Vincent is 4.🎂🎂🎂🎂RepostBy @soppi00: "Tänk att det redan gått 4-år sen vi fick den bästa presenten att bli föräldrar till underbara, älskade och unika du💙Tänk vad mycket du har lärt oss under denna tid. Att få ett barn med funktionsvariation är tufft pga okunskap och lite fler hinder på vägen men också det bästa som hänt mig❤️Du ger sån glädje och kärlek till alla runt om dig och man smälter vid din närvaro! Grattis min älskade Vincent❤️#costellosyndrome#fightingspirit#winningsmile#intesåkonstigt" (via #Quick reposter @AppsKottage)
I used to hang out the laundry quite often because Ulysses was not totally toilet trained and that I had decided not to use nappies anymore hoping he would get toilet trained quicker this way...well it just took a few years for him to master going to the toilet at the right time.So I used to hang out the laundry and Ulysses to enjoy his freedom.One of his games was to wear his awesome Blue Demon mask and to attack savagely the army of sheets which was taking the control of our courtyard.#familyphotographynow#FPNimagination#costellosyndrome#syndromedecostello
Little baby Daisy. She was only a few moths old and had already done a two month stay in neonates and a two month stay in Great Ormond Street including a visit to their nicu. We had returned to our local hopital, she was puffy from steroids and already had an impressive number of consultants involved in her care. We weren’t sure if she would see her first birthday at that point. She made 12 of them 🙌🦋🌈⭐️💔#costellosyndrome#raredisease#wasthisintheplan#teamdaisy
I have an extra special big brother who has given me opportunities to love, serve, and laugh like I never could have otherwise. He's also opened my world up to an incredible group of people that I'm lucky to call friends. I love all of these sweet faces. Thanks for an amazing conference in Florida, and I'll see everyone in Baltimore! #costellosyndrome#costellosyndromeconference2017
Finding Dory Cake Smash!!! This handsome guy has a rare disease called Costello Syndrome. He is the only child in Jacksonville with this disease, but he is strong and doesn't let it hold him back. He just keeps swimming!