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#chronickidneydisease

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Celebratory off of prednisone selfie 👏👏👏 7 months later I'm finally done. #selfie #chronickidneydisease #iganephropathy #prednisone #finallylosingweight

Photo by @edkashi/@viiphoto D.M. Wimaladharma, 48, a former rice farmer who has CKDu rests on a cot at the Suwodaya Patient's House in Anuradhapura, Sri Lanka on July 3, 2016. This facility provides dialysis patients who have traveled many hours a place to sleep and rest for free, so they can get dialysis in the main hospital. Wimaladharma has been on dialysis for 4 years and cannot work anymore. He is married with 2 children. #ckdu #chronickidneydisease @laislafoundation #srilanka

Jadi ini cara megang kepala kucing yg bener pas syringe feed. Ga boleh nyentuh area leher krn dia akan jd ga nyaman. Selama ini aku cubit leher belakang tnyt salah ya! Semogaa selanjutnya berhasil buat Elis..🙏
#syringefeed #syringefeedtutorial #syringefeedvideo #ckdcat #chronickidneydisease

So Iv been contemplating whether I should post about this for a while now. But here it goes. In October 2016, I was diagnosed with stage 5 renal failure. In a nutshell: that means I need a new kidney. My only hesitation about posting about this online is that Iv been concerned about people thinking that I'm looking for attention. And I know there are going to be those people who think that hey. But as long as I know I'm posting about this to bring awareness to kidney disease, then I'm happy with that. I started writing a blog because when I was diagnosed, I could not find stories or journeys of others online. So if I can help at least one person with their journey or help one person with their diagnoses, then I will be happy. Link is in my bio (LOL). There's a mixture of posts so far but if you want to know about how I found out I was sick and how I'm coping, go and have a read. I need to post an update soon but that will happen next week sometime xx

...presenting brother-in-law as a chronic disease resource with lifelong treatment testimonial from the patient side..
Thanks bro 'papi' @tianratong @tianr84, very touching.. 🙄😐
#chronickidneydisease
#lifelongtreatment
#humanprofesionalismandculturalcompetencemodule

This is what I'm up to this morning, woke up at 05:55 with the sudden urge to throw up 🤢
Feeling sick but I cancelled last week due to feeling unwell
It's for a good cause as one day it may help me so why not!
#kidneyresearchuk #chronickidneydisease

More testing needed but after 18 vials of blood & gallons of urine I am confirmed to have the same blood type as my son meaning I may be his kidney donor!! 🦋🦋🦋🦋 #thankGod #guardianangelswatchingoverus #chronicrenalfailure #chronickidneydisease #wishusluck

Ya, permandangan biasa. 3 helai kain pelikat di ampaian.
Cuma, pada perasaan ain dengan 3 helai kain pelikat ni cukup buat jiwa ain bagai terhiris-hiris bah.
Ain basuh kain pelikat abah dengan linangan air mata sederas hujan yang dalam awan gelap. Ain berus setiap inci kain abah dengan jiwa yang sangat sayu dan pedih bah. Walau sebenarnya abah cuma di luar pintu bilik air, walau sebenarnya ain masih mampu mendengar suara abah.
Terima kasih bah sebab dulu selalu basuhkan,perah dan jemur kain lampin ain. Tak ada satu pun jasa abah yang mampu ain balas. Ain cuma mampu doakan supaya Allah ringankan sakit abah, beri sedikit kebahagiaan kepada abah.
Moga-moga yang terbaik buat abah. Setakat itu lah dan kita semua redha dengan sakit abah.
Sesungguhnya Dia maha mengetahui bah. 😔
#sayangabah
#pesakitbuahpinggang
#chronickidneydisease
#syafakallahabah

Know the foods to stay away from if you have #CKD. #nationalkidneyfoundation #chronickidneydisease #kidneyhealth

MOST RECENT

A year ago yesterday i lost my best friend and had him removed after going into septic shock. After spending 2months in the hospital with fevers after dialysis we realized too late that Mr.Kidney was no more and needed a Nephrectomy to take him out. He was with me for a total of 7years before he gave out on me. Technically he reached his lifespan for a cadaveric kidney, and withstood so many procedures and a total of 2rejections. Not only did Mr.Kidney teach me how delicate transplanted kidneys can be, he taught me that kidneys in general are very important. I've had my fair share of mistakes that may or may not have led to me losing Mr.Kidney, but i learned from those mistakes so i can take better care of kidney number 2. So excuse my fatness but i painted a kidney on my body in memory of Mr.Kidney #kidneyproblems #kidneysareimportant #kidneysarecool #chronickidneydisease #polycystickidneydisease #mrkidney #dialysislife💉💊 #livingwithckd #waitingonmykidney #organdonationsaveslives

I just put up a new vlog if anyone wants to check it out! Sorry if I talk super fast. I tend to distract myself and am a bit scatterbrained😂😂

YouTube:Spooniechey
(Link is in the bio)🎃🍁🍂🍃

Also the second picture is a slice of my favorite cake ever. It’s so pretty I had to post.😭🎂

#Peritonealdialysis #ckd #chronickidneydisease #chronicillness #motivation #inspiration #strengthisbeauty #donatelife #organdonor #kidney #kidneyfailure #vlogger #ckd #dialysis #kidneydisease #transplant #love #transplants #ca #la #sd #oc #october #youtube #vlog #horrornights #halloweenhorrornights #food #cake #hhn #universalstudios

Everything went wrong for me to get out for my long run tonight😤..., I had to resort to going to the Gym and slogging 2hrs out on the treadmill..., that there is the photo of a man an hour into a treadmill run with his soul being removed from his body😋..., tomorrow is another day👊🏻💥

For anyone transitioning to peritoneal dialysis. There’s always a chance you’ll run into problems whether it’s bleeding, discomfort with fills and drains, or even constipation(Watch out!)

