#diseasedoesnotdiscriminate

MOST RECENT

I feel like this is an accurate depiction of life when you are diagnosed with a chronic illness at a very young age. You do not give up on your goals and dreams, but they do become a bit harder to achieve. It can be difficult to plan life around managing a chronic illness. ▪️ Sometimes you do not have the stamina. ▪️ Sometimes you are mentally fatigued. ▪️ Sometimes I am angered by "healthy" people that can purposely ruin their bodies and waste their abilities. ▪️ Sometimes I think of how much further I'd be if my life was not interrupted by Lupus. ▪️ No matter what the diagnosis, you cannot give up. It's okay to alter the plan according to your abilities, but never say that it is no longer possible. In honor of #breastcancerawareness month I would like to dedicate this post to those that lost their battle and can no longer realize their dreams. I promise to keep fighting and do as much as I can.

Ask yourself, do you have a hobby or a talent that you can do more with? What did you put on hold, but can make another attempt at? What is something new that you've been wanting to learn or do that wasn't possible before?

Please feel free to DM with your stories so that I can feature them on this page.

#crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #epilepsyawareness #epilepsy

#tbt - 2016

I never felt so free. There was no fear. No adrenaline rush. The doctors and life insurance companies have already written me off so why not?! This was after an extended Lupus flare and I was starting to get better. I am waiting to do it again. I'm determined to live my best life with chronic illness 🙂

Please send me pics or tag me in posts of you living your best life with chronic illness so I can feature it on this page. #yolo

#COUNTMEIN

#crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #epilepsyawareness #epilepsy #skydiving #clouds

It seems that hospitalization is #inevitable when living with chronic illness 😔 **Comment below on what's in your bag for hospital stays.

I don't know about you, but hospitals are in my top three of LEAST #favorite places.

I believe that your #attitude can help minimize your stay. Whenever I'm admitted my first question is always along the lines of 'when can I go home?' or 'how long is this going to take?'. The nurses and staff will do their best to make you feel comfortable and encourage you to stay for longer than required.

Story: I was once admitted for a kidney biospy. The procedure was not performed and needed to be rescheduled. They administered too much blood pressure medication in preparation for the procedure and my blood pressure plummeted. They tried to get me to stay overnight for "monitoring". I kindly refused and was discharged after my BP increased a bit. A few weeks later I received a generous bill of almost $400 for the pregnancy test they administered that day.

Even with insurance, hospital stays are costly. In addition to this you are at greater risk of exposure to viruses and bacteria.

Ensure that you keep good communication with the nurses and doctors. Know the expected course of treatment so that you can ensure it's being followed.

#crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #epilepsyawareness #epilepsy

I remember my first time being sent for lab work. It was at the onset of my symptoms before being diagnosed. Before then I had only had immunizations and booster shots. I was so scared I had a panic attack and cried like a baby. Who knew it would become such a regular part of my life. I still don't like the sight of needles, but I'm pretty much a pro now. Make a fist, release, apply pressure. With an "invisible" disease like Lupus, it's the only way doctors know what's going on.

Whether it's labs or injectable maintenance medication I don't think anyone is ever excited to get POKED 💉💉💉 or poke themselves 😣

When administering injectable Benlysta or getting blood drawn I like to count Mississippi's in my head

1 Mississippi

2 Mississippi

3 Mississippi

Etc........... Comment below with any tips/suggestions for easing the pain and/or anxiety from needles.

#crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #epilepsyawareness #epilepsy #nopainnogain

Chronic illness can put limitations on our physical ability, but it's important to KEEP MOVING in any way you can.

#rebounding is a great LOW IMPACT exercise with excellent benefits. It's SUPER FUN and it definitely does not feel like exercise.

Search for "rebounding" on YouTube or Google and invest in one today!! #crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #epilepsyawareness #epilepsy

#Repost @babysocialworker (@get_repost)
・・・
1. Tell them the good you see in them— remind them.
2. Be a slow and steady presence. Slow down to their pace. Be gentle.
3. Offer a quiet, safe place to be.
4. Be patient and understanding (in the middle and after they have come out of it)
5. Every little thing you do matters. Know that even if the person can’t tell you right now. Offer help because it’s exhausting to keep asking. Affirming that asking for help is a strength.
6. Be a cheerleader.
What would you add? Tell me in the comments ⤵️
• • • •
This was shared in a small group that I am apart of through my church. A speaker came in to talk to us about her experience with depression and what helped the most when it came to support from friends and family. That said, I think this list applies to many different situations and I hope it’s helpful ❤️ #crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #epilepsyawareness #epilepsy

My Lupus warriors know how unpredictable this disease can be. Sometimes we are rendered powerless until the doctors treat our current symptoms. The one thing I can control is my attitude about living with chronic illness.

