#colondisease

MOST RECENT

Just have a laugh for the day,smile a little,remember we may not be so happy tomorrow, love life,live life,never take it for granted, peace be with you today,the Jimmer. Thanks to @young.gun.motion for a great meme. #laughter #funny #sickness #cancersucks #sickkids #fibromyalgia #adhd #colondisease #coloncancer #illness #love #kindness #autism #autismawarness #blooddisease #behappy

Did you know that correct posture in pooping will help you avoid diverticulosis, swollen tissue and blood vessels around your colon and anus?
When you sit on a toilet 90-degree angle, you form blockage in your intestines that forces you to strain. Yet if you squat, everything will straighten out.
Healthy tips from @sehhaacom
Eliminate with comfort with Esypass Toilet Stool!
#sehhaa #sehhaacom #onlyinsehhaa #esypass #toiletstool #stopconstipation #provenandeffective #esypasstoiletstool #eliminatewithcomfort #shrink #toninglotion #boldgum #diet1 #betterelimination #freeshipping #59AED #uaeonlinehealthstore #wellness #healthycolon #clinicallyproven #elevatedfeet #sitting #squating #inflamation #bowelsyndrome #acidreflux #squat #bloating #straining #colondisease

So after a grueling 4 days, my baby girl was discharged but not without a fight.
She has a viral lung infection, a urinary tract infection, & kidney infection. They treated her for the infections by iv while in the hospital and have sent her home with an antibiotic as well.
They kept her in the hospital the 4 days though because they had concerns about her constipation & her not being able to poo. She wasn't able to at all yesterday when they weaned her off her laxative but sent her home anyway today. I fought the discharge since they said they had such concerns about that plus she is still throwing up & didn't want to send her home if she was.
They didn't listen though about my concern so here we are now at home. While I love being home, seeing her continue to struggle here deeply upsets me.
Within the first hour of being home, she had already thrown up 4x. She's straining herself severely trying to poo since she's back on the laxative & cries her heart out.
I hope we don't end up in the hospital again cos if we do, I'm busting someone's head open for not listening.

Here's some pictures from this hospitalization.
Last one is her at home now & she seriously is looking like me!

#7monthsold #sevenmonthsold #hirchsprungsdisease #hirchsprungswarrior #hirchsprungs #hirchsprungsawareness #helpforhirchsprungs #hirchsprungsawarenessmonth #colondisease #invisibleillness #beingsicksucks #warrior #fighter #recovery #surgeryrecovery #prayformybabygirl #shithappens #poopproblems #getbettersoon #iloveyoubabygirl #iloveyou #mystrongbaby #mybaby #mydaughter #miraclebaby #myangel #instababies #babiesofinstagram #proudmom #instamom

Every day is a new adventure, so much to learn,to much to do,never really worried about things when I was young,like I do now,simple things become a huge challenge sometimes, now at 61,I not so much worry,but I am more aware of what needs to be done,time is defiantly not on my side,you think you do,but that's the dementia kicking in,you realize at times you wonder, what the fuck are you doing,slow down for a reality check,finding that taking care of what's the most important first,then after the anxiety leaves,you might have time to do things that you like,instead of being a shirt on a hanger,taken down and worn,only when your needed,me and every body just has to focus,and try to see the picture threw the camera,take care,keep it real as you can. #adhd #fibromyalgia #coloncancerawareness #colondisease #pacemaker #heartfailure #medicalmarijuana #cbdoil #hemplife #marijuana #medicine

Tupperware containers! -
These little guys are the #bomb by reducing single-use to-go containers and storing food for later! .
In here I have a tofu stir fry (no I’m not a vegetarian) with noodles and veggies that haven’t been bothering my stomach #yay the sauce I get with it is soya with a tad of sweet chilli because I love my spice 🙈
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Thinking about doing a quick video blog about healthy eating as a student so stay tuned .
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#diyu #irritablebowelsyndrome #ibs #blogging #dancinginyourunderwear #canadianblogger #canadianblog #lifestyleblog #sensitivegut #colondisease #stomachstuff #guttalk #stomachpain #food #yummy #feelgoodfuel #healthyoption #foodforthought #healthyfood #foodtracking

Lost to many friends to opeds,I've never lost one to marijuana, I am 61yrs old,I need it,I use it and will always use it to medicate myself with marijuana products until the day I die,actually, Death will be a relief, pain some days gets to be almost unbearable,my chronic pain from colon disease and fibromyalgia is off the charts,they asked me between one to ten,how do you rate your pain,I told them a fifteen,they said what do you want,I said my medical marijuana card,well,they wouldn't comply,I'm still in pain until I can get more marijuana products, God help us all. #medicalmarijuana #medicine #fibromyalgia #nervepain #colondisease #coloncancerawareness #chronicpain #medical #marijuana #cbdoils #hempforhealth #hempwellness #hempworx

