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#dialysis

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5.4.17 - ..tgh recharge bateri body 😄💉 #cucidarah
#cucidare
#cucisampaihujungnyawa
#dialysis

“During my pregnancy there were signs of something wrong; but on all the ultrasounds she looked perfect. We decided to not have an amniocentesis  done. Which is a decision I wrestle with myself about. Although I'm not sure it would of made much of a difference in her treatment.
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After she was born, we found ourselves in small ER room being told my child was gravely ill; the doctors weren't sure of why.  When it was finally pinpointed to her kidneys, I was warned not to “Google” what they suspected she had. How could I not!? The first sentence I read was "Most children diagnosed do not make it past the first year."
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Congenital Nephrotic Syndrome is a rare, genetic condition that causes the filters in the kidneys to not work properly, if at all. And in her case, they did not at all. She was spilling everything, good and bad, in her urine. We were transferred to a different hospital with a Nephrologist that had more experience with the condition. It soon became our second home.
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She stopped responding to her treatment plan, so at 5 months old she had both of her kidneys removed, and both types of dialysis catheters to be placed. This was the best choice for her to have any chance at surviving.
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The next couple months were filled with highs and lows with several hospital stays, but it became less frequent. We were finally settling in to a new normal. And then she turned one! The day we weren't sure she would make it to.
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Emerson is a spunky feisty little force. She receives dialysis every night at home. And is 1.5 kilos away from being eligible for her life saving kidney transplant. Currently she's on about 10 different medications daily, as well as a growth hormone injection each night. You would never know she was sick just by looking at her.
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Her journey has caused many delays, primarily physically. But she has 4 therapists who she sees weekly and every day she grows stronger. She will be turning two this August and we are forever grateful for every day we get.
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I have times where I find myself in deep waves of grief. But someone once told me, “To ask what, not why”  And it has changed so much for us."

Hanging out with my little buddy ❤ #dialysis #maddy #sendcoffee

#taboo.. #dialysis and #kidney failure isn't something I'm ashamed of nor am I embarrassed to show it or talk about it.. think what you want, if you think I'm doing this for attention.. unfriend me now, I don't need that kind of negativity in my life 😇 on the contrary.. I don't want anyone to feel sorry for me! I'm okay! Life has thrown the worst curve balls and I'm still standing.. from losing my brother and my mother 7 months apart.. to having stage 5 kidney failure.. things happen for a reason and I look at the bright side of things. Sure depression always hits, but it's up to you if you want to stay depressed. This post is to give motivation.. just know that when life is hard... keep moving forward with your head held high ! If I can cheer up just one person.. than my purpose is fulfilled. I am 4 days post surgery and I feel okay! I push my body.. to be healthy you have to think healthy. Yes the tube will be sticking out of my stomach until I get a transplant.. no I'm not embarrassed anymore.. it's a part of me now and I have to embrace it... my only thoughts are .. "it could be worse" lol and that's what gets me through my days ❤️ thank you to those who have supported me through this journey. The love helps a lot !

"Hidup menurut daging pada dasarnya adalah hidup dengan cara berpikir yang tidak sesuai dengan cara berpikir roh"
-Dr Erastus Sabdono
(@erastus_sabdono )
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#bukubolehminjem
#dialysis
#cucidarah
#hidupmaksimal

Made my dad his lunch for dialysis today...parental reversal😂

#Dialysis 😻

"This is my son, Christopher Richards, he was born with PUV and has been on dialysis since he was four days old. My husband is looking to be a live donor as I am not a blood match." #organdonation #dialysis #savealife #kidneydonation #kidneydonor

Riding around with Grandma Maria🌺 She's too cute. Pray for her, she's starting #dialysis 8.15.17 Makes me miss my Grandma Mami Mina🦋 RIP.

