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#disabledandbeautiful

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That's me and @trinafight4rights (the reigning Ms. Wheelchair NY) - I met her in Brooklyn last summer and asked her to appear on my show. She is a strong advocate for disability rights. Her interview airs 1/27 on MNN and our YouTube channel.

*** These are not sunglasses. They are my colored long distance glasses. *** πŸ˜ŽπŸ€“πŸ˜ŽπŸ€“πŸ˜ŽπŸ€“ I never expected to feel this comfortable in thick glasses. Life keeps surprising me in good interesting ways... And I'm just going with the flow, as always. πŸ’•β€οΈπŸ’•β€οΈπŸ’• #eyewear #eyewearfashion #glasses #thickglasses #girlswiththickglasses #girlwithglasses #highmyopia #visualimpaired #lowvision #lowvisionawareness #bajavision #bastonverde #marfansyndrome #marfansyndromeawareness #raredisease#epof #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #geek #geekchic #nerdygirl

*Tales from a short sighted *

One thing you may not think of when it comes about living as a shortsighted is that my condition changed even my wardrobe.I used to wear high heels everyday, everywhere, I even had flip flops with platforms, but that stopped since I started to wear my cane. I've been losing my sight since the very day I was born but once I reached low vision level, I couldn't see where I was stepping on anymore, that's why wearing high heels is now not only tricky, but also a bit risky to me.
However, the syndrome doesn't affects vanity, so I still love shoes, but it's harder to find trendy, elegant ones that are flat.

This is also living with marfan syndrome ❀️ πŸ’œ ❀️ πŸ’œ ❀️ #eyewear #eyewearfashion #visualimpaired #highmyopia #thickglasses #girlwithglasses #girlswiththickglasses #glasses #glassesarepartofmyface #marfansyndrome #marfansyndromeawareness #raredisease #epof #lowvision #lowvisionawareness #bajavision #bastonverde #geek #geekchic #nerdygirl #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful

My interview with the amazing 2017 NY Miss Amazing Jr Miss Queen will air this Saturday (1/13). @janiralisbeth has done many campaigns and public appearances -- we are very proud to feature her on our show.

Living with a chronic illness is an everyday challenge. Dealing with the constant pain and the restrictions resulted from the condition can be frustrating.That's why learning to relax is key in order to enjoy life and make the best out of the situation. Doing what you love, being with your love ones or simply to have fun! ❀️ This is also living with marfan syndrome ❀️ #marfansyndrome #marfansyndromeawareness #raredisease #epof #lowvision #lowvisionawareness #bajavision #bastonverde #visualimpaired #highmyopia #thickglasses #girlwithglasses #girlswiththickglasses #glasses #glassesarepartofmyface #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #chronicillness #eyewear #eyewearfashion

Happy 2018 & happy 70th birthday, @arroyobertalott !!!! πŸ’œβ€οΈπŸ’œβ€οΈπŸ’œ Warm wishes in this day to all my wonderful followers who always give me the strength and the energy to keep sharing my journey and my experience in my lovely little low vision world. Thank you. You help me every day 😊. πŸ’•πŸ’œπŸ’•πŸ’œπŸ’•#newyear #happynewyear #family #familylove #sisters #familyHoliday #ilovemysister #lowvision #lowvisionawareness #bajavision #bastonverde #visualimpaired #highmyopia #thickglasses #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #marfansyndrome #marfansyndromeawareness #raredisease #epof ❀️

* Tales from a shortsighted * ❀️❀️❀️ I didn't fight against my glasses from the beginning, it took me a couple of years to really hate them with all my being. They took me away from many things during my childhood, like roller skate, or a bike,or video games, and the worst of all :I wasn't allow to walk back from school on my own. So, it was a matter of independence . By the time I reached my teens I begun to care about my appaeriance, like many girls, and that gave me another whole packet of reasons to hate them that I didn't even had think before. So when I turned 18 I made my mind and paid myself for a wonderful magical pair of contacts lenses. From there, I spent all my youth strongly attached to them, many people in my life never knew I had a severe sight problem or didn't even saw me once wearing my glasses. I kept denying my condition for over fifteen years, forcing myself into carrying what I thought it was a "normal life". The fact is that I simply was afraid of facing reality. A reality that is harder and challenging. A reality that I had been evading for so many years. But once I acceptted myself as a low vision patient , everything started to flow very organically, even more calmly. Today finds me wearing glasses again, but for the first time I'm having a healthy relationship with them. And that, to me, feels like an accomplishnent and gives me real joy. Today I can finally wear my glasses without worrying about them. πŸ’•πŸ’•πŸ’• What's your journey with your high prescription glasses?
Thanks for reading!!! Happy Holidays!!! πŸŽ… πŸŽ… πŸŽ…
#eyewear #eyewearfashion #glasses #thickglasses #girlswiththickglasses #girlwithglasses #highmyopia #visualimpaired #bajavision #bastonverde #lowvision #lowvisionawareness #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #marfansyndrome #marfansyndromeawareness #raredisease #epof ❀️