Spent ten days in the hospital for this,no pain killers would help,cardiac ward and every test they could do,fourteen years ago they didn't know a lot about this disorder, even in U of M Ann arbor michigan they didn't know,just treated me heavily with opeds,one doctor with knowledge of this disease said there was no treatment but to medicate with pain meds,at 61yrs old,the only help and relief I get is medical marijuana, and cbd products,but this is expensive for being 100% disabled on medicaid,hopefully michigan will pass the marijuana Bill this November voteing,it just has to,please people. #medicalmarijuana #cbdoils #chronicpain #chronicillness #fibromyalgia #nervepain #cancers #cancersucks #sickpeople #colondisease #coloncancer #coloncancerawareness #adhd #autism #autismawearness #hemplife #hempforhealth #hempworx #sickkids #sickpeople #illness #chronicillness #chronicpain

Life is cruel.
My sweet girl is back in the hospital.
She has a viral infection in the lungs, is constipated, & in extreme pain. She had to be put on morphine since nothing else was working to control her pain.
Please keep her in your prayers.
This recovery from her surgery is taking it's toll. 😢💔 #7monthsold #sevenmonthsold #hirchsprungsdisease #hirchsprungswarrior #hirchsprungs #hirchsprungsawareness #helpforhirchsprungs #hirchsprungsawarenessmonth #colondisease #invisibleillness #hospitalized #warrior #fighter #recovery #surgeryrecovery #herewegoagain #prayformybabygirl #keeptheprayerscoming #shithappens #poopproblems #iloveyoubabygirl #iloveyou #mystrongbaby #mybaby #mydaughter #cardonschildrenshospital #instababies #babiesofinstagram #proudmom #instamom

Do I love ice cream cake? Um Yes (is that even a question)
Does ice cream cake love me? No, also not a question 😅
But for my birthday I indulge a bit #guilty BUT my secrete for being a function human after eating it are these two little guffers. Now normally essential oils are not supposed to be ingested but this little concoction of
2 small drops of peppermint
1 small drop of ginger
At least 4 oz. of water
Is ingestible (make sure you double check though)
The other night I ate probably 2 servings of ice cream cake and when I was headed to bed I already felt trouble rumbling in my stomach. I had this mixture and the next morning I felt normal! .
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#diyu #ibs #irritablebowelsyndrome #blogging #canadianblogger #canadianblog #diyublog #lifestyleblog #dancinginyourunderwear #lifestyleblogger #sensitivegut #colondisease #stomachstuff #guttalk #ittakesguts #takecare #stomachpain #guttsie #essentialoil #naturalhealing #ginger #peppermint #wowoil

Alright so I devoured this salad before I could take a picture but here is the last half 🥗 -
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Real Talk about #salad: Romaine lettuce has high levels of vitamin K and A (107% and 45% of your daily value respectively) and while I understand it may not always be the healthiest option depending on how the chicken is done or the dressing, it hands down beats a bag of chips or a burger. Some will say that the water in the lettuce causes you to have a “false” sense of feeling full, yes this is true but is it a bad thing? I don’t believe so. With my stomach if I stuff my face full of food and over eat the rest of the day and possibly the next are a complete write off so if I feel full when I’m not completely full that’s great. Yes I might be hungry in an hour or so but I always have granola bars on me and I can just have some more food then. -
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I’m not really sure where I wanted to go with this rant but I know there is a lot of hate out there for salads and I just want to say that they’re pretty awesome and under appreciated, so yaaa thanks for reading 💚💙 send me your thoughts on salads! .
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#salad #rant #saladlove #romainelettuce #chickenceasarsalad # #diyu #ibs #blogging #foodie #healthyfood #feelgoodfuel #canadianblogger #canadianblog #diyublog #lifestyleblog #feelgood #colondisease #stomachstuff #yummy #food #foodforthought #healthyoption

Everyday seems like a new issue, people think your out of your mind when you say what's wrong,after they ask you how have you've been doing,your mind just goes dahhh,so hence, it doesn't matter to anyone how you are doing or feeling. #fibromyalgia #chronicillness #anxiety #anxietyrelief #colondisease #coloncancer #coloncancerawareness #coloncleanse #deppression #medicalmarijuana #cbdoil #hemplife #medicine

Update time!

Skyla is doing well. She's been in pain but they're keeping her as comfortable as possible! Besides pain, she's back to being her happy, giggly, smiley self. (:
She's wanting to move around again as well, but she isn't trying to go any farther than being on her side. She understands pretty well that her tummy is hurting.
She won't sleep without me. Her hospital bed just gets used as a changing table at this point because she will only sleep on me.
She's pooing now, it's very painful for her though. We were doing diaper changes every 10-15 minutes but things are starting to slow down now.
She's having trouble with keeping her feeds down so there's concerns with that. Hopefully she'll be able to start keeping her feeds down soon.