MOST RECENT

It’s labour day but the amazing nurses at dialysis keep going pumppy is pumping the world just turns #needakidney #dialysis #transparent #helpme #auckland

We are not a team because we WORK together, we are a TEAM because we RESPECT, TRUST and CARE for each other.
We are missing a few in this pic!
#lovethesegirls❤️#dialysis#kidneys#hospitallife#friendsgoals#sundaybrunch#

Hanging out with my little buddy ❤ #dialysis #maddy #sendcoffee

First day using #emla cream i usually use #denela cream. Has anyone else had both an what works better? #hemodialysis #dialysis #cream #KidneyFailure #kidneydisease #homehemo

This #biohacker couldn't afford #KidneyDialysis after he was diagnosed with #KidneyFailure. So he made his own home-made kidney dialysis machine.
#Biohacking #DIYBio #DIYScience #DIYMedicine #Kidneys #Dialysis #DialysisTech #DIYTech #KidneyDialysisMachine #DialysisMachine #Medicine #Biohackers

Reposr from her mom ❤️ Prayers for baby ayesha 💋#littleFighter #prayers #dialysis

No this is my meal plan that I'm typing this morning - it's a speech I'll be giving later today in the neighborhood I grew up in for a boy who recently found out he is in kidney failure and had to start dialysis 💚
This journey has not only given me strength to have success in getting myself on a healthier path but it is allowing me to reach out and inspire and help others as well ❤️
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#inspiration #motivation #dialysis #icanyoucanwecan #stayhealthy #kidneytransplant #kidneydisease #amworkout #mealplan #mealprep #eatclean #momlife #mumlife #primaryteacher #kindergarten #pugmommy #puglife #coffeelover #beachlife

Kölelik bitecek... Sabah 6 - akşam 10 ya da 11 çalışmayacaklar!!! Bugün, Özel Fatih Hastanesi'de

Fatih Diyaliz Merkezi'ni alacağım hastalar yaşayacak ve hemşireler de dahil köle gibi çalışmayacaklar öyle bir düzen yaratacağım.

Slavery will be over ... At 6-10 or 11 they won't work!!! Today, I'm going to get the Private Fatih Fatih Hospital dialysis centre patients and nurses won't work like slaves, including it will create a layout.

Sklaverei wird vorbei sein... In 6-10 oder 11 funktioniert sie nicht!!! Heute, I 'm gonna Fatih Fatih Privatklinik Dialyse Zentrum Patienten bekommen und Krankenschwestern funktioniert nicht wie Sklaven, einschließlich es wird ein Layout zu erstellen.

Рабство будет закончена... В 6-10 или 11 они не будут работать!!! Сегодня я собираюсь получить частный госпиталь Фатих Фатих диализа пациенты центра и медсестры не будет работать как с рабами, в том числе это будет создание макета. 👉 HTTP://TCBERK.JEUNESSEGLOBAL.COM 👈 💎 💎 💎 👉 HTTP://BERKBABUR.ORG 👈
#Bilim #Science #Stars #Yıldız #TCBERK #NM #MLM #Jeunesse #1T1F1J #YES #GenerationYoung #RedefiningYouth #GPG #Advantage #YES #1T1F1J #diyaliz #dialysis #sabah #morning #akşam #night #kral #king #lider #leader #reel #real

This was my #weight and #height back in 2013 which was almost 7 years post #transplant. My #dry weight now is between 51kg -51.5kg #dialysis #apetite #KidneyTransplant #organdonation #DonateLife #short #kidneyfailure #kidneydisease

Daddy's been in the hospital and mommy's been spending all her free time with him. I missing them both but most of all I worry about daddy. If you can please keep him in your thoughts and prayers, I'd really appreciate it! #GetWellSoon #GetWellSoonDaddy #KidneyDisease #dialysis #KidneyTransplant #TransplantRecipient #Nephrology #Nephrologist #PrayersForDaddy #Elena #ElenaKitty #MamaElena #catsofinstagram #Kitty #kittensofinstagram #kittycat #cat #tortoiseshellcat #tortoise #tortie #tortieattitude #calico #adoptdontshop #adoptastray

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