Sometimes you may fall for something that it's bad for your health but good for your soul. Piano practise is definitely a dream come true, as simple as that, but I shouldn't do it because it rushes the deformation of my hands. ❀️This is also living with marfan syndrome.❀️ Pd: sorry Mr Cristmas, I don't have any carols for you πŸŽ… 🎢 #piano #pianowoman #pianoplayer #pianist #pianista #music #musica #iamamusician #musician #song #songwriter #originalsong #composer #compositor #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #marfansyndrome #marfansyndromeawareness #raredisease #epof #lowvision #lowvisionawareness #bajavision #bastonverde #visualimpaired #highmyopia

Pool day with my niece & nephew. It's great to have the opportunity to spend quality alone time with them as their aunt and also it's wonderful to teach them with actions that disabled people can have normal independent lives #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #marfansyndrome #marfansyndromeawareness #raredisease #epof #lowvision #lowvisionawareness #bajavision #bastonverde #visualimpaired #highmyopia #thickglasses #girlwithglasses #aunt #iamanaunt #proudauntie #ilovemyniece #ilovemynephew #family #familylove πŸ’•πŸ’œπŸ’•πŸ’œπŸ’•

* Tales from a short sighted * As the myopia gets worse and worst, my glasses are getting thicker and thicker. Now my eyes are hiding behind them almost completely and it feels a little bitter because it's seems a little souless when I see myself without a look, whatever it may be, and then sometimes I think maybe I lack in expression and that's something I'm still don't getting used to.πŸ€“πŸ’•πŸ€“πŸ’•πŸ€“ #eyewear #eyewearfashion #glasses #thickglasses #girlswiththickglasses #girlwithglasses #highmyopia #visualimpaired #bajavision #bastonverde #lowvision #lowvisionawareness #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #marfansyndrome #marfansyndromeawareness #raredisease #epof ❀️

*December 3rd: internacional day of people with disabilities* β™Ώ
Today is a day to take a moment to think about people who are in pain, people who has troubles finding a job, people who are struggling with accepting them selves, people who feels they has no place in their community, people who had to gave up on their dreams, all because some disability.
Being disabled is certainly not the end of the world, but it isn't a fun ride either, acceptance takes time and a lot of love, and I wish we all do our part to live in an more inclusive world. πŸ’•β€οΈπŸ’•β€οΈπŸ’• #disability #disabilityawareness #internacionaldayofdisabledpersons #iamdisabled #disabledandcute #disabledandbeautiful #marfansyndrome #marfansyndromeawareness #raredisease #epof #lowvision #lowvisionawareness #bajavision #bastonverde

My eyes see the world in a unique and wonderful way. My near-sightedness blurs edges between borders, my ptosis lets me focus on what’s important, and the droop has allowed me to see things at an entirely different perspective. And that’s beautiful. #NoonanSyndrome #Eyes #nearsightedness #ptosis #disabledandbeautiful

This is one of my wonderful helpers, a telescope πŸ”­ with which I can reach reading from distance. With it I can wait for the bus by myself, or see the small numbers of prices on a store window. It gives me a lot of independence and saves me a lot of time.
Around my neck everywhere I go, it's like an accessory to me.. β€οΈπŸ’•β€οΈπŸ’•β€οΈ #lowvision #bajavision #lowvisionawareness #bastonverde #visualimpaired #highmyopia #thickglasses #girlwithglasses #girlswiththickglasses #glasses #glassesarepartofmyface #marfansyndrome #marfansyndromeawareness #raredisease #epof #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #geek #geekchic

Having a blast with them tonight!!! I'm so thankful of moments like this. I can't wait to be their favorite aunt! There, I said it β€οΈπŸ’•β€οΈπŸ’•β€οΈ#aunt #iamanaunt #proudauntie #ilovemyniece #lovelyniece #babygirl #disabledaunt #disability #disabilityawareness #iamdisabled #disabledandcute #disabledandbeautiful #marfansyndrome #marfansyndromeawareness #raredisease #epof #lowvision #lowvisionawareness #bajavision

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