I CHOOSE to be HAPPY!

You can take control by doing some of the following things:

1. Imagine how healthy you would like to be and implement one change to help you reach that goal TODAY! It can be something as simple as drinking more water.

2. DO NOT INTERNALIZE! Talk to someone about how you are feeling or communicate non-verbally with a hug.

3. Do not 'wait and see'. Be proactive about communicating symptoms and changes with your doctors. It is helpful to keep a journal with dates that details what you are experiencing between appointments.

#remember that you are your best #advocate
Help others to help you! Do not give up on YOU!

#crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #epilepsyawareness #epilepsy

. . . do you?

A diagnosis can feel like being forced to wear a scarlet letter. Even though you are still the same YOU, friends, family and acquaintances treat you differently.
It can feel like you are automatically being counted out despite your #ABILITY

#COUNTMEIN

#crushingchronicillness #diseasedoesnotdiscriminate #chronicillness #disease #autoimmunedisease #warrior #fighter #living #alive #livingagenda #lifecampaign #lupus #lupusawareness #diabetesawareness #chrons #cancer #mentalhealth #mentalhealthawareness #mentalillness #multiplesclerosis #lymedisease #depression #healthiswealth #stopdiscrimination #discrimination #epilepsy #epilepsyawareness #fibromyalgia #lymedisease

Take advantage of the moments you are given. 💜
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She didn’t have a clue I was taking a picture of her. Seeing and hearing different peoples reaction to our ArtPrize piece has been one of the most humbling, beautiful, incredible and best parts about this whole journey. .
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Keep the ones you love close. Check in on your people often. Life is so very precious.
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Be kind. .
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So happy I got to take such a beautiful person to see such a beautiful piece. Thank you for being you @niney50 .
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#suicideawareness #diseasedoesnotdiscriminate #youdontlooksick #iammorethanwhatyousee #youmatter #beheretomorrow

Nothing feeds the soul quite like playing in Grandma’s garden. ~
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My heart has felt closed, lately; like a brick sealed in my chest and insulated with mucus.
The biggest of shadows have engulfed me, and it has been a struggle- I’m not gonna lie.
Plenty of practitioners share their stories AFTER the fact; share their stories once they’ve gotten through to the other side; once they’ve seen the shimmer of the gold after having felt its heaviness; once they have a glimmer of hope to use as an example to help others.
Few practitioners share their muck in the midst of it, afraid of looking imperfect or unworthy of their title. But here’s the deal: we’re all. just. human. And sometimes, trudging through the sludge is just a part of that.
So here’s what I’m here to tell you, today: I’m in the middle of the sludge. And that’s okay. The sludge is what makes us- as humans and as practitioners- understand life through a different lens; gain perspective; whittle wisdom.
And I’m also here to tell you that I SEE you. I HEAR you. I UNDERSTAND you. No one is perfect, and imperfections are some of the most brilliant diamond-in-the-ruff blessings of the human experience.
It is okay to be in a dark place. It is okay to feel uneasy. To feel unsure. Confused. Anxious. On edge. Angry. Jealous. Depressed. Resentful. Frustrated. It is okay not to know what the other side of it is going to look like. And it is okay to have some fear surrounding that. Or lots of fear surrounding that.
It is okay to truly feel. And if you feel uncomfortable? Then you’re probably doing it right.
Sending much love,
xx Rachel at D2S 💜

#spiritualwarrior #shadowwork #planetsgoingdirect #destigmatisementalhealth #psychiceducation #nationalsuicidepreventionmonth #changinglives #diseasedoesnotdiscriminate #emotioncoaching #emotionsarevalid #allowedtofeel #messyisok #embraceyourmess #depression #mentalhealth #mentalhealthawareness #destigmatisementalillness #shareyourfeelings #feelyourfeelings #doorwaytoself

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