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#crainiosynostosis

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My baby boy was happy as can be yesterday right before his surgery. Everything went smoothly, and he is now in ICU recovering. The doctors and nurses here are amazing. Working on keeping him as comfortable as possible. Thank you Lord. #SebastianNixon #recovering #crainiosynostosis #radychildrenshospital

Final fitting for molding helmet. Tomorrow is the surgery. God please protect my son. I show this for prayers we need em bad. Thank you! #crainiosynostosis #prayfordaniel #daniel6

Thank you so much to all of our f+f for your kind words and especially for your prayers. Our little Nash has a big surgery tomorrow and it's because of all of you that we can get through this. You got this Nash πŸ’ͺπŸ»πŸ’™ #crainiosynostosis #slatonandnash

Always count your rainbows not your thunderstorms 🌈

Proud Mum ❀

This boy has made the biggest impact on my life ever, I honestly don't know where I'd be without him... One thing I've learned over the last few days never ever take your babies for granted!! Enjoy every single minute you have with them and make sure you give them your all... The bond I already have with this boy is immense but I dare say it's only going to get stronger over the next few months !!! Life can be so cruel sometimes and it can throw obstacles in our way that we never even imagined we would face but I will be by his side every step of the way it's a journey he will never have to face alone... I'm hoping and praying that the outcome will be not as bad as what we think and that when this nightmares over we will celebrate so hard !!! I love you my precious baby #crainiosynostosis #mylittleavatar #teddysaint

Crainiosynostosis is the premature fusion of the sutures of the skull. My daughter was born with this. Two head surgeries later she's an active teen. #crainiosynostosis #prematurefusionofskull #cappskids

MOST RECENT

Always count your rainbows not your thunderstorms 🌈

Proud Mum ❀

Update on Seb: He is out of the ICU, one step closer to going home, but we still have a few days to go. He is almost back to his normal self. He's been awake, eating, playing and laughing.
A huge thank you to my parents for all their help, and to everyone one who has come down to visit us! Thank you for your support, we love you all, you know who you are! 😘
Kudos to the Ronald McDonald house of San Diego who has been feeding us breakfast, lunch and dinner. It really is a tremendous help! And, for offering us a place to shower. We are an hour and half away from home. Having a place nearby to wash up is unbelievably awesome to have.
Yesterday and today I've been thinking of my sister Lucy a lot. Thinking how this is what she must have felt when Bella had surgery for her Cochlear implant. How I wish she was here to share what she learned from her experience. I miss her dearly, but I know she is with us in spirit, and she is watching over her Godson. #SebastianNixon #update #crainiosynostosis #recovering #radychildrenshospital #ronaldmcdonaldhouse

My baby boy was happy as can be yesterday right before his surgery. Everything went smoothly, and he is now in ICU recovering. The doctors and nurses here are amazing. Working on keeping him as comfortable as possible. Thank you Lord. #SebastianNixon #recovering #crainiosynostosis #radychildrenshospital

Eight months ago, to the day, this little dude had cranial reformation surgery in Los Angeles after being diagnosed with #crainiosynostosis at @cedarssinai hospital. Today, just two days after his first birthday, he had his first of as many as nine annual check-ups to make sure the healing process is going as planned at Children's Hospital at Dartmouth, in New Hampshire. Don't take good healthcare for granted. While living in LA, @lifeandlacey and I were spoiled when it came to Sutton's doctors; we had the best pediatric neurosurgeon and pediatric plastic surgeon a stone's throw away from our apartment. Today, we packed up the clique and drove 3.5 hours each way to have the team at CHAD tell us that Sutton is healing wonderfully and will be fine, in their opinion, "so long as he survives his sister." Per my usual witty banter, I told the docs that, "we all have to survive his sister." They pretended to laugh. It got awkward. I couldn't have been more pleased with myself. In any case, glad this little monster is alright and doing well.
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#dadding #daddyduty #daddydoodie #beingadadisweird #beverlyhills #la #newhampshire #crainiotomy #crainio #fatherhoodunfiltered #dadblog #podcast #boston #sutton #brainsurgery #surgery #docs #fam #doctors #neurosurgery #happykid #happyfam #awkward #oneyearold

