[PR] Gain and Get More Likes and Followers on Instagram.

#curemito

MOST RECENT

Because sometimes it’s not all about me in this house!! 😉 It’s the last day of #feedingtubeawarenessweek so this one goes out to my hooman brother Jack, who owes his survival to his feeding tube! He had his feeding tube placed at 28 months old, due to failure to thrive and refusal to eat. Years later he was diagnosed with Mitochondrial Disease, a progressive and incurable disease... He’s the bravest and strongest boy I know! #loveyabro #staystrong ❤️
.
.
#brave #braveboy #brother #strongboy
#mitochondrialdisease #mito #curemito #cure #feedingtube #feedingtubeawareness #feedingtubebaby #tubie #tubies #tubiebaby #tubiekidsrock #tubiemom #tubielife #gtube #gtubepads

CLC MEMBER FEATURE: Hi everyone, my name is Leah. I was seven when I started showing signs of muscle weakness and excessive tiredness. I had been part of a hula dance group at the time and went from being front and center to being pushed to the back for not being able to keep up.

It was hard to find a doctor that didn't think that I was faking my illness for attention until we were led to a geneticist who decided to take on my case. On top of going through rigorous testing to try to find a diagnosis, my school and friends decided to believe that I was being abused by my parents.
I was nine years old when I had a muscle biopsy that would answer all our questions. I was diagnosed with a rare form of Muscular Dystrophy called Mitochondrial Myopathy (Mito). Mito makes it hard for my body to make enough energy to get through the day without my wheelchair and taking naps.

Since transferring to a different school my life has been nothing but blessings. I have a group of amazing friends that see me for me. I will be continue to be home schooled through the high school district until I'm 22 and I'm currently have a blog and am a paid columnist for MuscularDystrophynews.com

Although my disease continues to progress, I am thankful for all the things that I am still able to do. I like to think of my life as a blessing in disguise because I have seen the bad times but those circumstances have made me a happier person and have helped to be truly grateful for each day. #ChronicLoveClub

Aidan and Lydon proudly sporting their new Ima’s Home hats at @LifeChurchHTX this morning. These guys would love to see YOU at the 5th Annual 5K Fun Run for Ima’s Home for Children in the Philippines. Join us on Saturday, February 28th at 8:00AM. Go to www.life.cc for more info. #ImasHome #LifeChurxhHTX #JoinUs #LydonStrong #MitoKid #CureMito #MakeADifference #LetsRun

Last night, as I tucked Ly into bed, he said, “Daddy, I want to tell you something I’ve never told anyone else. It’s a secret of mine.” I asked him what it was and he replied, “I’ve been reading my Bible, just a little each night. It just calms me and makes me feel good.” This morning he was proud to bring it to @LifeChurchHTX with him. #ProudDad #KidzLife #BiblesAndJordans #LydonStrong #MitoKid #CureMito #LifeChurxhHTX

I cannot believe I was matched with this stud FOUR YEARS ago today (1/25)! The years have seemed to fly by. He’s been the best I Run 4 buddy ever!!! His family has been just as amazing. I hope I get to see Mr. Mighty Matthew again sometime soon. He sure has some good dance moves on him! Love you @mighty_matthewc! 💚
.
📸 @nyveggie
.

#curemito @mitoaction #mitochondrialdisease @tmcech #irun4matthew #lovethiskid #moveslikejagger #mightymatthew #running #doforthosewhocant

Finally! My car is mine. 😍 I put my decals back on and it makes it more mine than it was in the first place. 💚
.
.
.
@mighty_matthewc @nyveggie @tmcech #irun4matthew #halffanatics #fitness #running #fitpro #curemito

Shout out to mito mom Anne who ran the Rock N Roll Marathon Arizona this weekend sporting CURE MITO and names of mito angels. She was able to meet a fellow mito-warrior who was also running for one of our Mitoans. 💚💚💚 #awareness #curemito

(There is sound) Oh yes, this is my absolutely amazing I Run 4 buddy! I have been able to dance with him a little (it’s been too long since I was there), but he’s the one who has ALL the moves! 🎶
Always thinking of you Matthew!
Let’s help find a cure for mito. 💚
.
.
.
@nyveggie @tmcech @mitoaction #irun4matthew #mightymatthew #getdown #hesgotmoves #irun4 #curemito

Ice storm in #westvirginia coating everything in a thick layer of ice. 🙏 we keep power so my o2 and medical machines keep going. #chronicillness #tpn #mitofamilies #curemito

#CureGP #Gastroparesis when we are #Warriors doing #GPReporting for #advocacy sometimes it helps to show what a difference #Sleep makes! I have been dealing w/ a lil bit of fewer than normal hrs,but better sleep due to my magnesium/arnica cream.. (please consult with your doctors before trying anything you see online🤗) So, when I go to sleep at approximately 9pm and awake 7:20am CST #hallelujah I was gathering too many nights of going to sleep @ approximately 9 pm & waking @ 12:30 am CST #painsomnia is real in #ChronicWarrior advocacy, but I usually like to share #positivity & #Optimism I am not saying it is the perfect way. It is my way. I pray each day I add Peace, comfort, strength, a bit of Joy, Faith, Hope, Kindness, Love, Patience, & Self-Control on to each of you you to help your day whether in prayer, positive thoughts, #biofeedback, #meditation, or whichever coping tools you need to survive your #Incurable #InvisibleIllness #Spoonie journey so we can go #2by2 in #2018 & create #Invisible2Visible #Incurable2curable #Green4GP to #CureGp #Green4Mito to #CureMito #WarriorTag @bundytr5 @aprilgqg @melissaadamsvanhouten @gimotility @tippedmug @christinemiserandino @hesaonlineorg @wegohealth @cnn @msnbc @foxnews @tonyscruggs @oprah @kloveradio @micheletillery @mindy.krystof @carolynmcbane @ted @chronically.christina @arthritisfoundation @americancancersociety @angel_dunlop @nkotbangelwingz @cherylraudebaugh @delinvestments @walton_raven @steventrotter

Thank you, @ColeHermes and @LilyElsner for asking Lydon to be a part of your special day. He was so happy and, Cole, he’ll never forget that phone call when you gave him the news! #ColeAndLily2018 #HermesWedding #LydonStrong #MitoKid #CureMito

Quite possibly our favorite moment from @ColeHermes and @LilyElsner’s wedding. #LydonStrong #MitoKid #CureMito #ColeAndLily2018 #HermesWedding

Lydon and @ColeHermes gettin’ ready for the big moment. #ColeAndLily2018 #Wedding #LydonStrong #MitoKid #CureMito

Mommy helping Ly get ready for @ColeHermes and @LilyElsner’s wedding. #MiniCole #Wedding #LydonStrong #MitoKid #CureMito #ColeAndLily2018

Most Popular Instagram Hashtags