife #recycleyourself #blog #65roses #givelife #cff #cfirl #transplantirl #cfwarrior #cflife #transplantlife #transplantwarrior #organdonation #chronicillness #invisibleillness #avascularnecrosis #kidneyfailure #spoonie #pimpinjoy #choosejoy

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