My little guy turned one today. πŸŽ‰πŸŽ‚ And, there hasn't been a dull moment since his arrival 365 days ago. Leave it to this dude to carve out his own lane in Chrabaszcz lore ASAP. Sutton Field: You should be named Stephen Francis IV, but so should I... so I guess we have that in common. Oh, that doesn't make sense? I'll explain: Before my father was born in 1948, his mother had another son and named him Stephen Francis Jr. Then, he died. Subsequently, my grandmother had my father and named him the EXACT SAME THING (some real George Foreman shit). When I was born I was named Stephen Francis III, but technically should have been the IV, right? In any case, @lifeandlacey and I decided we wanted our son to pave his own way and chose not to name him Stephen Francis but Sutton Field. Same initials, right? Had we named him Stephen Francis he would have been the IV. So, same as me. I'm saving the full story for when I launch the column. In any case, so happy to have this dude in my crew and wouldn't change a thing that happened this past year or the 40 weeks that took place previously. HBD, Savage!!!! πŸŽ‰πŸŽ‚1οΈβƒ£πŸ‘ΆπŸΌ
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#fatherhoodunfiltered #daddydoodie #daddyduty #daddingsohard #crainiosynostosis #oneyearold #notgonnamakeit #dadding #sutton #instadad #boston #cali #weho #birthday #birthdayboy #present #cakesmash #fatherhoodunfiltered #beingadadisweird #mydude #son #family #one #sonny #july9th #julyboy #photo #savage

Dad for the save!!!! Well, that birthday pic almost resulted in a trip to the ER and a second cranial reformation surgery. Thanks for the bike, grandma (@barbiedeyo). @lifeandlacey sounds super concerned in the background. πŸ™ˆπŸ™ŠπŸ€¦πŸΌβ€β™‚οΈ
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#cakesmash #daddyduty #daddydoodie #dadforthesave #july9th #son #Socal #rhody #sutton #birthday #birthdayboy #babysfirst #firstbirthday #beingadadisweird #bike #grandma #present #birthdaypresent #oneyearold #savage #notgonnamakeit @lifeandlacey #fatherhoodunfiltered #crainiosynostosis #crainiotomy

Today's installment of the #twelvedaysofsutton perfectly defines what #fatherhood is and is all about. On Veteran's Day of this past year (November 11, 2016), Sutton, at four months old, had to have cranial reformation surgery for #crainiosynostosis because the plates in his skull prematurely fused together. It's a brain surgery where a pediatric neurosurgeon and a pediatric plastic surgeon essential break the skull into new puzzle pieces and then put it back together the way it's supposed to be. I can't even begin tell you how long the four-hour surgery felt for @lifeandlacey and me as parents. Knowing the surgery was extremely intense, and may require a blood transfusion, it was so hard to hand him off to the surgeon and come to grips that our son's health, his life, was out of our hands entirely. As a parent, you try so hard to protect your children and, at that moment, we couldn't have been more vulnerable. Dr. Danielpour and the whole #cedars staff were so supportive and made all the difference. In the end, #sutton made it through the surgery with flying colors and fell into the 5% of children that don't require a blood transfusion. While I'm so happy I get to share this story, this is the part of being a parent that sucks and that you can't prepare for. I mean that in the best possible way. It sucks to love someone so much and not be able to protect them; sucks to care so much and not be able to fix the problem immediately; and sucks to want to ease their pain but be unable to do so much that you would trade places with them instantly so they don't have to endure a moment of it. But, in the end, I wouldn't trade any of that shit, or any of the shit I didn't sign up for (the #daddydoodie); not for anything. Plus, peep the smile on that kid and the scar. He's gonna kill it in life with both. πŸ‘ΆπŸ»πŸ’ͺ🏻
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#craino #dad #daddyduty #son #brainsurgery #fourmonths #cedarssinai #hospital #baby #surgery #daddingsohard #fatherhoodunfiltered #dadvice #boston #cali #la #dadblog #parenting101 #blessed #thankful #parentshit

