385 posts


I lost over 25 lbs. of muscle when I was diagnosed with #chronicinflammatorydemyelinatingpolyneuropathy (#CIDP) that further made me feel uncomfortable with my body. I recently started going to the gym with a personal trainer to build better confidence in self which seems promising...But I just want you to know that I've now changed my name to #SojuPapi. Also, sorry mom!

HUGE Step! Treatment #29 is a HALF Dose!!! This is my first half dose and am trying to wean and taper down off treatments πŸ™πŸΌ Please help pray with me for continued progress and getting closer to a healthier and stronger me!!! πŸ’œπŸ™πŸΌπŸ’ͺπŸ½πŸ’˜ #gbs #cidp #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy

New blog post up on my website! www.hollygerlach.com

#CIDP #chronicinflammatorydemyelinatingpolyneuropathy

Thank you friends and family for continuing to be wonderfully supportive of Faithy, and her journey. She has a couple more visits to CHLA for IVIG infusion and follow up appointments with her amazing doctor. Sometimes I look back at the pictures and videos, and wonder how we got through this. I am immensely grateful to EVERYONE who came to visit, brought food, bought a coffee/juice, sent a card or a gift, called, texted, emailed, clicked "like", messaged, prayed, and just thought of us even if it was just for a moment. I love you all....... B #chla #chronicinflammatorydemyelinatingpolyneuropathy

The reality of an invisible illness..spending hours/days in the hospital, racking up thousands of dollars in medical bills, going through torturous tests and procedures just to be judged based on the way we look...and yes I'm aware I have some long fingers! #iamapreexistingcondition #invisibleillness #chronicillness #disabled #chronicpain #butyoudontlooksick #spoonie #autoimmunedisease #CIDP #chronicinflammatorydemyelinatingpolyneuropathy #guillainbarresyndrome #fibromyalgia #arthritis

My new #bravelets came! This one in honor of my dad who lost his battle with #CIDP almost two months ago at age 61. If you're unfamiliar with this rare disease and want to know more about it visit http://www.gbs-cidp.org/ #chronicinflammatorydemyelinatingpolyneuropathy #gbs #cancersucks

Thank you so much to the @dailymail for featuring my story! I'm so glad to be spreading awareness about Guillain Barre Syndrome!
I'll put the link in my bio!



Treatment kicked my a$%! I am so weak and it is difficult to do much without assistance. There are highs and lows, but these lows suck. I hate being like this. I know my body is trying to adjust and transition...but it's hard to keep a smile on and be positive. Ill just keep pushing through as best I can, and rest to recover. I have to listen to my body and rest. Staying home today, Sunny knows when I am sick and don't feel good. These extra cuddles help πŸ’œ#gbs #cidp #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy #chronicillness #cockapoosofinstagram #cockapoopuppy

Made a surprise visit to my GBS/CIDP sister Miss Rachael today! Even brought the puppies along too!!! Keep up the amazing work girl - you are so strong! We love you! πŸ’˜πŸ’˜πŸ’˜ #gbs #cidp #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy #chronicillness #cockapoopuppy #cockapoosofinstagram

#30! Kiss that treatment bag GOODBYE! πŸ’‹πŸ’ͺπŸ½πŸ’œβœŒπŸΌοΈπŸ’‰ (If everything continues to improve while I wean off treatment) I'll meet with my neurologist in 2-3 months and touch base to make a next step of action! These next few months will be challenging having my body adjust, so I have to take it easy....but gosh, this gives me hope and motivation!!! Over 1 1/2years, I'm starting to see a glimmer of light ✨ I hope this doesn't jinx it but I am so hopeful! I have a loooong road ahead since I'll have this my whole life, but I am fighting! πŸ’ͺ🏽 #gbs #cidp #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy #chronicillness

I am so exhausted and physically drained, walking just to the bathroom kicks my booty...but I WILL keep pushing forward. Some days are my good ones, and my bad ones seem even lower - but I have to change the way that I feel sorry for myself. I NEED to keep trying! πŸ’ͺ🏽"As long as you feel pain, you’re still alive. As long as you make mistakes, you’re still human. And as long as you keep trying, there’s still hope." πŸ’˜ #gbs #cidp #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy

Another Monday, another Physical Therapy session! Now time for more STIM and getting iced πŸ’ͺ🏽 I am physically so exhausted and drained but I am gonna keep kicking booty and fighting this fight! πŸ‘ŠπŸΌ #gbs #cidp #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy

New post is about putting yourself first! Link in Bio!!! πŸ’˜πŸ’˜πŸ’˜ #gbs #cidp #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy #blogger

Starting the week off at Physical Therapy bustin my booty! Time to ice and use STIM πŸ™ŒπŸ½ #cidp #gbs #chronicinflammatorydemyelinatingpolyneuropathy #guillainbarresyndrome #physicaltherapy

I had the honor and pleasure to meet a new GBS/CIDP Sister!!! Through the grape vine of other GBS Warriors (@thegimpygirlwhocould ), we made a connection to meet! Rachael is 14 years old and is from Kansas, and is now stationed in Nebraska! She in the early stages of her rehabilitation and is making HUGE improvements! Though the road to get to her goals seems out of reach and near impossible at times, she maintains a positive outlook with the sweetest smile on her face! She is so STRONG - BEAUTIFUL - and BRAVE πŸ’˜ Please keep her and her family in your prayers! #cidp #gbs #guillainbarresyndrome #chronicinflammatorydemyelinatingpolyneuropathy

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