CLC MEMBER FEATURE: Hi everyone, my name is Leah. I was seven when I started showing signs of muscle weakness and excessive tiredness. I had been part of a hula dance group at the time and went from being front and center to being pushed to the back for not being able to keep up.
It was hard to find a doctor that didn't think that I was faking my illness for attention until we were led to a geneticist who decided to take on my case. On top of going through rigorous testing to try to find a diagnosis, my school and friends decided to believe that I was being abused by my parents.
I was nine years old when I had a muscle biopsy that would answer all our questions. I was diagnosed with a rare form of Muscular Dystrophy called Mitochondrial Myopathy (Mito). Mito makes it hard for my body to make enough energy to get through the day without my wheelchair and taking naps.
Since transferring to a different school my life has been nothing but blessings. I have a group of amazing friends that see me for me. I will be continue to be home schooled through the high school district until I'm 22 and I'm currently have a blog and am a paid columnist for MuscularDystrophynews.com
Although my disease continues to progress, I am thankful for all the things that I am still able to do. I like to think of my life as a blessing in disguise because I have seen the bad times but those circumstances have made me a happier person and have helped to be truly grateful for each day. #ChronicLoveClub