If she can keep her feeds down and eat the amount she normally does, she'll be discharged tomorrow.

#7monthsold #sevenmonthsold #hirchsprungsdisease #hirchsprungswarrior #hirchsprungs #hirchsprungsawareness #helpforhirchsprungs #hirchsprungsawarenessmonth #colondisease #invisibleillness #hospitalized #warrior #fighter #recovery #surgeryrecovery #prayformybabygirl #keeptheprayerscoming #shithappens #poopproblems #iloveyoubabygirl #iloveyou #mystrongbaby #mybaby #mydaughter #cardonschildrenshospital #instababies #babiesofinstagram #proudmom #instamom

I know I post these every year but #colonhealth is important. Colon cancer in on the rise in those below the age of 40. I was 21 when I had my first colonoscopy. Pay attention to your body, talk to your doctors about potential symptoms and follow their advice. #coloncancer is curable when caught early. #regularscreenings have kept me #cancerfree for 27 years now... hopefully 28. #psa #colondisease #attenuatedfamilialadenomatouspolyposis #colonoscopy #egd #biopsy #esophagealdilation #publicserviceannouncement #colonoscopiessavelives #barrettsesophagus #eosinophilicesophagitis #polyps #twoforthepriceofone #hiatalhernia #diverticulosis #silentdisease

Today was my Skyla's pull through surgery for Hirchsprung's Disease, her anus reconstruction, & appendix removal.
I've been through a hell of a lot in my life but nothing will ever compare to being as hard as today was when I gave my baby to the doctor to leave for her 5 hour surgery..
When they took her, she just stared at me as they walked away with her..
I broke down, so did her dad..
I cried for a long time...
Without Justin & the family I have now, I wouldn't have gotten through this.

Her surgery was a success. They thought they would need to do it in 2 parts because they weren't sure if the remaining portion of her colon would be healthy enough to use, but luckily it was. I recieved a phone call every hour of the 5 hour surgery with updates.
After her surgery, she struggled. She projectile vomited terribly 4x within maybe 40 minutes. It took being given medicine for it to help make it stop. She also had to be given pain medication because of the pain.
They plan on making sure she's kept comfortable so she won't have pain issues.

I will keep updates coming.
Thank you to everyone who prayed for her.
This big step may be over, but she now has to get through this recovery.
Hirchsprung's Disease is a life long disease and we plan on making sure she has the best life no matter what.
My girl is a warrior. ❤

#7monthsold #sevenmonthsold #hirchsprungsdisease #hirchsprungswarrior #hirchsprungs #hirchsprungsawareness #helpforhirchsprungs #hirchsprungsawarenessmonth #colondisease #invisibleillness #warrior #fighter #surgery #operation #recovery #surgeryrecovery #beforeandafter #prayformybabygirl #keeptheprayerscoming #shithappens #poopproblems #iloveyoubabygirl #iloveyou #mystrongbaby #mybaby #mydaughter #instababies #babiesofinstagram #proudmom #instamom

Skyla has been diagnosed with Hirchsprung's Disease & a prosterior anus and will be having a 3-5 hour surgery to remove the affected area of the colon due to the HD & the rest of the colon will be pulled down and attached to the rectum. During the surgery, she'll be having her anus reconstructed as well. She'll also be having her appendix removed too during the surgery.
She's been in pain due to her Hirchsprung's and is having trouble holding down her feedings. I'm dreading this surgery so much and am truly scared and worried.
Everyone keeps telling me that they could never tell she has such a serious issue going on. She is the happiest baby!
I really hope to see her feeling so much better after this surgery. We know HD is a life long disease but this momma will do everything possible to make sure she will have the best life possible!
I will keep everyone updated on what happens.
Thank you all for the support!

#hirchsprungsdisease #Hirchsprungs #hirchsprungsbaby #hirchsprungswarrior #Hirchsprungsawareness #helpforhirchsprungsdisease #prosterioranus #fighter #warrior #operation #surgery #reconstruction #colondisease #shithappens #poopproblems #mygirl #skylaroseelam #myprincess #stronggirl #iloveyou #proudmom #instababies #babiesofinstagram

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Quick yoga session this morning 🧘🏼‍♀️ some nice belly breaths to my energy chakra, to banana pose stretching out my side, to cat tail twist. Love this quick sequence after a meal to help everything stretch out and go through my system happily aha! Hope you all are having a lovely start to your week! Remember to slow does and take everything in 🕉
#irritablebowelsyndrome #diyu #ibs #blogging #dancinginyourunderwear #canadianblogger #canadianblog #diyublog #lifestyleblog #listentoyourbody #colondisease #sensitivegut #lifestyleblogger #listentobody #3deepbreaths #relaxrecharge #yoga #yogasequence #morningyoga #riseandshine #blackanswhite

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