I had a lot of bleeding when I first got my surgery and it made me really scared.😱 I had active bleeding for a few days and had to change my gauzes constantly because they would fill up with blood. Since I have anemia, losing blood made me very worried. I finally went to the er which wouldn’t admit me for hours so I left and went to my surgeon and he assured me the bleeding was ok.

If you’re ever worried about an operation you just got done, don’t be afraid to contact your surgeon or doctor. And if they say you’re ok, trust them! Ask them if the condition you’re in is normal. It’ll bring you some comfort.

And you can always ask me too if you want a quick answer, but don’t rely on my answer solely, I’ll just let you know depending on my own experiences with pd, dialysis, etc.

Dialysis in words seems like a simple process but there’s SOOOO much more small things related to it that you can’t see till you experience it.

#Peritonealdialysis #ckd #chronickidneydisease #chronicillness #motivation #inspiration #strengthisbeauty #donatelife #organdonor #kidney #kidneyfailure #ckd #dialysis #kidneydisease #transplant #love #transplants #ca #la #sd #oc #october

#lunch 2.5 oz #raw #peeled #cucumber 1.5 oz #stella #fetacheese 30g #marketbasket #mixednuts (only 2 carbs for the market basket brand!) & 1 #strawberry not sure how much longer I can go on #keto diet due to my #chronickidneydisease 😢because my #creatinine level is too high & my #gfr is too low! #ketodiet #ketogenicdiet #ketolife #ketolifestyle

The greatest HERO I never knew was the ORGAN DONOR who saved My LIFE.

My donor's name was Francisco I never knew him but I met his family who told me about him and how good a person he was I'm blessed to be able to make it this far because of him.

#beahero #beaorgandonor
#savealife #kidneydonation #hopeisheart #kidneydisease #kidneysiseaseawareness #transplant #kidneys #kidneywarrior #hero #endstagerenaldisease #esrd #ckd #chronickidneydisease #kidneyfailure

Was really interesting to sit and listen to a variety of presentations from people involved in different aspects of renal medicine. #nationalkidneyfederation #NKF #kidneydisease #chronickidneydisease #kidneytransplant #dialysis #whyilikesharedcare @nkf.uk

Had a really good couple of days last weekend at the annual conference for @nkf.uk. #nationalkidneyfederation #NKF #kidneys #kidneydisease #chronickidneydisease #kidneytransplant #dialysis

Hiii🎃I made a YouTube so I can vlog and make videos. I’m trying to show daily life with having chronic illness. It’s just the beginning and my videos are going to be spotty because sometimes my fatigue just won’t let me do anything. But I love editing and filming so I’ll try to get these out more. But please check out my two videos and let me know what you think! Much appreciated🌞💚

❄️YouTube search:Spooniechey

Link will be in bio also! Thank you


#Peritonealdialysis #ckd #chronickidneydisease #chronicillness #motivation #inspiration #strengthisbeauty #donatelife #organdonor #kidney #kidneyfailure #ckd #dialysis #kidneydisease #transplant #love #transplants #ca #la #sd #oc #youtube #vlog #youtubechannel

My favourite girl had what we think was a seizure last night and things were touch & go (& very emotional) for the night 😔 We made it to today, the vet visit was inconclusive but pretty positive. She is comfortable and seems to be regaining her appetite. Gratefully accepting all the positive vibes that can be sent our way 💙💙💙
#lillibear

Big thanks to our amazing friends, the #RedbackGarrison - 501st Legion troopers, who were out in force at Brisbane's Oz Comic-Con recently and raised $3,260 for Kidney Health Australia. Love your work! ❤️

Sorry I’ve been mia the last few days! Was a bit overwhelmed and tired.. but getting better.

Received a gift card to a fancy place so we had a super nice dinner 😵 I felt a bit out of place, but it was a great experience and we had some amazing food🌞

Going to try to post more on here. Especially going to try and be more unfiltered because I want to be as real as I can. Thanks for following my journey💚

Also it wasn’t actually our anniversary, but go big or go home! 😂
#Peritonealdialysis #ckd #chronickidneydisease #chronicillness #motivation #inspiration #strengthisbeauty #donatelife #organdonor #kidney #kidneyfailure #ckd #dialysis #kidneydisease #transplant #love #transplants #ca #la #sd #oc #food

...presenting brother-in-law as a chronic disease resource with lifelong treatment testimonial from the patient side..
Thanks bro 'papi' @tianratong @tianr84, very touching.. 🙄😐
#chronickidneydisease
#lifelongtreatment
#humanprofesionalismandculturalcompetencemodule

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