#twelvedaysofsutton, installment 8: The last pic of the little guy before having brain surgery for #crainiosynostosis. At four months old, homeboy was a champ and fell into the 5% of patients that didn't require a blood transfusion. We can't thank Dr. Danielpour and the crew at #cedarssinai enough for making sure our little guy came out okay. Nothing humbles you more as a parent than watching your child go through something that is 100% out of your control. So happy to share this picture. Today. Because, I'm so thankful that I get to do so. Plus, my son has a dope scar and a dope story (especially when tying in my dad's story) and I get to pull the "my son had brain surgery" card when someone is bitching about their kid being a little shit... that's what we call a "parent perk." πŸ™ˆ
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#daddydoodie #daddyduty #dadvice #dadblog #brainsurgery #crainiotomy #veteransday #sutton #humble #father #neurosurgery #danielpour #babybeastmode #july4th #fatherhoodunfiltered #fourthofjuly #boston #la #cali #beverlyhills #daddingsohard #anxiety #beingadadisweird #cedars @cedarssinai @lifeandlacey

That face can only mean one thing: Shock that the #TwelvedaysofSutton is halfway through and the lil' bruiser will be a year old a week from today!!! Insane. Where does the time go? We snapped this pic after learning that Sutton would have to have brain surgery and tried to get the little guy used to wearing hats to cover up his future scar. Then, we realized that this dude is our son, and an absolute Fk'n savage, and he would own the scar that goes ear to ear across his head from the surgery. Sutton, @lifeandlacey and I said "Fk the hats" and figured we'd let his little freak flag fly and deal with the shit that may come from being comfortable in one's own skin. Plus, we have Harper and she's likely going to be a future serial killer, so... do you really want to tease her little brother?!?? Nah. Little did we know that Sutton was as much of a monster as his big sister and will 100% be able to handle his own shit. He's not even one and he's already shaking two and three year old kids down for their cereal puffs. Oh no, Lacey and I are raising the new Menendez brothers. πŸ€·πŸ»β€β™‚οΈπŸ‘ΆπŸ»πŸ‘±πŸ»β€β™€οΈπŸ‘πŸ»πŸ–•πŸ»πŸ’ͺπŸ»πŸ™…πŸ»β€β™‚οΈ
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#fatherhoodunfiltered #dadvice #daddyduty #daddydoodie #dad #crainio #son #surgery #babybeastmode #beastmode #beingadadisweird #fam #julybirthday #fourthofjuly #america #sutton #harper #babyboogie #boogie #savage #dadblog #fatherhoodcolumn #yourfriendandmyfavorite #kids #summer #crainiosynostosis #boston #losangeles #cali

With Sutton's first birthday just twelve days away, I figured I would get all dad-AF and do a #twelvedaysofSutton countdown and post a different pic each day leading up to when the little homie is a year old. The above pic was taken at @neghinadina's lovely wedding, which was the last night @lifeandlacey and I hit the town as cool, hip, young parents of a single toddler before we officially had "kids." Yep, for all you peeps out there that only have one kid: πŸ–•πŸ»One kid is easy. Have two then tell me how fun it is to play "guess the shit," when both kids shit up their backs at the same time and while changing them you get shit on you but you're not sure from which kid. I digress, but this is a real thing: Multiple kids, more πŸ’©. In any case, the wedding was beautiful (although Lace was so preggers that I think @neghinadina thought she may witness a birth on her wedding night) and we enjoyed our final night out where we only had to pay the babysitter for one kid. Don't even get me started on that bullshit. Oh yeah, I present you with the Twelve Days of Sutton. Enjoy!!! Hint: He's in her belly in this pic...
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#sutton #dadaf #dadblog #daddyduty #daddydoodie #fatherhoodunfiltered #wedding #crainiosynostosis #familyofthree #parentsnightout #badmom #dadvice #owningit #familyoffour #growing #dancing #babyontheway #numbertwo #newbaby #newborn #persianwedding #fun #nightout #havekids #family #goals #daddingsohard #birthday #firstbirthday

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